arbrown5676
New member
Well, first off I am a young mother (21) of two beautiful girls. They are only 15 months apart. My husband left for the Navy 6 weeks before Raegan was born. Leaving me to not only care for our first child, Makenna.. but very pregnant with our second.
I gave birth to Raegan on May 9, 2008, with my mother by my side. Robbie was still in boot camp.. so he couldn't be there. When I held Raegan for the first time.. I just knew something was wrong. Mother's intuition, I guess you could say. She was beautiful, she looked so healthy. I just knew in my gut something wasn't right.. I just didn't know what it was.
I took her to her first doc. appointment on May 13, 2008. She dropped over a pound in weight. Which didn't make much sense, she ate very well. I took her back several times for weight check ups, before she gained her weight back. Her pediatrician told me Raegan tested positive for cystic fibrosis (Jun. 3, 2008). The next day I took her to get a sweat test. I had both Makenna and Raegan tested at the same time.
After I got home from their sweat test, my phone rang. My grandpa passed away, while the girls were at the doctor. My Papaw was like a father to me.. considering I don't have a relationship with my dad (he's in prison). We were very close, so this hit me like a ton of bricks! I thought this was the lowest point in my life.
The very next day .. the pediatrician called. She told me first off that Makenna did not have CF. I just mumbled out.. "but Raegan does" and I just fell to the floor. I've never cried so hard in my life. I felt so hopeless, so lost.. you all know the feeling. I took her to a CF clinic that day... and her doc. filled me in on everything. I just wish so badly I could take this from her. I would give anything to make it me instead of her.
June 5th, Me and the girls left for Chicago, IL. Robbie was graduating boot camp.. and this would be the first time meeting Raegan, and seeing her in person. Raegan was almost a month old. It was a 14 hour drive.. the whole way all I could think about was how to tell him. There is no right way to tell anyone their child has a life threating disease.
Today, Raegan is 4 months old. She's doing great, considering the CF. She's maintaining her weight well. She takes enzymes, and does nebulizer treatments. We also do the chest therapy.
Everyday with her is such a blessing. She is truly a bundle of joy. She is one of the happiest babies I've ever seen. Not a day goes by that I don't thank God for both of my daughters. I make the best out of everyday. Raegan is a strong little girl. She keeps me strong. We're all in this fight together. A cure is out there.. it just needs to be found!!
I gave birth to Raegan on May 9, 2008, with my mother by my side. Robbie was still in boot camp.. so he couldn't be there. When I held Raegan for the first time.. I just knew something was wrong. Mother's intuition, I guess you could say. She was beautiful, she looked so healthy. I just knew in my gut something wasn't right.. I just didn't know what it was.
I took her to her first doc. appointment on May 13, 2008. She dropped over a pound in weight. Which didn't make much sense, she ate very well. I took her back several times for weight check ups, before she gained her weight back. Her pediatrician told me Raegan tested positive for cystic fibrosis (Jun. 3, 2008). The next day I took her to get a sweat test. I had both Makenna and Raegan tested at the same time.
After I got home from their sweat test, my phone rang. My grandpa passed away, while the girls were at the doctor. My Papaw was like a father to me.. considering I don't have a relationship with my dad (he's in prison). We were very close, so this hit me like a ton of bricks! I thought this was the lowest point in my life.
The very next day .. the pediatrician called. She told me first off that Makenna did not have CF. I just mumbled out.. "but Raegan does" and I just fell to the floor. I've never cried so hard in my life. I felt so hopeless, so lost.. you all know the feeling. I took her to a CF clinic that day... and her doc. filled me in on everything. I just wish so badly I could take this from her. I would give anything to make it me instead of her.
June 5th, Me and the girls left for Chicago, IL. Robbie was graduating boot camp.. and this would be the first time meeting Raegan, and seeing her in person. Raegan was almost a month old. It was a 14 hour drive.. the whole way all I could think about was how to tell him. There is no right way to tell anyone their child has a life threating disease.
Today, Raegan is 4 months old. She's doing great, considering the CF. She's maintaining her weight well. She takes enzymes, and does nebulizer treatments. We also do the chest therapy.
Everyday with her is such a blessing. She is truly a bundle of joy. She is one of the happiest babies I've ever seen. Not a day goes by that I don't thank God for both of my daughters. I make the best out of everyday. Raegan is a strong little girl. She keeps me strong. We're all in this fight together. A cure is out there.. it just needs to be found!!