It's been a year since we found out.....

[SARAHSARAH253]

Thank you sooo much for your kind words and stories. This website can be such a comfort....

Mommy to Johnny
1 years old w/cf...or do I should I say 13 months..

 

[SARAHSARAH253]

Thank you sooo much for your kind words and stories. This website can be such a comfort....

Mommy to Johnny
1 years old w/cf...or do I should I say 13 months..

 

[SARAHSARAH253]

Thank you sooo much for your kind words and stories. This website can be such a comfort....

Mommy to Johnny
1 years old w/cf...or do I should I say 13 months..

 

[SARAHSARAH253]

Thank you sooo much for your kind words and stories. This website can be such a comfort....

Mommy to Johnny
1 years old w/cf...or do I should I say 13 months..

 

[SARAHSARAH253]

Thank you sooo much for your kind words and stories. This website can be such a comfort....
<br />
<br />Mommy to Johnny
<br />1 years old w/cf...or do I should I say 13 months..

 

[Ratatosk]

It seems that time just goes so fast that when we got to DS' first birthday -- it still seemed like only yesterday. Kept remembering where we were, his surgery, recovery -- feelings of fear, anger, grief...

I also think about how fortunate we were that things just fell into place. Didn't seem like it at the time, but now I can look back and think how lucky we were that the local pediatric surgeon was on vacation because I'm not so sure the outcome would've been so good. After DS was lifeflighted to the city, he was operated on for 4 1/2 hours -- ended up being a very complicated surgery, we were put into contact with a great CF doctor whose proactive.

Gets better with time. But I still get teary eyed each year and I still worry about the future, the what-ifs.

 

[Ratatosk]

It seems that time just goes so fast that when we got to DS' first birthday -- it still seemed like only yesterday. Kept remembering where we were, his surgery, recovery -- feelings of fear, anger, grief...

I also think about how fortunate we were that things just fell into place. Didn't seem like it at the time, but now I can look back and think how lucky we were that the local pediatric surgeon was on vacation because I'm not so sure the outcome would've been so good. After DS was lifeflighted to the city, he was operated on for 4 1/2 hours -- ended up being a very complicated surgery, we were put into contact with a great CF doctor whose proactive.

Gets better with time. But I still get teary eyed each year and I still worry about the future, the what-ifs.

 

[Ratatosk]

It seems that time just goes so fast that when we got to DS' first birthday -- it still seemed like only yesterday. Kept remembering where we were, his surgery, recovery -- feelings of fear, anger, grief...

I also think about how fortunate we were that things just fell into place. Didn't seem like it at the time, but now I can look back and think how lucky we were that the local pediatric surgeon was on vacation because I'm not so sure the outcome would've been so good. After DS was lifeflighted to the city, he was operated on for 4 1/2 hours -- ended up being a very complicated surgery, we were put into contact with a great CF doctor whose proactive.

Gets better with time. But I still get teary eyed each year and I still worry about the future, the what-ifs.

 

[Ratatosk]

It seems that time just goes so fast that when we got to DS' first birthday -- it still seemed like only yesterday. Kept remembering where we were, his surgery, recovery -- feelings of fear, anger, grief...

I also think about how fortunate we were that things just fell into place. Didn't seem like it at the time, but now I can look back and think how lucky we were that the local pediatric surgeon was on vacation because I'm not so sure the outcome would've been so good. After DS was lifeflighted to the city, he was operated on for 4 1/2 hours -- ended up being a very complicated surgery, we were put into contact with a great CF doctor whose proactive.

Gets better with time. But I still get teary eyed each year and I still worry about the future, the what-ifs.

 

[Ratatosk]

It seems that time just goes so fast that when we got to DS' first birthday -- it still seemed like only yesterday. Kept remembering where we were, his surgery, recovery -- feelings of fear, anger, grief...
<br />
<br />I also think about how fortunate we were that things just fell into place. Didn't seem like it at the time, but now I can look back and think how lucky we were that the local pediatric surgeon was on vacation because I'm not so sure the outcome would've been so good. After DS was lifeflighted to the city, he was operated on for 4 1/2 hours -- ended up being a very complicated surgery, we were put into contact with a great CF doctor whose proactive.
<br />
<br />Gets better with time. But I still get teary eyed each year and I still worry about the future, the what-ifs.

 

[truckin4tucker]

I think it is completely normal to feel the way you are. It is a day you will never really forget, at least I know I will never forget that day. I must admit I still get these little mini-anxiety attacks whenever we go to the clinic where Tucker was diagnosed. Especially when they put us in the exact same exam room we were in when they told us the news about his CF! That is when all of the emotions and memories really start coming back full force. You are completely normal to feel this way. You will find as the years pass, some days are easier to deal with than others. But you will always be thankful and grateful for what God has blessed you with!

