kelliannesmom
New member
Here is our history. My daughter, Kellianne, 9 years old was a sick baby. She has severe reflux as an infant, then had an intusseception & had emergency surgery at 17 months of age. She had a few colds that seemed to last forever, but we were assured she was fine. She has always had intestinal issues. She usually has to stop in the middle of a meal to use the potty. She was under the care of a gastroenterologist since she was a newborn & I was assured she had irritable bowel. Then when she was in kindergarten, she had one strep throat infection after another. Finally they took our her tonsils. She seemed to do fine & we went home only to have to go back for emergency surgery to stop bleeding. Then a week later she started to bleed again & had another surgery & stayed in he hospital for 4 days again. She did fairly well during first grade, then when she was in 2nd grade she got a cold & within 2 days has pneumonia. She has ended up with pneumonia 5 times in 2 years. She has had frequent nose bleeds & sinus infections as well. Her pulmonologist had us do the sweat test & it was normal. She has just started 4th grade, straight A student since she started getting actual grades in 1st grade. I needed to have the forms for school for her & her brother so they can use their inhalers in school. Her doctor called me a few days after her appointment. He said he has been thinking about her. The nose bleeds, sinus infections, bowel problems & the fact that she has only gained 3 pounds in 4 years & just has a feeling & wanted her to have the genetic testing done. I took her August 4th, really expecting it to be normal. I got a call last week that she does CF. I am not sure what genes have mutated, but she does have 2 mutated genes. She goes to the doctor next week to get started on medication. The doctor said he is glad that we did the test & that now we know what is causing her symptoms.
Of course, my family & my husband's family is being supportive, but a bit overbearing. My MIL is already planning a funeral & she is really freaking me out. My parents have told me that they read we need to get rid of all of our pets, dogs, cats, bird & chinchilla, but I can't find anything on that & her doctor said we shouldn't rush into anything & it is best to tgry to keep life as normal as possible. Does anyone know if she is okay to be around animals. Kellianne really seems like a normal little girl. She does have asthma, but for the most part never even needs to use as inhaler except before PE class as excersice makes her short of breath.
We also have a 5 year old son that also has asthma, but the only time he has a problem is when he gets a cold. He also has had pneumonia 5 times in 2 years. 3 nose bleeds in his life & also very thin. They both eat like horses, but never gain weight.
Thanks for any info anyone can share.
Jenifer, mom to Kellianne, 9 w/ CF & Brandon 5 being tested next week.
Of course, my family & my husband's family is being supportive, but a bit overbearing. My MIL is already planning a funeral & she is really freaking me out. My parents have told me that they read we need to get rid of all of our pets, dogs, cats, bird & chinchilla, but I can't find anything on that & her doctor said we shouldn't rush into anything & it is best to tgry to keep life as normal as possible. Does anyone know if she is okay to be around animals. Kellianne really seems like a normal little girl. She does have asthma, but for the most part never even needs to use as inhaler except before PE class as excersice makes her short of breath.
We also have a 5 year old son that also has asthma, but the only time he has a problem is when he gets a cold. He also has had pneumonia 5 times in 2 years. 3 nose bleeds in his life & also very thin. They both eat like horses, but never gain weight.
Thanks for any info anyone can share.
Jenifer, mom to Kellianne, 9 w/ CF & Brandon 5 being tested next week.