Out of control....

Mommafirst · Jun 9, 2007

Hi Leighann,

I know the panic. Its sooo hard. But I promise it gets easier. There are good days and bad ones. But once the diagnosis phase is over, you will feel normal again. I know its hard to believe. CF sucks, and I'm sorry to welcome you to this world. But try to gain strength by looking around this site at some of the adults living with CF. Our kids will have a lot to look forward to, its our job to get them the best treatments and make sure they get and comply with all the preventative care. You'll need to read and learn a lot, and even though it sounds like a foreign language now, it will come, you will get it -- slowly but surely.

If you have questions as you maneuver through the next few difficult weeks, or thereafter, feel free to PM me. My daughter is 16 months and was diagnosed a year ago. I'm not going to say it was an easy year, but she is doing well. And she is the same wonderful girl she was before the diagnosis.

Mommafirst · Jun 9, 2007

Hi Leighann,

I know the panic. Its sooo hard. But I promise it gets easier. There are good days and bad ones. But once the diagnosis phase is over, you will feel normal again. I know its hard to believe. CF sucks, and I'm sorry to welcome you to this world. But try to gain strength by looking around this site at some of the adults living with CF. Our kids will have a lot to look forward to, its our job to get them the best treatments and make sure they get and comply with all the preventative care. You'll need to read and learn a lot, and even though it sounds like a foreign language now, it will come, you will get it -- slowly but surely.

If you have questions as you maneuver through the next few difficult weeks, or thereafter, feel free to PM me. My daughter is 16 months and was diagnosed a year ago. I'm not going to say it was an easy year, but she is doing well. And she is the same wonderful girl she was before the diagnosis.

Mommafirst · Jun 9, 2007

Hi Leighann,

I know the panic. Its sooo hard. But I promise it gets easier. There are good days and bad ones. But once the diagnosis phase is over, you will feel normal again. I know its hard to believe. CF sucks, and I'm sorry to welcome you to this world. But try to gain strength by looking around this site at some of the adults living with CF. Our kids will have a lot to look forward to, its our job to get them the best treatments and make sure they get and comply with all the preventative care. You'll need to read and learn a lot, and even though it sounds like a foreign language now, it will come, you will get it -- slowly but surely.

If you have questions as you maneuver through the next few difficult weeks, or thereafter, feel free to PM me. My daughter is 16 months and was diagnosed a year ago. I'm not going to say it was an easy year, but she is doing well. And she is the same wonderful girl she was before the diagnosis.

Mommafirst · Jun 9, 2007

Hi Leighann,

I know the panic. Its sooo hard. But I promise it gets easier. There are good days and bad ones. But once the diagnosis phase is over, you will feel normal again. I know its hard to believe. CF sucks, and I'm sorry to welcome you to this world. But try to gain strength by looking around this site at some of the adults living with CF. Our kids will have a lot to look forward to, its our job to get them the best treatments and make sure they get and comply with all the preventative care. You'll need to read and learn a lot, and even though it sounds like a foreign language now, it will come, you will get it -- slowly but surely.

If you have questions as you maneuver through the next few difficult weeks, or thereafter, feel free to PM me. My daughter is 16 months and was diagnosed a year ago. I'm not going to say it was an easy year, but she is doing well. And she is the same wonderful girl she was before the diagnosis.

ktsmom · Jun 9, 2007

You have already received terrific advice from the previous posters.

I think the worst part for parents of newly diagnosed children is that NO ONE in their existing world has a clue as to what they are going through.

WE DO. We are here for you, so continue to post and ask questions (try the Families section; more people read there). Everything you are feeling is normal. It will get better, as impossible as that sounds. Hugs and strength to you. Your beautiful children are the same as they were. Just now, one needs a little extra help to stay healthy. And you are her best chance for that.

Seek help if you need it - professional help. That is not unusual given the circumstances. We did. It helped us as parents, especially to learn how we were coping differeintly with our grief, but we were each okay in our own ways.

ktsmom · Jun 9, 2007

You have already received terrific advice from the previous posters.

I think the worst part for parents of newly diagnosed children is that NO ONE in their existing world has a clue as to what they are going through.

WE DO. We are here for you, so continue to post and ask questions (try the Families section; more people read there). Everything you are feeling is normal. It will get better, as impossible as that sounds. Hugs and strength to you. Your beautiful children are the same as they were. Just now, one needs a little extra help to stay healthy. And you are her best chance for that.

Seek help if you need it - professional help. That is not unusual given the circumstances. We did. It helped us as parents, especially to learn how we were coping differeintly with our grief, but we were each okay in our own ways.

ktsmom · Jun 9, 2007

You have already received terrific advice from the previous posters.

I think the worst part for parents of newly diagnosed children is that NO ONE in their existing world has a clue as to what they are going through.

WE DO. We are here for you, so continue to post and ask questions (try the Families section; more people read there). Everything you are feeling is normal. It will get better, as impossible as that sounds. Hugs and strength to you. Your beautiful children are the same as they were. Just now, one needs a little extra help to stay healthy. And you are her best chance for that.

Seek help if you need it - professional help. That is not unusual given the circumstances. We did. It helped us as parents, especially to learn how we were coping differeintly with our grief, but we were each okay in our own ways.

ktsmom · Jun 9, 2007

You have already received terrific advice from the previous posters.

I think the worst part for parents of newly diagnosed children is that NO ONE in their existing world has a clue as to what they are going through.

WE DO. We are here for you, so continue to post and ask questions (try the Families section; more people read there). Everything you are feeling is normal. It will get better, as impossible as that sounds. Hugs and strength to you. Your beautiful children are the same as they were. Just now, one needs a little extra help to stay healthy. And you are her best chance for that.

Seek help if you need it - professional help. That is not unusual given the circumstances. We did. It helped us as parents, especially to learn how we were coping differeintly with our grief, but we were each okay in our own ways.

ktsmom · Jun 9, 2007

You have already received terrific advice from the previous posters.

I think the worst part for parents of newly diagnosed children is that NO ONE in their existing world has a clue as to what they are going through.

WE DO. We are here for you, so continue to post and ask questions (try the Families section; more people read there). Everything you are feeling is normal. It will get better, as impossible as that sounds. Hugs and strength to you. Your beautiful children are the same as they were. Just now, one needs a little extra help to stay healthy. And you are her best chance for that.

Seek help if you need it - professional help. That is not unusual given the circumstances. We did. It helped us as parents, especially to learn how we were coping differeintly with our grief, but we were each okay in our own ways.

ktsmom · Jun 9, 2007

You have already received terrific advice from the previous posters.

I think the worst part for parents of newly diagnosed children is that NO ONE in their existing world has a clue as to what they are going through.

WE DO. We are here for you, so continue to post and ask questions (try the Families section; more people read there). Everything you are feeling is normal. It will get better, as impossible as that sounds. Hugs and strength to you. Your beautiful children are the same as they were. Just now, one needs a little extra help to stay healthy. And you are her best chance for that.

Seek help if you need it - professional help. That is not unusual given the circumstances. We did. It helped us as parents, especially to learn how we were coping differeintly with our grief, but we were each okay in our own ways.

ViviansMom · Jun 10, 2007