More Enzymes

lmattaway

New member
I changed enzymes a few times over the course of my (almost) 28 years. Just a suggestion, I have my doctor write my script for almost 3 times what I normally need. I realized that my copay is the same no matter what the number of capsules. I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years! Doctors are usually pretty good about writing scripts for more than needed, especially with something as benign as enzymes, knowing that it saves you money. Also, don't be afraid to ask for samples every time you're at clinic. This is how I've gotten most of the multi vitamins for free. Hope that helps!
 

lmattaway

New member
I changed enzymes a few times over the course of my (almost) 28 years. Just a suggestion, I have my doctor write my script for almost 3 times what I normally need. I realized that my copay is the same no matter what the number of capsules. I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years! Doctors are usually pretty good about writing scripts for more than needed, especially with something as benign as enzymes, knowing that it saves you money. Also, don't be afraid to ask for samples every time you're at clinic. This is how I've gotten most of the multi vitamins for free. Hope that helps!
 

lmattaway

New member
I changed enzymes a few times over the course of my (almost) 28 years. Just a suggestion, I have my doctor write my script for almost 3 times what I normally need. I realized that my copay is the same no matter what the number of capsules. I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years! Doctors are usually pretty good about writing scripts for more than needed, especially with something as benign as enzymes, knowing that it saves you money. Also, don't be afraid to ask for samples every time you're at clinic. This is how I've gotten most of the multi vitamins for free. Hope that helps!
 

lmattaway

New member
I changed enzymes a few times over the course of my (almost) 28 years. Just a suggestion, I have my doctor write my script for almost 3 times what I normally need. I realized that my copay is the same no matter what the number of capsules. I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years! Doctors are usually pretty good about writing scripts for more than needed, especially with something as benign as enzymes, knowing that it saves you money. Also, don't be afraid to ask for samples every time you're at clinic. This is how I've gotten most of the multi vitamins for free. Hope that helps!
 

lmattaway

New member
I changed enzymes a few times over the course of my (almost) 28 years. Just a suggestion, I have my doctor write my script for almost 3 times what I normally need. I realized that my copay is the same no matter what the number of capsules. I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years! Doctors are usually pretty good about writing scripts for more than needed, especially with something as benign as enzymes, knowing that it saves you money. Also, don't be afraid to ask for samples every time you're at clinic. This is how I've gotten most of the multi vitamins for free. Hope that helps!
 

hmw

New member
<div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote></div>
Won't they expire long before then?

I am gradually building up an extra supply of enzymes for Emily since we can refill our prescriptions for most meds several days early (due to how often some of her meds change we don't do 90 day mail-order) but I try to use up the older ones first and replenish with new ones as I build our stash. We were told the enzymes are only good for a matter of months before losing effectiveness.

eta> We also go by appearance of stools (if they get really greasy again on a frequent basis), a lot of painful gas/stomachaches, and whether or not she's gaining weight in our dosing. Sometimes, we only increase for certain foods or snacks... i.e. we were giving extra at one time only for stuff like sausage, hot dogs, pizza- the extra fatty meals- then eventually increased for all meals. Now it's extra for her Scandishakes and figuring out how many extras she needs to not have stomachaches. In any case, the dr rewrites her script each time to ensure we don't run out (and we've never come close.)
 

hmw

New member
<div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote></div>
Won't they expire long before then?

I am gradually building up an extra supply of enzymes for Emily since we can refill our prescriptions for most meds several days early (due to how often some of her meds change we don't do 90 day mail-order) but I try to use up the older ones first and replenish with new ones as I build our stash. We were told the enzymes are only good for a matter of months before losing effectiveness.

eta> We also go by appearance of stools (if they get really greasy again on a frequent basis), a lot of painful gas/stomachaches, and whether or not she's gaining weight in our dosing. Sometimes, we only increase for certain foods or snacks... i.e. we were giving extra at one time only for stuff like sausage, hot dogs, pizza- the extra fatty meals- then eventually increased for all meals. Now it's extra for her Scandishakes and figuring out how many extras she needs to not have stomachaches. In any case, the dr rewrites her script each time to ensure we don't run out (and we've never come close.)
 

hmw

New member
<div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote></div>
Won't they expire long before then?

I am gradually building up an extra supply of enzymes for Emily since we can refill our prescriptions for most meds several days early (due to how often some of her meds change we don't do 90 day mail-order) but I try to use up the older ones first and replenish with new ones as I build our stash. We were told the enzymes are only good for a matter of months before losing effectiveness.

eta> We also go by appearance of stools (if they get really greasy again on a frequent basis), a lot of painful gas/stomachaches, and whether or not she's gaining weight in our dosing. Sometimes, we only increase for certain foods or snacks... i.e. we were giving extra at one time only for stuff like sausage, hot dogs, pizza- the extra fatty meals- then eventually increased for all meals. Now it's extra for her Scandishakes and figuring out how many extras she needs to not have stomachaches. In any case, the dr rewrites her script each time to ensure we don't run out (and we've never come close.)
 

hmw

New member
<div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote>
Won't they expire long before then?

