Personality

[Kristen]

I think I definitely come across as a bit on the cold side, but I don't think that has anything to do with CF. I am also blunt and tell-it like it is. I am lucky in that CF really didn't affect me much until I was in my 20s, even thought I knew I had it since I was a baby. (I had to take pills and go to twice-yearly clinic visits, but I was never sick). So, most of my perspective about life is from that of a "normal" person and I try not to get hung up on whose pain is worse than whose.

I mean, I could get annoyed with my mom for complaining about having a headache because I feel like crap right now, and someone on here could get annoyed with me for complaining about having the flu because at least I have good lung function, YNWIM? Everyone has some crap to deal with and deserves some compassion, even if the rest of their life seems great. BUT, I will agree that I think it's rude for someone w/out CF who, say, has allergies, to go up to someone with CF who is waiting for a lung transplant and complain about having trouble breathing. So there is a line that shouldn't be crossed out of sensitivity, if that makes sense.

 

[Kristen]

I think I definitely come across as a bit on the cold side, but I don't think that has anything to do with CF. I am also blunt and tell-it like it is. I am lucky in that CF really didn't affect me much until I was in my 20s, even thought I knew I had it since I was a baby. (I had to take pills and go to twice-yearly clinic visits, but I was never sick). So, most of my perspective about life is from that of a "normal" person and I try not to get hung up on whose pain is worse than whose.
<br />
<br />I mean, I could get annoyed with my mom for complaining about having a headache because I feel like crap right now, and someone on here could get annoyed with me for complaining about having the flu because at least I have good lung function, YNWIM? Everyone has some crap to deal with and deserves some compassion, even if the rest of their life seems great. BUT, I will agree that I think it's rude for someone w/out CF who, say, has allergies, to go up to someone with CF who is waiting for a lung transplant and complain about having trouble breathing. So there is a line that shouldn't be crossed out of sensitivity, if that makes sense.

 

[nocode]

Interesting points of view, thank you for all the input so far.

In my case I am pretty sure it was CF that changed me because my mom always says that I was such a nice little girl who was good to everyone and loved everybody until my teens. At the end of my childhood/beginning of adolescence I was made fun of for being so thin and I would cough so much that I could barely make it outside (this was between the ages of 10 and 15 when I was undiagnosed and without any medication). During these years I became passive, crying, feeling sorry for myself and not able to defend myself.

When I was diagnosed at 15 I read that life expectancy was 25 and that's what I believed in. In Portugal (where I grew up), doctors were very much in the dark about the illness and so I didn't get the appropriate support (especially on a psychological level). All I knew was no one would abuse me ever again sort of thing, and so when I started to feel better and better - health wise - and properly develop to a point where I looked healthy, I became cold and sort of the "abuser", the "bully".
Yes, pathetic, sort of a Frankenstein story where he seeks revenge for the monster he had become, ha ha.

Vera, 27

 

[nocode]

Interesting points of view, thank you for all the input so far.

In my case I am pretty sure it was CF that changed me because my mom always says that I was such a nice little girl who was good to everyone and loved everybody until my teens. At the end of my childhood/beginning of adolescence I was made fun of for being so thin and I would cough so much that I could barely make it outside (this was between the ages of 10 and 15 when I was undiagnosed and without any medication). During these years I became passive, crying, feeling sorry for myself and not able to defend myself.

When I was diagnosed at 15 I read that life expectancy was 25 and that's what I believed in. In Portugal (where I grew up), doctors were very much in the dark about the illness and so I didn't get the appropriate support (especially on a psychological level). All I knew was no one would abuse me ever again sort of thing, and so when I started to feel better and better - health wise - and properly develop to a point where I looked healthy, I became cold and sort of the "abuser", the "bully".
Yes, pathetic, sort of a Frankenstein story where he seeks revenge for the monster he had become, ha ha.

Vera, 27

 

[nocode]

Interesting points of view, thank you for all the input so far.
<br />
<br />In my case I am pretty sure it was CF that changed me because my mom always says that I was such a nice little girl who was good to everyone and loved everybody until my teens. At the end of my childhood/beginning of adolescence I was made fun of for being so thin and I would cough so much that I could barely make it outside (this was between the ages of 10 and 15 when I was undiagnosed and without any medication). During these years I became passive, crying, feeling sorry for myself and not able to defend myself.
<br />
<br />When I was diagnosed at 15 I read that life expectancy was 25 and that's what I believed in. In Portugal (where I grew up), doctors were very much in the dark about the illness and so I didn't get the appropriate support (especially on a psychological level). All I knew was no one would abuse me ever again sort of thing, and so when I started to feel better and better - health wise - and properly develop to a point where I looked healthy, I became cold and sort of the "abuser", the "bully".
<br />Yes, pathetic, sort of a Frankenstein story where he seeks revenge for the monster he had become, ha ha.
<br />
<br />Vera, 27

 

[texnation]

This is actually something I think about quite often. There is so much I ponder about what I feel and what SHOULD I feel to be happiest and to be the best person, really too much to cover in a single post, I'm sure I'm going to leave something out.

