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More Enzymes
- Thread starter rosesixtyfive
- Start date
The enzyme issue drove me nuts when ds was a baby. Based on input and output... What if he didn't drink much of his bottle, what did normal poop look like... I think DS was on 3-4 pancrease MT4s as a baby and looking back, probably should've been on more. It wasn't until recently that he actually had NORMAL looking poop. Otherwise it had always been yellowish, greenish..
The enzyme issue drove me nuts when ds was a baby. Based on input and output... What if he didn't drink much of his bottle, what did normal poop look like... I think DS was on 3-4 pancrease MT4s as a baby and looking back, probably should've been on more. It wasn't until recently that he actually had NORMAL looking poop. Otherwise it had always been yellowish, greenish..
The enzyme issue drove me nuts when ds was a baby. Based on input and output... What if he didn't drink much of his bottle, what did normal poop look like... I think DS was on 3-4 pancrease MT4s as a baby and looking back, probably should've been on more. It wasn't until recently that he actually had NORMAL looking poop. Otherwise it had always been yellowish, greenish..
The enzyme issue drove me nuts when ds was a baby. Based on input and output... What if he didn't drink much of his bottle, what did normal poop look like... I think DS was on 3-4 pancrease MT4s as a baby and looking back, probably should've been on more. It wasn't until recently that he actually had NORMAL looking poop. Otherwise it had always been yellowish, greenish..
The enzyme issue drove me nuts when ds was a baby. Based on input and output... What if he didn't drink much of his bottle, what did normal poop look like... I think DS was on 3-4 pancrease MT4s as a baby and looking back, probably should've been on more. It wasn't until recently that he actually had NORMAL looking poop. Otherwise it had always been yellowish, greenish..
I remember wondering these same things...
Eventually Emily "topped out" on the enzyme she was on and was switched to another kind. She's currently on Pancrecarb MS -4's and takes 4 with a snack, 7 with a meal. Although, she just downed half a chicken breast, three-quarters of a steak and a small mountain of mashed potatoes with butter and cream cheese for Christmas Eve dinner so she had more than 7...
I agree with Heather, go with it until it seems that the enzyme is not working or your clinic tells you you've reached the max. There'll be a way to afford it, one way or the other.
Merry Christmas!
Eventually Emily "topped out" on the enzyme she was on and was switched to another kind. She's currently on Pancrecarb MS -4's and takes 4 with a snack, 7 with a meal. Although, she just downed half a chicken breast, three-quarters of a steak and a small mountain of mashed potatoes with butter and cream cheese for Christmas Eve dinner so she had more than 7...
I agree with Heather, go with it until it seems that the enzyme is not working or your clinic tells you you've reached the max. There'll be a way to afford it, one way or the other.
Merry Christmas!
I remember wondering these same things...
Eventually Emily "topped out" on the enzyme she was on and was switched to another kind. She's currently on Pancrecarb MS -4's and takes 4 with a snack, 7 with a meal. Although, she just downed half a chicken breast, three-quarters of a steak and a small mountain of mashed potatoes with butter and cream cheese for Christmas Eve dinner so she had more than 7...
I agree with Heather, go with it until it seems that the enzyme is not working or your clinic tells you you've reached the max. There'll be a way to afford it, one way or the other.
Merry Christmas!
Eventually Emily "topped out" on the enzyme she was on and was switched to another kind. She's currently on Pancrecarb MS -4's and takes 4 with a snack, 7 with a meal. Although, she just downed half a chicken breast, three-quarters of a steak and a small mountain of mashed potatoes with butter and cream cheese for Christmas Eve dinner so she had more than 7...
I agree with Heather, go with it until it seems that the enzyme is not working or your clinic tells you you've reached the max. There'll be a way to afford it, one way or the other.
Merry Christmas!
I remember wondering these same things...
Eventually Emily "topped out" on the enzyme she was on and was switched to another kind. She's currently on Pancrecarb MS -4's and takes 4 with a snack, 7 with a meal. Although, she just downed half a chicken breast, three-quarters of a steak and a small mountain of mashed potatoes with butter and cream cheese for Christmas Eve dinner so she had more than 7...
I agree with Heather, go with it until it seems that the enzyme is not working or your clinic tells you you've reached the max. There'll be a way to afford it, one way or the other.
Merry Christmas!
Eventually Emily "topped out" on the enzyme she was on and was switched to another kind. She's currently on Pancrecarb MS -4's and takes 4 with a snack, 7 with a meal. Although, she just downed half a chicken breast, three-quarters of a steak and a small mountain of mashed potatoes with butter and cream cheese for Christmas Eve dinner so she had more than 7...
I agree with Heather, go with it until it seems that the enzyme is not working or your clinic tells you you've reached the max. There'll be a way to afford it, one way or the other.
Merry Christmas!
I remember wondering these same things...
Eventually Emily "topped out" on the enzyme she was on and was switched to another kind. She's currently on Pancrecarb MS -4's and takes 4 with a snack, 7 with a meal. Although, she just downed half a chicken breast, three-quarters of a steak and a small mountain of mashed potatoes with butter and cream cheese for Christmas Eve dinner so she had more than 7...