I am gradually building up an extra supply of enzymes for Emily since we can refill our prescriptions for most meds several days early (due to how often some of her meds change we don't do 90 day mail-order) but I try to use up the older ones first and replenish with new ones as I build our stash. We were told the enzymes are only good for a matter of months before losing effectiveness.

eta> We also go by appearance of stools (if they get really greasy again on a frequent basis), a lot of painful gas/stomachaches, and whether or not she's gaining weight in our dosing. Sometimes, we only increase for certain foods or snacks... i.e. we were giving extra at one time only for stuff like sausage, hot dogs, pizza- the extra fatty meals- then eventually increased for all meals. Now it's extra for her Scandishakes and figuring out how many extras she needs to not have stomachaches. In any case, the dr rewrites her script each time to ensure we don't run out (and we've never come close.)
 

hmw

New member
<div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote>
<br />Won't they expire long before then?
<br />
<br />I am gradually building up an extra supply of enzymes for Emily since we can refill our prescriptions for most meds several days early (due to how often some of her meds change we don't do 90 day mail-order) but I try to use up the older ones first and replenish with new ones as I build our stash. We were told the enzymes are only good for a matter of months before losing effectiveness.
<br />
<br />eta> We also go by appearance of stools (if they get really greasy again on a frequent basis), a lot of painful gas/stomachaches, and whether or not she's gaining weight in our dosing. Sometimes, we only increase for certain foods or snacks... i.e. we were giving extra at one time only for stuff like sausage, hot dogs, pizza- the extra fatty meals- then eventually increased for all meals. Now it's extra for her Scandishakes and figuring out how many extras she needs to not have stomachaches. In any case, the dr rewrites her script each time to ensure we don't run out (and we've never come close.)
 

lmattaway

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i>

<div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote></div>

Won't they expire long before then?
</end quote></div>

FDA-approved CREON® has a shelf-life of 24 months (that's what I'm currently on).

As for her stomach aches, I suffered from constant stomach pain for years as a child. It wasn't until I started taking Miralax that I was able to regulate them. Not sure if that's an issue for her or not, but might be worth a try!
 

lmattaway

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i>

<div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote></div>

Won't they expire long before then?
</end quote></div>

FDA-approved CREON® has a shelf-life of 24 months (that's what I'm currently on).

As for her stomach aches, I suffered from constant stomach pain for years as a child. It wasn't until I started taking Miralax that I was able to regulate them. Not sure if that's an issue for her or not, but might be worth a try!
 

lmattaway

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i>

<div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote></div>

Won't they expire long before then?
</end quote></div>

FDA-approved CREON® has a shelf-life of 24 months (that's what I'm currently on).

As for her stomach aches, I suffered from constant stomach pain for years as a child. It wasn't until I started taking Miralax that I was able to regulate them. Not sure if that's an issue for her or not, but might be worth a try!
 

lmattaway

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i>

<div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote>

Won't they expire long before then?
</end quote>

FDA-approved CREON® has a shelf-life of 24 months (that's what I'm currently on).

As for her stomach aches, I suffered from constant stomach pain for years as a child. It wasn't until I started taking Miralax that I was able to regulate them. Not sure if that's an issue for her or not, but might be worth a try!
 

lmattaway

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i>
<br />
<br /><div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote>
<br />
<br />Won't they expire long before then?
<br /></end quote>
<br />
<br />FDA-approved CREON® has a shelf-life of 24 months (that's what I'm currently on).
<br />
<br />As for her stomach aches, I suffered from constant stomach pain for years as a child. It wasn't until I started taking Miralax that I was able to regulate them. Not sure if that's an issue for her or not, but might be worth a try!
<br />
<br />
 

theLostMiler

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i>

<div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote></div>

Won't they expire long before then? </end quote></div>

I remember in 06 or so my ped doctor discussing the strenght of enzymes b/c when you first get them they were way higher than the dose (MT 20 for example would be like MT 40) and as the enzymes sit and get closer to expiration date (mine have about a year on them) that the strength approaches the prescribed dose. She said they were supposed to be fixing this, but I switched doctors and havent really heard much more about that.

