Positive sweat test of 78

[SheasMom]

The positive result was a surprise. My daughter is 2.5 and has only really had one cold. I nursed her until she was 2 and soon after bowel issues began. She is in a good weight precentile but has started losing. She craves salt and will pass up any sweet treat if chips or fries are on offer.
We did all the blood and fecal tests and all were neg. The sweat test read 78.

The doctor said - could mean she is a carrier (which I have read is wrong)

Everyone is trying to make me feel like it could be wrong but 78 is really high, isn't it?

My older daughter gets a long cough after every cold and has been kept up by coughing on many nights, tonight is one. She had a winter full of coughs after she weaned and ended up in ER with croup. They gave her an oral steroid.
She also has big BMs but I did not pay as much attention because she was toilet trained and went to the bathroom on her own.

I worked as a voulunteer for CF foundation as a kid because freinds were affected, I know of no family that has had it.

I really want a straight answer. Is there really any chance this high result was wrong?

 

[SheasMom]

The positive result was a surprise. My daughter is 2.5 and has only really had one cold. I nursed her until she was 2 and soon after bowel issues began. She is in a good weight precentile but has started losing. She craves salt and will pass up any sweet treat if chips or fries are on offer.
We did all the blood and fecal tests and all were neg. The sweat test read 78.

The doctor said - could mean she is a carrier (which I have read is wrong)

Everyone is trying to make me feel like it could be wrong but 78 is really high, isn't it?

My older daughter gets a long cough after every cold and has been kept up by coughing on many nights, tonight is one. She had a winter full of coughs after she weaned and ended up in ER with croup. They gave her an oral steroid.
She also has big BMs but I did not pay as much attention because she was toilet trained and went to the bathroom on her own.

I worked as a voulunteer for CF foundation as a kid because freinds were affected, I know of no family that has had it.

I really want a straight answer. Is there really any chance this high result was wrong?

 

[SheasMom]

The positive result was a surprise. My daughter is 2.5 and has only really had one cold. I nursed her until she was 2 and soon after bowel issues began. She is in a good weight precentile but has started losing. She craves salt and will pass up any sweet treat if chips or fries are on offer.
We did all the blood and fecal tests and all were neg. The sweat test read 78.

The doctor said - could mean she is a carrier (which I have read is wrong)

Everyone is trying to make me feel like it could be wrong but 78 is really high, isn't it?

My older daughter gets a long cough after every cold and has been kept up by coughing on many nights, tonight is one. She had a winter full of coughs after she weaned and ended up in ER with croup. They gave her an oral steroid.
She also has big BMs but I did not pay as much attention because she was toilet trained and went to the bathroom on her own.

I worked as a voulunteer for CF foundation as a kid because freinds were affected, I know of no family that has had it.

I really want a straight answer. Is there really any chance this high result was wrong?

 

[SheasMom]

The positive result was a surprise. My daughter is 2.5 and has only really had one cold. I nursed her until she was 2 and soon after bowel issues began. She is in a good weight precentile but has started losing. She craves salt and will pass up any sweet treat if chips or fries are on offer.
We did all the blood and fecal tests and all were neg. The sweat test read 78.

The doctor said - could mean she is a carrier (which I have read is wrong)

Everyone is trying to make me feel like it could be wrong but 78 is really high, isn't it?

My older daughter gets a long cough after every cold and has been kept up by coughing on many nights, tonight is one. She had a winter full of coughs after she weaned and ended up in ER with croup. They gave her an oral steroid.
She also has big BMs but I did not pay as much attention because she was toilet trained and went to the bathroom on her own.

I worked as a voulunteer for CF foundation as a kid because freinds were affected, I know of no family that has had it.

I really want a straight answer. Is there really any chance this high result was wrong?

 

[SheasMom]

The positive result was a surprise. My daughter is 2.5 and has only really had one cold. I nursed her until she was 2 and soon after bowel issues began. She is in a good weight precentile but has started losing. She craves salt and will pass up any sweet treat if chips or fries are on offer.
<br />We did all the blood and fecal tests and all were neg. The sweat test read 78.
<br />
<br />The doctor said - could mean she is a carrier (which I have read is wrong)
<br />
<br />Everyone is trying to make me feel like it could be wrong but 78 is really high, isn't it?
<br />
<br />My older daughter gets a long cough after every cold and has been kept up by coughing on many nights, tonight is one. She had a winter full of coughs after she weaned and ended up in ER with croup. They gave her an oral steroid.
<br />She also has big BMs but I did not pay as much attention because she was toilet trained and went to the bathroom on her own.
<br />
<br />I worked as a voulunteer for CF foundation as a kid because freinds were affected, I know of no family that has had it.
<br />
<br />I really want a straight answer. Is there really any chance this high result was wrong?

