Pulmozyme and Tobi questions, and a quick intro

BoardkilL

New member
Hello people<br>
<br>
I'm new to this forum, I pretty much stumbled onto it while
searching the net for some info on Pulmozyme.<br>
<br>
I guess a "quick" introduction might be in place. I'm a
30 year old norwegian CF-er, currently living in Western Australia.
I was diagnosed when I was almost four, after they figured out that
my, at the time, one year older brother had it. Being born in
Norway was a blessing I guess, free health care and all. I started
IV treatments when I was about 10, and since I was 12 or so I've
had IV treatments four times a year, that's just the scandinavian
way of doing it.<br>
<br>
When I was 26 I moved to Perth with my girlfriend to go to uni. In
june this year I finished my BA in Design Photography, and as of
right now I'm pretty much doing nothing while waiting for my
girlfriend to finish her degree in Fashion and Textile Design. I
reckon moving to Australia was a pretty big step for someone with
CF, but I've made it work fairly well, many thanks to the nice
climate for that. Getting all the meds i need has been a bit of a
hassle though.<br>
<br>
In six weeks time (after almost four years in Oz), when my
girlfriend finishes her degree we'll be moving back the the snowy
hell called Norway. Australia has been a blessing with its very
nice climate, as snow and winter has never been that great really,
apart from ice hockey and snowboarding of course.<br>
<br>
Now that the rather lengthy intro is out of the way, to my
question:<br>
I used to use Pulmozyme daily when I was younger, but pretty much
stopped because I'm a lazy *****. Lately I've been feeling a bit
worse and want to start again, I have quite a bit in my fridge, but
it has all expired (the pharmacy gave me almost expired product the
last time I got some). Normally I use meds even if they are
expired, like Mucomyst tablets and Creon, and it works just fine.
With Pulmozyme I'm not so sure though, it expired almost a year
ago, but has been stored in a fridge since I got it. You guys
reckon it'll still be good enough to get some use from?<br>
<br>
Same goes for my Tobi. I haven't had an IV treatment for years, but
really need something to get rid of an annoying infection. since
moving here I've used Ciproxin and Tobi, but now my Tobi has
expired as well, about a year too. Reckon it's still safe?<br>
<br>
Any smart suggestions welcomed. I guess I could wait until I move
back home and get a fresh batch of meds, but I'd prefer to be as
infection free as possible when moving from a
"comfy" 40+ celsius (104F) to -10 celsius
(14F).
 

BoardkilL

New member
Hello people<br>
<br>
I'm new to this forum, I pretty much stumbled onto it while
searching the net for some info on Pulmozyme.<br>
<br>
I guess a "quick" introduction might be in place. I'm a
30 year old norwegian CF-er, currently living in Western Australia.
I was diagnosed when I was almost four, after they figured out that
my, at the time, one year older brother had it. Being born in
Norway was a blessing I guess, free health care and all. I started
IV treatments when I was about 10, and since I was 12 or so I've
had IV treatments four times a year, that's just the scandinavian
way of doing it.<br>
<br>
When I was 26 I moved to Perth with my girlfriend to go to uni. In
june this year I finished my BA in Design Photography, and as of
right now I'm pretty much doing nothing while waiting for my
girlfriend to finish her degree in Fashion and Textile Design. I
reckon moving to Australia was a pretty big step for someone with
CF, but I've made it work fairly well, many thanks to the nice
climate for that. Getting all the meds i need has been a bit of a
hassle though.<br>
<br>
In six weeks time (after almost four years in Oz), when my
girlfriend finishes her degree we'll be moving back the the snowy
hell called Norway. Australia has been a blessing with its very
nice climate, as snow and winter has never been that great really,
apart from ice hockey and snowboarding of course.<br>
<br>
Now that the rather lengthy intro is out of the way, to my
question:<br>
I used to use Pulmozyme daily when I was younger, but pretty much
stopped because I'm a lazy *****. Lately I've been feeling a bit
worse and want to start again, I have quite a bit in my fridge, but
it has all expired (the pharmacy gave me almost expired product the
last time I got some). Normally I use meds even if they are
expired, like Mucomyst tablets and Creon, and it works just fine.
With Pulmozyme I'm not so sure though, it expired almost a year
ago, but has been stored in a fridge since I got it. You guys
reckon it'll still be good enough to get some use from?<br>
<br>
Same goes for my Tobi. I haven't had an IV treatment for years, but
really need something to get rid of an annoying infection. since
moving here I've used Ciproxin and Tobi, but now my Tobi has
expired as well, about a year too. Reckon it's still safe?<br>
<br>
Any smart suggestions welcomed. I guess I could wait until I move
back home and get a fresh batch of meds, but I'd prefer to be as
infection free as possible when moving from a
"comfy" 40+ celsius (104F) to -10 celsius
(14F).
 

