making it easier

JennyCoulon

New member
I checked out the site and it really does have a lot of things that families that deal CF would find helpful. They have portable applesauce in a squeezeable container, lots of microwave sterilizers for neb. kits. I think it is worth at least a look, it seems very reasonably priced and products that we would use. Just giving a piece of my mind.
 

JennyCoulon

New member
I checked out the site and it really does have a lot of things that families that deal CF would find helpful. They have portable applesauce in a squeezeable container, lots of microwave sterilizers for neb. kits. I think it is worth at least a look, it seems very reasonably priced and products that we would use. Just giving a piece of my mind.
 

JennyCoulon

New member
I checked out the site and it really does have a lot of things that families that deal CF would find helpful. They have portable applesauce in a squeezeable container, lots of microwave sterilizers for neb. kits. I think it is worth at least a look, it seems very reasonably priced and products that we would use. Just giving a piece of my mind.
 

JennyCoulon

New member
I checked out the site and it really does have a lot of things that families that deal CF would find helpful. They have portable applesauce in a squeezeable container, lots of microwave sterilizers for neb. kits. I think it is worth at least a look, it seems very reasonably priced and products that we would use. Just giving a piece of my mind.
 

JennyCoulon

New member
I checked out the site and it really does have a lot of things that families that deal CF would find helpful. They have portable applesauce in a squeezeable container, lots of microwave sterilizers for neb. kits. I think it is worth at least a look, it seems very reasonably priced and products that we would use. Just giving a piece of my mind.
 

just1more

New member
Jenny, I agree the site looks like it has some great products.

My orginal post was not necessarily judging the site, or even the poster. Only seeking some clarification. The domain was registered 6 months ago, and prior to 24hrs ago I can find nothing online about it. Then this thread and several others appeared since yesterday.

I would love some more information, especially since there is at least an indication the site may be owned by a cf mom (child dx'd as infant, takes meds w/applesauce, uses neb, big on sterilization, ect). If so I'd love to see 'mom' be able to join the site and our community.
 

just1more

New member
Jenny, I agree the site looks like it has some great products.

My orginal post was not necessarily judging the site, or even the poster. Only seeking some clarification. The domain was registered 6 months ago, and prior to 24hrs ago I can find nothing online about it. Then this thread and several others appeared since yesterday.

I would love some more information, especially since there is at least an indication the site may be owned by a cf mom (child dx'd as infant, takes meds w/applesauce, uses neb, big on sterilization, ect). If so I'd love to see 'mom' be able to join the site and our community.
 

just1more

New member
Jenny, I agree the site looks like it has some great products.

My orginal post was not necessarily judging the site, or even the poster. Only seeking some clarification. The domain was registered 6 months ago, and prior to 24hrs ago I can find nothing online about it. Then this thread and several others appeared since yesterday.

I would love some more information, especially since there is at least an indication the site may be owned by a cf mom (child dx'd as infant, takes meds w/applesauce, uses neb, big on sterilization, ect). If so I'd love to see 'mom' be able to join the site and our community.
 

just1more

New member
Jenny, I agree the site looks like it has some great products.

My orginal post was not necessarily judging the site, or even the poster. Only seeking some clarification. The domain was registered 6 months ago, and prior to 24hrs ago I can find nothing online about it. Then this thread and several others appeared since yesterday.

I would love some more information, especially since there is at least an indication the site may be owned by a cf mom (child dx'd as infant, takes meds w/applesauce, uses neb, big on sterilization, ect). If so I'd love to see 'mom' be able to join the site and our community.
 

just1more

New member
Jenny, I agree the site looks like it has some great products.
<br />
<br />My orginal post was not necessarily judging the site, or even the poster. Only seeking some clarification. The domain was registered 6 months ago, and prior to 24hrs ago I can find nothing online about it. Then this thread and several others appeared since yesterday.
<br />
<br />I would love some more information, especially since there is at least an indication the site may be owned by a cf mom (child dx'd as infant, takes meds w/applesauce, uses neb, big on sterilization, ect). If so I'd love to see 'mom' be able to join the site and our community.
 

ktsmom

New member
gee, and to think that my post about our experience so far with a clinical trial was deleted because it was viewed as "recruiting"......
 

ktsmom

New member
gee, and to think that my post about our experience so far with a clinical trial was deleted because it was viewed as "recruiting"......
 

ktsmom

New member
gee, and to think that my post about our experience so far with a clinical trial was deleted because it was viewed as "recruiting"......
 

ktsmom

New member
gee, and to think that my post about our experience so far with a clinical trial was deleted because it was viewed as "recruiting"......
 

ktsmom

New member
gee, and to think that my post about our experience so far with a clinical trial was deleted because it was viewed as "recruiting"......
 
G

grandmacf

Guest
Hi, this is grandma. sorry if i sounded like a walking advertisement. but this is all new to us and we were struggling with a lot of the daily maintenance tasks so when someone told me about the site and then we tried some of the stuff and it worked for us, i was so excited that i guess i got carried away. my daughter had a difficult time in the beginning and i was working closely with her to help her with the every day care. my daughter does read the forums but i don't know if she has posted anything or not.
 
G

grandmacf

Guest
Hi, this is grandma. sorry if i sounded like a walking advertisement. but this is all new to us and we were struggling with a lot of the daily maintenance tasks so when someone told me about the site and then we tried some of the stuff and it worked for us, i was so excited that i guess i got carried away. my daughter had a difficult time in the beginning and i was working closely with her to help her with the every day care. my daughter does read the forums but i don't know if she has posted anything or not.
 
G

grandmacf

Guest
Hi, this is grandma. sorry if i sounded like a walking advertisement. but this is all new to us and we were struggling with a lot of the daily maintenance tasks so when someone told me about the site and then we tried some of the stuff and it worked for us, i was so excited that i guess i got carried away. my daughter had a difficult time in the beginning and i was working closely with her to help her with the every day care. my daughter does read the forums but i don't know if she has posted anything or not.
 
G

grandmacf

Guest
Hi, this is grandma. sorry if i sounded like a walking advertisement. but this is all new to us and we were struggling with a lot of the daily maintenance tasks so when someone told me about the site and then we tried some of the stuff and it worked for us, i was so excited that i guess i got carried away. my daughter had a difficult time in the beginning and i was working closely with her to help her with the every day care. my daughter does read the forums but i don't know if she has posted anything or not.
 
G

grandmacf

Guest
Hi, this is grandma. sorry if i sounded like a walking advertisement. but this is all new to us and we were struggling with a lot of the daily maintenance tasks so when someone told me about the site and then we tried some of the stuff and it worked for us, i was so excited that i guess i got carried away. my daughter had a difficult time in the beginning and i was working closely with her to help her with the every day care. my daughter does read the forums but i don't know if she has posted anything or not.
 
Top