Pulmozyme or not?

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RUSSELLCREW

New member
Marahsyn was started on Pulmozyme at 4 months old and we have not had any problems with it at all. She takes Xopenex, then Pulmozyme then Pulmocort. She never really coughs and is really healthy (50% for wght at 14 mths old).

Hope this helps and good luck
 
R

RUSSELLCREW

New member
Marahsyn was started on Pulmozyme at 4 months old and we have not had any problems with it at all. She takes Xopenex, then Pulmozyme then Pulmocort. She never really coughs and is really healthy (50% for wght at 14 mths old).

Hope this helps and good luck
 
R

RUSSELLCREW

New member
Marahsyn was started on Pulmozyme at 4 months old and we have not had any problems with it at all. She takes Xopenex, then Pulmozyme then Pulmocort. She never really coughs and is really healthy (50% for wght at 14 mths old).

Hope this helps and good luck
 
R

RUSSELLCREW

New member
Marahsyn was started on Pulmozyme at 4 months old and we have not had any problems with it at all. She takes Xopenex, then Pulmozyme then Pulmocort. She never really coughs and is really healthy (50% for wght at 14 mths old).

Hope this helps and good luck
 
R

RUSSELLCREW

New member
Marahsyn was started on Pulmozyme at 4 months old and we have not had any problems with it at all. She takes Xopenex, then Pulmozyme then Pulmocort. She never really coughs and is really healthy (50% for wght at 14 mths old).

Hope this helps and good luck
 
R

RUSSELLCREW

New member
Marahsyn was started on Pulmozyme at 4 months old and we have not had any problems with it at all. She takes Xopenex, then Pulmozyme then Pulmocort. She never really coughs and is really healthy (50% for wght at 14 mths old).

Hope this helps and good luck
 
R

RUSSELLCREW

New member
Marahsyn was started on Pulmozyme at 4 months old and we have not had any problems with it at all. She takes Xopenex, then Pulmozyme then Pulmocort. She never really coughs and is really healthy (50% for wght at 14 mths old).

Hope this helps and good luck
 
R

RUSSELLCREW

New member
Marahsyn was started on Pulmozyme at 4 months old and we have not had any problems with it at all. She takes Xopenex, then Pulmozyme then Pulmocort. She never really coughs and is really healthy (50% for wght at 14 mths old).

Hope this helps and good luck
 
R

RUSSELLCREW

New member
Marahsyn was started on Pulmozyme at 4 months old and we have not had any problems with it at all. She takes Xopenex, then Pulmozyme then Pulmocort. She never really coughs and is really healthy (50% for wght at 14 mths old).

Hope this helps and good luck
 
R

RUSSELLCREW

New member
Marahsyn was started on Pulmozyme at 4 months old and we have not had any problems with it at all. She takes Xopenex, then Pulmozyme then Pulmocort. She never really coughs and is really healthy (50% for wght at 14 mths old).

Hope this helps and good luck
 
M

mom4holly

New member
My little one was not placed on the pulmozyne right when the dx of CF was given. She started on it about 3 months ago & it has worked really well for her in regards to having a productive cough but her FEV1 is way of 40% also. She was started on it because she was congested & couldn't get anything up. I also agree with theswallowing thing-I have to remind Holly every day to spit it out instead of swallowing it.
 
M

mom4holly

New member
My little one was not placed on the pulmozyne right when the dx of CF was given. She started on it about 3 months ago & it has worked really well for her in regards to having a productive cough but her FEV1 is way of 40% also. She was started on it because she was congested & couldn't get anything up. I also agree with theswallowing thing-I have to remind Holly every day to spit it out instead of swallowing it.
 
M

mom4holly

New member
My little one was not placed on the pulmozyne right when the dx of CF was given. She started on it about 3 months ago & it has worked really well for her in regards to having a productive cough but her FEV1 is way of 40% also. She was started on it because she was congested & couldn't get anything up. I also agree with theswallowing thing-I have to remind Holly every day to spit it out instead of swallowing it.
 
