M
moxie1
Guest
<p>I sent you a pm
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Need to vent
- Thread starter missT
- Start date
thank you all for your replies. I am starting therapy this week. I do try to stay positive and I know that stress, anxiety and negativity do terrible things to the body. It seems like there are only two options-1. drown in the negativity and just feel sorry for myself or 2. wake up each day and "fight the good CF fight". All of these feeling have come up because I am planning my wedding (1st) and want to start a family and all I want is the gift of health. I can achieve anything but I cannot cure myself. Also, I do believe in a higher power (God) I just have been struggling with "why" and "what happens".
thank you all for your replies. I am starting therapy this week. I do try to stay positive and I know that stress, anxiety and negativity do terrible things to the body. It seems like there are only two options-1. drown in the negativity and just feel sorry for myself or 2. wake up each day and "fight the good CF fight". All of these feeling have come up because I am planning my wedding (1st) and want to start a family and all I want is the gift of health. I can achieve anything but I cannot cure myself. Also, I do believe in a higher power (God) I just have been struggling with "why" and "what happens".
thank you all for your replies. I am starting therapy this week. I do try to stay positive and I know that stress, anxiety and negativity do terrible things to the body. It seems like there are only two options-1. drown in the negativity and just feel sorry for myself or 2. wake up each day and "fight the good CF fight". All of these feeling have come up because I am planning my wedding (1st) and want to start a family and all I want is the gift of health. I can achieve anything but I cannot cure myself. Also, I do believe in a higher power (God) I just have been struggling with "why" and "what happens".
I hope you are able to get the help you need to keep going when you start therapy. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I did not mean to imply in my post that we weren't to keep fighting (obviously that isn't an option) but just that brushing the feelings we fight with off isn't healthy either, they are real and painful and we can't just 'will' them away so easily, you know? I do believe there is something between options 1 & 2... fighting the fight, while acknowledging the pain and finding ways to deal with it. And realizing that you can keep fighting without minimizing the impact it has on your life and giving yourself permission to grieve the changes it's brought to your life as you need to, and reaching out for support as needed (without having your feelings minimized at those times or feeling like you must be positive all the time.) It's not the same as feeling sorry for yourself. <img src="i/expressions/heart.gif" border="0">
Wishing the best.
Wishing the best.
I hope you are able to get the help you need to keep going when you start therapy. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I did not mean to imply in my post that we weren't to keep fighting (obviously that isn't an option) but just that brushing the feelings we fight with off isn't healthy either, they are real and painful and we can't just 'will' them away so easily, you know? I do believe there is something between options 1 & 2... fighting the fight, while acknowledging the pain and finding ways to deal with it. And realizing that you can keep fighting without minimizing the impact it has on your life and giving yourself permission to grieve the changes it's brought to your life as you need to, and reaching out for support as needed (without having your feelings minimized at those times or feeling like you must be positive all the time.) It's not the same as feeling sorry for yourself. <img src="i/expressions/heart.gif" border="0">
Wishing the best.
Wishing the best.
I hope you are able to get the help you need to keep going when you start therapy. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I did not mean to imply in my post that we weren't to keep fighting (obviously that isn't an option) but just that brushing the feelings we fight with off isn't healthy either, they are real and painful and we can't just 'will' them away so easily, you know? I do believe there is something between options 1 & 2... fighting the fight, while acknowledging the pain and finding ways to deal with it. And realizing that you can keep fighting without minimizing the impact it has on your life and giving yourself permission to grieve the changes it's brought to your life as you need to, and reaching out for support as needed (without having your feelings minimized at those times or feeling like you must be positive all the time.) It's not the same as feeling sorry for yourself. <img src="i/expressions/heart.gif" border="0">
<br />
<br />Wishing the best.
<br />
<br />Wishing the best.
coltsfan715
New member
I will say I think that like most have mentioned everyone feels the way you have felt at some point in time. For me I started feeling that way in the year before my transplant. I felt hopeless and like nothing would help my situation. I was trying everything I could and all of these things seemed to be working for everyone else and when I tried new meds or supplements I simply got worse. I had my transplant and have had an amazing experience, so don't have much room to complain about that right now. But in terms of the new medicines I still feel the same way you feel at times. I sit and think yeah that's great but what do I care for myself if there is a cure now? I wish it for everyone else but it will correct my stomach issues and that is it - if I could even take a med for a cure with my transplant is yet to be determined, we will see if it comes to that anyhow.
