Relationships with CF Patients

julie

New member
Natalie,

I am sorry that there is some rudeness in reaction to your questions, please do choose to ignore those comments and those posters for that matter!

I don't think you are complaining at all in your post, but rather asking some very difficult yet heartfelt questions. I think it is VERY smart of you to be considering all of these things before you get too far into the relationship, no need to string someone along when there is even an ounce of dobut in there, even when stringing along isn't your intention.

Here's my take on things. I am married to a CFer, he is 25 and I am 22. We've been together since I was 16, he was 19 and married since I was 19 and he was 21. I've posted this before, but there was a time when I had to sit and consider all the pros and cons of the relationship. My issue was really the fears of him dying and leaving me alone, not so much like yours of wanting to fulfill personal dreams-which is VERY Reasonable. I concluded that in the end, I would be happiest with him, whatever time I could get. Even if I had to be the sole provider, even if we never had kids together (we just did IVF and will know on the 21st if we are pg), even if I had to give up some dreams (really my only dream was to become a parent, I didn't really ever dream to travel or anything) or anything else that I might have to do just to be with him...

It sounds like to me that you have had this "sit" with yourself but your results differ from mine, and THAT IS OK. There is no need to feel bad about facing the facts that you aren't cut out to be in a relationship like this. There is nothing wrong with you, I don't think you are being at all selfish. There are people who can handle a relationship with someone who is or will become chronically ill, and there are those who can't. To each his own and SHAME ON anyone who judges you because of it!

I just think you really need to be honest with yourself and with him about this. If you have dobuts, then don't keep standing in the grey area. Make a decision. And honestly, either way you may regret your decision (whether you leave him or stay) but you have to think and pray (if you do) to choose the one you will regret the least.

If you need someone to talk to, feel free to PM me (little paddlock looking thing in the upper Right corner of every post) or email me at <a target=new class=ftalternatingbarlinklarge href="mailto:division902@hotmail.com">division902@hotmail.com</a>
 

julie

New member
Natalie,

I am sorry that there is some rudeness in reaction to your questions, please do choose to ignore those comments and those posters for that matter!

I don't think you are complaining at all in your post, but rather asking some very difficult yet heartfelt questions. I think it is VERY smart of you to be considering all of these things before you get too far into the relationship, no need to string someone along when there is even an ounce of dobut in there, even when stringing along isn't your intention.

Here's my take on things. I am married to a CFer, he is 25 and I am 22. We've been together since I was 16, he was 19 and married since I was 19 and he was 21. I've posted this before, but there was a time when I had to sit and consider all the pros and cons of the relationship. My issue was really the fears of him dying and leaving me alone, not so much like yours of wanting to fulfill personal dreams-which is VERY Reasonable. I concluded that in the end, I would be happiest with him, whatever time I could get. Even if I had to be the sole provider, even if we never had kids together (we just did IVF and will know on the 21st if we are pg), even if I had to give up some dreams (really my only dream was to become a parent, I didn't really ever dream to travel or anything) or anything else that I might have to do just to be with him...

It sounds like to me that you have had this "sit" with yourself but your results differ from mine, and THAT IS OK. There is no need to feel bad about facing the facts that you aren't cut out to be in a relationship like this. There is nothing wrong with you, I don't think you are being at all selfish. There are people who can handle a relationship with someone who is or will become chronically ill, and there are those who can't. To each his own and SHAME ON anyone who judges you because of it!

I just think you really need to be honest with yourself and with him about this. If you have dobuts, then don't keep standing in the grey area. Make a decision. And honestly, either way you may regret your decision (whether you leave him or stay) but you have to think and pray (if you do) to choose the one you will regret the least.

If you need someone to talk to, feel free to PM me (little paddlock looking thing in the upper Right corner of every post) or email me at <a target=new class=ftalternatingbarlinklarge href="mailto:division902@hotmail.com">division902@hotmail.com</a>
 

julie

New member
Meghan, please grow up before you consider posting on the ADULTS section again, maybe the young adults section is more appropriate for your postings. Continue to abuse your privileges and spout off rude and unnecessary remarks and you are likely to find yourself banned. They can ban anon.'s too FYI.