I take Ultrase MT20's (I only take 4-5 with meals and 1-3 with snacks) I have been on this dose I think since around middle school. I can remember taking the white with red stripes ones (I think I got up to 6 or 7 with meals, so I switched to the current ones). I also did some small pink ones around that time (I loved them, they were tiny!). Once in the hospital they had "micro" ultrase... I could take all 4 or 5 in one swallow (I can only take 2 of the bigger size, for being a cf'er not that impressive, I know haha)

Anyone heard of the micro ultrases? I asked my doctor about them but for some reason (I dont remember) couldnt get them.

Anyways, in my opinion I would upgrade (like others have said) or "top out" at around 6-7 and switch to a higher dose to take less.
I also second that after 1 hour of eating, more enzymes must be added (though I dont always do that :/ )

I also do the 90 supply which at the most (when I am taking them correctly) lasts 5-6 months (if I dont eat as much b/c of appetite problems)instead of 3, so I still dont approach the expiration date. Enzymes are so essential and so many are needed per day that I would rather have extra bottles everywhere (I can take a bottle to places I stay at often ie: parents house and boyfriends house) and still have my "built" up supply in the closet at home.

Also I just keep some miralax around (it helps with constipation). I think my doctors said I could take like 1/2 a capful a day, but I tend to not need it (to that extent), I will use it when I eat a lot of meat or something that in my mind can kinda act as a blockage (b/c I have had 2 blockages since 07).

As far as I know, it does take a lot to take too many and in my mind, better to take too much than not enough right?
 

theLostMiler

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i>

<div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote></div>

Won't they expire long before then? </end quote></div>

I remember in 06 or so my ped doctor discussing the strenght of enzymes b/c when you first get them they were way higher than the dose (MT 20 for example would be like MT 40) and as the enzymes sit and get closer to expiration date (mine have about a year on them) that the strength approaches the prescribed dose. She said they were supposed to be fixing this, but I switched doctors and havent really heard much more about that.

I take Ultrase MT20's (I only take 4-5 with meals and 1-3 with snacks) I have been on this dose I think since around middle school. I can remember taking the white with red stripes ones (I think I got up to 6 or 7 with meals, so I switched to the current ones). I also did some small pink ones around that time (I loved them, they were tiny!). Once in the hospital they had "micro" ultrase... I could take all 4 or 5 in one swallow (I can only take 2 of the bigger size, for being a cf'er not that impressive, I know haha)

Anyone heard of the micro ultrases? I asked my doctor about them but for some reason (I dont remember) couldnt get them.

Anyways, in my opinion I would upgrade (like others have said) or "top out" at around 6-7 and switch to a higher dose to take less.
I also second that after 1 hour of eating, more enzymes must be added (though I dont always do that :/ )

I also do the 90 supply which at the most (when I am taking them correctly) lasts 5-6 months (if I dont eat as much b/c of appetite problems)instead of 3, so I still dont approach the expiration date. Enzymes are so essential and so many are needed per day that I would rather have extra bottles everywhere (I can take a bottle to places I stay at often ie: parents house and boyfriends house) and still have my "built" up supply in the closet at home.

Also I just keep some miralax around (it helps with constipation). I think my doctors said I could take like 1/2 a capful a day, but I tend to not need it (to that extent), I will use it when I eat a lot of meat or something that in my mind can kinda act as a blockage (b/c I have had 2 blockages since 07).

As far as I know, it does take a lot to take too many and in my mind, better to take too much than not enough right?
 

theLostMiler

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i>

<div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote></div>

Won't they expire long before then? </end quote></div>

I remember in 06 or so my ped doctor discussing the strenght of enzymes b/c when you first get them they were way higher than the dose (MT 20 for example would be like MT 40) and as the enzymes sit and get closer to expiration date (mine have about a year on them) that the strength approaches the prescribed dose. She said they were supposed to be fixing this, but I switched doctors and havent really heard much more about that.

I take Ultrase MT20's (I only take 4-5 with meals and 1-3 with snacks) I have been on this dose I think since around middle school. I can remember taking the white with red stripes ones (I think I got up to 6 or 7 with meals, so I switched to the current ones). I also did some small pink ones around that time (I loved them, they were tiny!). Once in the hospital they had "micro" ultrase... I could take all 4 or 5 in one swallow (I can only take 2 of the bigger size, for being a cf'er not that impressive, I know haha)

Anyone heard of the micro ultrases? I asked my doctor about them but for some reason (I dont remember) couldnt get them.

Anyways, in my opinion I would upgrade (like others have said) or "top out" at around 6-7 and switch to a higher dose to take less.
I also second that after 1 hour of eating, more enzymes must be added (though I dont always do that :/ )

I also do the 90 supply which at the most (when I am taking them correctly) lasts 5-6 months (if I dont eat as much b/c of appetite problems)instead of 3, so I still dont approach the expiration date. Enzymes are so essential and so many are needed per day that I would rather have extra bottles everywhere (I can take a bottle to places I stay at often ie: parents house and boyfriends house) and still have my "built" up supply in the closet at home.

