jdprecious
New member
the day my little one was diagnosed (at the age of 3) they started her on pulmozyme and the vest... not many times does she cough stuff up... but i do believe that these treatments are what help her to stay so clear!
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Pulmozyme or not?
- Thread starter 3gr8kids
- Start date
jdprecious
New member
the day my little one was diagnosed (at the age of 3) they started her on pulmozyme and the vest... not many times does she cough stuff up... but i do believe that these treatments are what help her to stay so clear!
jdprecious
New member
the day my little one was diagnosed (at the age of 3) they started her on pulmozyme and the vest... not many times does she cough stuff up... but i do believe that these treatments are what help her to stay so clear!
jdprecious
New member
the day my little one was diagnosed (at the age of 3) they started her on pulmozyme and the vest... not many times does she cough stuff up... but i do believe that these treatments are what help her to stay so clear!
jdprecious
New member
the day my little one was diagnosed (at the age of 3) they started her on pulmozyme and the vest... not many times does she cough stuff up... but i do believe that these treatments are what help her to stay so clear!
I was going to say that too Emily if he isn't coughing it up maybe he is swallowing it. Austin does that all the time. He has admitted that.
Austin is also 6 years old and has been on pulmozyme since he was at least 2 years old. I think he is doing great with it so far. Austins Fev1 was 111% when he was last at the doctors in July. So I can't believe that theory about under 40%. But every doctor and person is different.
But I am curious to what your doctor says. Keep us posted.
Austin is also 6 years old and has been on pulmozyme since he was at least 2 years old. I think he is doing great with it so far. Austins Fev1 was 111% when he was last at the doctors in July. So I can't believe that theory about under 40%. But every doctor and person is different.
But I am curious to what your doctor says. Keep us posted.
I was going to say that too Emily if he isn't coughing it up maybe he is swallowing it. Austin does that all the time. He has admitted that.
Austin is also 6 years old and has been on pulmozyme since he was at least 2 years old. I think he is doing great with it so far. Austins Fev1 was 111% when he was last at the doctors in July. So I can't believe that theory about under 40%. But every doctor and person is different.
But I am curious to what your doctor says. Keep us posted.
Austin is also 6 years old and has been on pulmozyme since he was at least 2 years old. I think he is doing great with it so far. Austins Fev1 was 111% when he was last at the doctors in July. So I can't believe that theory about under 40%. But every doctor and person is different.
But I am curious to what your doctor says. Keep us posted.
I was going to say that too Emily if he isn't coughing it up maybe he is swallowing it. Austin does that all the time. He has admitted that.
Austin is also 6 years old and has been on pulmozyme since he was at least 2 years old. I think he is doing great with it so far. Austins Fev1 was 111% when he was last at the doctors in July. So I can't believe that theory about under 40%. But every doctor and person is different.
But I am curious to what your doctor says. Keep us posted.
Austin is also 6 years old and has been on pulmozyme since he was at least 2 years old. I think he is doing great with it so far. Austins Fev1 was 111% when he was last at the doctors in July. So I can't believe that theory about under 40%. But every doctor and person is different.
But I am curious to what your doctor says. Keep us posted.
I was going to say that too Emily if he isn't coughing it up maybe he is swallowing it. Austin does that all the time. He has admitted that.
Austin is also 6 years old and has been on pulmozyme since he was at least 2 years old. I think he is doing great with it so far. Austins Fev1 was 111% when he was last at the doctors in July. So I can't believe that theory about under 40%. But every doctor and person is different.
But I am curious to what your doctor says. Keep us posted.
Austin is also 6 years old and has been on pulmozyme since he was at least 2 years old. I think he is doing great with it so far. Austins Fev1 was 111% when he was last at the doctors in July. So I can't believe that theory about under 40%. But every doctor and person is different.
But I am curious to what your doctor says. Keep us posted.
I was going to say that too Emily if he isn't coughing it up maybe he is swallowing it. Austin does that all the time. He has admitted that.
Austin is also 6 years old and has been on pulmozyme since he was at least 2 years old. I think he is doing great with it so far. Austins Fev1 was 111% when he was last at the doctors in July. So I can't believe that theory about under 40%. But every doctor and person is different.
