Make a Wish

J

just1more

New member
Just to clarify: MY SON GOT HIS MAW TRIP TO DISNEY IN APRIL 2009. And his PFT's are 98% so he is not currently having any CF issues per se.

Anyone that states MAW doesn't give wishes to CFr's is incorrect. If MAW doesn't grant to CFr's I must have imagined my 1st and only trip to WDW <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

just1more

New member
Just to clarify: MY SON GOT HIS MAW TRIP TO DISNEY IN APRIL 2009. And his PFT's are 98% so he is not currently having any CF issues per se.

Anyone that states MAW doesn't give wishes to CFr's is incorrect. If MAW doesn't grant to CFr's I must have imagined my 1st and only trip to WDW <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

just1more

New member
Just to clarify: MY SON GOT HIS MAW TRIP TO DISNEY IN APRIL 2009. And his PFT's are 98% so he is not currently having any CF issues per se.

Anyone that states MAW doesn't give wishes to CFr's is incorrect. If MAW doesn't grant to CFr's I must have imagined my 1st and only trip to WDW <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

just1more

New member
Just to clarify: MY SON GOT HIS MAW TRIP TO DISNEY IN APRIL 2009. And his PFT's are 98% so he is not currently having any CF issues per se.

Anyone that states MAW doesn't give wishes to CFr's is incorrect. If MAW doesn't grant to CFr's I must have imagined my 1st and only trip to WDW <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

just1more

New member
Just to clarify: MY SON GOT HIS MAW TRIP TO DISNEY IN APRIL 2009. And his PFT's are 98% so he is not currently having any CF issues per se.
<br />
<br />Anyone that states MAW doesn't give wishes to CFr's is incorrect. If MAW doesn't grant to CFr's I must have imagined my 1st and only trip to WDW <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Sakem

New member
After reading Cricket's email, I can pretty easy figure out why my son did not get a wish granted, which I suspected all along... I guess his doctor does not think his CF is serious. HA HA.....then why r we doing all these medications and treatments? I really should have confronted the doctor a few years ago when it was denied.
 
S

Sakem

New member
After reading Cricket's email, I can pretty easy figure out why my son did not get a wish granted, which I suspected all along... I guess his doctor does not think his CF is serious. HA HA.....then why r we doing all these medications and treatments? I really should have confronted the doctor a few years ago when it was denied.
 
S

Sakem

New member
After reading Cricket's email, I can pretty easy figure out why my son did not get a wish granted, which I suspected all along... I guess his doctor does not think his CF is serious. HA HA.....then why r we doing all these medications and treatments? I really should have confronted the doctor a few years ago when it was denied.
 
S

Sakem

New member
After reading Cricket's email, I can pretty easy figure out why my son did not get a wish granted, which I suspected all along... I guess his doctor does not think his CF is serious. HA HA.....then why r we doing all these medications and treatments? I really should have confronted the doctor a few years ago when it was denied.
 
S

Sakem

New member
After reading Cricket's email, I can pretty easy figure out why my son did not get a wish granted, which I suspected all along... I guess his doctor does not think his CF is serious. HA HA.....then why r we doing all these medications and treatments? I really should have confronted the doctor a few years ago when it was denied.
 
K

kandim

New member
I am so sorry they are giving you a hard time about granting your child their wish. My son wasn't diagnosed with cf till he was 9. One of the nurses at a local clinic actually contacted make a wish on my son's behalf. He has always went to the clinic in his nascar shirt and hats. He is a big fan of dale earnhardt jr. Well they granted his wish and didn't even ask about the state of his health. We live in ga. We went to pennsylvannia to meet dale jr. It was a wonderful trip and they were very nice at handeling all the details. We meet two families there. One boy was from fla with mucular dys. We had a blast and it was a once in a life time event. I am so sad they would deny your child this ability. These kids go thru so much dealing with cf that they deserve some kind of break. I don't dish any diease but unlike some dieses like cancer they get to go into remmision. Our kids with cf deal with this everyday and have no relief. Maybe something will come thru Good Luck. (ps That was about years ago).
 
K

kandim

New member
I am so sorry they are giving you a hard time about granting your child their wish. My son wasn't diagnosed with cf till he was 9. One of the nurses at a local clinic actually contacted make a wish on my son's behalf. He has always went to the clinic in his nascar shirt and hats. He is a big fan of dale earnhardt jr. Well they granted his wish and didn't even ask about the state of his health. We live in ga. We went to pennsylvannia to meet dale jr. It was a wonderful trip and they were very nice at handeling all the details. We meet two families there. One boy was from fla with mucular dys. We had a blast and it was a once in a life time event. I am so sad they would deny your child this ability. These kids go thru so much dealing with cf that they deserve some kind of break. I don't dish any diease but unlike some dieses like cancer they get to go into remmision. Our kids with cf deal with this everyday and have no relief. Maybe something will come thru Good Luck. (ps That was about years ago).
 
K

kandim

New member
I am so sorry they are giving you a hard time about granting your child their wish. My son wasn't diagnosed with cf till he was 9. One of the nurses at a local clinic actually contacted make a wish on my son's behalf. He has always went to the clinic in his nascar shirt and hats. He is a big fan of dale earnhardt jr. Well they granted his wish and didn't even ask about the state of his health. We live in ga. We went to pennsylvannia to meet dale jr. It was a wonderful trip and they were very nice at handeling all the details. We meet two families there. One boy was from fla with mucular dys. We had a blast and it was a once in a life time event. I am so sad they would deny your child this ability. These kids go thru so much dealing with cf that they deserve some kind of break. I don't dish any diease but unlike some dieses like cancer they get to go into remmision. Our kids with cf deal with this everyday and have no relief. Maybe something will come thru Good Luck. (ps That was about years ago).
 
K

kandim

New member
I am so sorry they are giving you a hard time about granting your child their wish. My son wasn't diagnosed with cf till he was 9. One of the nurses at a local clinic actually contacted make a wish on my son's behalf. He has always went to the clinic in his nascar shirt and hats. He is a big fan of dale earnhardt jr. Well they granted his wish and didn't even ask about the state of his health. We live in ga. We went to pennsylvannia to meet dale jr. It was a wonderful trip and they were very nice at handeling all the details. We meet two families there. One boy was from fla with mucular dys. We had a blast and it was a once in a life time event. I am so sad they would deny your child this ability. These kids go thru so much dealing with cf that they deserve some kind of break. I don't dish any diease but unlike some dieses like cancer they get to go into remmision. Our kids with cf deal with this everyday and have no relief. Maybe something will come thru Good Luck. (ps That was about years ago).
 
K

kandim

New member
I am so sorry they are giving you a hard time about granting your child their wish. My son wasn't diagnosed with cf till he was 9. One of the nurses at a local clinic actually contacted make a wish on my son's behalf. He has always went to the clinic in his nascar shirt and hats. He is a big fan of dale earnhardt jr. Well they granted his wish and didn't even ask about the state of his health. We live in ga. We went to pennsylvannia to meet dale jr. It was a wonderful trip and they were very nice at handeling all the details. We meet two families there. One boy was from fla with mucular dys. We had a blast and it was a once in a life time event. I am so sad they would deny your child this ability. These kids go thru so much dealing with cf that they deserve some kind of break. I don't dish any diease but unlike some dieses like cancer they get to go into remmision. Our kids with cf deal with this everyday and have no relief. Maybe something will come thru Good Luck. (ps That was about years ago).
 
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