possible cure in 10 years

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coltsfan715

New member
I agree with Claudette - 17 yrs is VERY long time in the life of a CFer. I remember being told 17 years ago that there would be a cure in 10 years because they all thought the hard part had been done. They had found the gene and that was ALL they needed to make finding a cure possible. It has definitely turned out to be much harder than they thought.

As for a "cure" that halts lung damage and prevents any further decline in lung function due to CF. That would be great ... for people with good lung function - for me that would be good but it would still suck unless I am able to bring my lung function up some.

Who knows. I am always hopeful that there will be a cure, but doubtful that it will occur any time soon ... and 10 years is soon to me. Who knows though - hopefully I will be proved wrong.

Lindsey
 
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beleache

New member
Wow Tammy, Two little daughters and a nephew w/cf God Bless you all, and while i'm at it i will always pray for a cure or a least better ways of dealing w/cf. I am fairly new to these sites and am enjoying all the great info and getting to know you guys. Tammy, what area is your childrens doctor in, he sounds great.

Joni 54y old f w/cf mom to 4 boys and 1 grandson
 
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beleache

New member
Wow Tammy, Two little daughters and a nephew w/cf God Bless you all, and while i'm at it i will always pray for a cure or a least better ways of dealing w/cf. I am fairly new to these sites and am enjoying all the great info and getting to know you guys. Tammy, what area is your childrens doctor in, he sounds great.

Joni 54y old f w/cf mom to 4 boys and 1 grandson
 
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beleache

New member
Wow Tammy, Two little daughters and a nephew w/cf God Bless you all, and while i'm at it i will always pray for a cure or a least better ways of dealing w/cf. I am fairly new to these sites and am enjoying all the great info and getting to know you guys. Tammy, what area is your childrens doctor in, he sounds great.

Joni 54y old f w/cf mom to 4 boys and 1 grandson
 
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RH

New member
I have no doubt that there eventually will be a cure in one form or another. Conventional trials are not the only medical progress that is occuring, and of course the power of computer processing is ever growing. In theory, if the exponential increase in computing power continued, AI could just model every imaginable interaction between molecules/cells that could provide a cure. The only problem is that such scenarios, if the trend continues, would probably be 20-30 years away.

I think the "10 years" is about possibilities. It's certainly possible there could be a cure of the clinical symptoms of CF in 10 years. Unfortunately that's based in a lot of luck. The older "cure in 10 years" were based around a lot of optimism about identifying genes, the future of gene therapy, etc. Those techniques still are only in their infancy. In the early 90s, the biotech industry was gaining a lot of momentum and a lot of hype in the field, which could also be why people were making such predictions. I see no reason, at a molecular level, that CF is physiologically uncureable. We just don't have the method or knowledge to do it yet.
 
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RH

New member
I have no doubt that there eventually will be a cure in one form or another. Conventional trials are not the only medical progress that is occuring, and of course the power of computer processing is ever growing. In theory, if the exponential increase in computing power continued, AI could just model every imaginable interaction between molecules/cells that could provide a cure. The only problem is that such scenarios, if the trend continues, would probably be 20-30 years away.

I think the "10 years" is about possibilities. It's certainly possible there could be a cure of the clinical symptoms of CF in 10 years. Unfortunately that's based in a lot of luck. The older "cure in 10 years" were based around a lot of optimism about identifying genes, the future of gene therapy, etc. Those techniques still are only in their infancy. In the early 90s, the biotech industry was gaining a lot of momentum and a lot of hype in the field, which could also be why people were making such predictions. I see no reason, at a molecular level, that CF is physiologically uncureable. We just don't have the method or knowledge to do it yet.
 
R

RH

New member
I have no doubt that there eventually will be a cure in one form or another. Conventional trials are not the only medical progress that is occuring, and of course the power of computer processing is ever growing. In theory, if the exponential increase in computing power continued, AI could just model every imaginable interaction between molecules/cells that could provide a cure. The only problem is that such scenarios, if the trend continues, would probably be 20-30 years away.