I would say I am a nice person, I do get snippy with people, usually just my close family, but who doesn't have tiffs with those they live with? I joke around and try to break any tension I can with a joke, sometimes in situations that don't call for it even (funerals for example) People see me as a nice person, and often I wonder how much of that is because they know I'm sick. That's how I am SOCIALLY.

On the other hand what I feel inside is vastly different than what people perceive. First off let me say that I realize it could be worse, and that many others have it worse. I was satisfied with that mindset for a while, but it finally boiled over. The things I've gone through the last two years have made me a very angry person inside, more than what I let on. When you are faced with challenges like CFers are you have to mature faster than most. Anytime I look out into the world, especially among youth, all I see is ignorance, and it eats me up. All we've ever wanted is to be healthy right? It seems health comes with stupidity mostly though.

I never call anyone out for it, I've never been confrontational. Mainly because it would make me similar to the "dramatic" crowd today. Whenever someone has a problem with something today rarely do they keep it to themselves, everything has to be an argument. That is the main reason I bottle things up. Sometimes I wonder if I should though. Lol believe it or not but I don't like being angry, I fiddle with thoughts every day on how to fix it. I tell myself to ignore the chain smoking, pot smoking dropouts across the street, but within a couple of days there is something else on TV or the internet etc. that is griping me, we are in a world of complainers and I can never get over it.

Yeah CF has probably made me semi crazy too, I realize complaining about complainers is pretty pointless and hypocritical, this is the first platform I've ever used to express my anger though so it feels kind of good. Without CF I probably wouldn't know what was good for me and I'd be just as dumb. I could write a novel with what is running through my mind right now.

To answer your question, in a social situation, I try to be funny, I want friends and love like anyone else. Privately and with my family and only friend, they see my anger sometimes, I think they understand, because a disease like this just makes you upset, at a lot of things, a lot of the time.

 

[texnation]

This is actually something I think about quite often. There is so much I ponder about what I feel and what SHOULD I feel to be happiest and to be the best person, really too much to cover in a single post, I'm sure I'm going to leave something out.

I would say I am a nice person, I do get snippy with people, usually just my close family, but who doesn't have tiffs with those they live with? I joke around and try to break any tension I can with a joke, sometimes in situations that don't call for it even (funerals for example) People see me as a nice person, and often I wonder how much of that is because they know I'm sick. That's how I am SOCIALLY.

On the other hand what I feel inside is vastly different than what people perceive. First off let me say that I realize it could be worse, and that many others have it worse. I was satisfied with that mindset for a while, but it finally boiled over. The things I've gone through the last two years have made me a very angry person inside, more than what I let on. When you are faced with challenges like CFers are you have to mature faster than most. Anytime I look out into the world, especially among youth, all I see is ignorance, and it eats me up. All we've ever wanted is to be healthy right? It seems health comes with stupidity mostly though.

I never call anyone out for it, I've never been confrontational. Mainly because it would make me similar to the "dramatic" crowd today. Whenever someone has a problem with something today rarely do they keep it to themselves, everything has to be an argument. That is the main reason I bottle things up. Sometimes I wonder if I should though. Lol believe it or not but I don't like being angry, I fiddle with thoughts every day on how to fix it. I tell myself to ignore the chain smoking, pot smoking dropouts across the street, but within a couple of days there is something else on TV or the internet etc. that is griping me, we are in a world of complainers and I can never get over it.

Yeah CF has probably made me semi crazy too, I realize complaining about complainers is pretty pointless and hypocritical, this is the first platform I've ever used to express my anger though so it feels kind of good. Without CF I probably wouldn't know what was good for me and I'd be just as dumb. I could write a novel with what is running through my mind right now.

To answer your question, in a social situation, I try to be funny, I want friends and love like anyone else. Privately and with my family and only friend, they see my anger sometimes, I think they understand, because a disease like this just makes you upset, at a lot of things, a lot of the time.

 

[texnation]