Any way the point I guess was despite the level of health I think there are times that we all have those WTH moments. Where we just wonder what we were thinking when God asked if we wanted to live this life, which I do seriously believe we have some input in the life we live and the problems we have, otherwise our God would just be downright cruel. I think for me I gladly live in a world of denial at times. I don't deny it and as many people think that CF Denial is so horrible, if it keeps me sane and semi happy I will take it over complete acceptance of my health situation and knowing every possible outcome I might have. I would rather be surprised instead of sit waiting and dreading the possibilities.
So I guess that is my answer to your question of how do some of us stay positive - for me it is denial. I rarely acknowledge my health issues unless they are an issue at the time. I take my meds and go about my day without mentioning them most of the time. It makes it easier.
Lindsey
Any way the point I guess was despite the level of health I think there are times that we all have those WTH moments. Where we just wonder what we were thinking when God asked if we wanted to live this life, which I do seriously believe we have some input in the life we live and the problems we have, otherwise our God would just be downright cruel. I think for me I gladly live in a world of denial at times. I don't deny it and as many people think that CF Denial is so horrible, if it keeps me sane and semi happy I will take it over complete acceptance of my health situation and knowing every possible outcome I might have. I would rather be surprised instead of sit waiting and dreading the possibilities.
So I guess that is my answer to your question of how do some of us stay positive - for me it is denial. I rarely acknowledge my health issues unless they are an issue at the time. I take my meds and go about my day without mentioning them most of the time. It makes it easier.
Lindsey
coltsfan715
New member
I will say I think that like most have mentioned everyone feels the way you have felt at some point in time. For me I started feeling that way in the year before my transplant. I felt hopeless and like nothing would help my situation. I was trying everything I could and all of these things seemed to be working for everyone else and when I tried new meds or supplements I simply got worse. I had my transplant and have had an amazing experience, so don't have much room to complain about that right now. But in terms of the new medicines I still feel the same way you feel at times. I sit and think yeah that's great but what do I care for myself if there is a cure now? I wish it for everyone else but it will correct my stomach issues and that is it - if I could even take a med for a cure with my transplant is yet to be determined, we will see if it comes to that anyhow.
Any way the point I guess was despite the level of health I think there are times that we all have those WTH moments. Where we just wonder what we were thinking when God asked if we wanted to live this life, which I do seriously believe we have some input in the life we live and the problems we have, otherwise our God would just be downright cruel. I think for me I gladly live in a world of denial at times. I don't deny it and as many people think that CF Denial is so horrible, if it keeps me sane and semi happy I will take it over complete acceptance of my health situation and knowing every possible outcome I might have. I would rather be surprised instead of sit waiting and dreading the possibilities.
So I guess that is my answer to your question of how do some of us stay positive - for me it is denial. I rarely acknowledge my health issues unless they are an issue at the time. I take my meds and go about my day without mentioning them most of the time. It makes it easier.
Lindsey
Any way the point I guess was despite the level of health I think there are times that we all have those WTH moments. Where we just wonder what we were thinking when God asked if we wanted to live this life, which I do seriously believe we have some input in the life we live and the problems we have, otherwise our God would just be downright cruel. I think for me I gladly live in a world of denial at times. I don't deny it and as many people think that CF Denial is so horrible, if it keeps me sane and semi happy I will take it over complete acceptance of my health situation and knowing every possible outcome I might have. I would rather be surprised instead of sit waiting and dreading the possibilities.
So I guess that is my answer to your question of how do some of us stay positive - for me it is denial. I rarely acknowledge my health issues unless they are an issue at the time. I take my meds and go about my day without mentioning them most of the time. It makes it easier.
Lindsey
coltsfan715
New member
I will say I think that like most have mentioned everyone feels the way you have felt at some point in time. For me I started feeling that way in the year before my transplant. I felt hopeless and like nothing would help my situation. I was trying everything I could and all of these things seemed to be working for everyone else and when I tried new meds or supplements I simply got worse. I had my transplant and have had an amazing experience, so don't have much room to complain about that right now. But in terms of the new medicines I still feel the same way you feel at times. I sit and think yeah that's great but what do I care for myself if there is a cure now? I wish it for everyone else but it will correct my stomach issues and that is it - if I could even take a med for a cure with my transplant is yet to be determined, we will see if it comes to that anyhow.