But I am curious to what your doctor says. Keep us posted.
Austin is also 6 years old and has been on pulmozyme since he was at least 2 years old. I think he is doing great with it so far. Austins Fev1 was 111% when he was last at the doctors in July. So I can't believe that theory about under 40%. But every doctor and person is different.
But I am curious to what your doctor says. Keep us posted.
DS never seems to bring up/cough anything up. He's on duoneb and pulmozyme. And I think everyone has mucus in their lungs, nasal passages, etc., it's just that CFers tend to have really thick mucus. Before DS was put on pulmozyme, I could honestly say that he'd never ever had a runny nose. And the first time he used pulmozyme, I was amazed that his nose ran.
I DID notice that when the respiratory therapist at the clinic was trying to get him to bring up a sputum culture, he used HTS and DS started sounding really congested, the HTS and vest were loosening, bringing up a LOT of gunk. And it came time for DS to spit in the cup and he swallowed. Bleah!
I DID notice that when the respiratory therapist at the clinic was trying to get him to bring up a sputum culture, he used HTS and DS started sounding really congested, the HTS and vest were loosening, bringing up a LOT of gunk. And it came time for DS to spit in the cup and he swallowed. Bleah!
DS never seems to bring up/cough anything up. He's on duoneb and pulmozyme. And I think everyone has mucus in their lungs, nasal passages, etc., it's just that CFers tend to have really thick mucus. Before DS was put on pulmozyme, I could honestly say that he'd never ever had a runny nose. And the first time he used pulmozyme, I was amazed that his nose ran.
I DID notice that when the respiratory therapist at the clinic was trying to get him to bring up a sputum culture, he used HTS and DS started sounding really congested, the HTS and vest were loosening, bringing up a LOT of gunk. And it came time for DS to spit in the cup and he swallowed. Bleah!
I DID notice that when the respiratory therapist at the clinic was trying to get him to bring up a sputum culture, he used HTS and DS started sounding really congested, the HTS and vest were loosening, bringing up a LOT of gunk. And it came time for DS to spit in the cup and he swallowed. Bleah!
DS never seems to bring up/cough anything up. He's on duoneb and pulmozyme. And I think everyone has mucus in their lungs, nasal passages, etc., it's just that CFers tend to have really thick mucus. Before DS was put on pulmozyme, I could honestly say that he'd never ever had a runny nose. And the first time he used pulmozyme, I was amazed that his nose ran.
I DID notice that when the respiratory therapist at the clinic was trying to get him to bring up a sputum culture, he used HTS and DS started sounding really congested, the HTS and vest were loosening, bringing up a LOT of gunk. And it came time for DS to spit in the cup and he swallowed. Bleah!
I DID notice that when the respiratory therapist at the clinic was trying to get him to bring up a sputum culture, he used HTS and DS started sounding really congested, the HTS and vest were loosening, bringing up a LOT of gunk. And it came time for DS to spit in the cup and he swallowed. Bleah!
DS never seems to bring up/cough anything up. He's on duoneb and pulmozyme. And I think everyone has mucus in their lungs, nasal passages, etc., it's just that CFers tend to have really thick mucus. Before DS was put on pulmozyme, I could honestly say that he'd never ever had a runny nose. And the first time he used pulmozyme, I was amazed that his nose ran.
I DID notice that when the respiratory therapist at the clinic was trying to get him to bring up a sputum culture, he used HTS and DS started sounding really congested, the HTS and vest were loosening, bringing up a LOT of gunk. And it came time for DS to spit in the cup and he swallowed. Bleah!
I DID notice that when the respiratory therapist at the clinic was trying to get him to bring up a sputum culture, he used HTS and DS started sounding really congested, the HTS and vest were loosening, bringing up a LOT of gunk. And it came time for DS to spit in the cup and he swallowed. Bleah!
DS never seems to bring up/cough anything up. He's on duoneb and pulmozyme. And I think everyone has mucus in their lungs, nasal passages, etc., it's just that CFers tend to have really thick mucus. Before DS was put on pulmozyme, I could honestly say that he'd never ever had a runny nose. And the first time he used pulmozyme, I was amazed that his nose ran.
