theLostMiler
New member
So I started doing sinus flushes about a year ago. I was told that it didnt matter too much as far as steriliztion goes between distilled and tap water and that you wouldnt use tap water mainly b/c of the minerals affecting the sinus's if the water is hard.
Well I cultured b. cep not long after I started those flushes. I kinda petered (spelling?) out on the flush towards the summer and really towards the fall. I want to start doing them again but I started thinking (and after reading some other posts on here)... how do you keep from breathing in germs?!
I want to start using the tobi (but one of my doctors said you cant do it while nebing it b/c it would be too high concentration in blood (??) and that when nebing tobi to breathe out your nose to get into sinus's.
But anyways, so if you use tap water you have bacteria in there, if you use distilled water you would have to boil it for 10 minutes then wait for it too cool down everytime you did a flush (I highly doubt that is what everyone does but who knows, maybe I am just lazy and think that is way too ridiculous)... so my question is, essentially, what is the <i>right</i> way to do a sinus flush for cf'ers?
Also I plan to ask my doc this at my next appt around the 14 or 15 of January.
#2) Is Club Med a specific hospital or just a nickname for being "in house"? I have never seen or heard that before and always assumed it was a brand of hospitals but that sounds dumb (and it was a category on Jeopardy the other night)
C) What does "DS" stand for? I have been scratching my head, I always saw it under "ratatosk" and thought that it was the child's initials, but now I see others using it.
#4) I have always gotten this mixed up... so to clarify (once again for me, I am always asking my doctors this haha)
Tobramycin (inhaled) is generic and would come from Foundation Care for the eFlow or TRIO right?
TOBI is from Pari for the other regular nebulizer cups and is the BRAND name drug.
Tobra is also used via IV as well right?
What else should I remember to differentiate these?
Lastly)
Anyone doing that ZenPen program from Foundation Care yet? I was thinking that that program sounds nice (but I actually like Scandishakes the most out of ensure and carnation instant breakfast which is the program I get under Caremark and the Ultrase MT 20's)
Just Kidding]
Anyway use a mask with o2? The cannulas bug the crap outta me, I never noticed when I had to use them a few time in the hospital but at home at night I cant sleep with the o2 like I am supposed to. I have my main CF clinic (in S.F.) saying that if you use a mask instead of cannulas you need 6-8 L of o2, but my local pulmonologist that works with my main doctors saying 4 L is okay with the mask.
My main doctor said that the humidfier might help with the cannula bugging my nose as well as some water based lubricant (like KY jelly, obviously not vaseline)...
Any suggestions? and/or anyone else get bugged by the cannula?
(The feeling I get is like "extreme annoyance" like almost tweeking sensations with the cannula in my nose)
Sorry so long, tried to break it up though <img src="i/expressions/face-icon-small-smile.gif" border="0"> Please dont make fun of me for not know "club med" or "DS" please (I feel dumb for having to ask lol)
Well I cultured b. cep not long after I started those flushes. I kinda petered (spelling?) out on the flush towards the summer and really towards the fall. I want to start doing them again but I started thinking (and after reading some other posts on here)... how do you keep from breathing in germs?!
I want to start using the tobi (but one of my doctors said you cant do it while nebing it b/c it would be too high concentration in blood (??) and that when nebing tobi to breathe out your nose to get into sinus's.
But anyways, so if you use tap water you have bacteria in there, if you use distilled water you would have to boil it for 10 minutes then wait for it too cool down everytime you did a flush (I highly doubt that is what everyone does but who knows, maybe I am just lazy and think that is way too ridiculous)... so my question is, essentially, what is the <i>right</i> way to do a sinus flush for cf'ers?
Also I plan to ask my doc this at my next appt around the 14 or 15 of January.
#2) Is Club Med a specific hospital or just a nickname for being "in house"? I have never seen or heard that before and always assumed it was a brand of hospitals but that sounds dumb (and it was a category on Jeopardy the other night)
C) What does "DS" stand for? I have been scratching my head, I always saw it under "ratatosk" and thought that it was the child's initials, but now I see others using it.
#4) I have always gotten this mixed up... so to clarify (once again for me, I am always asking my doctors this haha)
Tobramycin (inhaled) is generic and would come from Foundation Care for the eFlow or TRIO right?
TOBI is from Pari for the other regular nebulizer cups and is the BRAND name drug.
Tobra is also used via IV as well right?
What else should I remember to differentiate these?
Lastly)
Anyone doing that ZenPen program from Foundation Care yet? I was thinking that that program sounds nice (but I actually like Scandishakes the most out of ensure and carnation instant breakfast which is the program I get under Caremark and the Ultrase MT 20's)
Just Kidding]
Anyway use a mask with o2? The cannulas bug the crap outta me, I never noticed when I had to use them a few time in the hospital but at home at night I cant sleep with the o2 like I am supposed to. I have my main CF clinic (in S.F.) saying that if you use a mask instead of cannulas you need 6-8 L of o2, but my local pulmonologist that works with my main doctors saying 4 L is okay with the mask.
My main doctor said that the humidfier might help with the cannula bugging my nose as well as some water based lubricant (like KY jelly, obviously not vaseline)...
Any suggestions? and/or anyone else get bugged by the cannula?
(The feeling I get is like "extreme annoyance" like almost tweeking sensations with the cannula in my nose)
Sorry so long, tried to break it up though <img src="i/expressions/face-icon-small-smile.gif" border="0"> Please dont make fun of me for not know "club med" or "DS" please (I feel dumb for having to ask lol)