PSEUDO TWICE...My daughter

lillytree · Dec 29, 2007

Hi hope you can advise me. My four year old has had pseudo twice once when she was four months old and again just before her 4th birthday. Right now we have been doing cough swabs at her gps as we have huge issues with the hospital and her care. By this I mean the cross infection issues or lack of it! From the most simple things like basic hand washing to busy clinics with no seperation rules and children in close contact playing with the same toys etc.

She had her 1st admission in the summer anyway now cough swabs have come back clear each time from gps. We really want to change clinics but we have heard they are no different in here in the uk. What we would like is to have the basics like cough swabs at her gps and not go to the hospital clinic unless we really have to. They are saying that we cannot do this.

I know I posted a similar topic before but maybe was not clear in what I was trying to say.

Have any of you refused to go to hospital clinics and unless you have to? If so what was your outcome.?

The thing is we want to give her a chance and just feel each time we take her there we come back and she is always ill.

The pseudo thing has really upset me as I have heard it shortens her life?

I am really scared of this coming back but know I need to be prepared...If it does come back how does it effect your day to day life? I am sorry to ask this but are you always sick when you have this?

I worry myself sick about this. I am so so scared for her. In your opionion am I worrying not over nothing but taking it out of context. I cannot talk to my team about this as I do not have a good relationship with them due to me complaining about there basic hygiene standards.

She is due to start school next year and I worry so much she won't be able to do all the things others can.

I am sorry to impose all my worrys on you but feel you might be able to give me an insight into what life is going to be like for us.

Thanks for reading my post x

Lillytree

lillytree · Dec 29, 2007

Hi hope you can advise me. My four year old has had pseudo twice once when she was four months old and again just before her 4th birthday. Right now we have been doing cough swabs at her gps as we have huge issues with the hospital and her care. By this I mean the cross infection issues or lack of it! From the most simple things like basic hand washing to busy clinics with no seperation rules and children in close contact playing with the same toys etc.

She had her 1st admission in the summer anyway now cough swabs have come back clear each time from gps. We really want to change clinics but we have heard they are no different in here in the uk. What we would like is to have the basics like cough swabs at her gps and not go to the hospital clinic unless we really have to. They are saying that we cannot do this.

I know I posted a similar topic before but maybe was not clear in what I was trying to say.

Have any of you refused to go to hospital clinics and unless you have to? If so what was your outcome.?

The thing is we want to give her a chance and just feel each time we take her there we come back and she is always ill.

The pseudo thing has really upset me as I have heard it shortens her life?

I am really scared of this coming back but know I need to be prepared...If it does come back how does it effect your day to day life? I am sorry to ask this but are you always sick when you have this?

I worry myself sick about this. I am so so scared for her. In your opionion am I worrying not over nothing but taking it out of context. I cannot talk to my team about this as I do not have a good relationship with them due to me complaining about there basic hygiene standards.

She is due to start school next year and I worry so much she won't be able to do all the things others can.

I am sorry to impose all my worrys on you but feel you might be able to give me an insight into what life is going to be like for us.

Thanks for reading my post x

Lillytree

lillytree · Dec 29, 2007

Hi hope you can advise me. My four year old has had pseudo twice once when she was four months old and again just before her 4th birthday. Right now we have been doing cough swabs at her gps as we have huge issues with the hospital and her care. By this I mean the cross infection issues or lack of it! From the most simple things like basic hand washing to busy clinics with no seperation rules and children in close contact playing with the same toys etc.

She had her 1st admission in the summer anyway now cough swabs have come back clear each time from gps. We really want to change clinics but we have heard they are no different in here in the uk. What we would like is to have the basics like cough swabs at her gps and not go to the hospital clinic unless we really have to. They are saying that we cannot do this.

I know I posted a similar topic before but maybe was not clear in what I was trying to say.

Have any of you refused to go to hospital clinics and unless you have to? If so what was your outcome.?

The thing is we want to give her a chance and just feel each time we take her there we come back and she is always ill.

The pseudo thing has really upset me as I have heard it shortens her life?

I am really scared of this coming back but know I need to be prepared...If it does come back how does it effect your day to day life? I am sorry to ask this but are you always sick when you have this?

I worry myself sick about this. I am so so scared for her. In your opionion am I worrying not over nothing but taking it out of context. I cannot talk to my team about this as I do not have a good relationship with them due to me complaining about there basic hygiene standards.

She is due to start school next year and I worry so much she won't be able to do all the things others can.

I am sorry to impose all my worrys on you but feel you might be able to give me an insight into what life is going to be like for us.

