Newbee may be way off but my 2 cents

M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shelbyville</b></i>
MicheleGazelle have any pank cures?
</end quote></div>

Er, you can just write "Michele". It's my actual name. I tried to sign up for it and it was taken, so I had to improvise. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I don't really know of anything for pank. As a guess, stuff that has helped some folks with things like pancreatic insufficiency and/or diabetes might help. Some things I know about:

Sea salt and reducing yeast in the diet helped my son get off digestive enzymes. I did both of those as well but couldn't get off enzymes until I also added coconut oil as a supplement. I later switched to cooking with it instead of taking it in pill form. We took a lot of coconut oil for about 2 years and now hardly use it. I think glyconutrients also played their part in my ability to get off enzymes.

I have spoken with another woman who said she needed fewer enzymes and less insulin after she began using sea salt. I have spoken with a parent whose child needed fewer enzymes and less insulin after aggressive, frequent use of hypertonic saline nebs. I assume the salt in it is superior to table salt. (To quote a woman with CF who is in her 70's: "Anything is better than table salt" -- ie Kosher salt, canning and pickling salt, French imported salt, etc.)

I have seen at least one article that links diabetes to inflammation. I have worked hard on getting excess acidity under control and on reducing my exposure to allergens. It has helped me get off multiple anti-inflammatory drugs.

Your remarks about running make me wonder if you could also use liver support. Running can put stress on the liver as it can mobilize toxins in the system and the higher oxygen intake may kill stuff. This can create a bottleneck, especially if you are also taking drugs that are hard on the liver. I mostly stopped needing liver support when I stopped needing to take advil in November 2007, a medication I took pretty much daily for 5 or 6 years.

Good luck with this.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shelbyville</b></i>
MicheleGazelle have any pank cures?
</end quote></div>

Er, you can just write "Michele". It's my actual name. I tried to sign up for it and it was taken, so I had to improvise. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I don't really know of anything for pank. As a guess, stuff that has helped some folks with things like pancreatic insufficiency and/or diabetes might help. Some things I know about:

Sea salt and reducing yeast in the diet helped my son get off digestive enzymes. I did both of those as well but couldn't get off enzymes until I also added coconut oil as a supplement. I later switched to cooking with it instead of taking it in pill form. We took a lot of coconut oil for about 2 years and now hardly use it. I think glyconutrients also played their part in my ability to get off enzymes.

I have spoken with another woman who said she needed fewer enzymes and less insulin after she began using sea salt. I have spoken with a parent whose child needed fewer enzymes and less insulin after aggressive, frequent use of hypertonic saline nebs. I assume the salt in it is superior to table salt. (To quote a woman with CF who is in her 70's: "Anything is better than table salt" -- ie Kosher salt, canning and pickling salt, French imported salt, etc.)

I have seen at least one article that links diabetes to inflammation. I have worked hard on getting excess acidity under control and on reducing my exposure to allergens. It has helped me get off multiple anti-inflammatory drugs.

Your remarks about running make me wonder if you could also use liver support. Running can put stress on the liver as it can mobilize toxins in the system and the higher oxygen intake may kill stuff. This can create a bottleneck, especially if you are also taking drugs that are hard on the liver. I mostly stopped needing liver support when I stopped needing to take advil in November 2007, a medication I took pretty much daily for 5 or 6 years.

Good luck with this.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shelbyville</b></i>
MicheleGazelle have any pank cures?
</end quote></div>

Er, you can just write "Michele". It's my actual name. I tried to sign up for it and it was taken, so I had to improvise. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I don't really know of anything for pank. As a guess, stuff that has helped some folks with things like pancreatic insufficiency and/or diabetes might help. Some things I know about:

Sea salt and reducing yeast in the diet helped my son get off digestive enzymes. I did both of those as well but couldn't get off enzymes until I also added coconut oil as a supplement. I later switched to cooking with it instead of taking it in pill form. We took a lot of coconut oil for about 2 years and now hardly use it. I think glyconutrients also played their part in my ability to get off enzymes.

I have spoken with another woman who said she needed fewer enzymes and less insulin after she began using sea salt. I have spoken with a parent whose child needed fewer enzymes and less insulin after aggressive, frequent use of hypertonic saline nebs. I assume the salt in it is superior to table salt. (To quote a woman with CF who is in her 70's: "Anything is better than table salt" -- ie Kosher salt, canning and pickling salt, French imported salt, etc.)

I have seen at least one article that links diabetes to inflammation. I have worked hard on getting excess acidity under control and on reducing my exposure to allergens. It has helped me get off multiple anti-inflammatory drugs.

