Sorry you are going through this. The thing that helps me when I am on IV's & can't get my FEV1 back to baseline is prednisone. Have you been on that before? I would talk to your doc about considering it. Nothing worse than that "tight" feeling in your chest. Hope Feel better soo!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
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Really frusterated and looking for help, sigh.
- Thread starter crystalina0814
- Start date
Sorry you are going through this. The thing that helps me when I am on IV's & can't get my FEV1 back to baseline is prednisone. Have you been on that before? I would talk to your doc about considering it. Nothing worse than that "tight" feeling in your chest. Hope Feel better soo!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Sorry you are going through this. The thing that helps me when I am on IV's & can't get my FEV1 back to baseline is prednisone. Have you been on that before? I would talk to your doc about considering it. Nothing worse than that "tight" feeling in your chest. Hope Feel better soo!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Sorry you are going through this. The thing that helps me when I am on IV's & can't get my FEV1 back to baseline is prednisone. Have you been on that before? I would talk to your doc about considering it. Nothing worse than that "tight" feeling in your chest. Hope Feel better soo!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Sorry you are going through this. The thing that helps me when I am on IV's & can't get my FEV1 back to baseline is prednisone. Have you been on that before? I would talk to your doc about considering it. Nothing worse than that "tight" feeling in your chest. Hope Feel better soo!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
My goodness little lady,
Every time I reply to a post I see your cute little picture,lol. But, that is okay. You are always there to help everyone and you are sick, with 2 toddlers, you are so amazing.
Here's just a thought , it seems like a lot of people say that Zyvox make's them feel strange or other things. Can they put you on another IV antibiotic? I don't think Makailyn has ever been on Zyvox, and she is to young to know if it were to make her feel different anyway.
Also, I know in one of the other post that I responded to you tonight , you talked about the Advair...... Now, after hearing so much about your chest tightness, would you please ask for the Advair inhaler, instead of the powder kind?
Someone on here said it's a good thing you are getting up the darker yellow chunks.But, is that because the 2nd antibiotic is helping or could it be your getting sicker? Hopefully not getting sicker.
I do agree with the doctors taking you off of the hypertonic saline for a little while. They do that also with Mak at times. Is Staph the only thing you culture? I'm just curious because of all the things Mak cultures. It seem's like the doctors might be missing something.......
Trust your instincts. If it were me I would try to change the Zyvox, and the Advair to the one we have talked about, stay off of hypertonic saline for just until you are feeling better.
Most importantly GET A FULL TIME BABYSITTER, OR FAMILY MEMBER, OR CHURCH MEMBER, to help you with your 2 precious little one's,,,,LOL,,,,, but , I am serious. At least until you can get over this hump..... Because , they are going to need their mommy......
Oh my goodness , I am now doc karla,,,lol.........
I am very sorry you are sick and have 2 little one's to care for. Maybe you can tell us if there's anything you think of that maybe someone could do to help, if you don't have people close by that can come to help you. Some how we can figure something out.........
Here comes some more prayers your way,,,,,,,,,,Karla <img src="i/expressions/face-icon-small-wink.gif" border="0">
Every time I reply to a post I see your cute little picture,lol. But, that is okay. You are always there to help everyone and you are sick, with 2 toddlers, you are so amazing.
Here's just a thought , it seems like a lot of people say that Zyvox make's them feel strange or other things. Can they put you on another IV antibiotic? I don't think Makailyn has ever been on Zyvox, and she is to young to know if it were to make her feel different anyway.
Also, I know in one of the other post that I responded to you tonight , you talked about the Advair...... Now, after hearing so much about your chest tightness, would you please ask for the Advair inhaler, instead of the powder kind?
Someone on here said it's a good thing you are getting up the darker yellow chunks.But, is that because the 2nd antibiotic is helping or could it be your getting sicker? Hopefully not getting sicker.
I do agree with the doctors taking you off of the hypertonic saline for a little while. They do that also with Mak at times. Is Staph the only thing you culture? I'm just curious because of all the things Mak cultures. It seem's like the doctors might be missing something.......