I agree with Heather, go with it until it seems that the enzyme is not working or your clinic tells you you've reached the max. There'll be a way to afford it, one way or the other.
Merry Christmas!
Eventually Emily "topped out" on the enzyme she was on and was switched to another kind. She's currently on Pancrecarb MS -4's and takes 4 with a snack, 7 with a meal. Although, she just downed half a chicken breast, three-quarters of a steak and a small mountain of mashed potatoes with butter and cream cheese for Christmas Eve dinner so she had more than 7...
I agree with Heather, go with it until it seems that the enzyme is not working or your clinic tells you you've reached the max. There'll be a way to afford it, one way or the other.
Merry Christmas!
I remember wondering these same things...
<br />
<br />Eventually Emily "topped out" on the enzyme she was on and was switched to another kind. She's currently on Pancrecarb MS -4's and takes 4 with a snack, 7 with a meal. Although, she just downed half a chicken breast, three-quarters of a steak and a small mountain of mashed potatoes with butter and cream cheese for Christmas Eve dinner so she had more than 7...
<br />
<br />I agree with Heather, go with it until it seems that the enzyme is not working or your clinic tells you you've reached the max. There'll be a way to afford it, one way or the other.
<br />
<br />Merry Christmas!
<br />
<br />Eventually Emily "topped out" on the enzyme she was on and was switched to another kind. She's currently on Pancrecarb MS -4's and takes 4 with a snack, 7 with a meal. Although, she just downed half a chicken breast, three-quarters of a steak and a small mountain of mashed potatoes with butter and cream cheese for Christmas Eve dinner so she had more than 7...
<br />
<br />I agree with Heather, go with it until it seems that the enzyme is not working or your clinic tells you you've reached the max. There'll be a way to afford it, one way or the other.
<br />
<br />Merry Christmas!
<div class="FTQUOTE"><begin quote>And if he has to take more and more with each meal, how will we afford them after he goes off the first three years free program?</end quote></div>
The way the dr. writes the script will give you a month's supply every time, even as his dose changes (i.e. 'X amount with each meal and X amount with each snack' so every time you fill it you should have the same copay regardless of the number of pills are in the bottle. Emily's insurance covers her enzymes now at a dosage of about triple what it was at the time of her dx a year ago and we have no indication that this will change. Oh, and as he grows he will likely also switch from the 4's to the 8's, reducing the number of pills he has to take.
And as seen from the posts here... the amount of enzymes needed is SO variable- especially for babies/young children, I think, since pancreatic insufficiency kicks in at variable ages and it might be a gradual process. A baby might do pretty well for a while without many enzymes, others need a high dose from the start. It's very individual and your baby needs whatever dose is working for him.
The way the dr. writes the script will give you a month's supply every time, even as his dose changes (i.e. 'X amount with each meal and X amount with each snack' so every time you fill it you should have the same copay regardless of the number of pills are in the bottle. Emily's insurance covers her enzymes now at a dosage of about triple what it was at the time of her dx a year ago and we have no indication that this will change. Oh, and as he grows he will likely also switch from the 4's to the 8's, reducing the number of pills he has to take.
And as seen from the posts here... the amount of enzymes needed is SO variable- especially for babies/young children, I think, since pancreatic insufficiency kicks in at variable ages and it might be a gradual process. A baby might do pretty well for a while without many enzymes, others need a high dose from the start. It's very individual and your baby needs whatever dose is working for him.
<div class="FTQUOTE"><begin quote>And if he has to take more and more with each meal, how will we afford them after he goes off the first three years free program?</end quote></div>
The way the dr. writes the script will give you a month's supply every time, even as his dose changes (i.e. 'X amount with each meal and X amount with each snack' so every time you fill it you should have the same copay regardless of the number of pills are in the bottle. Emily's insurance covers her enzymes now at a dosage of about triple what it was at the time of her dx a year ago and we have no indication that this will change. Oh, and as he grows he will likely also switch from the 4's to the 8's, reducing the number of pills he has to take.
And as seen from the posts here... the amount of enzymes needed is SO variable- especially for babies/young children, I think, since pancreatic insufficiency kicks in at variable ages and it might be a gradual process. A baby might do pretty well for a while without many enzymes, others need a high dose from the start. It's very individual and your baby needs whatever dose is working for him.
The way the dr. writes the script will give you a month's supply every time, even as his dose changes (i.e. 'X amount with each meal and X amount with each snack' so every time you fill it you should have the same copay regardless of the number of pills are in the bottle. Emily's insurance covers her enzymes now at a dosage of about triple what it was at the time of her dx a year ago and we have no indication that this will change. Oh, and as he grows he will likely also switch from the 4's to the 8's, reducing the number of pills he has to take.
