Moonface side effects question!!!

NYCLawGirl · Mar 11, 2010

I haven't had my tx yet but I have been on continuous pred at 10mg daily (up to 60mg daily during bursts, which are fairly frequent) for well over a year now. My doctors actually expect my steroid use to GO DOWN after tx, just b/c of less need for bursts assuming I'm not dealing with repeated bouts of rejection. At any rate, I have yet to develop a "moon face" from the steroids and my doctors are surprised. I guess it just doesn't happen to everyone.

NYCLawGirl · Mar 11, 2010

I haven't had my tx yet but I have been on continuous pred at 10mg daily (up to 60mg daily during bursts, which are fairly frequent) for well over a year now. My doctors actually expect my steroid use to GO DOWN after tx, just b/c of less need for bursts assuming I'm not dealing with repeated bouts of rejection. At any rate, I have yet to develop a "moon face" from the steroids and my doctors are surprised. I guess it just doesn't happen to everyone.

NYCLawGirl · Mar 11, 2010

I haven't had my tx yet but I have been on continuous pred at 10mg daily (up to 60mg daily during bursts, which are fairly frequent) for well over a year now. My doctors actually expect my steroid use to GO DOWN after tx, just b/c of less need for bursts assuming I'm not dealing with repeated bouts of rejection. At any rate, I have yet to develop a "moon face" from the steroids and my doctors are surprised. I guess it just doesn't happen to everyone.

NYCLawGirl · Mar 11, 2010

I haven't had my tx yet but I have been on continuous pred at 10mg daily (up to 60mg daily during bursts, which are fairly frequent) for well over a year now. My doctors actually expect my steroid use to GO DOWN after tx, just b/c of less need for bursts assuming I'm not dealing with repeated bouts of rejection. At any rate, I have yet to develop a "moon face" from the steroids and my doctors are surprised. I guess it just doesn't happen to everyone.

NYCLawGirl · Mar 11, 2010

I haven't had my tx yet but I have been on continuous pred at 10mg daily (up to 60mg daily during bursts, which are fairly frequent) for well over a year now. My doctors actually expect my steroid use to GO DOWN after tx, just b/c of less need for bursts assuming I'm not dealing with repeated bouts of rejection. At any rate, I have yet to develop a "moon face" from the steroids and my doctors are surprised. I guess it just doesn't happen to everyone.

Tumbleweed · Mar 16, 2010

i have "moonface" right now post TX. (i hate the word "moonface" who made that up anyways....?) i'm at 20mgs a day right now, and am slowly tapering down....

honestly... i hate it. i asked about it and the transplant nurse says it goes away over time. eventually i will be on 10mgs a day (half of what i'm on now) so basically i just have to stick it out. i do not like how i look right now, but it really is worth it because i feel AMAZING. i'm pretty vain too, and worry about my appearance... so i understand. i think that my face will go down though, and i'll be glad when it does. it really is sooooooo worth it though, really i can't tell you that enough!

so yeah, i think it goes away... so not to worry too much...

Tumbleweed · Mar 16, 2010

i have "moonface" right now post TX. (i hate the word "moonface" who made that up anyways....?) i'm at 20mgs a day right now, and am slowly tapering down....

honestly... i hate it. i asked about it and the transplant nurse says it goes away over time. eventually i will be on 10mgs a day (half of what i'm on now) so basically i just have to stick it out. i do not like how i look right now, but it really is worth it because i feel AMAZING. i'm pretty vain too, and worry about my appearance... so i understand. i think that my face will go down though, and i'll be glad when it does. it really is sooooooo worth it though, really i can't tell you that enough!

so yeah, i think it goes away... so not to worry too much...

Tumbleweed · Mar 16, 2010

i have "moonface" right now post TX. (i hate the word "moonface" who made that up anyways....?) i'm at 20mgs a day right now, and am slowly tapering down....

honestly... i hate it. i asked about it and the transplant nurse says it goes away over time. eventually i will be on 10mgs a day (half of what i'm on now) so basically i just have to stick it out. i do not like how i look right now, but it really is worth it because i feel AMAZING. i'm pretty vain too, and worry about my appearance... so i understand. i think that my face will go down though, and i'll be glad when it does. it really is sooooooo worth it though, really i can't tell you that enough!

so yeah, i think it goes away... so not to worry too much...

Tumbleweed · Mar 16, 2010

i have "moonface" right now post TX. (i hate the word "moonface" who made that up anyways....?) i'm at 20mgs a day right now, and am slowly tapering down....

honestly... i hate it. i asked about it and the transplant nurse says it goes away over time. eventually i will be on 10mgs a day (half of what i'm on now) so basically i just have to stick it out. i do not like how i look right now, but it really is worth it because i feel AMAZING. i'm pretty vain too, and worry about my appearance... so i understand. i think that my face will go down though, and i'll be glad when it does. it really is sooooooo worth it though, really i can't tell you that enough!

so yeah, i think it goes away... so not to worry too much...

Tumbleweed · Mar 16, 2010

i have "moonface" right now post TX. (i hate the word "moonface" who made that up anyways....?) i'm at 20mgs a day right now, and am slowly tapering down....
 
 honestly... i hate it. i asked about it and the transplant nurse says it goes away over time. eventually i will be on 10mgs a day (half of what i'm on now) so basically i just have to stick it out. i do not like how i look right now, but it really is worth it because i feel AMAZING. i'm pretty vain too, and worry about my appearance... so i understand. i think that my face will go down though, and i'll be glad when it does. it really is sooooooo worth it though, really i can't tell you that enough!
 
 so yeah, i think it goes away... so not to worry too much...

Lex · Mar 17, 2010

Isn't it funny how post transplant people are always saying, "It's so worth it"....and "I can finally breathe"....and yet pre transplant people wonder about side effects? I was once like that....but now I know.

Don't worry about side effects.

If my left arm fell off because of "side effects"...it would still be worth the ability to breathe!

I hope that sums it up for people pre transplant who are still wondering if it's worth it.

Lex · Mar 17, 2010

Isn't it funny how post transplant people are always saying, "It's so worth it"....and "I can finally breathe"....and yet pre transplant people wonder about side effects? I was once like that....but now I know.

Don't worry about side effects.

If my left arm fell off because of "side effects"...it would still be worth the ability to breathe!

I hope that sums it up for people pre transplant who are still wondering if it's worth it.

Lex · Mar 17, 2010

Isn't it funny how post transplant people are always saying, "It's so worth it"....and "I can finally breathe"....and yet pre transplant people wonder about side effects? I was once like that....but now I know.

Don't worry about side effects.

If my left arm fell off because of "side effects"...it would still be worth the ability to breathe!

I hope that sums it up for people pre transplant who are still wondering if it's worth it.

Lex · Mar 17, 2010

Isn't it funny how post transplant people are always saying, "It's so worth it"....and "I can finally breathe"....and yet pre transplant people wonder about side effects? I was once like that....but now I know.

Don't worry about side effects.

If my left arm fell off because of "side effects"...it would still be worth the ability to breathe!

I hope that sums it up for people pre transplant who are still wondering if it's worth it.

Lex · Mar 17, 2010

Isn't it funny how post transplant people are always saying, "It's so worth it"....and "I can finally breathe"....and yet pre transplant people wonder about side effects? I was once like that....but now I know.
 
 Don't worry about side effects.
 
 If my left arm fell off because of "side effects"...it would still be worth the ability to breathe!
 
 I hope that sums it up for people pre transplant who are still wondering if it's worth it.

Transplantmommy · Mar 17, 2010