I don't have any advice but I just wanted to say I COMPLETELY understand about your pain and PICC lines and such. When I went to my Milwaukee doc (same as yours) I have a horrible PICC line experience and two nurses actually quit trying to put it in because they couldn't stand to see someone in so much pain. For some reason, they wouldn't give me any pain medication except tylenol. And now, I have bad back pain where I also just sometimes lie in bed in pain and my doctor says to just deal with it. He says that once I get better lung function wise then the pain will go away.
The thing that bothers me is how can i get better if I can't get out of bed to do anything? I used to take tylenol with codeine but i ran out and my doctor refused to give me more so when i went overseas I stocked up. but now it doesn't work for me anyway.
So I have to "grin and bear it" also. I don't even remember the last time I laughed because it hurts so much. I hope you find something to help you, I know it really sucks to have pain. Good luck!
The thing that bothers me is how can i get better if I can't get out of bed to do anything? I used to take tylenol with codeine but i ran out and my doctor refused to give me more so when i went overseas I stocked up. but now it doesn't work for me anyway.
So I have to "grin and bear it" also. I don't even remember the last time I laughed because it hurts so much. I hope you find something to help you, I know it really sucks to have pain. Good luck!