Pregnant-child diagnosed

HollyAnnsMom · Nov 4, 2007

Hi there I know what you are going through. Our little girl was diagnosed 8/20 at 6 weeks of age after a positive newborn screen. Holly Ann lives a completely normal life and so do we. I don't work outside of the home which was a decision before CF. We go to church and visit friends and family. Our peditrician and CF doctor advised us to raise her as any other child. Everyone says that early detection is wonderful as with any other condition. Holly Ann does take enzymes with applesauce before she nurses and she has a breathing treatment and chest therapy once a day. She is a truly remarkable child and brings us great joy. I have a friend that keeps her if I need to run some errands and don't want to take her along. There are so many new medicines and treatments for these babies. I think that we have a lot to look forward to and so do you. God bless you as you make this decision because our faith in God, our family, and lots of prayers are what have gotten us this far. Yours Truly:Kristan

HollyAnnsMom · Nov 4, 2007

Hi there I know what you are going through. Our little girl was diagnosed 8/20 at 6 weeks of age after a positive newborn screen. Holly Ann lives a completely normal life and so do we. I don't work outside of the home which was a decision before CF. We go to church and visit friends and family. Our peditrician and CF doctor advised us to raise her as any other child. Everyone says that early detection is wonderful as with any other condition. Holly Ann does take enzymes with applesauce before she nurses and she has a breathing treatment and chest therapy once a day. She is a truly remarkable child and brings us great joy. I have a friend that keeps her if I need to run some errands and don't want to take her along. There are so many new medicines and treatments for these babies. I think that we have a lot to look forward to and so do you. God bless you as you make this decision because our faith in God, our family, and lots of prayers are what have gotten us this far. Yours Truly:Kristan

HollyAnnsMom · Nov 4, 2007

Hi there I know what you are going through. Our little girl was diagnosed 8/20 at 6 weeks of age after a positive newborn screen. Holly Ann lives a completely normal life and so do we. I don't work outside of the home which was a decision before CF. We go to church and visit friends and family. Our peditrician and CF doctor advised us to raise her as any other child. Everyone says that early detection is wonderful as with any other condition. Holly Ann does take enzymes with applesauce before she nurses and she has a breathing treatment and chest therapy once a day. She is a truly remarkable child and brings us great joy. I have a friend that keeps her if I need to run some errands and don't want to take her along. There are so many new medicines and treatments for these babies. I think that we have a lot to look forward to and so do you. God bless you as you make this decision because our faith in God, our family, and lots of prayers are what have gotten us this far. Yours Truly:Kristan

HollyAnnsMom · Nov 4, 2007

Hi there I know what you are going through. Our little girl was diagnosed 8/20 at 6 weeks of age after a positive newborn screen. Holly Ann lives a completely normal life and so do we. I don't work outside of the home which was a decision before CF. We go to church and visit friends and family. Our peditrician and CF doctor advised us to raise her as any other child. Everyone says that early detection is wonderful as with any other condition. Holly Ann does take enzymes with applesauce before she nurses and she has a breathing treatment and chest therapy once a day. She is a truly remarkable child and brings us great joy. I have a friend that keeps her if I need to run some errands and don't want to take her along. There are so many new medicines and treatments for these babies. I think that we have a lot to look forward to and so do you. God bless you as you make this decision because our faith in God, our family, and lots of prayers are what have gotten us this far. Yours Truly:Kristan

HollyAnnsMom · Nov 4, 2007

Hi there I know what you are going through. Our little girl was diagnosed 8/20 at 6 weeks of age after a positive newborn screen. Holly Ann lives a completely normal life and so do we. I don't work outside of the home which was a decision before CF. We go to church and visit friends and family. Our peditrician and CF doctor advised us to raise her as any other child. Everyone says that early detection is wonderful as with any other condition. Holly Ann does take enzymes with applesauce before she nurses and she has a breathing treatment and chest therapy once a day. She is a truly remarkable child and brings us great joy. I have a friend that keeps her if I need to run some errands and don't want to take her along. There are so many new medicines and treatments for these babies. I think that we have a lot to look forward to and so do you. God bless you as you make this decision because our faith in God, our family, and lots of prayers are what have gotten us this far. Yours Truly:Kristan

Rebjane · Nov 4, 2007

You have already gotten a wealth of information here. I just wanted to let you know I have been in your shoes 5 years ago. When I was 23 weeks prego with my daughter I found out she had CF. She is now almost 5 years old, and a true blessing and joy to our family and all those around her. Like the others have stated, normal is all relative. When i found out she had CF, I was full of guilt and ANGER. You need and will work through these emotions, everyonce in a while the anger pops up but I've learned to deal with it in my own way, actually running is a simple way I burn off most the anger and anxiety.I can thank CF for my healthy heart<img src="i/expressions/face-icon-small-wink.gif" border="0">

My daughter goes to nursery school, has friends, playdates, dances, swims, ice-skates,she does anything a regular 5 year old does plus some. It's almsot like she has something to prove. We have babysitters, we did not do daycare but we also have a son without CF who did not go to daycare; just a personal chioce. Maggie does lots of nebulizers and VEST treatments a day but we mulit-task.

