Hello all,
Our daughter Isabelle, 8 weeks, was diagnosed about 3 weeks ago, and we just got to see a CF specialist just last week, and I have some questions regarding CPT that I was hoping someone here would be kind enough to help us with.
First of all, one thing that I was not satisfied with in regard to our visit with the specialist was his seeming lack of interest in CPT. One thing I didn't like was that they really didn't go over CPT with us. We got a DVD to watch, and the video said that we should expect to talk with a CPT person in the hospital, which did not happen. Also, upon inquiring about percussors to use, we were given some kind of infant mask to use, which obviously, had a hole in it.. Now, this guy has been treating CF patients for a few decades, but this made me have second thoughts about him. In response to this, I think we are going to go to the other CF clinic in our area.
So I want to get a percussor for her asap, and I want to have a routine that we do daily. I was thinking a hand-held electric percussor to ensure consistency and maximum effectiveness until she's big enough to wear a vest. Can any of you recommend one? I don't want to wait until we get to see the other CF clinic.
Thanks so much,
Mike
Our daughter Isabelle, 8 weeks, was diagnosed about 3 weeks ago, and we just got to see a CF specialist just last week, and I have some questions regarding CPT that I was hoping someone here would be kind enough to help us with.
First of all, one thing that I was not satisfied with in regard to our visit with the specialist was his seeming lack of interest in CPT. One thing I didn't like was that they really didn't go over CPT with us. We got a DVD to watch, and the video said that we should expect to talk with a CPT person in the hospital, which did not happen. Also, upon inquiring about percussors to use, we were given some kind of infant mask to use, which obviously, had a hole in it.. Now, this guy has been treating CF patients for a few decades, but this made me have second thoughts about him. In response to this, I think we are going to go to the other CF clinic in our area.
So I want to get a percussor for her asap, and I want to have a routine that we do daily. I was thinking a hand-held electric percussor to ensure consistency and maximum effectiveness until she's big enough to wear a vest. Can any of you recommend one? I don't want to wait until we get to see the other CF clinic.
Thanks so much,
Mike