M

mom4holly

New member
My little one was not placed on the pulmozyne right when the dx of CF was given. She started on it about 3 months ago & it has worked really well for her in regards to having a productive cough but her FEV1 is way of 40% also. She was started on it because she was congested & couldn't get anything up. I also agree with theswallowing thing-I have to remind Holly every day to spit it out instead of swallowing it.
 
M

mom4holly

New member
My little one was not placed on the pulmozyne right when the dx of CF was given. She started on it about 3 months ago & it has worked really well for her in regards to having a productive cough but her FEV1 is way of 40% also. She was started on it because she was congested & couldn't get anything up. I also agree with theswallowing thing-I have to remind Holly every day to spit it out instead of swallowing it.
 
G

gr33nie

New member
I know there is a lot of different info out there on Pulmozyme. My son Eli started on it at about 15 months. When he was 20 months he had a bronch and his lungs looked really good, no inflammation. I would have thought that if the Pulmozyme was doing any damage we would have seen it then. During the bronch the Dr. did say that Eli had a lot of tiny, spaghetti like plugs in the smallest regions of his lungs. We actually decided to start him on Pulmozyme 2xs a day in hopes that it might help reduce those plugs. Eli shows no discomfort from the drug. I 'think' that it works well for him although there is no way to know exactly how much, it's just a feeling that I have.

Good like making the decision, it's so hard!
 
G

gr33nie

New member
I know there is a lot of different info out there on Pulmozyme. My son Eli started on it at about 15 months. When he was 20 months he had a bronch and his lungs looked really good, no inflammation. I would have thought that if the Pulmozyme was doing any damage we would have seen it then. During the bronch the Dr. did say that Eli had a lot of tiny, spaghetti like plugs in the smallest regions of his lungs. We actually decided to start him on Pulmozyme 2xs a day in hopes that it might help reduce those plugs. Eli shows no discomfort from the drug. I 'think' that it works well for him although there is no way to know exactly how much, it's just a feeling that I have.

Good like making the decision, it's so hard!
 
G

gr33nie

New member
I know there is a lot of different info out there on Pulmozyme. My son Eli started on it at about 15 months. When he was 20 months he had a bronch and his lungs looked really good, no inflammation. I would have thought that if the Pulmozyme was doing any damage we would have seen it then. During the bronch the Dr. did say that Eli had a lot of tiny, spaghetti like plugs in the smallest regions of his lungs. We actually decided to start him on Pulmozyme 2xs a day in hopes that it might help reduce those plugs. Eli shows no discomfort from the drug. I 'think' that it works well for him although there is no way to know exactly how much, it's just a feeling that I have.

Good like making the decision, it's so hard!
 
G

gr33nie

New member
I know there is a lot of different info out there on Pulmozyme. My son Eli started on it at about 15 months. When he was 20 months he had a bronch and his lungs looked really good, no inflammation. I would have thought that if the Pulmozyme was doing any damage we would have seen it then. During the bronch the Dr. did say that Eli had a lot of tiny, spaghetti like plugs in the smallest regions of his lungs. We actually decided to start him on Pulmozyme 2xs a day in hopes that it might help reduce those plugs. Eli shows no discomfort from the drug. I 'think' that it works well for him although there is no way to know exactly how much, it's just a feeling that I have.

Good like making the decision, it's so hard!
 
G

gr33nie

New member
I know there is a lot of different info out there on Pulmozyme. My son Eli started on it at about 15 months. When he was 20 months he had a bronch and his lungs looked really good, no inflammation. I would have thought that if the Pulmozyme was doing any damage we would have seen it then. During the bronch the Dr. did say that Eli had a lot of tiny, spaghetti like plugs in the smallest regions of his lungs. We actually decided to start him on Pulmozyme 2xs a day in hopes that it might help reduce those plugs. Eli shows no discomfort from the drug. I 'think' that it works well for him although there is no way to know exactly how much, it's just a feeling that I have.

Good like making the decision, it's so hard!
 
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