jdprecious
New member
I am so sorry Leighann to hear about Brooklynn. At least now you know. I remember being relieved that finally I knew what to call it. I knew something was wrong with my baby and no one could tell me what. It is hard to swallow that yes this is actually happening to you and your family. But it is not the end of the world. Get a good support system, try to meet others or talk with others that have CF. That was a lifesaver for me to chat with other teenage girls online and to know they were normal and living great lives. For me that was the best medicine, that my little girl can grow up and be healthy just like them. And of course, spend some time here reading each day. Ive learned more here in a month than I ever did at clinic in the past 2.5 yrs. Ask questions, you may not get answers you like, but its better to know the truth.
Much love to your family!!
Jess
Much love to your family!!
Jess