Just curious

E

Emily65Roses

New member
I've fought with it. I tried to push Mike away for a year or so... on and off. But his response eventually stopped me. It was always the same. 1. I'm a big boy, I can make my own decisions. 2. I'd rather have less time with you than none at all. 3. I love you. 4. Shut up.
Hah.
I also tell everyone about the CF, I couldn't care less. Though I know that wasn't the question at hand. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
E

Emily65Roses

New member
I've fought with it. I tried to push Mike away for a year or so... on and off. But his response eventually stopped me. It was always the same. 1. I'm a big boy, I can make my own decisions. 2. I'd rather have less time with you than none at all. 3. I love you. 4. Shut up.
Hah.
I also tell everyone about the CF, I couldn't care less. Though I know that wasn't the question at hand. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JennifersHope

New member
I am the same as you Perky...I was not dx until my late 20's but I was single.. I still am... and really in the past year more men have showed an interest in me.. I still have not responded

there is one right now, one of the RT's I work with.. He has been my personal RT, so he has seen me at my worst gasping for air as I cough.. and he still wanted to date me...

He has called me a few times, and when ever I work, he asks me why I don't call him back.. I can tell you for certain that I can not deal with bringing CF into a relationship.... I can't bring my over steroid, very scared body ...and since I can not find a way to seperate from my body.. it is a no deal...

So I tend to blow ppl off, make up reasons... and I don't mind telling people I have CF .. I don't mind educatiing people.. but as it is, the people in my life such as my parents.. lives have been so negatively affected by my CF that I don't dare burdon anyone with it.....Healthy ?? No but just where I am at.. though hopefully I will change soon...
 
J

JennifersHope

New member
I am the same as you Perky...I was not dx until my late 20's but I was single.. I still am... and really in the past year more men have showed an interest in me.. I still have not responded

there is one right now, one of the RT's I work with.. He has been my personal RT, so he has seen me at my worst gasping for air as I cough.. and he still wanted to date me...

He has called me a few times, and when ever I work, he asks me why I don't call him back.. I can tell you for certain that I can not deal with bringing CF into a relationship.... I can't bring my over steroid, very scared body ...and since I can not find a way to seperate from my body.. it is a no deal...

So I tend to blow ppl off, make up reasons... and I don't mind telling people I have CF .. I don't mind educatiing people.. but as it is, the people in my life such as my parents.. lives have been so negatively affected by my CF that I don't dare burdon anyone with it.....Healthy ?? No but just where I am at.. though hopefully I will change soon...
 
J

JennifersHope

New member
I am the same as you Perky...I was not dx until my late 20's but I was single.. I still am... and really in the past year more men have showed an interest in me.. I still have not responded

there is one right now, one of the RT's I work with.. He has been my personal RT, so he has seen me at my worst gasping for air as I cough.. and he still wanted to date me...

He has called me a few times, and when ever I work, he asks me why I don't call him back.. I can tell you for certain that I can not deal with bringing CF into a relationship.... I can't bring my over steroid, very scared body ...and since I can not find a way to seperate from my body.. it is a no deal...

So I tend to blow ppl off, make up reasons... and I don't mind telling people I have CF .. I don't mind educatiing people.. but as it is, the people in my life such as my parents.. lives have been so negatively affected by my CF that I don't dare burdon anyone with it.....Healthy ?? No but just where I am at.. though hopefully I will change soon...
 
D

Diane

New member
I havent read all the replies to this and probably will later, but right now i am too tired. I always hid my cf till it came " time to tell ". I wanted people to get to know <b>me</b> as a person. Not me as a person with cf. Once i got to know someone better i would tell them then, that way cf was not the center of attention right from the start. Well i am older now ,and things with my cf have changed a bit, and it is getting harder and harder to hide. I do tend to shy away from relationships because i never had to incorporate my illness into a relationship before. I never had to do iv's and the vest, and inhaled medications etc. till the past 8 years or so. I really havent adjusted very well to incorporating all that into a relationship, but i am learning to slowly. I am like a wild animal in the sense that when i am sick i like to hide and not resurface till i am better and back to normal. Well lately i have been not hiding as much and have been getting more comfortable with people seeing my iv's when i am on them. In fact i was out today in a very public place where i knew a lot of people, and sported my iv like a champ. I did get one or two questions and answered them and left it at that. But i do understand exactly where you are coming from...........
 
D

Diane

New member
I havent read all the replies to this and probably will later, but right now i am too tired. I always hid my cf till it came " time to tell ". I wanted people to get to know <b>me</b> as a person. Not me as a person with cf. Once i got to know someone better i would tell them then, that way cf was not the center of attention right from the start. Well i am older now ,and things with my cf have changed a bit, and it is getting harder and harder to hide. I do tend to shy away from relationships because i never had to incorporate my illness into a relationship before. I never had to do iv's and the vest, and inhaled medications etc. till the past 8 years or so. I really havent adjusted very well to incorporating all that into a relationship, but i am learning to slowly. I am like a wild animal in the sense that when i am sick i like to hide and not resurface till i am better and back to normal. Well lately i have been not hiding as much and have been getting more comfortable with people seeing my iv's when i am on them. In fact i was out today in a very public place where i knew a lot of people, and sported my iv like a champ. I did get one or two questions and answered them and left it at that. But i do understand exactly where you are coming from...........
 
