Letting off some steam

bananagirl · Jul 21, 2009

haha the part about the docs thinking you need a phyciatrist totaly happened to me too! They have decided that they want me to do oxygen at night and i wont do it. It all started at the hospital everytime i go there they stick oxygen on me and i hate it i might be a sick kid but with oxygen i look like one. anyway this last time the nurse asked if she could put it on me and i was like no and she didn't then all the docs were like you need to do it u crazy kid and i was like no i hate it and i'm drawing the line. I have done like everything they asked me to do and finally i quite and it feels good. sure maybe one day i will feel i need it but until then i would rather be happy then helping to add who knows maybe a few more suckie days onto my life. Anyway now they have labled me as like problem kid who is non compliant. It even says in my chart "Patient is non- compliant" Hahahahehehehe and last time i saw my doc he wrote in my orders that i need to go to a physiciatrist and be on anit-depressents like i am depressed and compleatly crazy because i wont follow his stupid orders and i have finally stood up for myself. He is write maybe i did need meds and to see a shrink but not now more in the past to help me get here where i am fianlly happy faster than it took! so cheers to us non-compliant, angry, depressed cf patients how difficult we must be for these doctors to deal with poor docs!<img src="i/expressions/face-icon-small-happy.gif" border="0">

bananagirl · Jul 21, 2009

haha the part about the docs thinking you need a phyciatrist totaly happened to me too! They have decided that they want me to do oxygen at night and i wont do it. It all started at the hospital everytime i go there they stick oxygen on me and i hate it i might be a sick kid but with oxygen i look like one. anyway this last time the nurse asked if she could put it on me and i was like no and she didn't then all the docs were like you need to do it u crazy kid and i was like no i hate it and i'm drawing the line. I have done like everything they asked me to do and finally i quite and it feels good. sure maybe one day i will feel i need it but until then i would rather be happy then helping to add who knows maybe a few more suckie days onto my life. Anyway now they have labled me as like problem kid who is non compliant. It even says in my chart "Patient is non- compliant" Hahahahehehehe and last time i saw my doc he wrote in my orders that i need to go to a physiciatrist and be on anit-depressents like i am depressed and compleatly crazy because i wont follow his stupid orders and i have finally stood up for myself. He is write maybe i did need meds and to see a shrink but not now more in the past to help me get here where i am fianlly happy faster than it took! so cheers to us non-compliant, angry, depressed cf patients how difficult we must be for these doctors to deal with poor docs!<img src="i/expressions/face-icon-small-happy.gif" border="0">

bananagirl · Jul 21, 2009

haha the part about the docs thinking you need a phyciatrist totaly happened to me too! They have decided that they want me to do oxygen at night and i wont do it. It all started at the hospital everytime i go there they stick oxygen on me and i hate it i might be a sick kid but with oxygen i look like one. anyway this last time the nurse asked if she could put it on me and i was like no and she didn't then all the docs were like you need to do it u crazy kid and i was like no i hate it and i'm drawing the line. I have done like everything they asked me to do and finally i quite and it feels good. sure maybe one day i will feel i need it but until then i would rather be happy then helping to add who knows maybe a few more suckie days onto my life. Anyway now they have labled me as like problem kid who is non compliant. It even says in my chart "Patient is non- compliant" Hahahahehehehe and last time i saw my doc he wrote in my orders that i need to go to a physiciatrist and be on anit-depressents like i am depressed and compleatly crazy because i wont follow his stupid orders and i have finally stood up for myself. He is write maybe i did need meds and to see a shrink but not now more in the past to help me get here where i am fianlly happy faster than it took! so cheers to us non-compliant, angry, depressed cf patients how difficult we must be for these doctors to deal with poor docs!<img src="i/expressions/face-icon-small-happy.gif" border="0">