I DID notice that when the respiratory therapist at the clinic was trying to get him to bring up a sputum culture, he used HTS and DS started sounding really congested, the HTS and vest were loosening, bringing up a LOT of gunk. And it came time for DS to spit in the cup and he swallowed. Bleah!
I DID notice that when the respiratory therapist at the clinic was trying to get him to bring up a sputum culture, he used HTS and DS started sounding really congested, the HTS and vest were loosening, bringing up a LOT of gunk. And it came time for DS to spit in the cup and he swallowed. Bleah!
i started using pulmozyme a long time ago when it had first come out. i participated in a study with it and it made a *huge* difference for me; my cough is not increased with it, just more productive...i do it at night before i go to bed and so when i get up in the morning and do my vest/hypertonic saline they are way more effective (more productive cough that is...) than if i hadn't done the pulmozyme at all. my FEV1 hovers in the mid 50% range when i'm "healthy" but it was definitly higher than that when i started the pulmozyme (probably more like the 80s/high 70s range). i think it has helped keep me healthier over the past years....
also with hypertonic saline...yeah its hard to tolerate but it helps so much! i feel more congested right after i do it for about 20 mins or so but then that clears up and i feel a lot better. i breath 10% which can be rough to handle sometimes but i was just told they came out with 7% which for me is a lot more tolerable. I did a study at UNC with hypertonic and found out it helps my lungs a lot--i fully believe it helped me stay IV free for 3 years which was amazing. i've since gone down hill a lot but still do the hypertonic and get good results.
sorry this was so long!
also with hypertonic saline...yeah its hard to tolerate but it helps so much! i feel more congested right after i do it for about 20 mins or so but then that clears up and i feel a lot better. i breath 10% which can be rough to handle sometimes but i was just told they came out with 7% which for me is a lot more tolerable. I did a study at UNC with hypertonic and found out it helps my lungs a lot--i fully believe it helped me stay IV free for 3 years which was amazing. i've since gone down hill a lot but still do the hypertonic and get good results.
sorry this was so long!
i started using pulmozyme a long time ago when it had first come out. i participated in a study with it and it made a *huge* difference for me; my cough is not increased with it, just more productive...i do it at night before i go to bed and so when i get up in the morning and do my vest/hypertonic saline they are way more effective (more productive cough that is...) than if i hadn't done the pulmozyme at all. my FEV1 hovers in the mid 50% range when i'm "healthy" but it was definitly higher than that when i started the pulmozyme (probably more like the 80s/high 70s range). i think it has helped keep me healthier over the past years....
also with hypertonic saline...yeah its hard to tolerate but it helps so much! i feel more congested right after i do it for about 20 mins or so but then that clears up and i feel a lot better. i breath 10% which can be rough to handle sometimes but i was just told they came out with 7% which for me is a lot more tolerable. I did a study at UNC with hypertonic and found out it helps my lungs a lot--i fully believe it helped me stay IV free for 3 years which was amazing. i've since gone down hill a lot but still do the hypertonic and get good results.
sorry this was so long!
also with hypertonic saline...yeah its hard to tolerate but it helps so much! i feel more congested right after i do it for about 20 mins or so but then that clears up and i feel a lot better. i breath 10% which can be rough to handle sometimes but i was just told they came out with 7% which for me is a lot more tolerable. I did a study at UNC with hypertonic and found out it helps my lungs a lot--i fully believe it helped me stay IV free for 3 years which was amazing. i've since gone down hill a lot but still do the hypertonic and get good results.
sorry this was so long!
i started using pulmozyme a long time ago when it had first come out. i participated in a study with it and it made a *huge* difference for me; my cough is not increased with it, just more productive...i do it at night before i go to bed and so when i get up in the morning and do my vest/hypertonic saline they are way more effective (more productive cough that is...) than if i hadn't done the pulmozyme at all. my FEV1 hovers in the mid 50% range when i'm "healthy" but it was definitly higher than that when i started the pulmozyme (probably more like the 80s/high 70s range). i think it has helped keep me healthier over the past years....