D

Diane

New member
I havent read all the replies to this and probably will later, but right now i am too tired. I always hid my cf till it came " time to tell ". I wanted people to get to know <b>me</b> as a person. Not me as a person with cf. Once i got to know someone better i would tell them then, that way cf was not the center of attention right from the start. Well i am older now ,and things with my cf have changed a bit, and it is getting harder and harder to hide. I do tend to shy away from relationships because i never had to incorporate my illness into a relationship before. I never had to do iv's and the vest, and inhaled medications etc. till the past 8 years or so. I really havent adjusted very well to incorporating all that into a relationship, but i am learning to slowly. I am like a wild animal in the sense that when i am sick i like to hide and not resurface till i am better and back to normal. Well lately i have been not hiding as much and have been getting more comfortable with people seeing my iv's when i am on them. In fact i was out today in a very public place where i knew a lot of people, and sported my iv like a champ. I did get one or two questions and answered them and left it at that. But i do understand exactly where you are coming from...........
 
K

KrazyKat

New member
Well on the other side of the coin, i recently got dumped by someone i really cared about because he can't handle the thought of losing me to CF. Well so he says anyway. He guessed something was wrong with me early on so I had no option but to tell him the truth, and at the time he said that it made no difference. Fast forward a couple of months and we were having problems coz I felt he just wasn't allowing us to get really serious/close, i rebelled as I believe i deserve better than that and got stroppy with him, so he ended things - saying at the time he just wasn't ready for a relationship (yeah right, he's been divorced and single for 8 years!!! insult my intelligence why don't you!). Anyhoo, six weeks later we finally become friends and i ask him for the REAL reason, he said it's my illness. We are now however best of friends, and although he will still 'lose' me to CF, eventually he feels that it will be easier to lose me as a friend than as a partner. Pfftt!! Still not sure i believe him entirely.
So I guess the 'pushing away' works both ways, i have both 'pushed' and 'been pushed' in my life due to my illness.
 
K

KrazyKat

New member
Well on the other side of the coin, i recently got dumped by someone i really cared about because he can't handle the thought of losing me to CF. Well so he says anyway. He guessed something was wrong with me early on so I had no option but to tell him the truth, and at the time he said that it made no difference. Fast forward a couple of months and we were having problems coz I felt he just wasn't allowing us to get really serious/close, i rebelled as I believe i deserve better than that and got stroppy with him, so he ended things - saying at the time he just wasn't ready for a relationship (yeah right, he's been divorced and single for 8 years!!! insult my intelligence why don't you!). Anyhoo, six weeks later we finally become friends and i ask him for the REAL reason, he said it's my illness. We are now however best of friends, and although he will still 'lose' me to CF, eventually he feels that it will be easier to lose me as a friend than as a partner. Pfftt!! Still not sure i believe him entirely.
So I guess the 'pushing away' works both ways, i have both 'pushed' and 'been pushed' in my life due to my illness.
 
K

KrazyKat

New member
Well on the other side of the coin, i recently got dumped by someone i really cared about because he can't handle the thought of losing me to CF. Well so he says anyway. He guessed something was wrong with me early on so I had no option but to tell him the truth, and at the time he said that it made no difference. Fast forward a couple of months and we were having problems coz I felt he just wasn't allowing us to get really serious/close, i rebelled as I believe i deserve better than that and got stroppy with him, so he ended things - saying at the time he just wasn't ready for a relationship (yeah right, he's been divorced and single for 8 years!!! insult my intelligence why don't you!). Anyhoo, six weeks later we finally become friends and i ask him for the REAL reason, he said it's my illness. We are now however best of friends, and although he will still 'lose' me to CF, eventually he feels that it will be easier to lose me as a friend than as a partner. Pfftt!! Still not sure i believe him entirely.
So I guess the 'pushing away' works both ways, i have both 'pushed' and 'been pushed' in my life due to my illness.
 
L

lightNlife

New member
My answer to your question is best found by reading my book <i>Dear Future Husband. </i>I'ts about my own experiences as I processed all those thoughts about whether a guy would ever want me... and if so, how could I let him know all the scary stuff about CF without scaring him off.

From the time I was 14 I started writing letters addressed to "Dear Future Husband" (hence the book's title.) For 8 years I continued writing them, and when Brad and I got engaged, I gave him the entire collection. It was amazing to see how all the things I longed for and prayed about were met in him.

Just like other CFers, I was discouraged at times. But I kept hoping and believing that there was someone out there for me who was perfectly suited to deal with all that CF entails and not be chased about by it.

My book isn't available just yet, but will be this summer. Please PM me with your email address so I can be sure to let you know when it's released.