bananagirl · Jul 21, 2009

haha the part about the docs thinking you need a phyciatrist totaly happened to me too! They have decided that they want me to do oxygen at night and i wont do it. It all started at the hospital everytime i go there they stick oxygen on me and i hate it i might be a sick kid but with oxygen i look like one. anyway this last time the nurse asked if she could put it on me and i was like no and she didn't then all the docs were like you need to do it u crazy kid and i was like no i hate it and i'm drawing the line. I have done like everything they asked me to do and finally i quite and it feels good. sure maybe one day i will feel i need it but until then i would rather be happy then helping to add who knows maybe a few more suckie days onto my life. Anyway now they have labled me as like problem kid who is non compliant. It even says in my chart "Patient is non- compliant" Hahahahehehehe and last time i saw my doc he wrote in my orders that i need to go to a physiciatrist and be on anit-depressents like i am depressed and compleatly crazy because i wont follow his stupid orders and i have finally stood up for myself. He is write maybe i did need meds and to see a shrink but not now more in the past to help me get here where i am fianlly happy faster than it took! so cheers to us non-compliant, angry, depressed cf patients how difficult we must be for these doctors to deal with poor docs!<img src="i/expressions/face-icon-small-happy.gif" border="0">

bananagirl · Jul 21, 2009

haha the part about the docs thinking you need a phyciatrist totaly happened to me too! They have decided that they want me to do oxygen at night and i wont do it. It all started at the hospital everytime i go there they stick oxygen on me and i hate it i might be a sick kid but with oxygen i look like one. anyway this last time the nurse asked if she could put it on me and i was like no and she didn't then all the docs were like you need to do it u crazy kid and i was like no i hate it and i'm drawing the line. I have done like everything they asked me to do and finally i quite and it feels good. sure maybe one day i will feel i need it but until then i would rather be happy then helping to add who knows maybe a few more suckie days onto my life. Anyway now they have labled me as like problem kid who is non compliant. It even says in my chart "Patient is non- compliant" Hahahahehehehe and last time i saw my doc he wrote in my orders that i need to go to a physiciatrist and be on anit-depressents like i am depressed and compleatly crazy because i wont follow his stupid orders and i have finally stood up for myself. He is write maybe i did need meds and to see a shrink but not now more in the past to help me get here where i am fianlly happy faster than it took! so cheers to us non-compliant, angry, depressed cf patients how difficult we must be for these doctors to deal with poor docs!<img src="i/expressions/face-icon-small-happy.gif" border="0">

cfprincess09 · Sep 30, 2009

hey my name is ashley and i am hardly a home and when i am i am sick and like when i have bad days i dont take a few of this or a few of that without my parents knowing and docs but they always know . oh i hate it the most when doctors and nurses and parents and friends and family go sweetie i know its hard and i know what your going threw but they dont they never will and sometimes i wish i could put certin people in my shoes because they know how it feels so it should be easy . right . oh and pills dont get me started i hate pills they make me take like 5-6 diffrent oral antibiotics and like 2-3 diffrent puffers and then 3 diffrent inhalations and my morning never stops i swear this is my morning : pulmazyne , hypertonic saline 7 % , physio(10 sets of fluttering ) ,tobi, azithriomicin , ranitadne,vitam d ,adeks , linazolid . that is when i am in the hospital it is twice as much when i am at HOME . oh my god i had this one doctor say ashley you make evreything seam way harder then it has to be come on you know that cf ist that bad and you know that if i was in your shoes i would know that i was right cf is easy . well you know what it ist as easy as it seams so when all of the doctors take one foot step in my shoes let me know . well thanks guys for letting me vent .

i know you guys go threw what i go threw daily with me

thanks

doctors drive me threw the walls

cfprincess09 · Sep 30, 2009

hey my name is ashley and i am hardly a home and when i am i am sick and like when i have bad days i dont take a few of this or a few of that without my parents knowing and docs but they always know . oh i hate it the most when doctors and nurses and parents and friends and family go sweetie i know its hard and i know what your going threw but they dont they never will and sometimes i wish i could put certin people in my shoes because they know how it feels so it should be easy . right . oh and pills dont get me started i hate pills they make me take like 5-6 diffrent oral antibiotics and like 2-3 diffrent puffers and then 3 diffrent inhalations and my morning never stops i swear this is my morning : pulmazyne , hypertonic saline 7 % , physio(10 sets of fluttering ) ,tobi, azithriomicin , ranitadne,vitam d ,adeks , linazolid . that is when i am in the hospital it is twice as much when i am at HOME . oh my god i had this one doctor say ashley you make evreything seam way harder then it has to be come on you know that cf ist that bad and you know that if i was in your shoes i would know that i was right cf is easy . well you know what it ist as easy as it seams so when all of the doctors take one foot step in my shoes let me know . well thanks guys for letting me vent .

