Needing positive thoughts!

BabyBeauty

New member
My daughter cultured psuedo several weeks ago for the first time. That week was a blur! I was a walking zombie, prone to tearing up for no reason, and had a massive headache. I understand the stress and worry you are going through. I just have to believe that these meds will work and she will fight it. If we end up going to the hospital, I am ready for it. That is all you can do. I have also been talking to my friends more about what I am going through. I think friends don't understand unless you let them into your world. Talking it out helps as well. Also this forum helps tons! I am sending you hugs and a pat on the back that you can do this!
 

BabyBeauty

New member
My daughter cultured psuedo several weeks ago for the first time. That week was a blur! I was a walking zombie, prone to tearing up for no reason, and had a massive headache. I understand the stress and worry you are going through. I just have to believe that these meds will work and she will fight it. If we end up going to the hospital, I am ready for it. That is all you can do. I have also been talking to my friends more about what I am going through. I think friends don't understand unless you let them into your world. Talking it out helps as well. Also this forum helps tons! I am sending you hugs and a pat on the back that you can do this!
 

BabyBeauty

New member
My daughter cultured psuedo several weeks ago for the first time. That week was a blur! I was a walking zombie, prone to tearing up for no reason, and had a massive headache. I understand the stress and worry you are going through. I just have to believe that these meds will work and she will fight it. If we end up going to the hospital, I am ready for it. That is all you can do. I have also been talking to my friends more about what I am going through. I think friends don't understand unless you let them into your world. Talking it out helps as well. Also this forum helps tons! I am sending you hugs and a pat on the back that you can do this!
 

BabyBeauty

New member
My daughter cultured psuedo several weeks ago for the first time. That week was a blur! I was a walking zombie, prone to tearing up for no reason, and had a massive headache. I understand the stress and worry you are going through. I just have to believe that these meds will work and she will fight it. If we end up going to the hospital, I am ready for it. That is all you can do. I have also been talking to my friends more about what I am going through. I think friends don't understand unless you let them into your world. Talking it out helps as well. Also this forum helps tons! I am sending you hugs and a pat on the back that you can do this!
 

BabyBeauty

New member
My daughter cultured psuedo several weeks ago for the first time. That week was a blur! I was a walking zombie, prone to tearing up for no reason, and had a massive headache. I understand the stress and worry you are going through. I just have to believe that these meds will work and she will fight it. If we end up going to the hospital, I am ready for it. That is all you can do. I have also been talking to my friends more about what I am going through. I think friends don't understand unless you let them into your world. Talking it out helps as well. Also this forum helps tons! I am sending you hugs and a pat on the back that you can do this!
 

Tylersmom28

New member
I agree, I am believing that the meds will work and get rid of it and that it will NEVER come back...or atleast for a VERY VERY long time!! I'll be glad when he's done w/the Tobi b/c he doesn't like having the mask on him... <img src="i/expressions/face-icon-small-sad.gif" border="0"> He does fine in the morn. but the evening is a diff. story..he fights it sooo bad..poor baby. I just always sit and wonder...why MY baby..why?! It has been 3wks or so since he cultured pa so if he isn't sick then the meds have to be working..right?! He wasn't showing any symptoms before we knew he had it.
Thank you all for the pos. comments! God Bless!
 

Tylersmom28

New member
I agree, I am believing that the meds will work and get rid of it and that it will NEVER come back...or atleast for a VERY VERY long time!! I'll be glad when he's done w/the Tobi b/c he doesn't like having the mask on him... <img src="i/expressions/face-icon-small-sad.gif" border="0"> He does fine in the morn. but the evening is a diff. story..he fights it sooo bad..poor baby. I just always sit and wonder...why MY baby..why?! It has been 3wks or so since he cultured pa so if he isn't sick then the meds have to be working..right?! He wasn't showing any symptoms before we knew he had it.
Thank you all for the pos. comments! God Bless!
 

Tylersmom28

New member
I agree, I am believing that the meds will work and get rid of it and that it will NEVER come back...or atleast for a VERY VERY long time!! I'll be glad when he's done w/the Tobi b/c he doesn't like having the mask on him... <img src="i/expressions/face-icon-small-sad.gif" border="0"> He does fine in the morn. but the evening is a diff. story..he fights it sooo bad..poor baby. I just always sit and wonder...why MY baby..why?! It has been 3wks or so since he cultured pa so if he isn't sick then the meds have to be working..right?! He wasn't showing any symptoms before we knew he had it.
Thank you all for the pos. comments! God Bless!
 

Tylersmom28

New member
I agree, I am believing that the meds will work and get rid of it and that it will NEVER come back...or atleast for a VERY VERY long time!! I'll be glad when he's done w/the Tobi b/c he doesn't like having the mask on him... <img src="i/expressions/face-icon-small-sad.gif" border="0"> He does fine in the morn. but the evening is a diff. story..he fights it sooo bad..poor baby. I just always sit and wonder...why MY baby..why?! It has been 3wks or so since he cultured pa so if he isn't sick then the meds have to be working..right?! He wasn't showing any symptoms before we knew he had it.
Thank you all for the pos. comments! God Bless!
 