Take heart,
Lauren
 
L

lightNlife

New member
My answer to your question is best found by reading my book <i>Dear Future Husband. </i>I'ts about my own experiences as I processed all those thoughts about whether a guy would ever want me... and if so, how could I let him know all the scary stuff about CF without scaring him off.

From the time I was 14 I started writing letters addressed to "Dear Future Husband" (hence the book's title.) For 8 years I continued writing them, and when Brad and I got engaged, I gave him the entire collection. It was amazing to see how all the things I longed for and prayed about were met in him.

Just like other CFers, I was discouraged at times. But I kept hoping and believing that there was someone out there for me who was perfectly suited to deal with all that CF entails and not be chased about by it.

My book isn't available just yet, but will be this summer. Please PM me with your email address so I can be sure to let you know when it's released.

Take heart,
Lauren
 
L

lightNlife

New member
My answer to your question is best found by reading my book <i>Dear Future Husband. </i>I'ts about my own experiences as I processed all those thoughts about whether a guy would ever want me... and if so, how could I let him know all the scary stuff about CF without scaring him off.

From the time I was 14 I started writing letters addressed to "Dear Future Husband" (hence the book's title.) For 8 years I continued writing them, and when Brad and I got engaged, I gave him the entire collection. It was amazing to see how all the things I longed for and prayed about were met in him.

Just like other CFers, I was discouraged at times. But I kept hoping and believing that there was someone out there for me who was perfectly suited to deal with all that CF entails and not be chased about by it.

My book isn't available just yet, but will be this summer. Please PM me with your email address so I can be sure to let you know when it's released.

Take heart,
Lauren
 
P

perky79

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i>

I am the same as you Perky...I was not dx until my late 20's but I was single.. I still am... and really in the past year more men have showed an interest in me.. I still have not responded



there is one right now, one of the RT's I work with.. He has been my personal RT, so he has seen me at my worst gasping for air as I cough.. and he still wanted to date me...



He has called me a few times, and when ever I work, he asks me why I don't call him back.. I can tell you for certain that I can not deal with bringing CF into a relationship.... I can't bring my over steroid, very scared body ...and since I can not find a way to seperate from my body.. it is a no deal...



So I tend to blow ppl off, make up reasons... and I don't mind telling people I have CF .. I don't mind educatiing people.. but as it is, the people in my life such as my parents.. lives have been so negatively affected by my CF that I don't dare burdon anyone with it.....Healthy ?? No but just where I am at.. though hopefully I will change soon...</end quote></div>


Thank you....you actually get what I was trying to say. Thank you for posting <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
P

perky79

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i>

I am the same as you Perky...I was not dx until my late 20's but I was single.. I still am... and really in the past year more men have showed an interest in me.. I still have not responded



there is one right now, one of the RT's I work with.. He has been my personal RT, so he has seen me at my worst gasping for air as I cough.. and he still wanted to date me...



He has called me a few times, and when ever I work, he asks me why I don't call him back.. I can tell you for certain that I can not deal with bringing CF into a relationship.... I can't bring my over steroid, very scared body ...and since I can not find a way to seperate from my body.. it is a no deal...



So I tend to blow ppl off, make up reasons... and I don't mind telling people I have CF .. I don't mind educatiing people.. but as it is, the people in my life such as my parents.. lives have been so negatively affected by my CF that I don't dare burdon anyone with it.....Healthy ?? No but just where I am at.. though hopefully I will change soon...</end quote></div>


Thank you....you actually get what I was trying to say. Thank you for posting <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
P

perky79

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i>

I am the same as you Perky...I was not dx until my late 20's but I was single.. I still am... and really in the past year more men have showed an interest in me.. I still have not responded



there is one right now, one of the RT's I work with.. He has been my personal RT, so he has seen me at my worst gasping for air as I cough.. and he still wanted to date me...



He has called me a few times, and when ever I work, he asks me why I don't call him back.. I can tell you for certain that I can not deal with bringing CF into a relationship.... I can't bring my over steroid, very scared body ...and since I can not find a way to seperate from my body.. it is a no deal...



So I tend to blow ppl off, make up reasons... and I don't mind telling people I have CF .. I don't mind educatiing people.. but as it is, the people in my life such as my parents.. lives have been so negatively affected by my CF that I don't dare burdon anyone with it.....Healthy ?? No but just where I am at.. though hopefully I will change soon...</end quote></div>


Thank you....you actually get what I was trying to say. Thank you for posting <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
B

bigstar

New member
i actually can lelate because even my closest fiend dont know about my CF....It is so uncomfortable to share it...Im 18 and im still single...
 
B

bigstar

New member
i actually can lelate because even my closest fiend dont know about my CF....It is so uncomfortable to share it...Im 18 and im still single...
 
B

bigstar

New member
i actually can lelate because even my closest fiend dont know about my CF....It is so uncomfortable to share it...Im 18 and im still single...
 
You must log in or register to reply here.
Top