Just got listed for transplant.

[Codysrt4]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>RitaLSonnenberg</b></i>

What's the average wait for the lung transplant list? I am gettting close to being on the list and am scared to death... but know I would feel much better post-transplant. Just wondered if it's a long wait usually or what. Also, are you on Disability (Social Security Disability) or do you work? I work a full time job but am exhausted everyday and really need to apply for Disability but don't know how hard it is to get approved. I heard it is a pain too.</end quote></div>

I had to quit my full time job as a custom motorcycle builder in April of 09. Me and my parents fought relentlessly with insurances and SSDI. I was finally approved for SSDI in Jan of 2010, they had to put me on the advantage program so I could get accepted. My TX center told me the average wait time for them was around 4 months but I know it could take up to 2 years or longer. My LAS is 42 which is above average for my location so I'm hopin to get the call sooner than later.

 

[Codysrt4]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>RitaLSonnenberg</b></i>

What's the average wait for the lung transplant list? I am gettting close to being on the list and am scared to death... but know I would feel much better post-transplant. Just wondered if it's a long wait usually or what. Also, are you on Disability (Social Security Disability) or do you work? I work a full time job but am exhausted everyday and really need to apply for Disability but don't know how hard it is to get approved. I heard it is a pain too.</end quote></div>

I had to quit my full time job as a custom motorcycle builder in April of 09. Me and my parents fought relentlessly with insurances and SSDI. I was finally approved for SSDI in Jan of 2010, they had to put me on the advantage program so I could get accepted. My TX center told me the average wait time for them was around 4 months but I know it could take up to 2 years or longer. My LAS is 42 which is above average for my location so I'm hopin to get the call sooner than later.

 

[Codysrt4]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>RitaLSonnenberg</b></i>

What's the average wait for the lung transplant list? I am gettting close to being on the list and am scared to death... but know I would feel much better post-transplant. Just wondered if it's a long wait usually or what. Also, are you on Disability (Social Security Disability) or do you work? I work a full time job but am exhausted everyday and really need to apply for Disability but don't know how hard it is to get approved. I heard it is a pain too.</end quote></div>

I had to quit my full time job as a custom motorcycle builder in April of 09. Me and my parents fought relentlessly with insurances and SSDI. I was finally approved for SSDI in Jan of 2010, they had to put me on the advantage program so I could get accepted. My TX center told me the average wait time for them was around 4 months but I know it could take up to 2 years or longer. My LAS is 42 which is above average for my location so I'm hopin to get the call sooner than later.

 

[Codysrt4]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>RitaLSonnenberg</b></i>

What's the average wait for the lung transplant list? I am gettting close to being on the list and am scared to death... but know I would feel much better post-transplant. Just wondered if it's a long wait usually or what. Also, are you on Disability (Social Security Disability) or do you work? I work a full time job but am exhausted everyday and really need to apply for Disability but don't know how hard it is to get approved. I heard it is a pain too.</end quote>

I had to quit my full time job as a custom motorcycle builder in April of 09. Me and my parents fought relentlessly with insurances and SSDI. I was finally approved for SSDI in Jan of 2010, they had to put me on the advantage program so I could get accepted. My TX center told me the average wait time for them was around 4 months but I know it could take up to 2 years or longer. My LAS is 42 which is above average for my location so I'm hopin to get the call sooner than later.

 

[Codysrt4]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>RitaLSonnenberg</b></i>
<br />
<br />What's the average wait for the lung transplant list? I am gettting close to being on the list and am scared to death... but know I would feel much better post-transplant. Just wondered if it's a long wait usually or what. Also, are you on Disability (Social Security Disability) or do you work? I work a full time job but am exhausted everyday and really need to apply for Disability but don't know how hard it is to get approved. I heard it is a pain too.</end quote>
<br />
<br />I had to quit my full time job as a custom motorcycle builder in April of 09. Me and my parents fought relentlessly with insurances and SSDI. I was finally approved for SSDI in Jan of 2010, they had to put me on the advantage program so I could get accepted. My TX center told me the average wait time for them was around 4 months but I know it could take up to 2 years or longer. My LAS is 42 which is above average for my location so I'm hopin to get the call sooner than later.