Thanks for reading my post x

Lillytree

lillytree · Dec 29, 2007

Hi hope you can advise me. My four year old has had pseudo twice once when she was four months old and again just before her 4th birthday. Right now we have been doing cough swabs at her gps as we have huge issues with the hospital and her care. By this I mean the cross infection issues or lack of it! From the most simple things like basic hand washing to busy clinics with no seperation rules and children in close contact playing with the same toys etc.

She had her 1st admission in the summer anyway now cough swabs have come back clear each time from gps. We really want to change clinics but we have heard they are no different in here in the uk. What we would like is to have the basics like cough swabs at her gps and not go to the hospital clinic unless we really have to. They are saying that we cannot do this.

I know I posted a similar topic before but maybe was not clear in what I was trying to say.

Have any of you refused to go to hospital clinics and unless you have to? If so what was your outcome.?

The thing is we want to give her a chance and just feel each time we take her there we come back and she is always ill.

The pseudo thing has really upset me as I have heard it shortens her life?

I am really scared of this coming back but know I need to be prepared...If it does come back how does it effect your day to day life? I am sorry to ask this but are you always sick when you have this?

I worry myself sick about this. I am so so scared for her. In your opionion am I worrying not over nothing but taking it out of context. I cannot talk to my team about this as I do not have a good relationship with them due to me complaining about there basic hygiene standards.

She is due to start school next year and I worry so much she won't be able to do all the things others can.

I am sorry to impose all my worrys on you but feel you might be able to give me an insight into what life is going to be like for us.

Thanks for reading my post x

Lillytree

lillytree · Dec 29, 2007

Hi hope you can advise me. My four year old has had pseudo twice once when she was four months old and again just before her 4th birthday. Right now we have been doing cough swabs at her gps as we have huge issues with the hospital and her care. By this I mean the cross infection issues or lack of it! From the most simple things like basic hand washing to busy clinics with no seperation rules and children in close contact playing with the same toys etc.

She had her 1st admission in the summer anyway now cough swabs have come back clear each time from gps. We really want to change clinics but we have heard they are no different in here in the uk. What we would like is to have the basics like cough swabs at her gps and not go to the hospital clinic unless we really have to. They are saying that we cannot do this.

I know I posted a similar topic before but maybe was not clear in what I was trying to say.

Have any of you refused to go to hospital clinics and unless you have to? If so what was your outcome.?

The thing is we want to give her a chance and just feel each time we take her there we come back and she is always ill.

The pseudo thing has really upset me as I have heard it shortens her life?

I am really scared of this coming back but know I need to be prepared...If it does come back how does it effect your day to day life? I am sorry to ask this but are you always sick when you have this?

I worry myself sick about this. I am so so scared for her. In your opionion am I worrying not over nothing but taking it out of context. I cannot talk to my team about this as I do not have a good relationship with them due to me complaining about there basic hygiene standards.

She is due to start school next year and I worry so much she won't be able to do all the things others can.

I am sorry to impose all my worrys on you but feel you might be able to give me an insight into what life is going to be like for us.

Thanks for reading my post x

Lillytree

bittyhorse23 · Dec 29, 2007

lilytree

I have cultured PA (pseudo) for as long as I can remember. It does not affect me significantly unless I catch something else like a cold or the flu. Or if I get really run down and can not keep up with the mucus production. I'm on oral abx all the time and TOBI every other month. My life has not really been any different than most of my friends (besides the coughing and treatments) up until recently. I was always able to do what others could including running and playing until I was a bit older. As long as you do the treatments and all I would think she would be good. Sounds like you are very caring and that makes a big difference <img src="i/expressions/face-icon-small-smile.gif" border="0">

When your daughter goes to school just make sure she washes her hands alot and maybe even give her some of that anti-bacterial hand wash stuff to use. Kids are gonna get sick...can't leave her in a bubble <img src="i/expressions/face-icon-small-smile.gif" border="0">

I assume you live in the UK ad since I live in the states I can't give you any advice on switching clinics sorry. I hope you are wble to figure something out!!!

bittyhorse23 · Dec 29, 2007

lilytree

I have cultured PA (pseudo) for as long as I can remember. It does not affect me significantly unless I catch something else like a cold or the flu. Or if I get really run down and can not keep up with the mucus production. I'm on oral abx all the time and TOBI every other month. My life has not really been any different than most of my friends (besides the coughing and treatments) up until recently. I was always able to do what others could including running and playing until I was a bit older. As long as you do the treatments and all I would think she would be good. Sounds like you are very caring and that makes a big difference <img src="i/expressions/face-icon-small-smile.gif" border="0">

