Meconium Ileus and CF and Gene Question

R

RUSSELLCREW

New member
Congrats on the new baby!!!!

Marahsyn had 14 inches of meconium in ther small bowel 5 days after she was born. We took her home, after being induced due to the Group B strep Positive, at 37 weeks and she was "health" but at 3 days of age, she ended up in the ER because her bili was 24.5 and she was fairly dehydrated. At the time we had no idea there was a chance of CF in our family and after her surgery she was in the NICU for 3 weeks.
I think that had my OB listened to me more closely, we could have caught her condition sooner. I drank like a fish out of water, ingesting about 128 fluid ounces a day because my body was trying to hydrate her guts essentially.
We have 3 healthy kids and then Moo so there is a 10% chance that you baby just has a plug nothing more.
 
R

RUSSELLCREW

New member
Congrats on the new baby!!!!

Marahsyn had 14 inches of meconium in ther small bowel 5 days after she was born. We took her home, after being induced due to the Group B strep Positive, at 37 weeks and she was "health" but at 3 days of age, she ended up in the ER because her bili was 24.5 and she was fairly dehydrated. At the time we had no idea there was a chance of CF in our family and after her surgery she was in the NICU for 3 weeks.
I think that had my OB listened to me more closely, we could have caught her condition sooner. I drank like a fish out of water, ingesting about 128 fluid ounces a day because my body was trying to hydrate her guts essentially.
We have 3 healthy kids and then Moo so there is a 10% chance that you baby just has a plug nothing more.
 
R

RUSSELLCREW

New member
Congrats on the new baby!!!!

Marahsyn had 14 inches of meconium in ther small bowel 5 days after she was born. We took her home, after being induced due to the Group B strep Positive, at 37 weeks and she was "health" but at 3 days of age, she ended up in the ER because her bili was 24.5 and she was fairly dehydrated. At the time we had no idea there was a chance of CF in our family and after her surgery she was in the NICU for 3 weeks.
I think that had my OB listened to me more closely, we could have caught her condition sooner. I drank like a fish out of water, ingesting about 128 fluid ounces a day because my body was trying to hydrate her guts essentially.
We have 3 healthy kids and then Moo so there is a 10% chance that you baby just has a plug nothing more.
 
R

RUSSELLCREW

New member
Congrats on the new baby!!!!

Marahsyn had 14 inches of meconium in ther small bowel 5 days after she was born. We took her home, after being induced due to the Group B strep Positive, at 37 weeks and she was "health" but at 3 days of age, she ended up in the ER because her bili was 24.5 and she was fairly dehydrated. At the time we had no idea there was a chance of CF in our family and after her surgery she was in the NICU for 3 weeks.
I think that had my OB listened to me more closely, we could have caught her condition sooner. I drank like a fish out of water, ingesting about 128 fluid ounces a day because my body was trying to hydrate her guts essentially.
We have 3 healthy kids and then Moo so there is a 10% chance that you baby just has a plug nothing more.
 
R

RUSSELLCREW

New member
Congrats on the new baby!!!!
<br />
<br />Marahsyn had 14 inches of meconium in ther small bowel 5 days after she was born. We took her home, after being induced due to the Group B strep Positive, at 37 weeks and she was "health" but at 3 days of age, she ended up in the ER because her bili was 24.5 and she was fairly dehydrated. At the time we had no idea there was a chance of CF in our family and after her surgery she was in the NICU for 3 weeks.
<br />I think that had my OB listened to me more closely, we could have caught her condition sooner. I drank like a fish out of water, ingesting about 128 fluid ounces a day because my body was trying to hydrate her guts essentially.
<br />We have 3 healthy kids and then Moo so there is a 10% chance that you baby just has a plug nothing more.
 
R

rprince

Guest
My son has the F508 gene and had MI. He was in the NICU for 2.5 months.

Because your baby has CF the pregnancy can be considered High risk. So ask for those sonos!! I was monitored every 2 weeks after the 28th week, and every week after the 32nd week! I was induced 38weeks b/c I didn't have any amniotic fluid left. I associate that w/ the fact that my son was not eliminating b/c nothing could pass the MI. No matter how much water I drank it didn't increase the fluid level.

I don't want to go into the details about his stay unless you are interested. But looking back, I realize how important it is to have the CF center/doctors handling your baby's care from day one!! (If you have not been in contact with a local center do it now and get them involved! ) They will be your advocates if your baby ends up having to stay at the hospital.

All the best!
 
R

rprince

Guest
My son has the F508 gene and had MI. He was in the NICU for 2.5 months.