I breastfed Maggie as well, yes you can breastfeed a CF baby.

Maggie has been hospitalized; but she is not always in the hospital , lots of CF care can be done outpatient.

Please come back for any questions. We've been there.

Rebjane · Nov 4, 2007

You have already gotten a wealth of information here. I just wanted to let you know I have been in your shoes 5 years ago. When I was 23 weeks prego with my daughter I found out she had CF. She is now almost 5 years old, and a true blessing and joy to our family and all those around her. Like the others have stated, normal is all relative. When i found out she had CF, I was full of guilt and ANGER. You need and will work through these emotions, everyonce in a while the anger pops up but I've learned to deal with it in my own way, actually running is a simple way I burn off most the anger and anxiety.I can thank CF for my healthy heart<img src="i/expressions/face-icon-small-wink.gif" border="0">

My daughter goes to nursery school, has friends, playdates, dances, swims, ice-skates,she does anything a regular 5 year old does plus some. It's almsot like she has something to prove. We have babysitters, we did not do daycare but we also have a son without CF who did not go to daycare; just a personal chioce. Maggie does lots of nebulizers and VEST treatments a day but we mulit-task.

I breastfed Maggie as well, yes you can breastfeed a CF baby.

Maggie has been hospitalized; but she is not always in the hospital , lots of CF care can be done outpatient.

Please come back for any questions. We've been there.

Rebjane · Nov 4, 2007

You have already gotten a wealth of information here. I just wanted to let you know I have been in your shoes 5 years ago. When I was 23 weeks prego with my daughter I found out she had CF. She is now almost 5 years old, and a true blessing and joy to our family and all those around her. Like the others have stated, normal is all relative. When i found out she had CF, I was full of guilt and ANGER. You need and will work through these emotions, everyonce in a while the anger pops up but I've learned to deal with it in my own way, actually running is a simple way I burn off most the anger and anxiety.I can thank CF for my healthy heart<img src="i/expressions/face-icon-small-wink.gif" border="0">

My daughter goes to nursery school, has friends, playdates, dances, swims, ice-skates,she does anything a regular 5 year old does plus some. It's almsot like she has something to prove. We have babysitters, we did not do daycare but we also have a son without CF who did not go to daycare; just a personal chioce. Maggie does lots of nebulizers and VEST treatments a day but we mulit-task.

I breastfed Maggie as well, yes you can breastfeed a CF baby.

Maggie has been hospitalized; but she is not always in the hospital , lots of CF care can be done outpatient.

Please come back for any questions. We've been there.

Rebjane · Nov 4, 2007

You have already gotten a wealth of information here. I just wanted to let you know I have been in your shoes 5 years ago. When I was 23 weeks prego with my daughter I found out she had CF. She is now almost 5 years old, and a true blessing and joy to our family and all those around her. Like the others have stated, normal is all relative. When i found out she had CF, I was full of guilt and ANGER. You need and will work through these emotions, everyonce in a while the anger pops up but I've learned to deal with it in my own way, actually running is a simple way I burn off most the anger and anxiety.I can thank CF for my healthy heart<img src="i/expressions/face-icon-small-wink.gif" border="0">

My daughter goes to nursery school, has friends, playdates, dances, swims, ice-skates,she does anything a regular 5 year old does plus some. It's almsot like she has something to prove. We have babysitters, we did not do daycare but we also have a son without CF who did not go to daycare; just a personal chioce. Maggie does lots of nebulizers and VEST treatments a day but we mulit-task.

I breastfed Maggie as well, yes you can breastfeed a CF baby.

Maggie has been hospitalized; but she is not always in the hospital , lots of CF care can be done outpatient.

Please come back for any questions. We've been there.