also with hypertonic saline...yeah its hard to tolerate but it helps so much! i feel more congested right after i do it for about 20 mins or so but then that clears up and i feel a lot better. i breath 10% which can be rough to handle sometimes but i was just told they came out with 7% which for me is a lot more tolerable. I did a study at UNC with hypertonic and found out it helps my lungs a lot--i fully believe it helped me stay IV free for 3 years which was amazing. i've since gone down hill a lot but still do the hypertonic and get good results.
sorry this was so long!
also with hypertonic saline...yeah its hard to tolerate but it helps so much! i feel more congested right after i do it for about 20 mins or so but then that clears up and i feel a lot better. i breath 10% which can be rough to handle sometimes but i was just told they came out with 7% which for me is a lot more tolerable. I did a study at UNC with hypertonic and found out it helps my lungs a lot--i fully believe it helped me stay IV free for 3 years which was amazing. i've since gone down hill a lot but still do the hypertonic and get good results.
sorry this was so long!
i started using pulmozyme a long time ago when it had first come out. i participated in a study with it and it made a *huge* difference for me; my cough is not increased with it, just more productive...i do it at night before i go to bed and so when i get up in the morning and do my vest/hypertonic saline they are way more effective (more productive cough that is...) than if i hadn't done the pulmozyme at all. my FEV1 hovers in the mid 50% range when i'm "healthy" but it was definitly higher than that when i started the pulmozyme (probably more like the 80s/high 70s range). i think it has helped keep me healthier over the past years....
also with hypertonic saline...yeah its hard to tolerate but it helps so much! i feel more congested right after i do it for about 20 mins or so but then that clears up and i feel a lot better. i breath 10% which can be rough to handle sometimes but i was just told they came out with 7% which for me is a lot more tolerable. I did a study at UNC with hypertonic and found out it helps my lungs a lot--i fully believe it helped me stay IV free for 3 years which was amazing. i've since gone down hill a lot but still do the hypertonic and get good results.
sorry this was so long!
also with hypertonic saline...yeah its hard to tolerate but it helps so much! i feel more congested right after i do it for about 20 mins or so but then that clears up and i feel a lot better. i breath 10% which can be rough to handle sometimes but i was just told they came out with 7% which for me is a lot more tolerable. I did a study at UNC with hypertonic and found out it helps my lungs a lot--i fully believe it helped me stay IV free for 3 years which was amazing. i've since gone down hill a lot but still do the hypertonic and get good results.
sorry this was so long!
i started using pulmozyme a long time ago when it had first come out. i participated in a study with it and it made a *huge* difference for me; my cough is not increased with it, just more productive...i do it at night before i go to bed and so when i get up in the morning and do my vest/hypertonic saline they are way more effective (more productive cough that is...) than if i hadn't done the pulmozyme at all. my FEV1 hovers in the mid 50% range when i'm "healthy" but it was definitly higher than that when i started the pulmozyme (probably more like the 80s/high 70s range). i think it has helped keep me healthier over the past years....
also with hypertonic saline...yeah its hard to tolerate but it helps so much! i feel more congested right after i do it for about 20 mins or so but then that clears up and i feel a lot better. i breath 10% which can be rough to handle sometimes but i was just told they came out with 7% which for me is a lot more tolerable. I did a study at UNC with hypertonic and found out it helps my lungs a lot--i fully believe it helped me stay IV free for 3 years which was amazing. i've since gone down hill a lot but still do the hypertonic and get good results.
sorry this was so long!
also with hypertonic saline...yeah its hard to tolerate but it helps so much! i feel more congested right after i do it for about 20 mins or so but then that clears up and i feel a lot better. i breath 10% which can be rough to handle sometimes but i was just told they came out with 7% which for me is a lot more tolerable. I did a study at UNC with hypertonic and found out it helps my lungs a lot--i fully believe it helped me stay IV free for 3 years which was amazing. i've since gone down hill a lot but still do the hypertonic and get good results.
sorry this was so long!