Christian <img src="i/expressions/face-icon-small-smile.gif" border="0"> Do you have a log in?? I keep wondering when you are going to get one!! Maybe I just keep missing when you do log in <img src="i/expressions/face-icon-small-smile.gif" border="0">. And some girls know what they want at 21 <img src="i/expressions/face-icon-small-smile.gif" border="0"> but I agree with the rest of your post!
 

julie

New member
Meghan, please grow up before you consider posting on the ADULTS section again, maybe the young adults section is more appropriate for your postings. Continue to abuse your privileges and spout off rude and unnecessary remarks and you are likely to find yourself banned. They can ban anon.'s too FYI.

Christian <img src="i/expressions/face-icon-small-smile.gif" border="0"> Do you have a log in?? I keep wondering when you are going to get one!! Maybe I just keep missing when you do log in <img src="i/expressions/face-icon-small-smile.gif" border="0">. And some girls know what they want at 21 <img src="i/expressions/face-icon-small-smile.gif" border="0"> but I agree with the rest of your post!
 

anonymous

New member
I am glad that you posted this here. It lets us see things from another point of view. You will definately sacrifice things in life being w/ a cfer and yes many cfers are short lived. I suggest you do not put off this decision as it will make things harder on both of you i feel. 3 yrs is a long while, but after you graduate you may feel trapped being in a life w/ a cfer. Imo you should really give him a hint as to how you feel now as to not take him completely off guard when u decide to leave(maybe he knows alrdy). I think u should break it off b/c i think u will have regrets and such from not accomplishing the dreams u wanted to and that may make you both regretful. So I say BREAK IT Off.

Tom 20cf
 

anonymous

New member
I am glad that you posted this here. It lets us see things from another point of view. You will definately sacrifice things in life being w/ a cfer and yes many cfers are short lived. I suggest you do not put off this decision as it will make things harder on both of you i feel. 3 yrs is a long while, but after you graduate you may feel trapped being in a life w/ a cfer. Imo you should really give him a hint as to how you feel now as to not take him completely off guard when u decide to leave(maybe he knows alrdy). I think u should break it off b/c i think u will have regrets and such from not accomplishing the dreams u wanted to and that may make you both regretful. So I say BREAK IT Off.

Tom 20cf
 

anonymous

New member
Julie,

I'm a hypocrite b/c I got married at 21, so there you go!!!!

I do consider many 21 yr old's today to not know what they want, but in my experience too, I knew what I wanted!

And, I agree many CFers/people related to the CF world are far mature for their age. Like I said, I was ready too. So, you're absolutely right.

There's something there, Julie, I've been watching alot and I often agree with many of your comments before I even realize it's you making them. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway, the answer to your question is I had a problem logging in. Several years ago, my husband logged in here once (we share email accounts) and obviously....you know guys...he has no clue what he picked for the password. So, I'm trying to figure out how I can fix that.

Anyway, one thing we share in common is the dream of children. It's something I've known about myself since I was like 12. I can't wait to be a mother.

Christian
 

anonymous

New member
Julie,

I'm a hypocrite b/c I got married at 21, so there you go!!!!

I do consider many 21 yr old's today to not know what they want, but in my experience too, I knew what I wanted!

And, I agree many CFers/people related to the CF world are far mature for their age. Like I said, I was ready too. So, you're absolutely right.

There's something there, Julie, I've been watching alot and I often agree with many of your comments before I even realize it's you making them. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway, the answer to your question is I had a problem logging in. Several years ago, my husband logged in here once (we share email accounts) and obviously....you know guys...he has no clue what he picked for the password. So, I'm trying to figure out how I can fix that.

Anyway, one thing we share in common is the dream of children. It's something I've known about myself since I was like 12. I can't wait to be a mother.

Christian
 

Allie

New member
I agree with the youth thing. I started dating Ry around 21, after chasing after a failing relationship for years. It's just as wrong to chase after something you think you're supposed to want, rather than what you really do want.

21 is plenty young enough to doubt your desicions.
 

Allie

New member
I agree with the youth thing. I started dating Ry around 21, after chasing after a failing relationship for years. It's just as wrong to chase after something you think you're supposed to want, rather than what you really do want.