Rebjane · Nov 4, 2007

You have already gotten a wealth of information here. I just wanted to let you know I have been in your shoes 5 years ago. When I was 23 weeks prego with my daughter I found out she had CF. She is now almost 5 years old, and a true blessing and joy to our family and all those around her. Like the others have stated, normal is all relative. When i found out she had CF, I was full of guilt and ANGER. You need and will work through these emotions, everyonce in a while the anger pops up but I've learned to deal with it in my own way, actually running is a simple way I burn off most the anger and anxiety.I can thank CF for my healthy heart<img src="i/expressions/face-icon-small-wink.gif" border="0">

My daughter goes to nursery school, has friends, playdates, dances, swims, ice-skates,she does anything a regular 5 year old does plus some. It's almsot like she has something to prove. We have babysitters, we did not do daycare but we also have a son without CF who did not go to daycare; just a personal chioce. Maggie does lots of nebulizers and VEST treatments a day but we mulit-task.

I breastfed Maggie as well, yes you can breastfeed a CF baby.

Maggie has been hospitalized; but she is not always in the hospital , lots of CF care can be done outpatient.

Please come back for any questions. We've been there.

newmom36 · Nov 5, 2007

Thanks Liza,

I am so concerned about how to keep a full-time job and not put the child in danger, it is nice to hear that your little on did well in daycare. Did you have to find a special day care? How are the teachers about dealing with your child and do they know what to watch out for and are they dilligent about calling you when they should?

newmom36 · Nov 5, 2007

Thanks Liza,

I am so concerned about how to keep a full-time job and not put the child in danger, it is nice to hear that your little on did well in daycare. Did you have to find a special day care? How are the teachers about dealing with your child and do they know what to watch out for and are they dilligent about calling you when they should?

newmom36 · Nov 5, 2007

Thanks Liza,

I am so concerned about how to keep a full-time job and not put the child in danger, it is nice to hear that your little on did well in daycare. Did you have to find a special day care? How are the teachers about dealing with your child and do they know what to watch out for and are they dilligent about calling you when they should?

newmom36 · Nov 5, 2007

Thanks Liza,

I am so concerned about how to keep a full-time job and not put the child in danger, it is nice to hear that your little on did well in daycare. Did you have to find a special day care? How are the teachers about dealing with your child and do they know what to watch out for and are they dilligent about calling you when they should?

newmom36 · Nov 5, 2007

Thanks Liza,

I am so concerned about how to keep a full-time job and not put the child in danger, it is nice to hear that your little on did well in daycare. Did you have to find a special day care? How are the teachers about dealing with your child and do they know what to watch out for and are they dilligent about calling you when they should?

newmom36 · Nov 5, 2007

I can't thank everyone enough for all their thoughts and I have emailed some and plan to continue to look for advice. With only 3 days of absorbing this under my belt, I have been the gamut of emotions and with the strong support of my hubby who believes we can do anything, we know we can get through this in our head. My heart will follow and my strenght will follow. We have already started discussing how to make the house a safer place and how to choose the right daycare or possibly figure out a way to not use it for the first year, but that doesn't seem to be an option right now. I am encouraged by how "normal" all of your child's lives seem and I fear that they won't "fit in", but I figure that is any Mom's fear. I just don't want CF to make them odd or run their lives (or ours). We are already trying to focus on "beautiful daughter/son" not CF child. I guess if everyone has to eat and sleep in a day, they will just have to eat/sleep and take medications.

I want any advice on how to get my house in order, who we should be talking to and what plans we should make. I am planning on seeking counseling to help with the guilt and find my inner strength...any ideas on what kind of counselor can help with this type of topic?

Does anyone know if any specifi germ / allergen /etc makes the symptoms more pronounced? We have animals, and from what I read, this doesn't seem to be a problem. We live in the dry, hot desert...this could be a problem....correct?

Anything anyone wants to clue me in on will be more than welcome and more than helpful!

Thank you again and please keep writing!

newmom36 · Nov 5, 2007

I can't thank everyone enough for all their thoughts and I have emailed some and plan to continue to look for advice. With only 3 days of absorbing this under my belt, I have been the gamut of emotions and with the strong support of my hubby who believes we can do anything, we know we can get through this in our head. My heart will follow and my strenght will follow. We have already started discussing how to make the house a safer place and how to choose the right daycare or possibly figure out a way to not use it for the first year, but that doesn't seem to be an option right now. I am encouraged by how "normal" all of your child's lives seem and I fear that they won't "fit in", but I figure that is any Mom's fear. I just don't want CF to make them odd or run their lives (or ours). We are already trying to focus on "beautiful daughter/son" not CF child. I guess if everyone has to eat and sleep in a day, they will just have to eat/sleep and take medications.

