Question about telling your parents all about CF

bittyhorse23 · Dec 23, 2007

Thanks everyone for the advice. I guess I should have been more clear...I am not thinking about a transplant yet. I am not at that stage thankfully. But it somehow came up in our conversation that night and thats when they stared at me blankly.

I only saw my dad on weekends and holidays up until I was 16 and then it was more rare but oddly enough I grew closer to him. He was ALWAYS there for me but since I didn't really "need" my meds until I was 18 he didn't get to see the daily living things like my mom did. I don't want anyone thinking he doesn't care or didn't. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I like your idea Tami about asking him if he has any questions. I think that may be my best approach <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks for the support!!!

bittyhorse23 · Dec 23, 2007

Thanks everyone for the advice. I guess I should have been more clear...I am not thinking about a transplant yet. I am not at that stage thankfully. But it somehow came up in our conversation that night and thats when they stared at me blankly.

I only saw my dad on weekends and holidays up until I was 16 and then it was more rare but oddly enough I grew closer to him. He was ALWAYS there for me but since I didn't really "need" my meds until I was 18 he didn't get to see the daily living things like my mom did. I don't want anyone thinking he doesn't care or didn't. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I like your idea Tami about asking him if he has any questions. I think that may be my best approach <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks for the support!!!

bittyhorse23 · Dec 23, 2007

Thanks everyone for the advice. I guess I should have been more clear...I am not thinking about a transplant yet. I am not at that stage thankfully. But it somehow came up in our conversation that night and thats when they stared at me blankly.

I only saw my dad on weekends and holidays up until I was 16 and then it was more rare but oddly enough I grew closer to him. He was ALWAYS there for me but since I didn't really "need" my meds until I was 18 he didn't get to see the daily living things like my mom did. I don't want anyone thinking he doesn't care or didn't. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I like your idea Tami about asking him if he has any questions. I think that may be my best approach <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks for the support!!!

bittyhorse23 · Dec 23, 2007

Thanks everyone for the advice. I guess I should have been more clear...I am not thinking about a transplant yet. I am not at that stage thankfully. But it somehow came up in our conversation that night and thats when they stared at me blankly.

I only saw my dad on weekends and holidays up until I was 16 and then it was more rare but oddly enough I grew closer to him. He was ALWAYS there for me but since I didn't really "need" my meds until I was 18 he didn't get to see the daily living things like my mom did. I don't want anyone thinking he doesn't care or didn't. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I like your idea Tami about asking him if he has any questions. I think that may be my best approach <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks for the support!!!

bittyhorse23 · Dec 23, 2007

Thanks everyone for the advice. I guess I should have been more clear...I am not thinking about a transplant yet. I am not at that stage thankfully. But it somehow came up in our conversation that night and thats when they stared at me blankly.

I only saw my dad on weekends and holidays up until I was 16 and then it was more rare but oddly enough I grew closer to him. He was ALWAYS there for me but since I didn't really "need" my meds until I was 18 he didn't get to see the daily living things like my mom did. I don't want anyone thinking he doesn't care or didn't. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I like your idea Tami about asking him if he has any questions. I think that may be my best approach <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks for the support!!!

blindhearted · Dec 23, 2007

I would wait until after all the holiday stuff is over with so u can have their full and undivided attention. If your mom and ur dad are okay being around each other, I would consider bring her along for support, if not, maybe a sibling or friend if u dont think u can do it alone. My mom is in the know about my CF more than my dad. My parents are still married so my dad has always been around. My dad does have bad nerve problems (bi-polar) so he can take things a little harder than most. Plus, my mom is easier to talk to and is more understanding. So I usually try to tell him just enough for him to stop asking questions. But when my PFT came down to 30-35% and stayed there, I thought I needed to tell him. I sat down with him with my mom beside me (she can handle his emotions better than I can). It was just the 3 of us with no phone or tv allowed. I told him that I dont want to scare him, but I want to let know know where my health is currently at, so if anything comes up, it wont be a shock. I proceeded to tell him about my decline in PFTs and that a transplant is a possibility in the future (he knew that, but didnt realize how close of a possibility). I told him that I didnt tell him before hand because I know how bad his nerves are and how he would worry. I told him that I loved him. I asked if he had any questions. I also re-enforced that as of right now, I am doing good and I'm stable. I hope that helps. Good luck.

blindhearted · Dec 23, 2007

I would wait until after all the holiday stuff is over with so u can have their full and undivided attention. If your mom and ur dad are okay being around each other, I would consider bring her along for support, if not, maybe a sibling or friend if u dont think u can do it alone. My mom is in the know about my CF more than my dad. My parents are still married so my dad has always been around. My dad does have bad nerve problems (bi-polar) so he can take things a little harder than most. Plus, my mom is easier to talk to and is more understanding. So I usually try to tell him just enough for him to stop asking questions. But when my PFT came down to 30-35% and stayed there, I thought I needed to tell him. I sat down with him with my mom beside me (she can handle his emotions better than I can). It was just the 3 of us with no phone or tv allowed. I told him that I dont want to scare him, but I want to let know know where my health is currently at, so if anything comes up, it wont be a shock. I proceeded to tell him about my decline in PFTs and that a transplant is a possibility in the future (he knew that, but didnt realize how close of a possibility). I told him that I didnt tell him before hand because I know how bad his nerves are and how he would worry. I told him that I loved him. I asked if he had any questions. I also re-enforced that as of right now, I am doing good and I'm stable. I hope that helps. Good luck.