And as seen from the posts here... the amount of enzymes needed is SO variable- especially for babies/young children, I think, since pancreatic insufficiency kicks in at variable ages and it might be a gradual process. A baby might do pretty well for a while without many enzymes, others need a high dose from the start. It's very individual and your baby needs whatever dose is working for him.
<div class="FTQUOTE"><begin quote>And if he has to take more and more with each meal, how will we afford them after he goes off the first three years free program?</end quote></div>
The way the dr. writes the script will give you a month's supply every time, even as his dose changes (i.e. 'X amount with each meal and X amount with each snack' so every time you fill it you should have the same copay regardless of the number of pills are in the bottle. Emily's insurance covers her enzymes now at a dosage of about triple what it was at the time of her dx a year ago and we have no indication that this will change. Oh, and as he grows he will likely also switch from the 4's to the 8's, reducing the number of pills he has to take.
And as seen from the posts here... the amount of enzymes needed is SO variable- especially for babies/young children, I think, since pancreatic insufficiency kicks in at variable ages and it might be a gradual process. A baby might do pretty well for a while without many enzymes, others need a high dose from the start. It's very individual and your baby needs whatever dose is working for him.
The way the dr. writes the script will give you a month's supply every time, even as his dose changes (i.e. 'X amount with each meal and X amount with each snack' so every time you fill it you should have the same copay regardless of the number of pills are in the bottle. Emily's insurance covers her enzymes now at a dosage of about triple what it was at the time of her dx a year ago and we have no indication that this will change. Oh, and as he grows he will likely also switch from the 4's to the 8's, reducing the number of pills he has to take.
And as seen from the posts here... the amount of enzymes needed is SO variable- especially for babies/young children, I think, since pancreatic insufficiency kicks in at variable ages and it might be a gradual process. A baby might do pretty well for a while without many enzymes, others need a high dose from the start. It's very individual and your baby needs whatever dose is working for him.
<div class="FTQUOTE"><begin quote>And if he has to take more and more with each meal, how will we afford them after he goes off the first three years free program?</end quote>
The way the dr. writes the script will give you a month's supply every time, even as his dose changes (i.e. 'X amount with each meal and X amount with each snack' so every time you fill it you should have the same copay regardless of the number of pills are in the bottle. Emily's insurance covers her enzymes now at a dosage of about triple what it was at the time of her dx a year ago and we have no indication that this will change. Oh, and as he grows he will likely also switch from the 4's to the 8's, reducing the number of pills he has to take.
And as seen from the posts here... the amount of enzymes needed is SO variable- especially for babies/young children, I think, since pancreatic insufficiency kicks in at variable ages and it might be a gradual process. A baby might do pretty well for a while without many enzymes, others need a high dose from the start. It's very individual and your baby needs whatever dose is working for him.
The way the dr. writes the script will give you a month's supply every time, even as his dose changes (i.e. 'X amount with each meal and X amount with each snack' so every time you fill it you should have the same copay regardless of the number of pills are in the bottle. Emily's insurance covers her enzymes now at a dosage of about triple what it was at the time of her dx a year ago and we have no indication that this will change. Oh, and as he grows he will likely also switch from the 4's to the 8's, reducing the number of pills he has to take.
And as seen from the posts here... the amount of enzymes needed is SO variable- especially for babies/young children, I think, since pancreatic insufficiency kicks in at variable ages and it might be a gradual process. A baby might do pretty well for a while without many enzymes, others need a high dose from the start. It's very individual and your baby needs whatever dose is working for him.
<div class="FTQUOTE"><begin quote>And if he has to take more and more with each meal, how will we afford them after he goes off the first three years free program?</end quote>
<br />The way the dr. writes the script will give you a month's supply every time, even as his dose changes (i.e. 'X amount with each meal and X amount with each snack' so every time you fill it you should have the same copay regardless of the number of pills are in the bottle. Emily's insurance covers her enzymes now at a dosage of about triple what it was at the time of her dx a year ago and we have no indication that this will change. Oh, and as he grows he will likely also switch from the 4's to the 8's, reducing the number of pills he has to take.
<br />
<br />And as seen from the posts here... the amount of enzymes needed is SO variable- especially for babies/young children, I think, since pancreatic insufficiency kicks in at variable ages and it might be a gradual process. A baby might do pretty well for a while without many enzymes, others need a high dose from the start. It's very individual and your baby needs whatever dose is working for him.
<br />The way the dr. writes the script will give you a month's supply every time, even as his dose changes (i.e. 'X amount with each meal and X amount with each snack' so every time you fill it you should have the same copay regardless of the number of pills are in the bottle. Emily's insurance covers her enzymes now at a dosage of about triple what it was at the time of her dx a year ago and we have no indication that this will change. Oh, and as he grows he will likely also switch from the 4's to the 8's, reducing the number of pills he has to take.
<br />
<br />And as seen from the posts here... the amount of enzymes needed is SO variable- especially for babies/young children, I think, since pancreatic insufficiency kicks in at variable ages and it might be a gradual process. A baby might do pretty well for a while without many enzymes, others need a high dose from the start. It's very individual and your baby needs whatever dose is working for him.