My CF sister...

B

beleache

New member
<img src="i/expressions/face-icon-small-sad.gif" border="0"> Jenny, I am so sorry for what you both are going through.. It really does suck.. I would spend time on the phone, letters, on the computer whatever you both can do.. (look at some of the relationships that have taken place from this site,, even though we cant be "together") My sister Linda also had c/f, but we got dxd the year she passed from breast cancer (i was 44,she was 50) that year..So we didn't have to face the whole cross contamination thing.
Honestly i don't know how we would have reacted if we couldn't have been together.. I'm sure it would have devastated us, but we would have found some way to "be together" .. Please know that i am thinking and praying for you both.. {{{{{Hugs}}}}} to you. If you want to talk please PM me.. God Bless ~ <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
<img src="i/expressions/face-icon-small-sad.gif" border="0"> Jenny, I am so sorry for what you both are going through.. It really does suck.. I would spend time on the phone, letters, on the computer whatever you both can do.. (look at some of the relationships that have taken place from this site,, even though we cant be "together") My sister Linda also had c/f, but we got dxd the year she passed from breast cancer (i was 44,she was 50) that year..So we didn't have to face the whole cross contamination thing.
Honestly i don't know how we would have reacted if we couldn't have been together.. I'm sure it would have devastated us, but we would have found some way to "be together" .. Please know that i am thinking and praying for you both.. {{{{{Hugs}}}}} to you. If you want to talk please PM me.. God Bless ~ <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
<img src="i/expressions/face-icon-small-sad.gif" border="0"> Jenny, I am so sorry for what you both are going through.. It really does suck.. I would spend time on the phone, letters, on the computer whatever you both can do.. (look at some of the relationships that have taken place from this site,, even though we cant be "together") My sister Linda also had c/f, but we got dxd the year she passed from breast cancer (i was 44,she was 50) that year..So we didn't have to face the whole cross contamination thing.
Honestly i don't know how we would have reacted if we couldn't have been together.. I'm sure it would have devastated us, but we would have found some way to "be together" .. Please know that i am thinking and praying for you both.. {{{{{Hugs}}}}} to you. If you want to talk please PM me.. God Bless ~ <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
<img src="i/expressions/face-icon-small-sad.gif" border="0"> Jenny, I am so sorry for what you both are going through.. It really does suck.. I would spend time on the phone, letters, on the computer whatever you both can do.. (look at some of the relationships that have taken place from this site,, even though we cant be "together") My sister Linda also had c/f, but we got dxd the year she passed from breast cancer (i was 44,she was 50) that year..So we didn't have to face the whole cross contamination thing.
Honestly i don't know how we would have reacted if we couldn't have been together.. I'm sure it would have devastated us, but we would have found some way to "be together" .. Please know that i am thinking and praying for you both.. {{{{{Hugs}}}}} to you. If you want to talk please PM me.. God Bless ~ <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
<img src="i/expressions/face-icon-small-sad.gif" border="0"> Jenny, I am so sorry for what you both are going through.. It really does suck.. I would spend time on the phone, letters, on the computer whatever you both can do.. (look at some of the relationships that have taken place from this site,, even though we cant be "together") My sister Linda also had c/f, but we got dxd the year she passed from breast cancer (i was 44,she was 50) that year..So we didn't have to face the whole cross contamination thing.
<br />Honestly i don't know how we would have reacted if we couldn't have been together.. I'm sure it would have devastated us, but we would have found some way to "be together" .. Please know that i am thinking and praying for you both.. {{{{{Hugs}}}}} to you. If you want to talk please PM me.. God Bless ~ <img src="i/expressions/heart.gif" border="0"> joni
 
M

mikedschmitt

New member
great topic for a post...My little brother also has CF and isnt doing too good. I havent seen him in like 3 years and the other day he came home. I was so happy to see him, but he wasnt feeling his best. I knew the risk of cross contamination, but my excitement to see him got the better of me. WHAT A MISTAKE!

I have felt like CRAP for the past week, and my FEV1 dropped like 8-10% to 60%. My cultures havent come back yet to see if i cought something new, but it kinda feels like i did. Now im getting hammered with antibiotics so im feeling a little better, but i guess i should've been a little more careful.

I feel your pain. It is probably the worst knowing you arent "allowed" to hang out with your brother/sister. Hang in there and try to give your support however you can. I'll do the same, just over the phone now.
 
M

mikedschmitt

New member
great topic for a post...My little brother also has CF and isnt doing too good. I havent seen him in like 3 years and the other day he came home. I was so happy to see him, but he wasnt feeling his best. I knew the risk of cross contamination, but my excitement to see him got the better of me. WHAT A MISTAKE!

I have felt like CRAP for the past week, and my FEV1 dropped like 8-10% to 60%. My cultures havent come back yet to see if i cought something new, but it kinda feels like i did. Now im getting hammered with antibiotics so im feeling a little better, but i guess i should've been a little more careful.

I feel your pain. It is probably the worst knowing you arent "allowed" to hang out with your brother/sister. Hang in there and try to give your support however you can. I'll do the same, just over the phone now.
 
M

mikedschmitt

New member
great topic for a post...My little brother also has CF and isnt doing too good. I havent seen him in like 3 years and the other day he came home. I was so happy to see him, but he wasnt feeling his best. I knew the risk of cross contamination, but my excitement to see him got the better of me. WHAT A MISTAKE!

I have felt like CRAP for the past week, and my FEV1 dropped like 8-10% to 60%. My cultures havent come back yet to see if i cought something new, but it kinda feels like i did. Now im getting hammered with antibiotics so im feeling a little better, but i guess i should've been a little more careful.