Tylersmom28

New member
I agree, I am believing that the meds will work and get rid of it and that it will NEVER come back...or atleast for a VERY VERY long time!! I'll be glad when he's done w/the Tobi b/c he doesn't like having the mask on him... <img src="i/expressions/face-icon-small-sad.gif" border="0"> He does fine in the morn. but the evening is a diff. story..he fights it sooo bad..poor baby. I just always sit and wonder...why MY baby..why?! It has been 3wks or so since he cultured pa so if he isn't sick then the meds have to be working..right?! He wasn't showing any symptoms before we knew he had it.
<br />Thank you all for the pos. comments! God Bless!
 

chevbacher

New member
Boy, can i relate to how you are feeling! i was absolutely shell-shocked, terrified when my 5 month old cultured pseudomonas too. It is a really frightening journey, especially with so much unknowns..al i can say is that it really does become part of 'normal' life. With regular, aggressive antibiotic treatment and upkeep of nebs etc. your little one can really have a great life. If it gives you hope, my baby is now 2, we culture pseudomonas on and off and she has been on an IV drip every 3 months for the past 2 and a half years, which we do at home and..she is really truly doing great..growing, and happy and really 'healthy'..so, hang in there,it feels very bleak sometimes but there really is lots of hope to hold on to..
sending you the courage it takes to get through every day with real perspective, that we have been given these precious souls to care for and look after and you were hand-picked for this special job..
love,
chev
 

chevbacher

New member
Boy, can i relate to how you are feeling! i was absolutely shell-shocked, terrified when my 5 month old cultured pseudomonas too. It is a really frightening journey, especially with so much unknowns..al i can say is that it really does become part of 'normal' life. With regular, aggressive antibiotic treatment and upkeep of nebs etc. your little one can really have a great life. If it gives you hope, my baby is now 2, we culture pseudomonas on and off and she has been on an IV drip every 3 months for the past 2 and a half years, which we do at home and..she is really truly doing great..growing, and happy and really 'healthy'..so, hang in there,it feels very bleak sometimes but there really is lots of hope to hold on to..
sending you the courage it takes to get through every day with real perspective, that we have been given these precious souls to care for and look after and you were hand-picked for this special job..
love,
chev
 

chevbacher

New member
Boy, can i relate to how you are feeling! i was absolutely shell-shocked, terrified when my 5 month old cultured pseudomonas too. It is a really frightening journey, especially with so much unknowns..al i can say is that it really does become part of 'normal' life. With regular, aggressive antibiotic treatment and upkeep of nebs etc. your little one can really have a great life. If it gives you hope, my baby is now 2, we culture pseudomonas on and off and she has been on an IV drip every 3 months for the past 2 and a half years, which we do at home and..she is really truly doing great..growing, and happy and really 'healthy'..so, hang in there,it feels very bleak sometimes but there really is lots of hope to hold on to..
sending you the courage it takes to get through every day with real perspective, that we have been given these precious souls to care for and look after and you were hand-picked for this special job..
love,
chev
 

chevbacher

New member
Boy, can i relate to how you are feeling! i was absolutely shell-shocked, terrified when my 5 month old cultured pseudomonas too. It is a really frightening journey, especially with so much unknowns..al i can say is that it really does become part of 'normal' life. With regular, aggressive antibiotic treatment and upkeep of nebs etc. your little one can really have a great life. If it gives you hope, my baby is now 2, we culture pseudomonas on and off and she has been on an IV drip every 3 months for the past 2 and a half years, which we do at home and..she is really truly doing great..growing, and happy and really 'healthy'..so, hang in there,it feels very bleak sometimes but there really is lots of hope to hold on to..
sending you the courage it takes to get through every day with real perspective, that we have been given these precious souls to care for and look after and you were hand-picked for this special job..
love,
chev
 

chevbacher

New member
Boy, can i relate to how you are feeling! i was absolutely shell-shocked, terrified when my 5 month old cultured pseudomonas too. It is a really frightening journey, especially with so much unknowns..al i can say is that it really does become part of 'normal' life. With regular, aggressive antibiotic treatment and upkeep of nebs etc. your little one can really have a great life. If it gives you hope, my baby is now 2, we culture pseudomonas on and off and she has been on an IV drip every 3 months for the past 2 and a half years, which we do at home and..she is really truly doing great..growing, and happy and really 'healthy'..so, hang in there,it feels very bleak sometimes but there really is lots of hope to hold on to..
<br />sending you the courage it takes to get through every day with real perspective, that we have been given these precious souls to care for and look after and you were hand-picked for this special job..
<br />love,
<br />chev
 
J

jennylivingston

Guest
I just wanted to jump in and say that I've cultured psuedomonas and staph on and off pretty much my ENTIRE life. I agree with the statemtent that it just becomes "normal life" after a while. There is SO MUCH that can be done to treat it, but even still, I can understand being scared for your sweet little one.
 
J

jennylivingston

Guest
I just wanted to jump in and say that I've cultured psuedomonas and staph on and off pretty much my ENTIRE life. I agree with the statemtent that it just becomes "normal life" after a while. There is SO MUCH that can be done to treat it, but even still, I can understand being scared for your sweet little one.
 
J

jennylivingston

Guest
I just wanted to jump in and say that I've cultured psuedomonas and staph on and off pretty much my ENTIRE life. I agree with the statemtent that it just becomes "normal life" after a while. There is SO MUCH that can be done to treat it, but even still, I can understand being scared for your sweet little one.
 
J

jennylivingston

Guest
I just wanted to jump in and say that I've cultured psuedomonas and staph on and off pretty much my ENTIRE life. I agree with the statemtent that it just becomes "normal life" after a while. There is SO MUCH that can be done to treat it, but even still, I can understand being scared for your sweet little one.
 
J

jennylivingston

Guest
I just wanted to jump in and say that I've cultured psuedomonas and staph on and off pretty much my ENTIRE life. I agree with the statemtent that it just becomes "normal life" after a while. There is SO MUCH that can be done to treat it, but even still, I can understand being scared for your sweet little one.
 
Top