Trust your instincts. If it were me I would try to change the Zyvox, and the Advair to the one we have talked about, stay off of hypertonic saline for just until you are feeling better.
Most importantly GET A FULL TIME BABYSITTER, OR FAMILY MEMBER, OR CHURCH MEMBER, to help you with your 2 precious little one's,,,,LOL,,,,, but , I am serious. At least until you can get over this hump..... Because , they are going to need their mommy......
Oh my goodness , I am now doc karla,,,lol.........
I am very sorry you are sick and have 2 little one's to care for. Maybe you can tell us if there's anything you think of that maybe someone could do to help, if you don't have people close by that can come to help you. Some how we can figure something out.........
Here comes some more prayers your way,,,,,,,,,,Karla <img src="i/expressions/face-icon-small-wink.gif" border="0">
My goodness little lady,
Every time I reply to a post I see your cute little picture,lol. But, that is okay. You are always there to help everyone and you are sick, with 2 toddlers, you are so amazing.
Here's just a thought , it seems like a lot of people say that Zyvox make's them feel strange or other things. Can they put you on another IV antibiotic? I don't think Makailyn has ever been on Zyvox, and she is to young to know if it were to make her feel different anyway.
Also, I know in one of the other post that I responded to you tonight , you talked about the Advair...... Now, after hearing so much about your chest tightness, would you please ask for the Advair inhaler, instead of the powder kind?
Someone on here said it's a good thing you are getting up the darker yellow chunks.But, is that because the 2nd antibiotic is helping or could it be your getting sicker? Hopefully not getting sicker.
I do agree with the doctors taking you off of the hypertonic saline for a little while. They do that also with Mak at times. Is Staph the only thing you culture? I'm just curious because of all the things Mak cultures. It seem's like the doctors might be missing something.......
Trust your instincts. If it were me I would try to change the Zyvox, and the Advair to the one we have talked about, stay off of hypertonic saline for just until you are feeling better.
Most importantly GET A FULL TIME BABYSITTER, OR FAMILY MEMBER, OR CHURCH MEMBER, to help you with your 2 precious little one's,,,,LOL,,,,, but , I am serious. At least until you can get over this hump..... Because , they are going to need their mommy......
Oh my goodness , I am now doc karla,,,lol.........
I am very sorry you are sick and have 2 little one's to care for. Maybe you can tell us if there's anything you think of that maybe someone could do to help, if you don't have people close by that can come to help you. Some how we can figure something out.........
Here comes some more prayers your way,,,,,,,,,,Karla <img src="i/expressions/face-icon-small-wink.gif" border="0">
Every time I reply to a post I see your cute little picture,lol. But, that is okay. You are always there to help everyone and you are sick, with 2 toddlers, you are so amazing.
Here's just a thought , it seems like a lot of people say that Zyvox make's them feel strange or other things. Can they put you on another IV antibiotic? I don't think Makailyn has ever been on Zyvox, and she is to young to know if it were to make her feel different anyway.
Also, I know in one of the other post that I responded to you tonight , you talked about the Advair...... Now, after hearing so much about your chest tightness, would you please ask for the Advair inhaler, instead of the powder kind?
Someone on here said it's a good thing you are getting up the darker yellow chunks.But, is that because the 2nd antibiotic is helping or could it be your getting sicker? Hopefully not getting sicker.
I do agree with the doctors taking you off of the hypertonic saline for a little while. They do that also with Mak at times. Is Staph the only thing you culture? I'm just curious because of all the things Mak cultures. It seem's like the doctors might be missing something.......
Trust your instincts. If it were me I would try to change the Zyvox, and the Advair to the one we have talked about, stay off of hypertonic saline for just until you are feeling better.
Most importantly GET A FULL TIME BABYSITTER, OR FAMILY MEMBER, OR CHURCH MEMBER, to help you with your 2 precious little one's,,,,LOL,,,,, but , I am serious. At least until you can get over this hump..... Because , they are going to need their mommy......
Oh my goodness , I am now doc karla,,,lol.........