Because your baby has CF the pregnancy can be considered High risk. So ask for those sonos!! I was monitored every 2 weeks after the 28th week, and every week after the 32nd week! I was induced 38weeks b/c I didn't have any amniotic fluid left. I associate that w/ the fact that my son was not eliminating b/c nothing could pass the MI. No matter how much water I drank it didn't increase the fluid level.

I don't want to go into the details about his stay unless you are interested. But looking back, I realize how important it is to have the CF center/doctors handling your baby's care from day one!! (If you have not been in contact with a local center do it now and get them involved! ) They will be your advocates if your baby ends up having to stay at the hospital.

All the best!
 
R

rprince

Guest
My son has the F508 gene and had MI. He was in the NICU for 2.5 months.

Because your baby has CF the pregnancy can be considered High risk. So ask for those sonos!! I was monitored every 2 weeks after the 28th week, and every week after the 32nd week! I was induced 38weeks b/c I didn't have any amniotic fluid left. I associate that w/ the fact that my son was not eliminating b/c nothing could pass the MI. No matter how much water I drank it didn't increase the fluid level.

I don't want to go into the details about his stay unless you are interested. But looking back, I realize how important it is to have the CF center/doctors handling your baby's care from day one!! (If you have not been in contact with a local center do it now and get them involved! ) They will be your advocates if your baby ends up having to stay at the hospital.

All the best!
 
R

rprince

Guest
My son has the F508 gene and had MI. He was in the NICU for 2.5 months.

Because your baby has CF the pregnancy can be considered High risk. So ask for those sonos!! I was monitored every 2 weeks after the 28th week, and every week after the 32nd week! I was induced 38weeks b/c I didn't have any amniotic fluid left. I associate that w/ the fact that my son was not eliminating b/c nothing could pass the MI. No matter how much water I drank it didn't increase the fluid level.

I don't want to go into the details about his stay unless you are interested. But looking back, I realize how important it is to have the CF center/doctors handling your baby's care from day one!! (If you have not been in contact with a local center do it now and get them involved! ) They will be your advocates if your baby ends up having to stay at the hospital.

All the best!
 
R

rprince

Guest
My son has the F508 gene and had MI. He was in the NICU for 2.5 months.
<br />
<br />Because your baby has CF the pregnancy can be considered High risk. So ask for those sonos!! I was monitored every 2 weeks after the 28th week, and every week after the 32nd week! I was induced 38weeks b/c I didn't have any amniotic fluid left. I associate that w/ the fact that my son was not eliminating b/c nothing could pass the MI. No matter how much water I drank it didn't increase the fluid level.
<br />
<br />I don't want to go into the details about his stay unless you are interested. But looking back, I realize how important it is to have the CF center/doctors handling your baby's care from day one!! (If you have not been in contact with a local center do it now and get them involved! ) They will be your advocates if your baby ends up having to stay at the hospital.
<br />
<br />All the best!
 
C

chipie12

New member
What a difference a decade makes <img src="i/expressions/face-icon-small-smile.gif" border="0"> 13 years ago my son was born full term with MI and 3 hours after he was born (and an xray) he was transferred to anther hospital for sugery. I think it's amazing they can detect it early. I would bring it up to your doctor that you are concerned. Don't be afraid to ask if he/she has handled any other cases like yours. The meconium is usually passed after the baby is born so it might not be an issue in your doctor's mind.
 
C

chipie12

New member
What a difference a decade makes <img src="i/expressions/face-icon-small-smile.gif" border="0"> 13 years ago my son was born full term with MI and 3 hours after he was born (and an xray) he was transferred to anther hospital for sugery. I think it's amazing they can detect it early. I would bring it up to your doctor that you are concerned. Don't be afraid to ask if he/she has handled any other cases like yours. The meconium is usually passed after the baby is born so it might not be an issue in your doctor's mind.
 
C

chipie12

New member
What a difference a decade makes <img src="i/expressions/face-icon-small-smile.gif" border="0"> 13 years ago my son was born full term with MI and 3 hours after he was born (and an xray) he was transferred to anther hospital for sugery. I think it's amazing they can detect it early. I would bring it up to your doctor that you are concerned. Don't be afraid to ask if he/she has handled any other cases like yours. The meconium is usually passed after the baby is born so it might not be an issue in your doctor's mind.
 
C

chipie12

New member
What a difference a decade makes <img src="i/expressions/face-icon-small-smile.gif" border="0"> 13 years ago my son was born full term with MI and 3 hours after he was born (and an xray) he was transferred to anther hospital for sugery. I think it's amazing they can detect it early. I would bring it up to your doctor that you are concerned. Don't be afraid to ask if he/she has handled any other cases like yours. The meconium is usually passed after the baby is born so it might not be an issue in your doctor's mind.
 
