Marla,
I was also "diagnosed" with Crohn's when i was younger, but failed to have all the usual symptoms. I now believe it's not Chrohn's but DIOS (distal intestinal obstruction syndrome) which often happens to CF patients. I take one dose of Miralax (over the counter laxative) every night after dinner and it has done wonders. Not sure if that helps or not, but thought I'd share.