Your remarks about running make me wonder if you could also use liver support. Running can put stress on the liver as it can mobilize toxins in the system and the higher oxygen intake may kill stuff. This can create a bottleneck, especially if you are also taking drugs that are hard on the liver. I mostly stopped needing liver support when I stopped needing to take advil in November 2007, a medication I took pretty much daily for 5 or 6 years.

Good luck with this.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shelbyville</b></i>
MicheleGazelle have any pank cures?
</end quote>

Er, you can just write "Michele". It's my actual name. I tried to sign up for it and it was taken, so I had to improvise. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I don't really know of anything for pank. As a guess, stuff that has helped some folks with things like pancreatic insufficiency and/or diabetes might help. Some things I know about:

Sea salt and reducing yeast in the diet helped my son get off digestive enzymes. I did both of those as well but couldn't get off enzymes until I also added coconut oil as a supplement. I later switched to cooking with it instead of taking it in pill form. We took a lot of coconut oil for about 2 years and now hardly use it. I think glyconutrients also played their part in my ability to get off enzymes.

I have spoken with another woman who said she needed fewer enzymes and less insulin after she began using sea salt. I have spoken with a parent whose child needed fewer enzymes and less insulin after aggressive, frequent use of hypertonic saline nebs. I assume the salt in it is superior to table salt. (To quote a woman with CF who is in her 70's: "Anything is better than table salt" -- ie Kosher salt, canning and pickling salt, French imported salt, etc.)

I have seen at least one article that links diabetes to inflammation. I have worked hard on getting excess acidity under control and on reducing my exposure to allergens. It has helped me get off multiple anti-inflammatory drugs.

Your remarks about running make me wonder if you could also use liver support. Running can put stress on the liver as it can mobilize toxins in the system and the higher oxygen intake may kill stuff. This can create a bottleneck, especially if you are also taking drugs that are hard on the liver. I mostly stopped needing liver support when I stopped needing to take advil in November 2007, a medication I took pretty much daily for 5 or 6 years.

Good luck with this.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shelbyville</b></i>
<br /> MicheleGazelle have any pank cures?
<br /></end quote>
<br />
<br />Er, you can just write "Michele". It's my actual name. I tried to sign up for it and it was taken, so I had to improvise. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />I don't really know of anything for pank. As a guess, stuff that has helped some folks with things like pancreatic insufficiency and/or diabetes might help. Some things I know about:
<br />
<br />Sea salt and reducing yeast in the diet helped my son get off digestive enzymes. I did both of those as well but couldn't get off enzymes until I also added coconut oil as a supplement. I later switched to cooking with it instead of taking it in pill form. We took a lot of coconut oil for about 2 years and now hardly use it. I think glyconutrients also played their part in my ability to get off enzymes.
<br />
<br />I have spoken with another woman who said she needed fewer enzymes and less insulin after she began using sea salt. I have spoken with a parent whose child needed fewer enzymes and less insulin after aggressive, frequent use of hypertonic saline nebs. I assume the salt in it is superior to table salt. (To quote a woman with CF who is in her 70's: "Anything is better than table salt" -- ie Kosher salt, canning and pickling salt, French imported salt, etc.)
<br />
<br />I have seen at least one article that links diabetes to inflammation. I have worked hard on getting excess acidity under control and on reducing my exposure to allergens. It has helped me get off multiple anti-inflammatory drugs.
<br />
<br />Your remarks about running make me wonder if you could also use liver support. Running can put stress on the liver as it can mobilize toxins in the system and the higher oxygen intake may kill stuff. This can create a bottleneck, especially if you are also taking drugs that are hard on the liver. I mostly stopped needing liver support when I stopped needing to take advil in November 2007, a medication I took pretty much daily for 5 or 6 years.
<br />
<br />Good luck with this.
 
G

grassisgreener

New member
It is amazing to me that someone can live so long wcf before getting the diagnosis! I am glad you finally got the dx and hope that having the dx helps you improve quickly. I think your story must give much hope to other people with your mutations that have been diagnosed much earlier and are being diligent with treatments/meds.

I do know of a lady that was diagnosed with CF in her 60's, she lives in NE Indiana. I have not met her but know a couple of people who know her (my husband used to work with her son). I have always been curious about her mutations but I don't know what they are. Her health is not good now but considering she went so long not knowing what was wrong with her, and understanding that she has already lived far beyond the median age of survival without proper meds/treatments, I suppose she is doing really well.

Thank you for sharing your story!
 