i know you guys go threw what i go threw daily with me

thanks

doctors drive me threw the walls

cfprincess09 · Sep 30, 2009

hey my name is ashley and i am hardly a home and when i am i am sick and like when i have bad days i dont take a few of this or a few of that without my parents knowing and docs but they always know . oh i hate it the most when doctors and nurses and parents and friends and family go sweetie i know its hard and i know what your going threw but they dont they never will and sometimes i wish i could put certin people in my shoes because they know how it feels so it should be easy . right . oh and pills dont get me started i hate pills they make me take like 5-6 diffrent oral antibiotics and like 2-3 diffrent puffers and then 3 diffrent inhalations and my morning never stops i swear this is my morning : pulmazyne , hypertonic saline 7 % , physio(10 sets of fluttering ) ,tobi, azithriomicin , ranitadne,vitam d ,adeks , linazolid . that is when i am in the hospital it is twice as much when i am at HOME . oh my god i had this one doctor say ashley you make evreything seam way harder then it has to be come on you know that cf ist that bad and you know that if i was in your shoes i would know that i was right cf is easy . well you know what it ist as easy as it seams so when all of the doctors take one foot step in my shoes let me know . well thanks guys for letting me vent .

i know you guys go threw what i go threw daily with me

thanks

doctors drive me threw the walls

cfprincess09 · Sep 30, 2009

hey my name is ashley and i am hardly a home and when i am i am sick and like when i have bad days i dont take a few of this or a few of that without my parents knowing and docs but they always know . oh i hate it the most when doctors and nurses and parents and friends and family go sweetie i know its hard and i know what your going threw but they dont they never will and sometimes i wish i could put certin people in my shoes because they know how it feels so it should be easy . right . oh and pills dont get me started i hate pills they make me take like 5-6 diffrent oral antibiotics and like 2-3 diffrent puffers and then 3 diffrent inhalations and my morning never stops i swear this is my morning : pulmazyne , hypertonic saline 7 % , physio(10 sets of fluttering ) ,tobi, azithriomicin , ranitadne,vitam d ,adeks , linazolid . that is when i am in the hospital it is twice as much when i am at HOME . oh my god i had this one doctor say ashley you make evreything seam way harder then it has to be come on you know that cf ist that bad and you know that if i was in your shoes i would know that i was right cf is easy . well you know what it ist as easy as it seams so when all of the doctors take one foot step in my shoes let me know . well thanks guys for letting me vent .

i know you guys go threw what i go threw daily with me

thanks

doctors drive me threw the walls

cfprincess09 · Sep 30, 2009

hey my name is ashley and i am hardly a home and when i am i am sick and like when i have bad days i dont take a few of this or a few of that without my parents knowing and docs but they always know . oh i hate it the most when doctors and nurses and parents and friends and family go sweetie i know its hard and i know what your going threw but they dont they never will and sometimes i wish i could put certin people in my shoes because they know how it feels so it should be easy . right . oh and pills dont get me started i hate pills they make me take like 5-6 diffrent oral antibiotics and like 2-3 diffrent puffers and then 3 diffrent inhalations and my morning never stops i swear this is my morning : pulmazyne , hypertonic saline 7 % , physio(10 sets of fluttering ) ,tobi, azithriomicin , ranitadne,vitam d ,adeks , linazolid . that is when i am in the hospital it is twice as much when i am at HOME . oh my god i had this one doctor say ashley you make evreything seam way harder then it has to be come on you know that cf ist that bad and you know that if i was in your shoes i would know that i was right cf is easy . well you know what it ist as easy as it seams so when all of the doctors take one foot step in my shoes let me know . well thanks guys for letting me vent .
 
 i know you guys go threw what i go threw daily with me
 
 thanks
 
 doctors drive me threw the walls

JazzysMom · Sep 30, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: cfprincess09

. oh my god i had this one doctor say ashley you make evreything seam way harder then it has to be come on you know that cf ist that bad and you know that if i was in your shoes i would know that i was right cf is easy . well you know what it ist as easy as it seams so when all of the doctors take one foot step in my shoes let me know . well thanks guys for letting me vent .

</end quote></div>

I actually use to have a doctor in my clinic that had CF & his brother who also had CF was a Nurse on the hospital floor we get admitted to.

I thought that having a CFer as a doctor would be a help with "understanding", but it wasnt. Not that he didnt understand, but even if he did....it was no excuse. He was a good doctor, but I expected much more compassion coming from someone who lived in CF shoes.

Granted he had easier access to things....living near the clinic & hospital. Getting his CPT before & after hours by the trained therapists at the hospital.