C

chipie12

New member
What a difference a decade makes <img src="i/expressions/face-icon-small-smile.gif" border="0"> 13 years ago my son was born full term with MI and 3 hours after he was born (and an xray) he was transferred to anther hospital for sugery. I think it's amazing they can detect it early. I would bring it up to your doctor that you are concerned. Don't be afraid to ask if he/she has handled any other cases like yours. The meconium is usually passed after the baby is born so it might not be an issue in your doctor's mind.
 
J

JennyCoulon

New member
My first son who is now 8 years old was born 6 weeks early with a ruptured bowel, meconium ileus. I had him by C-Section and he was taken to the NICU with his big purple belly and had him first surgery to relieve the rupture 4 hours after birth. We spent 2 1/2 months in the hospital, which during this time they tried different formulas and also gave him bowel time to rest before they did his reconnection surgery. He came back with a feeding tube just to help gain weight but that we soon removed.

He is now 8 years old and has never had any trouble with bowel obstructions or anything. He does have a G-button though to help with weight gain because he is so active. Hope this helps. I know that it is scary but you just have to leave everything in GOD's hands and he will help you make it through.

Jenny
27 yr mother of 2 1/2 yr old with CF and 8 yr old with CF
 
J

JennyCoulon

New member
My first son who is now 8 years old was born 6 weeks early with a ruptured bowel, meconium ileus. I had him by C-Section and he was taken to the NICU with his big purple belly and had him first surgery to relieve the rupture 4 hours after birth. We spent 2 1/2 months in the hospital, which during this time they tried different formulas and also gave him bowel time to rest before they did his reconnection surgery. He came back with a feeding tube just to help gain weight but that we soon removed.

He is now 8 years old and has never had any trouble with bowel obstructions or anything. He does have a G-button though to help with weight gain because he is so active. Hope this helps. I know that it is scary but you just have to leave everything in GOD's hands and he will help you make it through.

Jenny
27 yr mother of 2 1/2 yr old with CF and 8 yr old with CF
 
J

JennyCoulon

New member
My first son who is now 8 years old was born 6 weeks early with a ruptured bowel, meconium ileus. I had him by C-Section and he was taken to the NICU with his big purple belly and had him first surgery to relieve the rupture 4 hours after birth. We spent 2 1/2 months in the hospital, which during this time they tried different formulas and also gave him bowel time to rest before they did his reconnection surgery. He came back with a feeding tube just to help gain weight but that we soon removed.

He is now 8 years old and has never had any trouble with bowel obstructions or anything. He does have a G-button though to help with weight gain because he is so active. Hope this helps. I know that it is scary but you just have to leave everything in GOD's hands and he will help you make it through.

Jenny
27 yr mother of 2 1/2 yr old with CF and 8 yr old with CF
 
J

JennyCoulon

New member
My first son who is now 8 years old was born 6 weeks early with a ruptured bowel, meconium ileus. I had him by C-Section and he was taken to the NICU with his big purple belly and had him first surgery to relieve the rupture 4 hours after birth. We spent 2 1/2 months in the hospital, which during this time they tried different formulas and also gave him bowel time to rest before they did his reconnection surgery. He came back with a feeding tube just to help gain weight but that we soon removed.

He is now 8 years old and has never had any trouble with bowel obstructions or anything. He does have a G-button though to help with weight gain because he is so active. Hope this helps. I know that it is scary but you just have to leave everything in GOD's hands and he will help you make it through.

Jenny
27 yr mother of 2 1/2 yr old with CF and 8 yr old with CF
 
J

JennyCoulon

New member
My first son who is now 8 years old was born 6 weeks early with a ruptured bowel, meconium ileus. I had him by C-Section and he was taken to the NICU with his big purple belly and had him first surgery to relieve the rupture 4 hours after birth. We spent 2 1/2 months in the hospital, which during this time they tried different formulas and also gave him bowel time to rest before they did his reconnection surgery. He came back with a feeding tube just to help gain weight but that we soon removed.
<br />
<br />He is now 8 years old and has never had any trouble with bowel obstructions or anything. He does have a G-button though to help with weight gain because he is so active. Hope this helps. I know that it is scary but you just have to leave everything in GOD's hands and he will help you make it through.
<br />
<br />Jenny
<br />27 yr mother of 2 1/2 yr old with CF and 8 yr old with CF
 
You must log in or register to reply here.
Top