BoardkilL

New member
Hello people<br>
<br>
I'm new to this forum, I pretty much stumbled onto it while
searching the net for some info on Pulmozyme.<br>
<br>
I guess a "quick" introduction might be in place. I'm a
30 year old norwegian CF-er, currently living in Western Australia.
I was diagnosed when I was almost four, after they figured out that
my, at the time, one year older brother had it. Being born in
Norway was a blessing I guess, free health care and all. I started
IV treatments when I was about 10, and since I was 12 or so I've
had IV treatments four times a year, that's just the scandinavian
way of doing it.<br>
<br>
When I was 26 I moved to Perth with my girlfriend to go to uni. In
june this year I finished my BA in Design Photography, and as of
right now I'm pretty much doing nothing while waiting for my
girlfriend to finish her degree in Fashion and Textile Design. I
reckon moving to Australia was a pretty big step for someone with
CF, but I've made it work fairly well, many thanks to the nice
climate for that. Getting all the meds i need has been a bit of a
hassle though.<br>
<br>
In six weeks time (after almost four years in Oz), when my
girlfriend finishes her degree we'll be moving back the the snowy
hell called Norway. Australia has been a blessing with its very
nice climate, as snow and winter has never been that great really,
apart from ice hockey and snowboarding of course.<br>
<br>
Now that the rather lengthy intro is out of the way, to my
question:<br>
I used to use Pulmozyme daily when I was younger, but pretty much
stopped because I'm a lazy *****. Lately I've been feeling a bit
worse and want to start again, I have quite a bit in my fridge, but
it has all expired (the pharmacy gave me almost expired product the
last time I got some). Normally I use meds even if they are
expired, like Mucomyst tablets and Creon, and it works just fine.
With Pulmozyme I'm not so sure though, it expired almost a year
ago, but has been stored in a fridge since I got it. You guys
reckon it'll still be good enough to get some use from?<br>
<br>
Same goes for my Tobi. I haven't had an IV treatment for years, but
really need something to get rid of an annoying infection. since
moving here I've used Ciproxin and Tobi, but now my Tobi has
expired as well, about a year too. Reckon it's still safe?<br>
<br>
Any smart suggestions welcomed. I guess I could wait until I move
back home and get a fresh batch of meds, but I'd prefer to be as
infection free as possible when moving from a
"comfy" 40+ celsius (104F) to -10 celsius
(14F).
 

thelizardqueen

New member
I wouldn't use it if its expired. It'll lose its effectiveness. For both TOBI and Pulmozyme. I don't even think I'd use expired enzymes either, but that's just me. Can you not get a script for it?
 

thelizardqueen

New member
I wouldn't use it if its expired. It'll lose its effectiveness. For both TOBI and Pulmozyme. I don't even think I'd use expired enzymes either, but that's just me. Can you not get a script for it?
 

thelizardqueen

New member
I wouldn't use it if its expired. It'll lose its effectiveness. For both TOBI and Pulmozyme. I don't even think I'd use expired enzymes either, but that's just me. Can you not get a script for it?
 

Chaggie

New member
I wouldn't think it would be very effective after that long. I doubt it would hurt you very much to do it, but why risk it if you are going back in such a short time.

And remember even though it's cold you're going back to hockey.
 

Chaggie

New member
I wouldn't think it would be very effective after that long. I doubt it would hurt you very much to do it, but why risk it if you are going back in such a short time.

And remember even though it's cold you're going back to hockey.
 

Chaggie

New member
I wouldn't think it would be very effective after that long. I doubt it would hurt you very much to do it, but why risk it if you are going back in such a short time.

And remember even though it's cold you're going back to hockey.
 

BoardkilL

New member
Getting a prescription wouldn't be to much of a problem, paying for
the meds would. As long as I get them from Norway they're free, if
I have to get them in Australia I'd have to pay, then get
reimbursed by the Norwegian government. As a poor student that
doesn't work out that well. <img src="i/expressions/face-icon-small-tongue.gif" border="0"><br>
<br>
Expired enzymes work fine, if a bit less effective, same goes for
most other things. It's just the Pulmozyme I'm a bit worried about.
I might just give it a go and see what happens. I think I'll skip
on the Tobi, don't wanna mess too much with antibiotics. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

BoardkilL

New member
Getting a prescription wouldn't be to much of a problem, paying for
the meds would. As long as I get them from Norway they're free, if
I have to get them in Australia I'd have to pay, then get
reimbursed by the Norwegian government. As a poor student that
doesn't work out that well. <img src="i/expressions/face-icon-small-tongue.gif" border="0"><br>
<br>
Expired enzymes work fine, if a bit less effective, same goes for
most other things. It's just the Pulmozyme I'm a bit worried about.
I might just give it a go and see what happens. I think I'll skip
on the Tobi, don't wanna mess too much with antibiotics. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

BoardkilL

New member
Getting a prescription wouldn't be to much of a problem, paying for
the meds would. As long as I get them from Norway they're free, if
I have to get them in Australia I'd have to pay, then get
reimbursed by the Norwegian government. As a poor student that
doesn't work out that well. <img src="i/expressions/face-icon-small-tongue.gif" border="0"><br>
<br>
Expired enzymes work fine, if a bit less effective, same goes for
most other things. It's just the Pulmozyme I'm a bit worried about.
I might just give it a go and see what happens. I think I'll skip
on the Tobi, don't wanna mess too much with antibiotics. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Chaggie</b></i> I wouldn't think it
would be very effective after that long. I doubt it would hurt you
very much to do it, but why risk it if you are going back in such a
short time. And remember even though it's cold you're going back to
hockey.</end quote></div><br>
<br>
Mate I love hockey and snowboarding, I just hate the cold. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I've
heard great things about that new plastic "ice" for
skating though, maybe that's the solution.
 