 

[Codysrt4]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lamp</b></i>

Cody,

My sister just had a transplant 4 days ago!! I can't believe how awesome she's doing. She was like you and couldn't do anything without oxygen. And now, she stats better than me! I'm so grateful =)



If you have a Facebook, I'm sure she's be glad to chat with you and give you some fresh, first hand experience as to what to expect. (She doesn't get on the forums at all.)

Its incredible. Thats all I can say. I'm just so excited to see her up off 02 walking around freely. And so soon after transplant!! In a few weeks she's gonna be unreachable!! Haha



Congrats on getting listed! And get ready for that call for a second chance~ I'm sooooooooooooooooooooooooooooooooooooooooooo excited for you!</end quote></div>

I'm glad to hear shes doin awesome after only 4 days!! I'd be more than happy to say hi, my facebook email is codysheets@cox.net

 

[Codysrt4]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lamp</b></i>

Cody,

My sister just had a transplant 4 days ago!! I can't believe how awesome she's doing. She was like you and couldn't do anything without oxygen. And now, she stats better than me! I'm so grateful =)



If you have a Facebook, I'm sure she's be glad to chat with you and give you some fresh, first hand experience as to what to expect. (She doesn't get on the forums at all.)

Its incredible. Thats all I can say. I'm just so excited to see her up off 02 walking around freely. And so soon after transplant!! In a few weeks she's gonna be unreachable!! Haha



Congrats on getting listed! And get ready for that call for a second chance~ I'm sooooooooooooooooooooooooooooooooooooooooooo excited for you!</end quote></div>

I'm glad to hear shes doin awesome after only 4 days!! I'd be more than happy to say hi, my facebook email is codysheets@cox.net

 

[Codysrt4]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lamp</b></i>

Cody,

My sister just had a transplant 4 days ago!! I can't believe how awesome she's doing. She was like you and couldn't do anything without oxygen. And now, she stats better than me! I'm so grateful =)



If you have a Facebook, I'm sure she's be glad to chat with you and give you some fresh, first hand experience as to what to expect. (She doesn't get on the forums at all.)

Its incredible. Thats all I can say. I'm just so excited to see her up off 02 walking around freely. And so soon after transplant!! In a few weeks she's gonna be unreachable!! Haha



Congrats on getting listed! And get ready for that call for a second chance~ I'm sooooooooooooooooooooooooooooooooooooooooooo excited for you!</end quote></div>

I'm glad to hear shes doin awesome after only 4 days!! I'd be more than happy to say hi, my facebook email is codysheets@cox.net

 

[Codysrt4]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lamp</b></i>

Cody,

My sister just had a transplant 4 days ago!! I can't believe how awesome she's doing. She was like you and couldn't do anything without oxygen. And now, she stats better than me! I'm so grateful =)



If you have a Facebook, I'm sure she's be glad to chat with you and give you some fresh, first hand experience as to what to expect. (She doesn't get on the forums at all.)

Its incredible. Thats all I can say. I'm just so excited to see her up off 02 walking around freely. And so soon after transplant!! In a few weeks she's gonna be unreachable!! Haha



Congrats on getting listed! And get ready for that call for a second chance~ I'm sooooooooooooooooooooooooooooooooooooooooooo excited for you!</end quote>

I'm glad to hear shes doin awesome after only 4 days!! I'd be more than happy to say hi, my facebook email is codysheets@cox.net

 

[Codysrt4]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lamp</b></i>
<br />
<br />Cody,
<br />
<br />My sister just had a transplant 4 days ago!! I can't believe how awesome she's doing. She was like you and couldn't do anything without oxygen. And now, she stats better than me! I'm so grateful =)
<br />
<br />
<br />
<br />If you have a Facebook, I'm sure she's be glad to chat with you and give you some fresh, first hand experience as to what to expect. (She doesn't get on the forums at all.)
<br />
<br />Its incredible. Thats all I can say. I'm just so excited to see her up off 02 walking around freely. And so soon after transplant!! In a few weeks she's gonna be unreachable!! Haha
<br />
<br />
<br />
<br />Congrats on getting listed! And get ready for that call for a second chance~ I'm sooooooooooooooooooooooooooooooooooooooooooo excited for you!</end quote>
<br />
<br />I'm glad to hear shes doin awesome after only 4 days!! I'd be more than happy to say hi, my facebook email is codysheets@cox.net