I am very sorry you are sick and have 2 little one's to care for. Maybe you can tell us if there's anything you think of that maybe someone could do to help, if you don't have people close by that can come to help you. Some how we can figure something out.........
Here comes some more prayers your way,,,,,,,,,,Karla <img src="i/expressions/face-icon-small-wink.gif" border="0">
My goodness little lady,
Every time I reply to a post I see your cute little picture,lol. But, that is okay. You are always there to help everyone and you are sick, with 2 toddlers, you are so amazing.
Here's just a thought , it seems like a lot of people say that Zyvox make's them feel strange or other things. Can they put you on another IV antibiotic? I don't think Makailyn has ever been on Zyvox, and she is to young to know if it were to make her feel different anyway.
Also, I know in one of the other post that I responded to you tonight , you talked about the Advair...... Now, after hearing so much about your chest tightness, would you please ask for the Advair inhaler, instead of the powder kind?
Someone on here said it's a good thing you are getting up the darker yellow chunks.But, is that because the 2nd antibiotic is helping or could it be your getting sicker? Hopefully not getting sicker.
I do agree with the doctors taking you off of the hypertonic saline for a little while. They do that also with Mak at times. Is Staph the only thing you culture? I'm just curious because of all the things Mak cultures. It seem's like the doctors might be missing something.......
Trust your instincts. If it were me I would try to change the Zyvox, and the Advair to the one we have talked about, stay off of hypertonic saline for just until you are feeling better.
Most importantly GET A FULL TIME BABYSITTER, OR FAMILY MEMBER, OR CHURCH MEMBER, to help you with your 2 precious little one's,,,,LOL,,,,, but , I am serious. At least until you can get over this hump..... Because , they are going to need their mommy......
Oh my goodness , I am now doc karla,,,lol.........
I am very sorry you are sick and have 2 little one's to care for. Maybe you can tell us if there's anything you think of that maybe someone could do to help, if you don't have people close by that can come to help you. Some how we can figure something out.........
Here comes some more prayers your way,,,,,,,,,,Karla <img src="i/expressions/face-icon-small-wink.gif" border="0">
Every time I reply to a post I see your cute little picture,lol. But, that is okay. You are always there to help everyone and you are sick, with 2 toddlers, you are so amazing.
Here's just a thought , it seems like a lot of people say that Zyvox make's them feel strange or other things. Can they put you on another IV antibiotic? I don't think Makailyn has ever been on Zyvox, and she is to young to know if it were to make her feel different anyway.
Also, I know in one of the other post that I responded to you tonight , you talked about the Advair...... Now, after hearing so much about your chest tightness, would you please ask for the Advair inhaler, instead of the powder kind?
Someone on here said it's a good thing you are getting up the darker yellow chunks.But, is that because the 2nd antibiotic is helping or could it be your getting sicker? Hopefully not getting sicker.
I do agree with the doctors taking you off of the hypertonic saline for a little while. They do that also with Mak at times. Is Staph the only thing you culture? I'm just curious because of all the things Mak cultures. It seem's like the doctors might be missing something.......
Trust your instincts. If it were me I would try to change the Zyvox, and the Advair to the one we have talked about, stay off of hypertonic saline for just until you are feeling better.
Most importantly GET A FULL TIME BABYSITTER, OR FAMILY MEMBER, OR CHURCH MEMBER, to help you with your 2 precious little one's,,,,LOL,,,,, but , I am serious. At least until you can get over this hump..... Because , they are going to need their mommy......
Oh my goodness , I am now doc karla,,,lol.........
I am very sorry you are sick and have 2 little one's to care for. Maybe you can tell us if there's anything you think of that maybe someone could do to help, if you don't have people close by that can come to help you. Some how we can figure something out.........
Here comes some more prayers your way,,,,,,,,,,Karla <img src="i/expressions/face-icon-small-wink.gif" border="0">
My goodness little lady,
Every time I reply to a post I see your cute little picture,lol. But, that is okay. You are always there to help everyone and you are sick, with 2 toddlers, you are so amazing.