G

grassisgreener

New member
It is amazing to me that someone can live so long wcf before getting the diagnosis! I am glad you finally got the dx and hope that having the dx helps you improve quickly. I think your story must give much hope to other people with your mutations that have been diagnosed much earlier and are being diligent with treatments/meds.

I do know of a lady that was diagnosed with CF in her 60's, she lives in NE Indiana. I have not met her but know a couple of people who know her (my husband used to work with her son). I have always been curious about her mutations but I don't know what they are. Her health is not good now but considering she went so long not knowing what was wrong with her, and understanding that she has already lived far beyond the median age of survival without proper meds/treatments, I suppose she is doing really well.

Thank you for sharing your story!
 
G

grassisgreener

New member
It is amazing to me that someone can live so long wcf before getting the diagnosis! I am glad you finally got the dx and hope that having the dx helps you improve quickly. I think your story must give much hope to other people with your mutations that have been diagnosed much earlier and are being diligent with treatments/meds.

I do know of a lady that was diagnosed with CF in her 60's, she lives in NE Indiana. I have not met her but know a couple of people who know her (my husband used to work with her son). I have always been curious about her mutations but I don't know what they are. Her health is not good now but considering she went so long not knowing what was wrong with her, and understanding that she has already lived far beyond the median age of survival without proper meds/treatments, I suppose she is doing really well.

Thank you for sharing your story!
 
G

grassisgreener

New member
It is amazing to me that someone can live so long wcf before getting the diagnosis! I am glad you finally got the dx and hope that having the dx helps you improve quickly. I think your story must give much hope to other people with your mutations that have been diagnosed much earlier and are being diligent with treatments/meds.

I do know of a lady that was diagnosed with CF in her 60's, she lives in NE Indiana. I have not met her but know a couple of people who know her (my husband used to work with her son). I have always been curious about her mutations but I don't know what they are. Her health is not good now but considering she went so long not knowing what was wrong with her, and understanding that she has already lived far beyond the median age of survival without proper meds/treatments, I suppose she is doing really well.

Thank you for sharing your story!
 
G

grassisgreener

New member
It is amazing to me that someone can live so long wcf before getting the diagnosis! I am glad you finally got the dx and hope that having the dx helps you improve quickly. I think your story must give much hope to other people with your mutations that have been diagnosed much earlier and are being diligent with treatments/meds.
<br />
<br />I do know of a lady that was diagnosed with CF in her 60's, she lives in NE Indiana. I have not met her but know a couple of people who know her (my husband used to work with her son). I have always been curious about her mutations but I don't know what they are. Her health is not good now but considering she went so long not knowing what was wrong with her, and understanding that she has already lived far beyond the median age of survival without proper meds/treatments, I suppose she is doing really well.
<br />
<br />Thank you for sharing your story!
 
S

Shelbyville

New member
Diane:

First of all beings I am lucky to get the later version of CF and did do OK in business makes this somewhat awkward but maybe it will be insperational. Yes I own a 1968 Gt 500 Shelby and worked my but off when I was a kid to buy it @ 16 in 1972 my whole summer's savings and a small loan until next summer. Muscle cars were on their way out then due to the fuel going up to $1.00. That was a lot of $$$ back then. I stored the car in a barn (yea the car in the barn story)until I bought a house with a garage around 1982. It sat there until I gathered all the rare parts and could afford a top shelf paint job. The car is almost perfect now. I bought ($400) a wrecked (reparable) Gt 500 KR convertable for the enginge and transmission beings mine was gone and trashed the car when I took what was needed. The good old days young & dumb what a idiot.
The other car is a 1967 Mustang GT "S" code 390 Acapulco BLUE that is a driver and does 11.95 1/4 mile. Its a sleeper and easy to drive. So enough of the motor head stuff I'll PM some pix if thats possible.

Michelle:

Yea SEA SALT is the best and I've been using it for years well before the DX. Now I use it when ever possible. I guess your body knows whats best. My dog licks our metal table and I'll bet ther are some trace minerals in the metal that her body craves. I got lucky when we went out to eat and they had sea salt grinders. From that day on I was in love but my PCP said no salt HA HA! Yea the former PCP! Salt on!!! My liver is fine for now. The only problem I see is Vit "D" beings I'm at 32 and low is <30 so we'll keep an eye on that with the pank issue.
 