Anyway.....sometimes even when they know, it doesnt matter!

JazzysMom · Sep 30, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: cfprincess09

. oh my god i had this one doctor say ashley you make evreything seam way harder then it has to be come on you know that cf ist that bad and you know that if i was in your shoes i would know that i was right cf is easy . well you know what it ist as easy as it seams so when all of the doctors take one foot step in my shoes let me know . well thanks guys for letting me vent .

</end quote></div>

I actually use to have a doctor in my clinic that had CF & his brother who also had CF was a Nurse on the hospital floor we get admitted to.

I thought that having a CFer as a doctor would be a help with "understanding", but it wasnt. Not that he didnt understand, but even if he did....it was no excuse. He was a good doctor, but I expected much more compassion coming from someone who lived in CF shoes.

Granted he had easier access to things....living near the clinic & hospital. Getting his CPT before & after hours by the trained therapists at the hospital.

Anyway.....sometimes even when they know, it doesnt matter!

JazzysMom · Sep 30, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: cfprincess09

. oh my god i had this one doctor say ashley you make evreything seam way harder then it has to be come on you know that cf ist that bad and you know that if i was in your shoes i would know that i was right cf is easy . well you know what it ist as easy as it seams so when all of the doctors take one foot step in my shoes let me know . well thanks guys for letting me vent .

</end quote></div>

I actually use to have a doctor in my clinic that had CF & his brother who also had CF was a Nurse on the hospital floor we get admitted to.

I thought that having a CFer as a doctor would be a help with "understanding", but it wasnt. Not that he didnt understand, but even if he did....it was no excuse. He was a good doctor, but I expected much more compassion coming from someone who lived in CF shoes.

Granted he had easier access to things....living near the clinic & hospital. Getting his CPT before & after hours by the trained therapists at the hospital.

Anyway.....sometimes even when they know, it doesnt matter!

JazzysMom · Sep 30, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: cfprincess09

. oh my god i had this one doctor say ashley you make evreything seam way harder then it has to be come on you know that cf ist that bad and you know that if i was in your shoes i would know that i was right cf is easy . well you know what it ist as easy as it seams so when all of the doctors take one foot step in my shoes let me know . well thanks guys for letting me vent .

</end quote>

I actually use to have a doctor in my clinic that had CF & his brother who also had CF was a Nurse on the hospital floor we get admitted to.

I thought that having a CFer as a doctor would be a help with "understanding", but it wasnt. Not that he didnt understand, but even if he did....it was no excuse. He was a good doctor, but I expected much more compassion coming from someone who lived in CF shoes.

Granted he had easier access to things....living near the clinic & hospital. Getting his CPT before & after hours by the trained therapists at the hospital.

Anyway.....sometimes even when they know, it doesnt matter!

JazzysMom · Sep 30, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: cfprincess09
 
 . oh my god i had this one doctor say ashley you make evreything seam way harder then it has to be come on you know that cf ist that bad and you know that if i was in your shoes i would know that i was right cf is easy . well you know what it ist as easy as it seams so when all of the doctors take one foot step in my shoes let me know . well thanks guys for letting me vent .
 
 </end quote>
 
 
 I actually use to have a doctor in my clinic that had CF & his brother who also had CF was a Nurse on the hospital floor we get admitted to.
 
 I thought that having a CFer as a doctor would be a help with "understanding", but it wasnt. Not that he didnt understand, but even if he did....it was no excuse. He was a good doctor, but I expected much more compassion coming from someone who lived in CF shoes.
 
 Granted he had easier access to things....living near the clinic & hospital. Getting his CPT before & after hours by the trained therapists at the hospital.
 
 Anyway.....sometimes even when they know, it doesnt matter!

cfprincess09 · Sep 30, 2009

really because i have 10 doctors on my back because i made a few bad decisions like i went 2 weeks without doing medication and physio and doctors were like see you made your self sick and you know what the reson was that for is because they said that i couldt make my self sick and i had to show them i could and that i wasent afraid to . doctors just really are pissing me off and at this point i cant stand some doctors there is only one doctor out of 10 doctors that i really trust and you know what she is still a fellow and you know what there is this one doctor that thinks he knows evreything and you know what behind his back i called him a jackass and you know what i only did that because its true . one thing me and my mother agree one is doctors can be book smart about cf but they cant say that they know what works in your body because the only person who knows is you and i am frigin pissed off at the doctors because i am starting t5o make decisions and they need to understand that i am takeing the control out of my mothers hands because i am tierd of telling people how to rn the show that i am not going to tell i am going to do what is best for my cf not what is best for school or the wheather or any of the other crap . i am done i GIVE UP . CYSTIC FIBROSIS WINS !!!!