Here's just a thought , it seems like a lot of people say that Zyvox make's them feel strange or other things. Can they put you on another IV antibiotic? I don't think Makailyn has ever been on Zyvox, and she is to young to know if it were to make her feel different anyway.
Also, I know in one of the other post that I responded to you tonight , you talked about the Advair...... Now, after hearing so much about your chest tightness, would you please ask for the Advair inhaler, instead of the powder kind?
Someone on here said it's a good thing you are getting up the darker yellow chunks.But, is that because the 2nd antibiotic is helping or could it be your getting sicker? Hopefully not getting sicker.
I do agree with the doctors taking you off of the hypertonic saline for a little while. They do that also with Mak at times. Is Staph the only thing you culture? I'm just curious because of all the things Mak cultures. It seem's like the doctors might be missing something.......
Trust your instincts. If it were me I would try to change the Zyvox, and the Advair to the one we have talked about, stay off of hypertonic saline for just until you are feeling better.
Most importantly GET A FULL TIME BABYSITTER, OR FAMILY MEMBER, OR CHURCH MEMBER, to help you with your 2 precious little one's,,,,LOL,,,,, but , I am serious. At least until you can get over this hump..... Because , they are going to need their mommy......
Oh my goodness , I am now doc karla,,,lol.........
I am very sorry you are sick and have 2 little one's to care for. Maybe you can tell us if there's anything you think of that maybe someone could do to help, if you don't have people close by that can come to help you. Some how we can figure something out.........
Here comes some more prayers your way,,,,,,,,,,Karla <img src="i/expressions/face-icon-small-wink.gif" border="0">
Every time I reply to a post I see your cute little picture,lol. But, that is okay. You are always there to help everyone and you are sick, with 2 toddlers, you are so amazing.
Here's just a thought , it seems like a lot of people say that Zyvox make's them feel strange or other things. Can they put you on another IV antibiotic? I don't think Makailyn has ever been on Zyvox, and she is to young to know if it were to make her feel different anyway.
Also, I know in one of the other post that I responded to you tonight , you talked about the Advair...... Now, after hearing so much about your chest tightness, would you please ask for the Advair inhaler, instead of the powder kind?
Someone on here said it's a good thing you are getting up the darker yellow chunks.But, is that because the 2nd antibiotic is helping or could it be your getting sicker? Hopefully not getting sicker.
I do agree with the doctors taking you off of the hypertonic saline for a little while. They do that also with Mak at times. Is Staph the only thing you culture? I'm just curious because of all the things Mak cultures. It seem's like the doctors might be missing something.......
Trust your instincts. If it were me I would try to change the Zyvox, and the Advair to the one we have talked about, stay off of hypertonic saline for just until you are feeling better.
Most importantly GET A FULL TIME BABYSITTER, OR FAMILY MEMBER, OR CHURCH MEMBER, to help you with your 2 precious little one's,,,,LOL,,,,, but , I am serious. At least until you can get over this hump..... Because , they are going to need their mommy......
Oh my goodness , I am now doc karla,,,lol.........
I am very sorry you are sick and have 2 little one's to care for. Maybe you can tell us if there's anything you think of that maybe someone could do to help, if you don't have people close by that can come to help you. Some how we can figure something out.........
Here comes some more prayers your way,,,,,,,,,,Karla <img src="i/expressions/face-icon-small-wink.gif" border="0">
My goodness little lady,
<br />Every time I reply to a post I see your cute little picture,lol. But, that is okay. You are always there to help everyone and you are sick, with 2 toddlers, you are so amazing.
<br />
<br />Here's just a thought , it seems like a lot of people say that Zyvox make's them feel strange or other things. Can they put you on another IV antibiotic? I don't think Makailyn has ever been on Zyvox, and she is to young to know if it were to make her feel different anyway.
<br />
<br />Also, I know in one of the other post that I responded to you tonight , you talked about the Advair...... Now, after hearing so much about your chest tightness, would you please ask for the Advair inhaler, instead of the powder kind?
