Insensitive people!

2

2perfectboys

Guest
I would think CF should not come up in 98% of interviews, it actually crosses the legal aspect, unless YOU volunteered it.
 

ReneeP

New member
I, too, find it insensitive for people to throw at you every bad thing they know about CF when they find out you (or a family member) has it. We don't go around to every person we see who is overweight saying "my cousin died complications relating to her being so fat"... or to people who have diabetes saying "my uncle had to have both legs removed, lost his eye site and died of it"... I mean, we know the problems of CF but that doesn't mean it has to be thrown in our face every time we take a breath. I don't think people realize it's insensitive until it is too late.

I had the unfortunate experience of having to have Thanksgiving dinner with my husband's family this year and nearly jumped out of my skin with every comment. My daughter (who will be 12 next week and is in that age of extreme self consciousness) was eating and my sister-in-law said "you're going to get fat eating like that". I jumped up and went into an explanation of CF calorie needs and all but it wasn't but a few minutes later that my brother-in-law looked at my 7 year old daughter (who also has CF) and said "well it sure doesn't look like she has any weight problems, look at that belly on her"... that did it for me. Kacie is very small for her age but does have the typical pot belly and is also sensitive about it. My husband was out of town so he wasn't with us and so I finally just had to take the kids and leave. And they expect me back for Christmas dinner!!! Yeah right!
 

ReneeP

New member
I, too, find it insensitive for people to throw at you every bad thing they know about CF when they find out you (or a family member) has it. We don't go around to every person we see who is overweight saying "my cousin died complications relating to her being so fat"... or to people who have diabetes saying "my uncle had to have both legs removed, lost his eye site and died of it"... I mean, we know the problems of CF but that doesn't mean it has to be thrown in our face every time we take a breath. I don't think people realize it's insensitive until it is too late.

I had the unfortunate experience of having to have Thanksgiving dinner with my husband's family this year and nearly jumped out of my skin with every comment. My daughter (who will be 12 next week and is in that age of extreme self consciousness) was eating and my sister-in-law said "you're going to get fat eating like that". I jumped up and went into an explanation of CF calorie needs and all but it wasn't but a few minutes later that my brother-in-law looked at my 7 year old daughter (who also has CF) and said "well it sure doesn't look like she has any weight problems, look at that belly on her"... that did it for me. Kacie is very small for her age but does have the typical pot belly and is also sensitive about it. My husband was out of town so he wasn't with us and so I finally just had to take the kids and leave. And they expect me back for Christmas dinner!!! Yeah right!
 

ReneeP

New member
I, too, find it insensitive for people to throw at you every bad thing they know about CF when they find out you (or a family member) has it. We don't go around to every person we see who is overweight saying "my cousin died complications relating to her being so fat"... or to people who have diabetes saying "my uncle had to have both legs removed, lost his eye site and died of it"... I mean, we know the problems of CF but that doesn't mean it has to be thrown in our face every time we take a breath. I don't think people realize it's insensitive until it is too late.

I had the unfortunate experience of having to have Thanksgiving dinner with my husband's family this year and nearly jumped out of my skin with every comment. My daughter (who will be 12 next week and is in that age of extreme self consciousness) was eating and my sister-in-law said "you're going to get fat eating like that". I jumped up and went into an explanation of CF calorie needs and all but it wasn't but a few minutes later that my brother-in-law looked at my 7 year old daughter (who also has CF) and said "well it sure doesn't look like she has any weight problems, look at that belly on her"... that did it for me. Kacie is very small for her age but does have the typical pot belly and is also sensitive about it. My husband was out of town so he wasn't with us and so I finally just had to take the kids and leave. And they expect me back for Christmas dinner!!! Yeah right!
 

LouLou

New member
Why were you discussing cf in an interview????
Unless you can't fulfill the needs of the job it really shouldn't come up and then even then you should realize that you probably won't get the job not because of discrimination but because you told them you can't do whta they are looking for.

If you are looking for special provisions on the job. During the interview is not the time to ask for them. After you accept the job you can discuss how you need whatever you need (extra bathroom priviledges, snacks allowed at desk or whatever)

Personally I think we should be encouraging anyone that has any experience or knowledge about cf to be discussing it. Spread awareness! Until recently everyone with cf died of cf. I have had many encounters with people that have lost a special person to cf. To tell them they shouldn't speak of it is INSENSITIVE!! Take it as an opportunity to educate people about how there are different mutations and different severities of the disease.

But again, why were discussing this in an interview??
 

LouLou

New member
Why were you discussing cf in an interview????
Unless you can't fulfill the needs of the job it really shouldn't come up and then even then you should realize that you probably won't get the job not because of discrimination but because you told them you can't do whta they are looking for.

If you are looking for special provisions on the job. During the interview is not the time to ask for them. After you accept the job you can discuss how you need whatever you need (extra bathroom priviledges, snacks allowed at desk or whatever)

Personally I think we should be encouraging anyone that has any experience or knowledge about cf to be discussing it. Spread awareness! Until recently everyone with cf died of cf. I have had many encounters with people that have lost a special person to cf. To tell them they shouldn't speak of it is INSENSITIVE!! Take it as an opportunity to educate people about how there are different mutations and different severities of the disease.

But again, why were discussing this in an interview??
 

LouLou

New member
Why were you discussing cf in an interview????
Unless you can't fulfill the needs of the job it really shouldn't come up and then even then you should realize that you probably won't get the job not because of discrimination but because you told them you can't do whta they are looking for.

