Mild CF?

pnhuffman · Nov 19, 2008

I am confused about the Mild Cf. Because at Austins last clinic visit in Nov he had mentioned to and intern or whatever she was referred to Austin as mild. I was kind of confused how he is considered mild. I do know there are a lot more Cfer's that are a lot more severe than him.

But the thing is Austin has been inthe hospital for "Tune-ups" and pneumonia once a year with the last year he was in 2 times and during the 2nd one he cultured PA and he had cultured PA when he was around 2 years old also. He is on enzymes, xopenex, pulmozyme, HTS, IBprofen therapy, prevacid and aquadeks.And the Vest. His pfts has been as low as 76 and as high as 124. Lately its been staying around 106.

So I dont know if they really have the classifications. I like many others try to keep up on his health. I just dont want to take that chance. I have also been told its all about luck.

pnhuffman · Nov 19, 2008

I am confused about the Mild Cf. Because at Austins last clinic visit in Nov he had mentioned to and intern or whatever she was referred to Austin as mild. I was kind of confused how he is considered mild. I do know there are a lot more Cfer's that are a lot more severe than him.

But the thing is Austin has been inthe hospital for "Tune-ups" and pneumonia once a year with the last year he was in 2 times and during the 2nd one he cultured PA and he had cultured PA when he was around 2 years old also. He is on enzymes, xopenex, pulmozyme, HTS, IBprofen therapy, prevacid and aquadeks.And the Vest. His pfts has been as low as 76 and as high as 124. Lately its been staying around 106.

So I dont know if they really have the classifications. I like many others try to keep up on his health. I just dont want to take that chance. I have also been told its all about luck.

pnhuffman · Nov 19, 2008

I am confused about the Mild Cf. Because at Austins last clinic visit in Nov he had mentioned to and intern or whatever she was referred to Austin as mild. I was kind of confused how he is considered mild. I do know there are a lot more Cfer's that are a lot more severe than him.

But the thing is Austin has been inthe hospital for "Tune-ups" and pneumonia once a year with the last year he was in 2 times and during the 2nd one he cultured PA and he had cultured PA when he was around 2 years old also. He is on enzymes, xopenex, pulmozyme, HTS, IBprofen therapy, prevacid and aquadeks.And the Vest. His pfts has been as low as 76 and as high as 124. Lately its been staying around 106.

So I dont know if they really have the classifications. I like many others try to keep up on his health. I just dont want to take that chance. I have also been told its all about luck.

pnhuffman · Nov 19, 2008

I am confused about the Mild Cf. Because at Austins last clinic visit in Nov he had mentioned to and intern or whatever she was referred to Austin as mild. I was kind of confused how he is considered mild. I do know there are a lot more Cfer's that are a lot more severe than him.

But the thing is Austin has been inthe hospital for "Tune-ups" and pneumonia once a year with the last year he was in 2 times and during the 2nd one he cultured PA and he had cultured PA when he was around 2 years old also. He is on enzymes, xopenex, pulmozyme, HTS, IBprofen therapy, prevacid and aquadeks.And the Vest. His pfts has been as low as 76 and as high as 124. Lately its been staying around 106.

So I dont know if they really have the classifications. I like many others try to keep up on his health. I just dont want to take that chance. I have also been told its all about luck.

pnhuffman · Nov 19, 2008

I am confused about the Mild Cf. Because at Austins last clinic visit in Nov he had mentioned to and intern or whatever she was referred to Austin as mild. I was kind of confused how he is considered mild. I do know there are a lot more Cfer's that are a lot more severe than him.
 
 But the thing is Austin has been inthe hospital for "Tune-ups" and pneumonia once a year with the last year he was in 2 times and during the 2nd one he cultured PA and he had cultured PA when he was around 2 years old also. He is on enzymes, xopenex, pulmozyme, HTS, IBprofen therapy, prevacid and aquadeks.And the Vest. His pfts has been as low as 76 and as high as 124. Lately its been staying around 106.
 
 So I dont know if they really have the classifications. I like many others try to keep up on his health. I just dont want to take that chance. I have also been told its all about luck.

amber682 · Nov 19, 2008