<br />
<br />Someone on here said it's a good thing you are getting up the darker yellow chunks.But, is that because the 2nd antibiotic is helping or could it be your getting sicker? Hopefully not getting sicker.
<br />
<br />I do agree with the doctors taking you off of the hypertonic saline for a little while. They do that also with Mak at times. Is Staph the only thing you culture? I'm just curious because of all the things Mak cultures. It seem's like the doctors might be missing something.......
<br />
<br />Trust your instincts. If it were me I would try to change the Zyvox, and the Advair to the one we have talked about, stay off of hypertonic saline for just until you are feeling better.
<br />
<br />Most importantly GET A FULL TIME BABYSITTER, OR FAMILY MEMBER, OR CHURCH MEMBER, to help you with your 2 precious little one's,,,,LOL,,,,, but , I am serious. At least until you can get over this hump..... Because , they are going to need their mommy......
<br />
<br />Oh my goodness , I am now doc karla,,,lol.........
<br />I am very sorry you are sick and have 2 little one's to care for. Maybe you can tell us if there's anything you think of that maybe someone could do to help, if you don't have people close by that can come to help you. Some how we can figure something out.........
<br />
<br />Here comes some more prayers your way,,,,,,,,,,Karla <img src="i/expressions/face-icon-small-wink.gif" border="0">
<br />Every time I reply to a post I see your cute little picture,lol. But, that is okay. You are always there to help everyone and you are sick, with 2 toddlers, you are so amazing.
<br />
<br />Here's just a thought , it seems like a lot of people say that Zyvox make's them feel strange or other things. Can they put you on another IV antibiotic? I don't think Makailyn has ever been on Zyvox, and she is to young to know if it were to make her feel different anyway.
<br />
<br />Also, I know in one of the other post that I responded to you tonight , you talked about the Advair...... Now, after hearing so much about your chest tightness, would you please ask for the Advair inhaler, instead of the powder kind?
<br />
<br />Someone on here said it's a good thing you are getting up the darker yellow chunks.But, is that because the 2nd antibiotic is helping or could it be your getting sicker? Hopefully not getting sicker.
<br />
<br />I do agree with the doctors taking you off of the hypertonic saline for a little while. They do that also with Mak at times. Is Staph the only thing you culture? I'm just curious because of all the things Mak cultures. It seem's like the doctors might be missing something.......
<br />
<br />Trust your instincts. If it were me I would try to change the Zyvox, and the Advair to the one we have talked about, stay off of hypertonic saline for just until you are feeling better.
<br />
<br />Most importantly GET A FULL TIME BABYSITTER, OR FAMILY MEMBER, OR CHURCH MEMBER, to help you with your 2 precious little one's,,,,LOL,,,,, but , I am serious. At least until you can get over this hump..... Because , they are going to need their mommy......
<br />
<br />Oh my goodness , I am now doc karla,,,lol.........
<br />I am very sorry you are sick and have 2 little one's to care for. Maybe you can tell us if there's anything you think of that maybe someone could do to help, if you don't have people close by that can come to help you. Some how we can figure something out.........
<br />
<br />Here comes some more prayers your way,,,,,,,,,,Karla <img src="i/expressions/face-icon-small-wink.gif" border="0">
Do you do the Vest or flutter? That might help get even more crap up. It is good your are getting all that mucus out. The more you get out the better. What about Albuterol through your neb to help with the tightness? I know when my chest is tight it is because I am not feeling well but I usually cant get a darn thing out. So that is AWESOME that it is loose for you! Keep coughing the mucus up and out girl! If you feel up to eat and you can get some exercise in that will help the lungs too.
Hang in there! I know it is so frusterating to feel sick and be in pain. But you will turn the corner, I just know it!
Will say a prayer!
Jennifer 38 with CF and CFRD
Hang in there! I know it is so frusterating to feel sick and be in pain. But you will turn the corner, I just know it!
Will say a prayer!
