<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mabusincarnate</b></i>
slow painful miserable death. F that.
living with CF sucks, no doubt. living with CF and no medicine is torture.</end quote></div>
well put.
Grendel... I also don't know your situation, but agree this is a drastic step if you are considering it. I have spoken with people at 40% that are extremely sick and can't do very much even with treatments and meds, and I have spoken to those with 40% who are very active and regular with treatments, etc. and have lived with 40% for a long time.
I think a lot of it has to do with your state of health when you decide to start or stop a treatment regimine as to how your body will react. If you havne't been doing many treatments or been compliant, I reckon a stop in treatments/meds won't be quite as dramatic, whereas if you are active and compliant and then decide to stop "cold turkey", I would assume (just speculating here) that your body will "feel" that more. However, the fact that you were active and compliant to begin with may in fact work for you since your lungs are in pretty good shape even at 40%. so, i guess bottom line is, its in God's hands.
does that make any sense? sorry if i'm rambling.
i hope you're well....
slow painful miserable death. F that.
living with CF sucks, no doubt. living with CF and no medicine is torture.</end quote></div>
well put.
Grendel... I also don't know your situation, but agree this is a drastic step if you are considering it. I have spoken with people at 40% that are extremely sick and can't do very much even with treatments and meds, and I have spoken to those with 40% who are very active and regular with treatments, etc. and have lived with 40% for a long time.
I think a lot of it has to do with your state of health when you decide to start or stop a treatment regimine as to how your body will react. If you havne't been doing many treatments or been compliant, I reckon a stop in treatments/meds won't be quite as dramatic, whereas if you are active and compliant and then decide to stop "cold turkey", I would assume (just speculating here) that your body will "feel" that more. However, the fact that you were active and compliant to begin with may in fact work for you since your lungs are in pretty good shape even at 40%. so, i guess bottom line is, its in God's hands.
does that make any sense? sorry if i'm rambling.
i hope you're well....