Also I just keep some miralax around (it helps with constipation). I think my doctors said I could take like 1/2 a capful a day, but I tend to not need it (to that extent), I will use it when I eat a lot of meat or something that in my mind can kinda act as a blockage (b/c I have had 2 blockages since 07).

As far as I know, it does take a lot to take too many and in my mind, better to take too much than not enough right?
 

theLostMiler

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i>

<div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote>

Won't they expire long before then? </end quote>

I remember in 06 or so my ped doctor discussing the strenght of enzymes b/c when you first get them they were way higher than the dose (MT 20 for example would be like MT 40) and as the enzymes sit and get closer to expiration date (mine have about a year on them) that the strength approaches the prescribed dose. She said they were supposed to be fixing this, but I switched doctors and havent really heard much more about that.

I take Ultrase MT20's (I only take 4-5 with meals and 1-3 with snacks) I have been on this dose I think since around middle school. I can remember taking the white with red stripes ones (I think I got up to 6 or 7 with meals, so I switched to the current ones). I also did some small pink ones around that time (I loved them, they were tiny!). Once in the hospital they had "micro" ultrase... I could take all 4 or 5 in one swallow (I can only take 2 of the bigger size, for being a cf'er not that impressive, I know haha)

Anyone heard of the micro ultrases? I asked my doctor about them but for some reason (I dont remember) couldnt get them.

Anyways, in my opinion I would upgrade (like others have said) or "top out" at around 6-7 and switch to a higher dose to take less.
I also second that after 1 hour of eating, more enzymes must be added (though I dont always do that :/ )

I also do the 90 supply which at the most (when I am taking them correctly) lasts 5-6 months (if I dont eat as much b/c of appetite problems)instead of 3, so I still dont approach the expiration date. Enzymes are so essential and so many are needed per day that I would rather have extra bottles everywhere (I can take a bottle to places I stay at often ie: parents house and boyfriends house) and still have my "built" up supply in the closet at home.

Also I just keep some miralax around (it helps with constipation). I think my doctors said I could take like 1/2 a capful a day, but I tend to not need it (to that extent), I will use it when I eat a lot of meat or something that in my mind can kinda act as a blockage (b/c I have had 2 blockages since 07).

As far as I know, it does take a lot to take too many and in my mind, better to take too much than not enough right?
 

theLostMiler

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i>
<br />
<br /><div class="FTQUOTE"><begin quote>I had a 90 day supply filled by mail order (cheaper) and it is going to last me nearly two years!</end quote>
<br />
<br />Won't they expire long before then? </end quote>
<br />
<br />I remember in 06 or so my ped doctor discussing the strenght of enzymes b/c when you first get them they were way higher than the dose (MT 20 for example would be like MT 40) and as the enzymes sit and get closer to expiration date (mine have about a year on them) that the strength approaches the prescribed dose. She said they were supposed to be fixing this, but I switched doctors and havent really heard much more about that.
<br />
<br />I take Ultrase MT20's (I only take 4-5 with meals and 1-3 with snacks) I have been on this dose I think since around middle school. I can remember taking the white with red stripes ones (I think I got up to 6 or 7 with meals, so I switched to the current ones). I also did some small pink ones around that time (I loved them, they were tiny!). Once in the hospital they had "micro" ultrase... I could take all 4 or 5 in one swallow (I can only take 2 of the bigger size, for being a cf'er not that impressive, I know haha)
<br />
<br />Anyone heard of the micro ultrases? I asked my doctor about them but for some reason (I dont remember) couldnt get them.
<br />
<br />Anyways, in my opinion I would upgrade (like others have said) or "top out" at around 6-7 and switch to a higher dose to take less.
<br />I also second that after 1 hour of eating, more enzymes must be added (though I dont always do that :/ )
<br />
<br />I also do the 90 supply which at the most (when I am taking them correctly) lasts 5-6 months (if I dont eat as much b/c of appetite problems)instead of 3, so I still dont approach the expiration date. Enzymes are so essential and so many are needed per day that I would rather have extra bottles everywhere (I can take a bottle to places I stay at often ie: parents house and boyfriends house) and still have my "built" up supply in the closet at home.
<br />
<br />Also I just keep some miralax around (it helps with constipation). I think my doctors said I could take like 1/2 a capful a day, but I tend to not need it (to that extent), I will use it when I eat a lot of meat or something that in my mind can kinda act as a blockage (b/c I have had 2 blockages since 07).
<br />
<br />As far as I know, it does take a lot to take too many and in my mind, better to take too much than not enough right?
 
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