21 is plenty young enough to doubt your desicions.
 

littledebbie

New member
I totally commend your coming here and asking your questions. I also like that you are trying to be as honest with yourself as possible. I was with someone for a few years who kept assuring me he could do this and then after about 3 years he had more experience with it and decided he couldn't hang. well okay, that's fine, but the fact that he took so long comming to this decision did piss me off a little. One thing we Cfers don't have a ton of is time. So whatever your decision is try to not linger for years over it.
 

littledebbie

New member
I totally commend your coming here and asking your questions. I also like that you are trying to be as honest with yourself as possible. I was with someone for a few years who kept assuring me he could do this and then after about 3 years he had more experience with it and decided he couldn't hang. well okay, that's fine, but the fact that he took so long comming to this decision did piss me off a little. One thing we Cfers don't have a ton of is time. So whatever your decision is try to not linger for years over it.
 

thelizardqueen

New member
I was with a guy who told me for a year he could handle things. When I became really sick and couldn't go out to the bars anymore with him, he bailed. We CFers are on a timeline. I think we like to speed things up a bit because we're worried that we won't be around much longer. Think about what it is you want, and then let him know, so that he can move on and find someone who can take the good and bad.
 

thelizardqueen

New member
I was with a guy who told me for a year he could handle things. When I became really sick and couldn't go out to the bars anymore with him, he bailed. We CFers are on a timeline. I think we like to speed things up a bit because we're worried that we won't be around much longer. Think about what it is you want, and then let him know, so that he can move on and find someone who can take the good and bad.
 

Bengalsfan

New member
Natalie,

I wasn't trying to say earlier that you don't love your boyfriend, I'm just trying to say make sure that you are truly IN LOVE with him.....it is a big responsibility being a spouse to somebody with CF.....and there are times you get frustrated and wonder why this illness was ever put on earth at all.....and to top it off, given to the person you fell in love with....but these are things you have to be strong enough to bypass and not bring your spouse down with you.....he/she has enough on their plate without having to bear all of your burdens too. Just think about it long and hard before you get married. I also agree with most of the above comments.....she is trying to get help to see if she is doing the right thing.....and that's way better than going into this not knowing. For her and her boyfriend both.

LeAndra
 

Bengalsfan

New member
Natalie,

I wasn't trying to say earlier that you don't love your boyfriend, I'm just trying to say make sure that you are truly IN LOVE with him.....it is a big responsibility being a spouse to somebody with CF.....and there are times you get frustrated and wonder why this illness was ever put on earth at all.....and to top it off, given to the person you fell in love with....but these are things you have to be strong enough to bypass and not bring your spouse down with you.....he/she has enough on their plate without having to bear all of your burdens too. Just think about it long and hard before you get married. I also agree with most of the above comments.....she is trying to get help to see if she is doing the right thing.....and that's way better than going into this not knowing. For her and her boyfriend both.

LeAndra
 

JazzysMom

New member
Unfortunately even those of us that think we can handle anything in love find the "reality" of CF to be more than what we bargained for. Unless you have dealt with someone in the different stages of CF, you really dont comprehend what a difference there is. I dont want to see you throw love away. I do, however, want you to be completely honest with yourself and your guy. It wont get easier. That is the bottom line. If you wants kids & he is in the majority of male CFers who need help than you have an additional factor/expense. You probably wont be able to travel or at least not how you wish to. There is a lot that you need to think about. So much that cant even be put into words. If you doubt things now than I personally believe you already know the answer. If you are committed & love him "unconditionally" which is what it comes down to then tell yourself that. If you cant.....its not fair!
 

JazzysMom

New member
Unfortunately even those of us that think we can handle anything in love find the "reality" of CF to be more than what we bargained for. Unless you have dealt with someone in the different stages of CF, you really dont comprehend what a difference there is. I dont want to see you throw love away. I do, however, want you to be completely honest with yourself and your guy. It wont get easier. That is the bottom line. If you wants kids & he is in the majority of male CFers who need help than you have an additional factor/expense. You probably wont be able to travel or at least not how you wish to. There is a lot that you need to think about. So much that cant even be put into words. If you doubt things now than I personally believe you already know the answer. If you are committed & love him "unconditionally" which is what it comes down to then tell yourself that. If you cant.....its not fair!
 

julie

New member
Christian,

I think that you can just pick a new user name vice trying to get the password out of him (which might take an eternity as we all know!!)

oh well, someday I'll see you logged in <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

julie

New member
Christian,

I think that you can just pick a new user name vice trying to get the password out of him (which might take an eternity as we all know!!)

oh well, someday I'll see you logged in <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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