This is actually something I think about quite often. There is so much I ponder about what I feel and what SHOULD I feel to be happiest and to be the best person, really too much to cover in a single post, I'm sure I'm going to leave something out.
<br />
<br />I would say I am a nice person, I do get snippy with people, usually just my close family, but who doesn't have tiffs with those they live with? I joke around and try to break any tension I can with a joke, sometimes in situations that don't call for it even (funerals for example) People see me as a nice person, and often I wonder how much of that is because they know I'm sick. That's how I am SOCIALLY.
<br />
<br />On the other hand what I feel inside is vastly different than what people perceive. First off let me say that I realize it could be worse, and that many others have it worse. I was satisfied with that mindset for a while, but it finally boiled over. The things I've gone through the last two years have made me a very angry person inside, more than what I let on. When you are faced with challenges like CFers are you have to mature faster than most. Anytime I look out into the world, especially among youth, all I see is ignorance, and it eats me up. All we've ever wanted is to be healthy right? It seems health comes with stupidity mostly though.
<br />
<br />I never call anyone out for it, I've never been confrontational. Mainly because it would make me similar to the "dramatic" crowd today. Whenever someone has a problem with something today rarely do they keep it to themselves, everything has to be an argument. That is the main reason I bottle things up. Sometimes I wonder if I should though. Lol believe it or not but I don't like being angry, I fiddle with thoughts every day on how to fix it. I tell myself to ignore the chain smoking, pot smoking dropouts across the street, but within a couple of days there is something else on TV or the internet etc. that is griping me, we are in a world of complainers and I can never get over it.
<br />
<br />Yeah CF has probably made me semi crazy too, I realize complaining about complainers is pretty pointless and hypocritical, this is the first platform I've ever used to express my anger though so it feels kind of good. Without CF I probably wouldn't know what was good for me and I'd be just as dumb. I could write a novel with what is running through my mind right now.
<br />
<br />To answer your question, in a social situation, I try to be funny, I want friends and love like anyone else. Privately and with my family and only friend, they see my anger sometimes, I think they understand, because a disease like this just makes you upset, at a lot of things, a lot of the time.

 

[Iamqueenofeverything]

I am generally a nice person but i have a low toerlance of immature. i hate all that junior high crap grown people still play.

It drives me crazy how people complain about little things like having a cold or being tired of something little. i will give them something to complain about.

 

[Iamqueenofeverything]

I am generally a nice person but i have a low toerlance of immature. i hate all that junior high crap grown people still play.

It drives me crazy how people complain about little things like having a cold or being tired of something little. i will give them something to complain about.

 

[Iamqueenofeverything]

I am generally a nice person but i have a low toerlance of immature. i hate all that junior high crap grown people still play.
<br />
<br />It drives me crazy how people complain about little things like having a cold or being tired of something little. i will give them something to complain about.

 

[mamerth]

I have enjoyed reading everyone's responses to this question. I feel less crazy. Nice to have a place to be real and honest.

 

[mamerth]

I have enjoyed reading everyone's responses to this question. I feel less crazy. Nice to have a place to be real and honest.

 

[mamerth]

I have enjoyed reading everyone's responses to this question. I feel less crazy. Nice to have a place to be real and honest.

 

[nocode]

Yes, nice to see everyone's responses. But (there's always a but..).. I also realize that the cf population doesn't differ from the general population in terms of this matter (and probably most others).

If we look at the responses here, we see a mix of people with a tendency to be cold, others who are nice and friendly, others with low tolerance for the immature and so on. So, where does that differ from the general population? I'd say it doesn't.

Maybe we're normal and ordinary after all... *disappointed* (sarcastic)
<img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[nocode]

Yes, nice to see everyone's responses. But (there's always a but..).. I also realize that the cf population doesn't differ from the general population in terms of this matter (and probably most others).

If we look at the responses here, we see a mix of people with a tendency to be cold, others who are nice and friendly, others with low tolerance for the immature and so on. So, where does that differ from the general population? I'd say it doesn't.

Maybe we're normal and ordinary after all... *disappointed* (sarcastic)
<img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[nocode]

Yes, nice to see everyone's responses. But (there's always a but..).. I also realize that the cf population doesn't differ from the general population in terms of this matter (and probably most others).
<br />
<br />If we look at the responses here, we see a mix of people with a tendency to be cold, others who are nice and friendly, others with low tolerance for the immature and so on. So, where does that differ from the general population? I'd say it doesn't.
<br />
<br />Maybe we're normal and ordinary after all... *disappointed* (sarcastic)
<br /><img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[Solo]

I am really not cold at all, but my personality a lot of times is mistaken for hostile or anti-social because I like to keep my distance and separate myself. I find it extremely difficult to relate to everyday people, as there are only 30,000 people in the US who know what it's like to walk in my shoes day in and day out.

I have to laugh to myself, as I work a strenuous job, when people call off of work just because they might get a paper cut or something. (well they obviously do not call off for a paper cut, but you get the gist of it!) I wonder what they would do if they were faced with what I face every second of the day.

 

[Solo]

I am really not cold at all, but my personality a lot of times is mistaken for hostile or anti-social because I like to keep my distance and separate myself. I find it extremely difficult to relate to everyday people, as there are only 30,000 people in the US who know what it's like to walk in my shoes day in and day out.

I have to laugh to myself, as I work a strenuous job, when people call off of work just because they might get a paper cut or something. (well they obviously do not call off for a paper cut, but you get the gist of it!) I wonder what they would do if they were faced with what I face every second of the day.

 

[Solo]

I am really not cold at all, but my personality a lot of times is mistaken for hostile or anti-social because I like to keep my distance and separate myself. I find it extremely difficult to relate to everyday people, as there are only 30,000 people in the US who know what it's like to walk in my shoes day in and day out.
<br />
<br />I have to laugh to myself, as I work a strenuous job, when people call off of work just because they might get a paper cut or something. (well they obviously do not call off for a paper cut, but you get the gist of it!) I wonder what they would do if they were faced with what I face every second of the day.