When your daughter goes to school just make sure she washes her hands alot and maybe even give her some of that anti-bacterial hand wash stuff to use. Kids are gonna get sick...can't leave her in a bubble <img src="i/expressions/face-icon-small-smile.gif" border="0">

I assume you live in the UK ad since I live in the states I can't give you any advice on switching clinics sorry. I hope you are wble to figure something out!!!

bittyhorse23 · Dec 29, 2007

lilytree

I have cultured PA (pseudo) for as long as I can remember. It does not affect me significantly unless I catch something else like a cold or the flu. Or if I get really run down and can not keep up with the mucus production. I'm on oral abx all the time and TOBI every other month. My life has not really been any different than most of my friends (besides the coughing and treatments) up until recently. I was always able to do what others could including running and playing until I was a bit older. As long as you do the treatments and all I would think she would be good. Sounds like you are very caring and that makes a big difference <img src="i/expressions/face-icon-small-smile.gif" border="0">

When your daughter goes to school just make sure she washes her hands alot and maybe even give her some of that anti-bacterial hand wash stuff to use. Kids are gonna get sick...can't leave her in a bubble <img src="i/expressions/face-icon-small-smile.gif" border="0">

I assume you live in the UK ad since I live in the states I can't give you any advice on switching clinics sorry. I hope you are wble to figure something out!!!

bittyhorse23 · Dec 29, 2007

lilytree

I have cultured PA (pseudo) for as long as I can remember. It does not affect me significantly unless I catch something else like a cold or the flu. Or if I get really run down and can not keep up with the mucus production. I'm on oral abx all the time and TOBI every other month. My life has not really been any different than most of my friends (besides the coughing and treatments) up until recently. I was always able to do what others could including running and playing until I was a bit older. As long as you do the treatments and all I would think she would be good. Sounds like you are very caring and that makes a big difference <img src="i/expressions/face-icon-small-smile.gif" border="0">

When your daughter goes to school just make sure she washes her hands alot and maybe even give her some of that anti-bacterial hand wash stuff to use. Kids are gonna get sick...can't leave her in a bubble <img src="i/expressions/face-icon-small-smile.gif" border="0">

I assume you live in the UK ad since I live in the states I can't give you any advice on switching clinics sorry. I hope you are wble to figure something out!!!

bittyhorse23 · Dec 29, 2007

lilytree

I have cultured PA (pseudo) for as long as I can remember. It does not affect me significantly unless I catch something else like a cold or the flu. Or if I get really run down and can not keep up with the mucus production. I'm on oral abx all the time and TOBI every other month. My life has not really been any different than most of my friends (besides the coughing and treatments) up until recently. I was always able to do what others could including running and playing until I was a bit older. As long as you do the treatments and all I would think she would be good. Sounds like you are very caring and that makes a big difference <img src="i/expressions/face-icon-small-smile.gif" border="0">

When your daughter goes to school just make sure she washes her hands alot and maybe even give her some of that anti-bacterial hand wash stuff to use. Kids are gonna get sick...can't leave her in a bubble <img src="i/expressions/face-icon-small-smile.gif" border="0">

I assume you live in the UK ad since I live in the states I can't give you any advice on switching clinics sorry. I hope you are wble to figure something out!!!

AnD · Dec 29, 2007

If she has to go, all I can think of is to get her some masks to wear in clinic (it may take a bribe or treats, but since it isn't an everyday thing...here's a link to some cute fabric ones -much more comfortable and come in patterns and a child size is available- I have 2 of them. I don't know if you can get them where you are, but it's worth a shot: <a target=_blank class=ftalternatingbarlinklarge href="http://www.breathehealthy.net/">Breathe healthy masks</a> <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), take lots of hand sanitizer (I put it on pocket wipes and wipe down my room too, and then wash, wash my hands- and only touch the faucet handles with paper towels- and sometimes sanitize them too. If they have the "hospital grade" wipes in my room, I put on a glove and use those!). You can also bring her her own toy(s)- washable, wipe-down-able-, and insist on handwashing/sanitizer for everyone who comes in your room. Let 'em think you are paranoid- if they are lax like that, you have to be. Pthh on them <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Putting her in a stroller might help too. When I have to take my 4 year old to appointments with me, she gets toys and a snack and drinks and stays in the stroller, to avoid her touching lots of germy surfaces (and so I can concentrate on what the doctor is saying to me, lol).