I feel your pain. It is probably the worst knowing you arent "allowed" to hang out with your brother/sister. Hang in there and try to give your support however you can. I'll do the same, just over the phone now.
 
M

mikedschmitt

New member
great topic for a post...My little brother also has CF and isnt doing too good. I havent seen him in like 3 years and the other day he came home. I was so happy to see him, but he wasnt feeling his best. I knew the risk of cross contamination, but my excitement to see him got the better of me. WHAT A MISTAKE!

I have felt like CRAP for the past week, and my FEV1 dropped like 8-10% to 60%. My cultures havent come back yet to see if i cought something new, but it kinda feels like i did. Now im getting hammered with antibiotics so im feeling a little better, but i guess i should've been a little more careful.

I feel your pain. It is probably the worst knowing you arent "allowed" to hang out with your brother/sister. Hang in there and try to give your support however you can. I'll do the same, just over the phone now.
 
M

mikedschmitt

New member
great topic for a post...My little brother also has CF and isnt doing too good. I havent seen him in like 3 years and the other day he came home. I was so happy to see him, but he wasnt feeling his best. I knew the risk of cross contamination, but my excitement to see him got the better of me. WHAT A MISTAKE!
<br />
<br />I have felt like CRAP for the past week, and my FEV1 dropped like 8-10% to 60%. My cultures havent come back yet to see if i cought something new, but it kinda feels like i did. Now im getting hammered with antibiotics so im feeling a little better, but i guess i should've been a little more careful.
<br />
<br />I feel your pain. It is probably the worst knowing you arent "allowed" to hang out with your brother/sister. Hang in there and try to give your support however you can. I'll do the same, just over the phone now.
<br />
<br />
 
J

juls

Guest
Wow..I've never really thought about this before. I have two little girls with CF. They were both diagnosed last spring at 3 years old and 3 months old. Since they will grow up together in the same house, I never realized that as adults they might not be able to have close contact with each other??!!!

This makes me feel very sad.
 
J

juls

Guest
Wow..I've never really thought about this before. I have two little girls with CF. They were both diagnosed last spring at 3 years old and 3 months old. Since they will grow up together in the same house, I never realized that as adults they might not be able to have close contact with each other??!!!

This makes me feel very sad.
 
J

juls

Guest
Wow..I've never really thought about this before. I have two little girls with CF. They were both diagnosed last spring at 3 years old and 3 months old. Since they will grow up together in the same house, I never realized that as adults they might not be able to have close contact with each other??!!!

This makes me feel very sad.
 
J

juls

Guest
Wow..I've never really thought about this before. I have two little girls with CF. They were both diagnosed last spring at 3 years old and 3 months old. Since they will grow up together in the same house, I never realized that as adults they might not be able to have close contact with each other??!!!

This makes me feel very sad.
 
J

juls

Guest
Wow..I've never really thought about this before. I have two little girls with CF. They were both diagnosed last spring at 3 years old and 3 months old. Since they will grow up together in the same house, I never realized that as adults they might not be able to have close contact with each other??!!!
<br />
<br />This makes me feel very sad.
 
K

kayleesgrandma

New member
Jenny, I was going back over some of my old pms and found some from you when your sister was in the hospital last Jan--I remember wondering how she was. I was at work and madw a mental note to get ahold of you--but as usual--unless I write it down--I forget! I am sorry for all the heartache you are going through, and I think I can understand your anger. Can't you wear Masks and gloves when your sister is around? I'm so sorry you can't hug or touch--and YES--CF S**KS!!!!<img src="i/expressions/face-icon-small-mad.gif" border="0">
 
K

kayleesgrandma

New member
Jenny, I was going back over some of my old pms and found some from you when your sister was in the hospital last Jan--I remember wondering how she was. I was at work and madw a mental note to get ahold of you--but as usual--unless I write it down--I forget! I am sorry for all the heartache you are going through, and I think I can understand your anger. Can't you wear Masks and gloves when your sister is around? I'm so sorry you can't hug or touch--and YES--CF S**KS!!!!<img src="i/expressions/face-icon-small-mad.gif" border="0">
 
K

kayleesgrandma

New member
Jenny, I was going back over some of my old pms and found some from you when your sister was in the hospital last Jan--I remember wondering how she was. I was at work and madw a mental note to get ahold of you--but as usual--unless I write it down--I forget! I am sorry for all the heartache you are going through, and I think I can understand your anger. Can't you wear Masks and gloves when your sister is around? I'm so sorry you can't hug or touch--and YES--CF S**KS!!!!<img src="i/expressions/face-icon-small-mad.gif" border="0">
 
K

kayleesgrandma

New member
Jenny, I was going back over some of my old pms and found some from you when your sister was in the hospital last Jan--I remember wondering how she was. I was at work and madw a mental note to get ahold of you--but as usual--unless I write it down--I forget! I am sorry for all the heartache you are going through, and I think I can understand your anger. Can't you wear Masks and gloves when your sister is around? I'm so sorry you can't hug or touch--and YES--CF S**KS!!!!<img src="i/expressions/face-icon-small-mad.gif" border="0">
 
K

kayleesgrandma

New member
Jenny, I was going back over some of my old pms and found some from you when your sister was in the hospital last Jan--I remember wondering how she was. I was at work and madw a mental note to get ahold of you--but as usual--unless I write it down--I forget! I am sorry for all the heartache you are going through, and I think I can understand your anger. Can't you wear Masks and gloves when your sister is around? I'm so sorry you can't hug or touch--and YES--CF S**KS!!!!<img src="i/expressions/face-icon-small-mad.gif" border="0">
 
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