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Chaggie</b></i> I wouldn't think it
would be very effective after that long. I doubt it would hurt you
very much to do it, but why risk it if you are going back in such a
short time. And remember even though it's cold you're going back to
hockey.</end quote></div><br>
<br>
Mate I love hockey and snowboarding, I just hate the cold. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I've
heard great things about that new plastic "ice" for
skating though, maybe that's the solution.
 

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Chaggie</b></i> I wouldn't think it
would be very effective after that long. I doubt it would hurt you
very much to do it, but why risk it if you are going back in such a
short time. And remember even though it's cold you're going back to
hockey.</end quote></div><br>
<br>
Mate I love hockey and snowboarding, I just hate the cold. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I've
heard great things about that new plastic "ice" for
skating though, maybe that's the solution.
 

kybert

New member
heya fellow perthie. norway might be a 'snowy hell' but at least they wont stand by and watch you die. dont count on perth saving you if you get very sick. as someone who is bashing my head against a brick wall begging for someone to take notice of my failing health and to treat me with some god damn respect, count yourself lucky you are moving away from here! <img src="i/expressions/face-icon-small-smile.gif" border="0"> im getting this close to going into the cf clinic and waving a freaking machette around.
 

kybert

New member
heya fellow perthie. norway might be a 'snowy hell' but at least they wont stand by and watch you die. dont count on perth saving you if you get very sick. as someone who is bashing my head against a brick wall begging for someone to take notice of my failing health and to treat me with some god damn respect, count yourself lucky you are moving away from here! <img src="i/expressions/face-icon-small-smile.gif" border="0"> im getting this close to going into the cf clinic and waving a freaking machette around.
 

kybert

New member
heya fellow perthie. norway might be a 'snowy hell' but at least they wont stand by and watch you die. dont count on perth saving you if you get very sick. as someone who is bashing my head against a brick wall begging for someone to take notice of my failing health and to treat me with some god damn respect, count yourself lucky you are moving away from here! <img src="i/expressions/face-icon-small-smile.gif" border="0"> im getting this close to going into the cf clinic and waving a freaking machette around.
 

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kybert</b></i> heya fellow perthie.
norway might be a 'snowy hell' but at least they wont stand by and
watch you die. dont count on perth saving you if you get very sick.
as someone who is bashing my head against a brick wall begging for
someone to take notice of my failing health and to treat me with
some god damn respect, count yourself lucky you are moving away
from here! <img src="i/expressions/face-icon-small-smile.gif" border="0"> im getting this close to going into the cf clinic and
waving a freaking machette around.</end quote></div><br>
<br>
Mate, that sucks. I didn't know it was that bad down here. I guess
I've been lucky living in my own little bubble, with everything
supplied from Norway free of charge.<br>
<br>
Well, at least the climate isn't as bad as in Norway. I've only
been to se Dr Ryan at Charlie Gardner a couple of times, he seems
cool. The hospital, especially the respiratory department, reminds
me of the clinics they had when we went on CF camp in yugoslavia
back in the day (before the war).<br>
<br>
It would be really interesting to hear more about CF treatment in
Oz, more than the little I've been told by the doctor down here...
 

BoardkilL

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kybert</b></i> heya fellow perthie.
norway might be a 'snowy hell' but at least they wont stand by and
watch you die. dont count on perth saving you if you get very sick.
as someone who is bashing my head against a brick wall begging for
someone to take notice of my failing health and to treat me with
some god damn respect, count yourself lucky you are moving away
from here! <img src="i/expressions/face-icon-small-smile.gif" border="0"> im getting this close to going into the cf clinic and
waving a freaking machette around.</end quote></div><br>
<br>
Mate, that sucks. I didn't know it was that bad down here. I guess
I've been lucky living in my own little bubble, with everything
supplied from Norway free of charge.<br>
<br>
Well, at least the climate isn't as bad as in Norway. I've only
been to se Dr Ryan at Charlie Gardner a couple of times, he seems
cool. The hospital, especially the respiratory department, reminds
me of the clinics they had when we went on CF camp in yugoslavia
back in the day (before the war).<br>
<br>
It would be really interesting to hear more about CF treatment in
Oz, more than the little I've been told by the doctor down here...
 
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