cfprincess09 · Sep 30, 2009

really because i have 10 doctors on my back because i made a few bad decisions like i went 2 weeks without doing medication and physio and doctors were like see you made your self sick and you know what the reson was that for is because they said that i couldt make my self sick and i had to show them i could and that i wasent afraid to . doctors just really are pissing me off and at this point i cant stand some doctors there is only one doctor out of 10 doctors that i really trust and you know what she is still a fellow and you know what there is this one doctor that thinks he knows evreything and you know what behind his back i called him a jackass and you know what i only did that because its true . one thing me and my mother agree one is doctors can be book smart about cf but they cant say that they know what works in your body because the only person who knows is you and i am frigin pissed off at the doctors because i am starting t5o make decisions and they need to understand that i am takeing the control out of my mothers hands because i am tierd of telling people how to rn the show that i am not going to tell i am going to do what is best for my cf not what is best for school or the wheather or any of the other crap . i am done i GIVE UP . CYSTIC FIBROSIS WINS !!!!

cfprincess09 · Sep 30, 2009

really because i have 10 doctors on my back because i made a few bad decisions like i went 2 weeks without doing medication and physio and doctors were like see you made your self sick and you know what the reson was that for is because they said that i couldt make my self sick and i had to show them i could and that i wasent afraid to . doctors just really are pissing me off and at this point i cant stand some doctors there is only one doctor out of 10 doctors that i really trust and you know what she is still a fellow and you know what there is this one doctor that thinks he knows evreything and you know what behind his back i called him a jackass and you know what i only did that because its true . one thing me and my mother agree one is doctors can be book smart about cf but they cant say that they know what works in your body because the only person who knows is you and i am frigin pissed off at the doctors because i am starting t5o make decisions and they need to understand that i am takeing the control out of my mothers hands because i am tierd of telling people how to rn the show that i am not going to tell i am going to do what is best for my cf not what is best for school or the wheather or any of the other crap . i am done i GIVE UP . CYSTIC FIBROSIS WINS !!!!

cfprincess09 · Sep 30, 2009

really because i have 10 doctors on my back because i made a few bad decisions like i went 2 weeks without doing medication and physio and doctors were like see you made your self sick and you know what the reson was that for is because they said that i couldt make my self sick and i had to show them i could and that i wasent afraid to . doctors just really are pissing me off and at this point i cant stand some doctors there is only one doctor out of 10 doctors that i really trust and you know what she is still a fellow and you know what there is this one doctor that thinks he knows evreything and you know what behind his back i called him a jackass and you know what i only did that because its true . one thing me and my mother agree one is doctors can be book smart about cf but they cant say that they know what works in your body because the only person who knows is you and i am frigin pissed off at the doctors because i am starting t5o make decisions and they need to understand that i am takeing the control out of my mothers hands because i am tierd of telling people how to rn the show that i am not going to tell i am going to do what is best for my cf not what is best for school or the wheather or any of the other crap . i am done i GIVE UP . CYSTIC FIBROSIS WINS !!!!

cfprincess09 · Sep 30, 2009

really because i have 10 doctors on my back because i made a few bad decisions like i went 2 weeks without doing medication and physio and doctors were like see you made your self sick and you know what the reson was that for is because they said that i couldt make my self sick and i had to show them i could and that i wasent afraid to . doctors just really are pissing me off and at this point i cant stand some doctors there is only one doctor out of 10 doctors that i really trust and you know what she is still a fellow and you know what there is this one doctor that thinks he knows evreything and you know what behind his back i called him a jackass and you know what i only did that because its true . one thing me and my mother agree one is doctors can be book smart about cf but they cant say that they know what works in your body because the only person who knows is you and i am frigin pissed off at the doctors because i am starting t5o make decisions and they need to understand that i am takeing the control out of my mothers hands because i am tierd of telling people how to rn the show that i am not going to tell i am going to do what is best for my cf not what is best for school or the wheather or any of the other crap . i am done i GIVE UP . CYSTIC FIBROSIS WINS !!!!

Letting off some steam

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