If you are looking for special provisions on the job. During the interview is not the time to ask for them. After you accept the job you can discuss how you need whatever you need (extra bathroom priviledges, snacks allowed at desk or whatever)

Personally I think we should be encouraging anyone that has any experience or knowledge about cf to be discussing it. Spread awareness! Until recently everyone with cf died of cf. I have had many encounters with people that have lost a special person to cf. To tell them they shouldn't speak of it is INSENSITIVE!! Take it as an opportunity to educate people about how there are different mutations and different severities of the disease.

But again, why were discussing this in an interview??
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Allie</b></i>

Okay, nobody shove a stick of dynamite up my bum ...PLEASE!!!



I don't think it's rude to tell someone with CF, that you knew someone who had CF, and passed on. It's a fact of the disease, they aren't saying it to be rude. They would tell you if they knew someone with CF who was alive, too. Whenever someone mentioned CF, I would mention that my husband had it. I'm not going to stop mentioning the connection I had to CF just because he passed away. An adult with CF knows the facts of CF. I'm not trying to be rude, honestly, I just do not find it insensitive. I didn't find it insensitive when Ry was alive and someone told me they knew someone who had died of CF either. Just trying to present a different view.



As to the nurse telling you how awful it WAS....I would counter with how awful it still is......it's not cured, or even well controlled. MUCH work still needs to be done, and as a nurse, she should know that.</end quote></div>

I agree with allie 100%. Imagine that - someone hearing of someone with CF dying. You brought up CF and this was his knowledge of it.

And ya, CF used to be and still is a bad disease - the nurse was right.

Facts are facts, girl.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Allie</b></i>

Okay, nobody shove a stick of dynamite up my bum ...PLEASE!!!



I don't think it's rude to tell someone with CF, that you knew someone who had CF, and passed on. It's a fact of the disease, they aren't saying it to be rude. They would tell you if they knew someone with CF who was alive, too. Whenever someone mentioned CF, I would mention that my husband had it. I'm not going to stop mentioning the connection I had to CF just because he passed away. An adult with CF knows the facts of CF. I'm not trying to be rude, honestly, I just do not find it insensitive. I didn't find it insensitive when Ry was alive and someone told me they knew someone who had died of CF either. Just trying to present a different view.



As to the nurse telling you how awful it WAS....I would counter with how awful it still is......it's not cured, or even well controlled. MUCH work still needs to be done, and as a nurse, she should know that.</end quote></div>

I agree with allie 100%. Imagine that - someone hearing of someone with CF dying. You brought up CF and this was his knowledge of it.

And ya, CF used to be and still is a bad disease - the nurse was right.

Facts are facts, girl.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Allie</b></i>

Okay, nobody shove a stick of dynamite up my bum ...PLEASE!!!



I don't think it's rude to tell someone with CF, that you knew someone who had CF, and passed on. It's a fact of the disease, they aren't saying it to be rude. They would tell you if they knew someone with CF who was alive, too. Whenever someone mentioned CF, I would mention that my husband had it. I'm not going to stop mentioning the connection I had to CF just because he passed away. An adult with CF knows the facts of CF. I'm not trying to be rude, honestly, I just do not find it insensitive. I didn't find it insensitive when Ry was alive and someone told me they knew someone who had died of CF either. Just trying to present a different view.



As to the nurse telling you how awful it WAS....I would counter with how awful it still is......it's not cured, or even well controlled. MUCH work still needs to be done, and as a nurse, she should know that.</end quote></div>

I agree with allie 100%. Imagine that - someone hearing of someone with CF dying. You brought up CF and this was his knowledge of it.

And ya, CF used to be and still is a bad disease - the nurse was right.

Facts are facts, girl.
 
J

Jade

Guest
Not trying to get off topic but Allie mentioned something that caught my eye in her last line. <u><b>Not even well controlled</b></u>. I can relate to that cause very few CF meds actually work for me and I think my doc sometimes thinks I'm not taking the stuff everyday. Advair is useless & most inhaled meds never get into me when I'm sick. I only hope for better control methods in the near future so everyone with CF can benefit from it. I said this because I think if I had more control over my health all those insensitive words people say would not have any impact.
 
J

Jade

Guest
Not trying to get off topic but Allie mentioned something that caught my eye in her last line. <u><b>Not even well controlled</b></u>. I can relate to that cause very few CF meds actually work for me and I think my doc sometimes thinks I'm not taking the stuff everyday. Advair is useless & most inhaled meds never get into me when I'm sick. I only hope for better control methods in the near future so everyone with CF can benefit from it. I said this because I think if I had more control over my health all those insensitive words people say would not have any impact.
 
J

Jade

Guest
Not trying to get off topic but Allie mentioned something that caught my eye in her last line. <u><b>Not even well controlled</b></u>. I can relate to that cause very few CF meds actually work for me and I think my doc sometimes thinks I'm not taking the stuff everyday. Advair is useless & most inhaled meds never get into me when I'm sick. I only hope for better control methods in the near future so everyone with CF can benefit from it. I said this because I think if I had more control over my health all those insensitive words people say would not have any impact.
 

Axis

New member
Facts may well be facts, but have you never heard of a little thing called tact, sakasuka? I doubt that you point out to people who are overweight or unattractive that they are "fat and ugly", though doubless they themselves are aware of these "facts". And why not? Because it is incredibly unkind and insensitive to do so. Just as pointing out to someone who has a particular illness that people die of it. YES of course we are all well aware that CF is eventually fatal. But to mention it in an initial conversation with someone you've just met??? I vote that the comment was insensitive.

Axis
 
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