blindhearted · Dec 23, 2007

I would wait until after all the holiday stuff is over with so u can have their full and undivided attention. If your mom and ur dad are okay being around each other, I would consider bring her along for support, if not, maybe a sibling or friend if u dont think u can do it alone. My mom is in the know about my CF more than my dad. My parents are still married so my dad has always been around. My dad does have bad nerve problems (bi-polar) so he can take things a little harder than most. Plus, my mom is easier to talk to and is more understanding. So I usually try to tell him just enough for him to stop asking questions. But when my PFT came down to 30-35% and stayed there, I thought I needed to tell him. I sat down with him with my mom beside me (she can handle his emotions better than I can). It was just the 3 of us with no phone or tv allowed. I told him that I dont want to scare him, but I want to let know know where my health is currently at, so if anything comes up, it wont be a shock. I proceeded to tell him about my decline in PFTs and that a transplant is a possibility in the future (he knew that, but didnt realize how close of a possibility). I told him that I didnt tell him before hand because I know how bad his nerves are and how he would worry. I told him that I loved him. I asked if he had any questions. I also re-enforced that as of right now, I am doing good and I'm stable. I hope that helps. Good luck.

blindhearted · Dec 23, 2007

I would wait until after all the holiday stuff is over with so u can have their full and undivided attention. If your mom and ur dad are okay being around each other, I would consider bring her along for support, if not, maybe a sibling or friend if u dont think u can do it alone. My mom is in the know about my CF more than my dad. My parents are still married so my dad has always been around. My dad does have bad nerve problems (bi-polar) so he can take things a little harder than most. Plus, my mom is easier to talk to and is more understanding. So I usually try to tell him just enough for him to stop asking questions. But when my PFT came down to 30-35% and stayed there, I thought I needed to tell him. I sat down with him with my mom beside me (she can handle his emotions better than I can). It was just the 3 of us with no phone or tv allowed. I told him that I dont want to scare him, but I want to let know know where my health is currently at, so if anything comes up, it wont be a shock. I proceeded to tell him about my decline in PFTs and that a transplant is a possibility in the future (he knew that, but didnt realize how close of a possibility). I told him that I didnt tell him before hand because I know how bad his nerves are and how he would worry. I told him that I loved him. I asked if he had any questions. I also re-enforced that as of right now, I am doing good and I'm stable. I hope that helps. Good luck.

blindhearted · Dec 23, 2007

I would wait until after all the holiday stuff is over with so u can have their full and undivided attention. If your mom and ur dad are okay being around each other, I would consider bring her along for support, if not, maybe a sibling or friend if u dont think u can do it alone. My mom is in the know about my CF more than my dad. My parents are still married so my dad has always been around. My dad does have bad nerve problems (bi-polar) so he can take things a little harder than most. Plus, my mom is easier to talk to and is more understanding. So I usually try to tell him just enough for him to stop asking questions. But when my PFT came down to 30-35% and stayed there, I thought I needed to tell him. I sat down with him with my mom beside me (she can handle his emotions better than I can). It was just the 3 of us with no phone or tv allowed. I told him that I dont want to scare him, but I want to let know know where my health is currently at, so if anything comes up, it wont be a shock. I proceeded to tell him about my decline in PFTs and that a transplant is a possibility in the future (he knew that, but didnt realize how close of a possibility). I told him that I didnt tell him before hand because I know how bad his nerves are and how he would worry. I told him that I loved him. I asked if he had any questions. I also re-enforced that as of right now, I am doing good and I'm stable. I hope that helps. Good luck.

Ricky123 · Dec 23, 2007

yeah i told my parents everything about cf(some aspects of it they werent that clued up on) ,i think with hindsight it was the right thing to do ,cos they seem to be more understanding of the fact at what cf can do to you on a daily basis ie ya you do feel under the weather and ya not 100% all the time

Ricky123 · Dec 23, 2007

yeah i told my parents everything about cf(some aspects of it they werent that clued up on) ,i think with hindsight it was the right thing to do ,cos they seem to be more understanding of the fact at what cf can do to you on a daily basis ie ya you do feel under the weather and ya not 100% all the time

Ricky123 · Dec 23, 2007

yeah i told my parents everything about cf(some aspects of it they werent that clued up on) ,i think with hindsight it was the right thing to do ,cos they seem to be more understanding of the fact at what cf can do to you on a daily basis ie ya you do feel under the weather and ya not 100% all the time

Ricky123 · Dec 23, 2007

yeah i told my parents everything about cf(some aspects of it they werent that clued up on) ,i think with hindsight it was the right thing to do ,cos they seem to be more understanding of the fact at what cf can do to you on a daily basis ie ya you do feel under the weather and ya not 100% all the time

Ricky123 · Dec 23, 2007

yeah i told my parents everything about cf(some aspects of it they werent that clued up on) ,i think with hindsight it was the right thing to do ,cos they seem to be more understanding of the fact at what cf can do to you on a daily basis ie ya you do feel under the weather and ya not 100% all the time

bagged2drag · Dec 23, 2007