<br />
<br />Any way the point I guess was despite the level of health I think there are times that we all have those WTH moments. Where we just wonder what we were thinking when God asked if we wanted to live this life, which I do seriously believe we have some input in the life we live and the problems we have, otherwise our God would just be downright cruel. I think for me I gladly live in a world of denial at times. I don't deny it and as many people think that CF Denial is so horrible, if it keeps me sane and semi happy I will take it over complete acceptance of my health situation and knowing every possible outcome I might have. I would rather be surprised instead of sit waiting and dreading the possibilities.
<br />
<br />So I guess that is my answer to your question of how do some of us stay positive - for me it is denial. I rarely acknowledge my health issues unless they are an issue at the time. I take my meds and go about my day without mentioning them most of the time. It makes it easier.
<br />
<br />Lindsey
<br />
<br />Any way the point I guess was despite the level of health I think there are times that we all have those WTH moments. Where we just wonder what we were thinking when God asked if we wanted to live this life, which I do seriously believe we have some input in the life we live and the problems we have, otherwise our God would just be downright cruel. I think for me I gladly live in a world of denial at times. I don't deny it and as many people think that CF Denial is so horrible, if it keeps me sane and semi happy I will take it over complete acceptance of my health situation and knowing every possible outcome I might have. I would rather be surprised instead of sit waiting and dreading the possibilities.
<br />
<br />So I guess that is my answer to your question of how do some of us stay positive - for me it is denial. I rarely acknowledge my health issues unless they are an issue at the time. I take my meds and go about my day without mentioning them most of the time. It makes it easier.
<br />
<br />Lindsey
W
windex125
Guest
There are most mornings lately I wish I wouldn't wake up, that is how tired I feel of all this maddness, I also live in denial and it sounds weird to say that, but I hardely ever discuss my feelings, I also agree it keeps me sane. thanks for that Coltsfan715. I couldn't have said it better. I just get up and deal with it, like doing a load of laundry. Treatments, meds, IV's the amount of stuff that comes out of me could brick a wall probably, it is discusting and makes me feel horrible. It's always producing...I do not blame God in any way or form for this physical body that I have to deal with, I think often about all those children at St.Judes Hospital and around the world for that matter. I pray at night for a better tomorrow, and for less coughing and infections sometimes it works sometimes not it's all a deck of cards for me. I just go about it as best I can, and feel when my time is near it will be. I am 56 and probably worst now then ever before, but that is the way things are. I always say when another friend turns up with cancer and it is like a monthly basis lately OMG how can I still be living this terrible disease eating at my lungs and taking my breath away. I am so happy new drugs are being invented and can help our children for the future. Can someone please tell me how the number of 30,000 effected still stays the same for more than 20+yrs. with all the new cases you hear abt. Also in defense of Scanboyd I do not think he meant to lessen Miss T anger in any way. I use the postive attiude as well for everyone who comes to me with their problems or health issues. We all know the mind is our strongest encouragment even when we have coughed for 2hrs straight and it finally subsides we say wow that was a long one. Venting is good we all need to do it. I don't do it enough. My heart is heavy many times, but I'm still here for a reason? Though I wish I knew what it was? Pat-CF/56
W
windex125
Guest
There are most mornings lately I wish I wouldn't wake up, that is how tired I feel of all this maddness, I also live in denial and it sounds weird to say that, but I hardely ever discuss my feelings, I also agree it keeps me sane. thanks for that Coltsfan715. I couldn't have said it better. I just get up and deal with it, like doing a load of laundry. Treatments, meds, IV's the amount of stuff that comes out of me could brick a wall probably, it is discusting and makes me feel horrible. It's always producing...I do not blame God in any way or form for this physical body that I have to deal with, I think often about all those children at St.Judes Hospital and around the world for that matter. I pray at night for a better tomorrow, and for less coughing and infections sometimes it works sometimes not it's all a deck of cards for me. I just go about it as best I can, and feel when my time is near it will be. I am 56 and probably worst now then ever before, but that is the way things are. I always say when another friend turns up with cancer and it is like a monthly basis lately OMG how can I still be living this terrible disease eating at my lungs and taking my breath away. I am so happy new drugs are being invented and can help our children for the future. Can someone please tell me how the number of 30,000 effected still stays the same for more than 20+yrs. with all the new cases you hear abt. Also in defense of Scanboyd I do not think he meant to lessen Miss T anger in any way. I use the postive attiude as well for everyone who comes to me with their problems or health issues. We all know the mind is our strongest encouragment even when we have coughed for 2hrs straight and it finally subsides we say wow that was a long one. Venting is good we all need to do it. I don't do it enough. My heart is heavy many times, but I'm still here for a reason? Though I wish I knew what it was? Pat-CF/56
