I am in the same situation. I've been paddling my little canoe with one oar for awhile now it seems. Lots of hospitalizations (7 in the last calendar year) and lots of short term disability. I'm in the process of applying for long term disability.
Tonight as my husband and I sat in the dr.'s office, I said to him "you know, I think I've reached the point where I actually feel disabled." It's as though I know I've pushed as hard as I can, and done an excellent job of doing my best with what I've been given.
The time has come to admit that yes, I do need to transition to a time in life where my health is not just number 1 on a list of top 10 things I care about, but #1 on the only 10 things I care about. That's not to say I'm defeatist. I've been through a lot, and now it's time to readjust. New treatments, more frequent CPT, and perhaps only a 20 hr a week job (if that.)
To answer your question about working at home, I do. I'm a professional freelance writer, transcriber and "creative consultant." Freelance is nice because of the flexibility. I've been fortunate enough to have enjoyed a bit of success in my writing endeavors. I'm naturally a "go-getter" so I make things work to my advantage wherever I can. I collect business cards (and leave my own) almost everywhere I go, because you never know when a connection may prove fortuitous.
Best wishes to you, my friends as you find the right solutions for yourselves. We all have our different tolerance levels, and our passions. I for one choose to believe that God didn't leave me here, he put me here. Subtle difference I know, but that point of view makes things that much better for me personally.
Warmly,
Lauren
p.s. don't forget to buy my book, <i>Dear Future Husband</i> I should have some news tomorrow about where it's available!