AnD · Dec 29, 2007

If she has to go, all I can think of is to get her some masks to wear in clinic (it may take a bribe or treats, but since it isn't an everyday thing...here's a link to some cute fabric ones -much more comfortable and come in patterns and a child size is available- I have 2 of them. I don't know if you can get them where you are, but it's worth a shot: <a target=_blank class=ftalternatingbarlinklarge href="http://www.breathehealthy.net/">Breathe healthy masks</a> <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), take lots of hand sanitizer (I put it on pocket wipes and wipe down my room too, and then wash, wash my hands- and only touch the faucet handles with paper towels- and sometimes sanitize them too. If they have the "hospital grade" wipes in my room, I put on a glove and use those!). You can also bring her her own toy(s)- washable, wipe-down-able-, and insist on handwashing/sanitizer for everyone who comes in your room. Let 'em think you are paranoid- if they are lax like that, you have to be. Pthh on them <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Putting her in a stroller might help too. When I have to take my 4 year old to appointments with me, she gets toys and a snack and drinks and stays in the stroller, to avoid her touching lots of germy surfaces (and so I can concentrate on what the doctor is saying to me, lol).

AnD · Dec 29, 2007

If she has to go, all I can think of is to get her some masks to wear in clinic (it may take a bribe or treats, but since it isn't an everyday thing...here's a link to some cute fabric ones -much more comfortable and come in patterns and a child size is available- I have 2 of them. I don't know if you can get them where you are, but it's worth a shot: <a target=_blank class=ftalternatingbarlinklarge href="http://www.breathehealthy.net/">Breathe healthy masks</a> <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), take lots of hand sanitizer (I put it on pocket wipes and wipe down my room too, and then wash, wash my hands- and only touch the faucet handles with paper towels- and sometimes sanitize them too. If they have the "hospital grade" wipes in my room, I put on a glove and use those!). You can also bring her her own toy(s)- washable, wipe-down-able-, and insist on handwashing/sanitizer for everyone who comes in your room. Let 'em think you are paranoid- if they are lax like that, you have to be. Pthh on them <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Putting her in a stroller might help too. When I have to take my 4 year old to appointments with me, she gets toys and a snack and drinks and stays in the stroller, to avoid her touching lots of germy surfaces (and so I can concentrate on what the doctor is saying to me, lol).

AnD · Dec 29, 2007

If she has to go, all I can think of is to get her some masks to wear in clinic (it may take a bribe or treats, but since it isn't an everyday thing...here's a link to some cute fabric ones -much more comfortable and come in patterns and a child size is available- I have 2 of them. I don't know if you can get them where you are, but it's worth a shot: <a target=_blank class=ftalternatingbarlinklarge href="http://www.breathehealthy.net/">Breathe healthy masks</a> <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), take lots of hand sanitizer (I put it on pocket wipes and wipe down my room too, and then wash, wash my hands- and only touch the faucet handles with paper towels- and sometimes sanitize them too. If they have the "hospital grade" wipes in my room, I put on a glove and use those!). You can also bring her her own toy(s)- washable, wipe-down-able-, and insist on handwashing/sanitizer for everyone who comes in your room. Let 'em think you are paranoid- if they are lax like that, you have to be. Pthh on them <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Putting her in a stroller might help too. When I have to take my 4 year old to appointments with me, she gets toys and a snack and drinks and stays in the stroller, to avoid her touching lots of germy surfaces (and so I can concentrate on what the doctor is saying to me, lol).

AnD · Dec 29, 2007

If she has to go, all I can think of is to get her some masks to wear in clinic (it may take a bribe or treats, but since it isn't an everyday thing...here's a link to some cute fabric ones -much more comfortable and come in patterns and a child size is available- I have 2 of them. I don't know if you can get them where you are, but it's worth a shot: <a target=_blank class=ftalternatingbarlinklarge href="http://www.breathehealthy.net/">Breathe healthy masks</a> <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), take lots of hand sanitizer (I put it on pocket wipes and wipe down my room too, and then wash, wash my hands- and only touch the faucet handles with paper towels- and sometimes sanitize them too. If they have the "hospital grade" wipes in my room, I put on a glove and use those!). You can also bring her her own toy(s)- washable, wipe-down-able-, and insist on handwashing/sanitizer for everyone who comes in your room. Let 'em think you are paranoid- if they are lax like that, you have to be. Pthh on them <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Putting her in a stroller might help too. When I have to take my 4 year old to appointments with me, she gets toys and a snack and drinks and stays in the stroller, to avoid her touching lots of germy surfaces (and so I can concentrate on what the doctor is saying to me, lol).

Skye · Dec 29, 2007