 

[truckin4tucker]

I think it is completely normal to feel the way you are. It is a day you will never really forget, at least I know I will never forget that day. I must admit I still get these little mini-anxiety attacks whenever we go to the clinic where Tucker was diagnosed. Especially when they put us in the exact same exam room we were in when they told us the news about his CF! That is when all of the emotions and memories really start coming back full force. You are completely normal to feel this way. You will find as the years pass, some days are easier to deal with than others. But you will always be thankful and grateful for what God has blessed you with!

 

[truckin4tucker]

I think it is completely normal to feel the way you are. It is a day you will never really forget, at least I know I will never forget that day. I must admit I still get these little mini-anxiety attacks whenever we go to the clinic where Tucker was diagnosed. Especially when they put us in the exact same exam room we were in when they told us the news about his CF! That is when all of the emotions and memories really start coming back full force. You are completely normal to feel this way. You will find as the years pass, some days are easier to deal with than others. But you will always be thankful and grateful for what God has blessed you with!

 

[truckin4tucker]

I think it is completely normal to feel the way you are. It is a day you will never really forget, at least I know I will never forget that day. I must admit I still get these little mini-anxiety attacks whenever we go to the clinic where Tucker was diagnosed. Especially when they put us in the exact same exam room we were in when they told us the news about his CF! That is when all of the emotions and memories really start coming back full force. You are completely normal to feel this way. You will find as the years pass, some days are easier to deal with than others. But you will always be thankful and grateful for what God has blessed you with!

 

[truckin4tucker]

I think it is completely normal to feel the way you are. It is a day you will never really forget, at least I know I will never forget that day. I must admit I still get these little mini-anxiety attacks whenever we go to the clinic where Tucker was diagnosed. Especially when they put us in the exact same exam room we were in when they told us the news about his CF! That is when all of the emotions and memories really start coming back full force. You are completely normal to feel this way. You will find as the years pass, some days are easier to deal with than others. But you will always be thankful and grateful for what God has blessed you with!

 

[sweetwhite32]

Your definately having normal responses...It starts out hard and sometimes you feel you won't make it through ..As the years go by it does get easier .. But when hospitalizations happen and them good old bad clinic days,it will be tough....Other times you won't think to much of it...The good days will be cheerished and the bad days brings us to appreciate the good ones ....It has been 6 yrs since isaiah was diagnosed and i could not celebrate his b day yesterday,it was a bad horrifying battle day for me (his birth)so ,unsurprizing moments happen......your normal so never think other wise.<img src="i/expressions/face-icon-small-confused.gif" border="0">

 

[sweetwhite32]

Your definately having normal responses...It starts out hard and sometimes you feel you won't make it through ..As the years go by it does get easier .. But when hospitalizations happen and them good old bad clinic days,it will be tough....Other times you won't think to much of it...The good days will be cheerished and the bad days brings us to appreciate the good ones ....It has been 6 yrs since isaiah was diagnosed and i could not celebrate his b day yesterday,it was a bad horrifying battle day for me (his birth)so ,unsurprizing moments happen......your normal so never think other wise.<img src="i/expressions/face-icon-small-confused.gif" border="0">

 

[sweetwhite32]

Your definately having normal responses...It starts out hard and sometimes you feel you won't make it through ..As the years go by it does get easier .. But when hospitalizations happen and them good old bad clinic days,it will be tough....Other times you won't think to much of it...The good days will be cheerished and the bad days brings us to appreciate the good ones ....It has been 6 yrs since isaiah was diagnosed and i could not celebrate his b day yesterday,it was a bad horrifying battle day for me (his birth)so ,unsurprizing moments happen......your normal so never think other wise.<img src="i/expressions/face-icon-small-confused.gif" border="0">

 

[sweetwhite32]

Your definately having normal responses...It starts out hard and sometimes you feel you won't make it through ..As the years go by it does get easier .. But when hospitalizations happen and them good old bad clinic days,it will be tough....Other times you won't think to much of it...The good days will be cheerished and the bad days brings us to appreciate the good ones ....It has been 6 yrs since isaiah was diagnosed and i could not celebrate his b day yesterday,it was a bad horrifying battle day for me (his birth)so ,unsurprizing moments happen......your normal so never think other wise.<img src="i/expressions/face-icon-small-confused.gif" border="0">

 

[sweetwhite32]

Your definately having normal responses...It starts out hard and sometimes you feel you won't make it through ..As the years go by it does get easier .. But when hospitalizations happen and them good old bad clinic days,it will be tough....Other times you won't think to much of it...The good days will be cheerished and the bad days brings us to appreciate the good ones ....It has been 6 yrs since isaiah was diagnosed and i could not celebrate his b day yesterday,it was a bad horrifying battle day for me (his birth)so ,unsurprizing moments happen......your normal so never think other wise.<img src="i/expressions/face-icon-small-confused.gif" border="0">