I think the "10 years" is about possibilities. It's certainly possible there could be a cure of the clinical symptoms of CF in 10 years. Unfortunately that's based in a lot of luck. The older "cure in 10 years" were based around a lot of optimism about identifying genes, the future of gene therapy, etc. Those techniques still are only in their infancy. In the early 90s, the biotech industry was gaining a lot of momentum and a lot of hype in the field, which could also be why people were making such predictions. I see no reason, at a molecular level, that CF is physiologically uncureable. We just don't have the method or knowledge to do it yet.
 
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lilmac7

New member
I was told ten year when I was in primary school ( think thats like grade six in US), it's been what....going on 15 years later!!!! I dont get my hopes up anymore but I tell you what back then it gave me a drive! -"I must live 10 more years and I'll be 'normal'!" and back then I had a little scare a couple years before that because it just so happened a neighbor who lived just across the street from me had CF too and she died @ 14, she was about 5-6 years older than me, immagine the prognosis that put in my mind!
 
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lilmac7

New member
I was told ten year when I was in primary school ( think thats like grade six in US), it's been what....going on 15 years later!!!! I dont get my hopes up anymore but I tell you what back then it gave me a drive! -"I must live 10 more years and I'll be 'normal'!" and back then I had a little scare a couple years before that because it just so happened a neighbor who lived just across the street from me had CF too and she died @ 14, she was about 5-6 years older than me, immagine the prognosis that put in my mind!
 
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lilmac7

New member
I was told ten year when I was in primary school ( think thats like grade six in US), it's been what....going on 15 years later!!!! I dont get my hopes up anymore but I tell you what back then it gave me a drive! -"I must live 10 more years and I'll be 'normal'!" and back then I had a little scare a couple years before that because it just so happened a neighbor who lived just across the street from me had CF too and she died @ 14, she was about 5-6 years older than me, immagine the prognosis that put in my mind!
 
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tammykrumrey

Guest
Joni,
Thanks for your kind words<img src="i/expressions/face-icon-small-smile.gif" border="0"> There are a few of us that post on this site that have multiple CF children and neices or nephews with it as well. Sometimes it gets overwhelming, but that's just the way our life is.
We are in St. Louis, Missouri (Yeh, Cardinals!!) and they go to St. Louis Childrens Hospital and see Dr. Tom Ferkol. SLCH works closely with Barnes-Jewish Hospital which also does a lot of CF lung transplants. We are so fortunate to live in a community with easy access to great hospitals and doctors! I never realized how blessed we were until reading about other people's experiences with doctors and hospitals on some of these sites.
Congratulations on your grandson! What a blessing he must be!
 
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tammykrumrey

Guest
Joni,
Thanks for your kind words<img src="i/expressions/face-icon-small-smile.gif" border="0"> There are a few of us that post on this site that have multiple CF children and neices or nephews with it as well. Sometimes it gets overwhelming, but that's just the way our life is.
We are in St. Louis, Missouri (Yeh, Cardinals!!) and they go to St. Louis Childrens Hospital and see Dr. Tom Ferkol. SLCH works closely with Barnes-Jewish Hospital which also does a lot of CF lung transplants. We are so fortunate to live in a community with easy access to great hospitals and doctors! I never realized how blessed we were until reading about other people's experiences with doctors and hospitals on some of these sites.
Congratulations on your grandson! What a blessing he must be!
 
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tammykrumrey

Guest
Joni,
Thanks for your kind words<img src="i/expressions/face-icon-small-smile.gif" border="0"> There are a few of us that post on this site that have multiple CF children and neices or nephews with it as well. Sometimes it gets overwhelming, but that's just the way our life is.
We are in St. Louis, Missouri (Yeh, Cardinals!!) and they go to St. Louis Childrens Hospital and see Dr. Tom Ferkol. SLCH works closely with Barnes-Jewish Hospital which also does a lot of CF lung transplants. We are so fortunate to live in a community with easy access to great hospitals and doctors! I never realized how blessed we were until reading about other people's experiences with doctors and hospitals on some of these sites.
Congratulations on your grandson! What a blessing he must be!
 
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