 

[Buckeye]

Did they diagnose her with CF already? The normal protocal would be to repeat the sweat test in case the first one was a mistake before giving a diagnosis. That is unless there were other major symptoms of CF.Truthfully, it is rare that a sweat test is wrong, but if it was not done at a certified cf clinic then that may be a possibility. I don't want to give you false hope, but unless they have told you she has a firm diagnosis of CF I wouldn't automatically jump to any conclusions on your own yet.

 

[Buckeye]

Did they diagnose her with CF already? The normal protocal would be to repeat the sweat test in case the first one was a mistake before giving a diagnosis. That is unless there were other major symptoms of CF.Truthfully, it is rare that a sweat test is wrong, but if it was not done at a certified cf clinic then that may be a possibility. I don't want to give you false hope, but unless they have told you she has a firm diagnosis of CF I wouldn't automatically jump to any conclusions on your own yet.

 

[Buckeye]

Did they diagnose her with CF already? The normal protocal would be to repeat the sweat test in case the first one was a mistake before giving a diagnosis. That is unless there were other major symptoms of CF.Truthfully, it is rare that a sweat test is wrong, but if it was not done at a certified cf clinic then that may be a possibility. I don't want to give you false hope, but unless they have told you she has a firm diagnosis of CF I wouldn't automatically jump to any conclusions on your own yet.

 

[Buckeye]

Did they diagnose her with CF already? The normal protocal would be to repeat the sweat test in case the first one was a mistake before giving a diagnosis. That is unless there were other major symptoms of CF.Truthfully, it is rare that a sweat test is wrong, but if it was not done at a certified cf clinic then that may be a possibility. I don't want to give you false hope, but unless they have told you she has a firm diagnosis of CF I wouldn't automatically jump to any conclusions on your own yet.

 

[Buckeye]

Did they diagnose her with CF already? The normal protocal would be to repeat the sweat test in case the first one was a mistake before giving a diagnosis. That is unless there were other major symptoms of CF.<p>Truthfully, it is rare that a sweat test is wrong, but if it was not done at a certified cf clinic then that may be a possibility. I don't want to give you false hope, but unless they have told you she has a firm diagnosis of CF I wouldn't automatically jump to any conclusions on your own yet.

 

[SheasMom]

I have no idea how many tests this hospital does. It is a bigger hospital but it does not have a CF clinic.

I am really confused by why they must retest if the tests are rarely wrong.



Before they let us leave the hospital after the test they called the lab to make sure the sample was enough to properly test. I know the nurse who did the test had done them before.

 

[SheasMom]

I have no idea how many tests this hospital does. It is a bigger hospital but it does not have a CF clinic.

I am really confused by why they must retest if the tests are rarely wrong.



Before they let us leave the hospital after the test they called the lab to make sure the sample was enough to properly test. I know the nurse who did the test had done them before.

 

[SheasMom]

I have no idea how many tests this hospital does. It is a bigger hospital but it does not have a CF clinic.

I am really confused by why they must retest if the tests are rarely wrong.



Before they let us leave the hospital after the test they called the lab to make sure the sample was enough to properly test. I know the nurse who did the test had done them before.

 

[SheasMom]

I have no idea how many tests this hospital does. It is a bigger hospital but it does not have a CF clinic.

I am really confused by why they must retest if the tests are rarely wrong.



Before they let us leave the hospital after the test they called the lab to make sure the sample was enough to properly test. I know the nurse who did the test had done them before.

 

[SheasMom]

I have no idea how many tests this hospital does. It is a bigger hospital but it does not have a CF clinic.
<br />
<br />I am really confused by why they must retest if the tests are rarely wrong.
<br />
<br />
<br />
<br />Before they let us leave the hospital after the test they called the lab to make sure the sample was enough to properly test. I know the nurse who did the test had done them before.

 

[SheasMom]

Shea's only CF symptom is her oily lumpy BMs. Not all the time but often enough to notice. All her BMs are big and abnormal but not all are oily.

The weight loss is a symptom as well I guess.

 

[SheasMom]

Shea's only CF symptom is her oily lumpy BMs. Not all the time but often enough to notice. All her BMs are big and abnormal but not all are oily.

The weight loss is a symptom as well I guess.

 

[SheasMom]

Shea's only CF symptom is her oily lumpy BMs. Not all the time but often enough to notice. All her BMs are big and abnormal but not all are oily.

The weight loss is a symptom as well I guess.

 

[SheasMom]

Shea's only CF symptom is her oily lumpy BMs. Not all the time but often enough to notice. All her BMs are big and abnormal but not all are oily.

The weight loss is a symptom as well I guess.

 

[SheasMom]

Shea's only CF symptom is her oily lumpy BMs. Not all the time but often enough to notice. All her BMs are big and abnormal but not all are oily.
<br />
<br />The weight loss is a symptom as well I guess.