Hi Sean-
I am so sorry you are having such a hard time with the bleeds. As you know I am a supplement queen and I can tell you without a doubt that fish oil can really thin your blood. And have you seen the latest study with cf adults and fish oil? For some reason, cf adults actually faired worse and than the younger cfers on fish oil supplements. (Lowered lung function and weight loss were associated with high dose) Not to say don't take it, but maybe only take one capsule a day.
Also, there is a very recent study that suggests the problem with cf and fatty acid has more to do with linoleic acid than the omega 3 fatty acids. The new thought process is that there is an inherent defect that allows for the over consumpton/utilization of linoleic leading to less gamma linoleic acid and then the omega 3 's that are produced from this. If you are bulking up with omega 3's, but are not supplementing with linoleic, you could actually make the situation worse.
If I had to stay on one of those supplemets I would say garlic for many reasons. It produces glutathione, inhibits quorum sensing, contains germanium which is a known gamma interferon inducer (Type 1 immune response which is what we in cf want), is an alkalizing food which is so important in our overly acidic bodies and is anti-bacterial, anti-viral and anti-fungal. Did you know that more acidic your body gets the more issues you are going to have? which leads me to the next suggestion...
have you thought about giving up the beer? Alcohol does thin the blood and it dries out your lungs and it depletes glutathione...all very bad for you. And it acidifies your body even more....Why not give up alcohol just for a bit? See if that might help yu stop the bleeds? Thoughts?
I hate that you are going through this right now....don't lose faith!!! You will find what is triggering these bleeds.
mandy
I am so sorry you are having such a hard time with the bleeds. As you know I am a supplement queen and I can tell you without a doubt that fish oil can really thin your blood. And have you seen the latest study with cf adults and fish oil? For some reason, cf adults actually faired worse and than the younger cfers on fish oil supplements. (Lowered lung function and weight loss were associated with high dose) Not to say don't take it, but maybe only take one capsule a day.
Also, there is a very recent study that suggests the problem with cf and fatty acid has more to do with linoleic acid than the omega 3 fatty acids. The new thought process is that there is an inherent defect that allows for the over consumpton/utilization of linoleic leading to less gamma linoleic acid and then the omega 3 's that are produced from this. If you are bulking up with omega 3's, but are not supplementing with linoleic, you could actually make the situation worse.
If I had to stay on one of those supplemets I would say garlic for many reasons. It produces glutathione, inhibits quorum sensing, contains germanium which is a known gamma interferon inducer (Type 1 immune response which is what we in cf want), is an alkalizing food which is so important in our overly acidic bodies and is anti-bacterial, anti-viral and anti-fungal. Did you know that more acidic your body gets the more issues you are going to have? which leads me to the next suggestion...
have you thought about giving up the beer? Alcohol does thin the blood and it dries out your lungs and it depletes glutathione...all very bad for you. And it acidifies your body even more....Why not give up alcohol just for a bit? See if that might help yu stop the bleeds? Thoughts?
I hate that you are going through this right now....don't lose faith!!! You will find what is triggering these bleeds.
mandy