Ok, so it may not be all that new to y'all but it is new to us. I blogged about this a few days ago when Garran came home from the hospital but I thought I would write and update on how he is doing and what is happening now.
OK, so last week his Dr. did a Bronchoscopy and during which squirted the pulmozyme right onto the mucus in his lower right lobe. He wasnt sure if this would do any good or not but we have tried everthing else to get this clump of "concrete mucus" out of tha area.
So anyway, after two days he showed significant improvement and instead of a big white glob on the Xray screen you could actually see the bronchioles(sp)!
His lung was still collapsed but there was nothing more that they could do at the hospital that I couldnt do at home since it isnt bacterial. So we went home and have been doing 4 times a day treatments and vest.
Yesterday we went back in and had another Xray. after 4 days his lung showed even more improvement and is now beginning to re-inflate. His Dr. believes that if we go in and do another Bronch and do the pulmo thing again we might be able to get this part of his lung under control. He said "He could have normal looking lungs".
So Today we go in and have another Bronchoscopy, this time outpatient and Garran comes home after a few hours.
Other good news to report, he is now at 50 pounds!!!!!!! he is now above the 50th percentile for weight also a first! and I heard his Doctor call him a " big kid" for the first time ever yesterday. No one has ever called him a big kid except me (possitivly speaking). It was encouraging.
His O2 sats are higher than they have been in months 97-98%! this might explain his need to run crazy around the house...lol....And at last check his PFTs were raising and were up to 65%. Havent checks after the procedure but will probably do some on August 9th (his next visit)
As far as I am concerned this procedure was a success thus far and brings hope to us where we were running out of it. Not too long ago his Doc was talking about Lobectomy, but now he is saying he might have "Normal looking lungs"! This is promising!
Just thought I would share that with y'all. Keep Garran in your prayers today as he goes through this procedure again after just a short week, I will check in again when we get home this evening.
OK, so last week his Dr. did a Bronchoscopy and during which squirted the pulmozyme right onto the mucus in his lower right lobe. He wasnt sure if this would do any good or not but we have tried everthing else to get this clump of "concrete mucus" out of tha area.
So anyway, after two days he showed significant improvement and instead of a big white glob on the Xray screen you could actually see the bronchioles(sp)!
His lung was still collapsed but there was nothing more that they could do at the hospital that I couldnt do at home since it isnt bacterial. So we went home and have been doing 4 times a day treatments and vest.
Yesterday we went back in and had another Xray. after 4 days his lung showed even more improvement and is now beginning to re-inflate. His Dr. believes that if we go in and do another Bronch and do the pulmo thing again we might be able to get this part of his lung under control. He said "He could have normal looking lungs".
So Today we go in and have another Bronchoscopy, this time outpatient and Garran comes home after a few hours.
Other good news to report, he is now at 50 pounds!!!!!!! he is now above the 50th percentile for weight also a first! and I heard his Doctor call him a " big kid" for the first time ever yesterday. No one has ever called him a big kid except me (possitivly speaking). It was encouraging.
His O2 sats are higher than they have been in months 97-98%! this might explain his need to run crazy around the house...lol....And at last check his PFTs were raising and were up to 65%. Havent checks after the procedure but will probably do some on August 9th (his next visit)
As far as I am concerned this procedure was a success thus far and brings hope to us where we were running out of it. Not too long ago his Doc was talking about Lobectomy, but now he is saying he might have "Normal looking lungs"! This is promising!
Just thought I would share that with y'all. Keep Garran in your prayers today as he goes through this procedure again after just a short week, I will check in again when we get home this evening.