Jennifer 38 with CF and CFRD
Do you do the Vest or flutter? That might help get even more crap up. It is good your are getting all that mucus out. The more you get out the better. What about Albuterol through your neb to help with the tightness? I know when my chest is tight it is because I am not feeling well but I usually cant get a darn thing out. So that is AWESOME that it is loose for you! Keep coughing the mucus up and out girl! If you feel up to eat and you can get some exercise in that will help the lungs too.
Hang in there! I know it is so frusterating to feel sick and be in pain. But you will turn the corner, I just know it!
Will say a prayer!
Jennifer 38 with CF and CFRD
Hang in there! I know it is so frusterating to feel sick and be in pain. But you will turn the corner, I just know it!
Will say a prayer!
Jennifer 38 with CF and CFRD
Do you do the Vest or flutter? That might help get even more crap up. It is good your are getting all that mucus out. The more you get out the better. What about Albuterol through your neb to help with the tightness? I know when my chest is tight it is because I am not feeling well but I usually cant get a darn thing out. So that is AWESOME that it is loose for you! Keep coughing the mucus up and out girl! If you feel up to eat and you can get some exercise in that will help the lungs too.
Hang in there! I know it is so frusterating to feel sick and be in pain. But you will turn the corner, I just know it!
Will say a prayer!
Jennifer 38 with CF and CFRD
Hang in there! I know it is so frusterating to feel sick and be in pain. But you will turn the corner, I just know it!
Will say a prayer!
Jennifer 38 with CF and CFRD
Do you do the Vest or flutter? That might help get even more crap up. It is good your are getting all that mucus out. The more you get out the better. What about Albuterol through your neb to help with the tightness? I know when my chest is tight it is because I am not feeling well but I usually cant get a darn thing out. So that is AWESOME that it is loose for you! Keep coughing the mucus up and out girl! If you feel up to eat and you can get some exercise in that will help the lungs too.
Hang in there! I know it is so frusterating to feel sick and be in pain. But you will turn the corner, I just know it!
Will say a prayer!
Jennifer 38 with CF and CFRD
Hang in there! I know it is so frusterating to feel sick and be in pain. But you will turn the corner, I just know it!
Will say a prayer!
Jennifer 38 with CF and CFRD
Do you do the Vest or flutter? That might help get even more crap up. It is good your are getting all that mucus out. The more you get out the better. What about Albuterol through your neb to help with the tightness? I know when my chest is tight it is because I am not feeling well but I usually cant get a darn thing out. So that is AWESOME that it is loose for you! Keep coughing the mucus up and out girl! If you feel up to eat and you can get some exercise in that will help the lungs too.
<br />
<br />Hang in there! I know it is so frusterating to feel sick and be in pain. But you will turn the corner, I just know it!
<br />
<br />Will say a prayer!
<br />Jennifer 38 with CF and CFRD
<br />
<br />Hang in there! I know it is so frusterating to feel sick and be in pain. But you will turn the corner, I just know it!
<br />
<br />Will say a prayer!
<br />Jennifer 38 with CF and CFRD
And make sure you are doing some sort of bronchodialators before HS...like ventolin or something. IF you are doing your pfts after HS without it, it can cause your chest to close up a bit. I have the liquid capsules of ventolin and i add in about 10 drops, and i feel great after
And make sure you are doing some sort of bronchodialators before HS...like ventolin or something. IF you are doing your pfts after HS without it, it can cause your chest to close up a bit. I have the liquid capsules of ventolin and i add in about 10 drops, and i feel great after
And make sure you are doing some sort of bronchodialators before HS...like ventolin or something. IF you are doing your pfts after HS without it, it can cause your chest to close up a bit. I have the liquid capsules of ventolin and i add in about 10 drops, and i feel great after
And make sure you are doing some sort of bronchodialators before HS...like ventolin or something. IF you are doing your pfts after HS without it, it can cause your chest to close up a bit. I have the liquid capsules of ventolin and i add in about 10 drops, and i feel great after
And make sure you are doing some sort of bronchodialators before HS...like ventolin or something. IF you are doing your pfts after HS without it, it can cause your chest to close up a bit. I have the liquid capsules of ventolin and i add in about 10 drops, and i feel great after