S

Shelbyville

New member
Diane:

First of all beings I am lucky to get the later version of CF and did do OK in business makes this somewhat awkward but maybe it will be insperational. Yes I own a 1968 Gt 500 Shelby and worked my but off when I was a kid to buy it @ 16 in 1972 my whole summer's savings and a small loan until next summer. Muscle cars were on their way out then due to the fuel going up to $1.00. That was a lot of $$$ back then. I stored the car in a barn (yea the car in the barn story)until I bought a house with a garage around 1982. It sat there until I gathered all the rare parts and could afford a top shelf paint job. The car is almost perfect now. I bought ($400) a wrecked (reparable) Gt 500 KR convertable for the enginge and transmission beings mine was gone and trashed the car when I took what was needed. The good old days young & dumb what a idiot.
The other car is a 1967 Mustang GT "S" code 390 Acapulco BLUE that is a driver and does 11.95 1/4 mile. Its a sleeper and easy to drive. So enough of the motor head stuff I'll PM some pix if thats possible.

Michelle:

Yea SEA SALT is the best and I've been using it for years well before the DX. Now I use it when ever possible. I guess your body knows whats best. My dog licks our metal table and I'll bet ther are some trace minerals in the metal that her body craves. I got lucky when we went out to eat and they had sea salt grinders. From that day on I was in love but my PCP said no salt HA HA! Yea the former PCP! Salt on!!! My liver is fine for now. The only problem I see is Vit "D" beings I'm at 32 and low is <30 so we'll keep an eye on that with the pank issue.
 
S

Shelbyville

New member
Diane:

First of all beings I am lucky to get the later version of CF and did do OK in business makes this somewhat awkward but maybe it will be insperational. Yes I own a 1968 Gt 500 Shelby and worked my but off when I was a kid to buy it @ 16 in 1972 my whole summer's savings and a small loan until next summer. Muscle cars were on their way out then due to the fuel going up to $1.00. That was a lot of $$$ back then. I stored the car in a barn (yea the car in the barn story)until I bought a house with a garage around 1982. It sat there until I gathered all the rare parts and could afford a top shelf paint job. The car is almost perfect now. I bought ($400) a wrecked (reparable) Gt 500 KR convertable for the enginge and transmission beings mine was gone and trashed the car when I took what was needed. The good old days young & dumb what a idiot.
The other car is a 1967 Mustang GT "S" code 390 Acapulco BLUE that is a driver and does 11.95 1/4 mile. Its a sleeper and easy to drive. So enough of the motor head stuff I'll PM some pix if thats possible.

Michelle:

Yea SEA SALT is the best and I've been using it for years well before the DX. Now I use it when ever possible. I guess your body knows whats best. My dog licks our metal table and I'll bet ther are some trace minerals in the metal that her body craves. I got lucky when we went out to eat and they had sea salt grinders. From that day on I was in love but my PCP said no salt HA HA! Yea the former PCP! Salt on!!! My liver is fine for now. The only problem I see is Vit "D" beings I'm at 32 and low is <30 so we'll keep an eye on that with the pank issue.
 
S

Shelbyville

New member
Diane:

First of all beings I am lucky to get the later version of CF and did do OK in business makes this somewhat awkward but maybe it will be insperational. Yes I own a 1968 Gt 500 Shelby and worked my but off when I was a kid to buy it @ 16 in 1972 my whole summer's savings and a small loan until next summer. Muscle cars were on their way out then due to the fuel going up to $1.00. That was a lot of $$$ back then. I stored the car in a barn (yea the car in the barn story)until I bought a house with a garage around 1982. It sat there until I gathered all the rare parts and could afford a top shelf paint job. The car is almost perfect now. I bought ($400) a wrecked (reparable) Gt 500 KR convertable for the enginge and transmission beings mine was gone and trashed the car when I took what was needed. The good old days young & dumb what a idiot.
The other car is a 1967 Mustang GT "S" code 390 Acapulco BLUE that is a driver and does 11.95 1/4 mile. Its a sleeper and easy to drive. So enough of the motor head stuff I'll PM some pix if thats possible.

Michelle:

Yea SEA SALT is the best and I've been using it for years well before the DX. Now I use it when ever possible. I guess your body knows whats best. My dog licks our metal table and I'll bet ther are some trace minerals in the metal that her body craves. I got lucky when we went out to eat and they had sea salt grinders. From that day on I was in love but my PCP said no salt HA HA! Yea the former PCP! Salt on!!! My liver is fine for now. The only problem I see is Vit "D" beings I'm at 32 and low is <30 so we'll keep an eye on that with the pank issue.
 