W
windex125
Guest
There are most mornings lately I wish I wouldn't wake up, that is how tired I feel of all this maddness, I also live in denial and it sounds weird to say that, but I hardely ever discuss my feelings, I also agree it keeps me sane. thanks for that Coltsfan715. I couldn't have said it better. I just get up and deal with it, like doing a load of laundry. Treatments, meds, IV's the amount of stuff that comes out of me could brick a wall probably, it is discusting and makes me feel horrible. It's always producing...I do not blame God in any way or form for this physical body that I have to deal with, I think often about all those children at St.Judes Hospital and around the world for that matter. I pray at night for a better tomorrow, and for less coughing and infections sometimes it works sometimes not it's all a deck of cards for me. I just go about it as best I can, and feel when my time is near it will be. I am 56 and probably worst now then ever before, but that is the way things are. I always say when another friend turns up with cancer and it is like a monthly basis lately OMG how can I still be living this terrible disease eating at my lungs and taking my breath away. I am so happy new drugs are being invented and can help our children for the future. Can someone please tell me how the number of 30,000 effected still stays the same for more than 20+yrs. with all the new cases you hear abt. Also in defense of Scanboyd I do not think he meant to lessen Miss T anger in any way. I use the postive attiude as well for everyone who comes to me with their problems or health issues. We all know the mind is our strongest encouragment even when we have coughed for 2hrs straight and it finally subsides we say wow that was a long one. Venting is good we all need to do it. I don't do it enough. My heart is heavy many times, but I'm still here for a reason? Though I wish I knew what it was? Pat-CF/56
StillFighting
New member
There are two things that I do that help me stay positive.
Ironic as this may sound, I have a silent cry when my emotions overwhelm me. This helps me to release tension. I usually feel better after a good cry.
Secondly, I try to think about the things that are in fact positive in my life. I think about the positive influence I have had on my daughter, the impact I have had in others who do not have this disease and take their life for granted.
I hope this helps in some small way. We all know what you are going through. We all live it on a daily basis.
Ironic as this may sound, I have a silent cry when my emotions overwhelm me. This helps me to release tension. I usually feel better after a good cry.
Secondly, I try to think about the things that are in fact positive in my life. I think about the positive influence I have had on my daughter, the impact I have had in others who do not have this disease and take their life for granted.
I hope this helps in some small way. We all know what you are going through. We all live it on a daily basis.
StillFighting
New member
There are two things that I do that help me stay positive.
Ironic as this may sound, I have a silent cry when my emotions overwhelm me. This helps me to release tension. I usually feel better after a good cry.
Secondly, I try to think about the things that are in fact positive in my life. I think about the positive influence I have had on my daughter, the impact I have had in others who do not have this disease and take their life for granted.
I hope this helps in some small way. We all know what you are going through. We all live it on a daily basis.
Ironic as this may sound, I have a silent cry when my emotions overwhelm me. This helps me to release tension. I usually feel better after a good cry.
Secondly, I try to think about the things that are in fact positive in my life. I think about the positive influence I have had on my daughter, the impact I have had in others who do not have this disease and take their life for granted.
I hope this helps in some small way. We all know what you are going through. We all live it on a daily basis.
StillFighting
New member
There are two things that I do that help me stay positive.
<br />
<br />Ironic as this may sound, I have a silent cry when my emotions overwhelm me. This helps me to release tension. I usually feel better after a good cry.
<br />Secondly, I try to think about the things that are in fact positive in my life. I think about the positive influence I have had on my daughter, the impact I have had in others who do not have this disease and take their life for granted.
<br />
<br />I hope this helps in some small way. We all know what you are going through. We all live it on a daily basis.
<br />
<br />Ironic as this may sound, I have a silent cry when my emotions overwhelm me. This helps me to release tension. I usually feel better after a good cry.
<br />Secondly, I try to think about the things that are in fact positive in my life. I think about the positive influence I have had on my daughter, the impact I have had in others who do not have this disease and take their life for granted.
<br />
<br />I hope this helps in some small way. We all know what you are going through. We all live it on a daily basis.
musclemania70
New member
What do you mean 'the God card'?