I want any advice on how to get my house in order, who we should be talking to and what plans we should make. I am planning on seeking counseling to help with the guilt and find my inner strength...any ideas on what kind of counselor can help with this type of topic?

Does anyone know if any specifi germ / allergen /etc makes the symptoms more pronounced? We have animals, and from what I read, this doesn't seem to be a problem. We live in the dry, hot desert...this could be a problem....correct?

Anything anyone wants to clue me in on will be more than welcome and more than helpful!

Thank you again and please keep writing!

newmom36 · Nov 5, 2007

I can't thank everyone enough for all their thoughts and I have emailed some and plan to continue to look for advice. With only 3 days of absorbing this under my belt, I have been the gamut of emotions and with the strong support of my hubby who believes we can do anything, we know we can get through this in our head. My heart will follow and my strenght will follow. We have already started discussing how to make the house a safer place and how to choose the right daycare or possibly figure out a way to not use it for the first year, but that doesn't seem to be an option right now. I am encouraged by how "normal" all of your child's lives seem and I fear that they won't "fit in", but I figure that is any Mom's fear. I just don't want CF to make them odd or run their lives (or ours). We are already trying to focus on "beautiful daughter/son" not CF child. I guess if everyone has to eat and sleep in a day, they will just have to eat/sleep and take medications.

I want any advice on how to get my house in order, who we should be talking to and what plans we should make. I am planning on seeking counseling to help with the guilt and find my inner strength...any ideas on what kind of counselor can help with this type of topic?

Does anyone know if any specifi germ / allergen /etc makes the symptoms more pronounced? We have animals, and from what I read, this doesn't seem to be a problem. We live in the dry, hot desert...this could be a problem....correct?

Anything anyone wants to clue me in on will be more than welcome and more than helpful!

Thank you again and please keep writing!

newmom36 · Nov 5, 2007

I can't thank everyone enough for all their thoughts and I have emailed some and plan to continue to look for advice. With only 3 days of absorbing this under my belt, I have been the gamut of emotions and with the strong support of my hubby who believes we can do anything, we know we can get through this in our head. My heart will follow and my strenght will follow. We have already started discussing how to make the house a safer place and how to choose the right daycare or possibly figure out a way to not use it for the first year, but that doesn't seem to be an option right now. I am encouraged by how "normal" all of your child's lives seem and I fear that they won't "fit in", but I figure that is any Mom's fear. I just don't want CF to make them odd or run their lives (or ours). We are already trying to focus on "beautiful daughter/son" not CF child. I guess if everyone has to eat and sleep in a day, they will just have to eat/sleep and take medications.

I want any advice on how to get my house in order, who we should be talking to and what plans we should make. I am planning on seeking counseling to help with the guilt and find my inner strength...any ideas on what kind of counselor can help with this type of topic?

Does anyone know if any specifi germ / allergen /etc makes the symptoms more pronounced? We have animals, and from what I read, this doesn't seem to be a problem. We live in the dry, hot desert...this could be a problem....correct?

Anything anyone wants to clue me in on will be more than welcome and more than helpful!

Thank you again and please keep writing!

newmom36 · Nov 5, 2007

I can't thank everyone enough for all their thoughts and I have emailed some and plan to continue to look for advice. With only 3 days of absorbing this under my belt, I have been the gamut of emotions and with the strong support of my hubby who believes we can do anything, we know we can get through this in our head. My heart will follow and my strenght will follow. We have already started discussing how to make the house a safer place and how to choose the right daycare or possibly figure out a way to not use it for the first year, but that doesn't seem to be an option right now. I am encouraged by how "normal" all of your child's lives seem and I fear that they won't "fit in", but I figure that is any Mom's fear. I just don't want CF to make them odd or run their lives (or ours). We are already trying to focus on "beautiful daughter/son" not CF child. I guess if everyone has to eat and sleep in a day, they will just have to eat/sleep and take medications.

I want any advice on how to get my house in order, who we should be talking to and what plans we should make. I am planning on seeking counseling to help with the guilt and find my inner strength...any ideas on what kind of counselor can help with this type of topic?

Does anyone know if any specifi germ / allergen /etc makes the symptoms more pronounced? We have animals, and from what I read, this doesn't seem to be a problem. We live in the dry, hot desert...this could be a problem....correct?

Anything anyone wants to clue me in on will be more than welcome and more than helpful!

Thank you again and please keep writing!

Pregnant-child diagnosed

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