S

Shelbyville

New member
Diane:
<br />
<br />First of all beings I am lucky to get the later version of CF and did do OK in business makes this somewhat awkward but maybe it will be insperational. Yes I own a 1968 Gt 500 Shelby and worked my but off when I was a kid to buy it @ 16 in 1972 my whole summer's savings and a small loan until next summer. Muscle cars were on their way out then due to the fuel going up to $1.00. That was a lot of $$$ back then. I stored the car in a barn (yea the car in the barn story)until I bought a house with a garage around 1982. It sat there until I gathered all the rare parts and could afford a top shelf paint job. The car is almost perfect now. I bought ($400) a wrecked (reparable) Gt 500 KR convertable for the enginge and transmission beings mine was gone and trashed the car when I took what was needed. The good old days young & dumb what a idiot.
<br />The other car is a 1967 Mustang GT "S" code 390 Acapulco BLUE that is a driver and does 11.95 1/4 mile. Its a sleeper and easy to drive. So enough of the motor head stuff I'll PM some pix if thats possible.
<br />
<br />Michelle:
<br />
<br />Yea SEA SALT is the best and I've been using it for years well before the DX. Now I use it when ever possible. I guess your body knows whats best. My dog licks our metal table and I'll bet ther are some trace minerals in the metal that her body craves. I got lucky when we went out to eat and they had sea salt grinders. From that day on I was in love but my PCP said no salt HA HA! Yea the former PCP! Salt on!!! My liver is fine for now. The only problem I see is Vit "D" beings I'm at 32 and low is <30 so we'll keep an eye on that with the pank issue.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shelbyville</b></i>
Michelle:



Yea SEA SALT is the best and I've been using it for years well before the DX. Now I use it when ever possible. I guess your body knows whats best. My dog licks our metal table and I'll bet ther are some trace minerals in the metal that her body craves. I got lucky when we went out to eat and they had sea salt grinders. From that day on I was in love but my PCP said no salt HA HA! Yea the former PCP! Salt on!!! My liver is fine for now. The only problem I see is Vit "D" beings I'm at 32 and low is <30 so we'll keep an eye on that with the pank issue.</end quote></div>

Good to hear. Sorry I couldn't have been of more help.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shelbyville</b></i>
Michelle:



Yea SEA SALT is the best and I've been using it for years well before the DX. Now I use it when ever possible. I guess your body knows whats best. My dog licks our metal table and I'll bet ther are some trace minerals in the metal that her body craves. I got lucky when we went out to eat and they had sea salt grinders. From that day on I was in love but my PCP said no salt HA HA! Yea the former PCP! Salt on!!! My liver is fine for now. The only problem I see is Vit "D" beings I'm at 32 and low is <30 so we'll keep an eye on that with the pank issue.</end quote></div>

Good to hear. Sorry I couldn't have been of more help.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shelbyville</b></i>
Michelle:



Yea SEA SALT is the best and I've been using it for years well before the DX. Now I use it when ever possible. I guess your body knows whats best. My dog licks our metal table and I'll bet ther are some trace minerals in the metal that her body craves. I got lucky when we went out to eat and they had sea salt grinders. From that day on I was in love but my PCP said no salt HA HA! Yea the former PCP! Salt on!!! My liver is fine for now. The only problem I see is Vit "D" beings I'm at 32 and low is <30 so we'll keep an eye on that with the pank issue.</end quote></div>

Good to hear. Sorry I couldn't have been of more help.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shelbyville</b></i>
Michelle:



Yea SEA SALT is the best and I've been using it for years well before the DX. Now I use it when ever possible. I guess your body knows whats best. My dog licks our metal table and I'll bet ther are some trace minerals in the metal that her body craves. I got lucky when we went out to eat and they had sea salt grinders. From that day on I was in love but my PCP said no salt HA HA! Yea the former PCP! Salt on!!! My liver is fine for now. The only problem I see is Vit "D" beings I'm at 32 and low is <30 so we'll keep an eye on that with the pank issue.</end quote>

Good to hear. Sorry I couldn't have been of more help.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Shelbyville</b></i>
<br />Michelle:
<br />
<br />
<br />
<br />Yea SEA SALT is the best and I've been using it for years well before the DX. Now I use it when ever possible. I guess your body knows whats best. My dog licks our metal table and I'll bet ther are some trace minerals in the metal that her body craves. I got lucky when we went out to eat and they had sea salt grinders. From that day on I was in love but my PCP said no salt HA HA! Yea the former PCP! Salt on!!! My liver is fine for now. The only problem I see is Vit "D" beings I'm at 32 and low is <30 so we'll keep an eye on that with the pank issue.</end quote>
<br />
<br />Good to hear. Sorry I couldn't have been of more help.
 
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