repeated cold replies to cf posts-why?

[rockingdog]

We can get your information from REAL QUALIFIED MEDICALLY TRAINED INDIVIDUALS, what we are looking for here is commonality of cf life experiences. This disease has become very isolating due to the cross-contamination issues, and with the recent HIPA protocal parents have a difficult time sharing info while their kids are hospitalized.



Dear Haleysmom,

I respect your ability/right to post your thoughts on this site. I think your post may have been better suited for a PM or blog, but it makes for interesting discussion. I always used to hate it when people said I had a "mild" case. It didn't feel mild to me. To me it was just a different stage of hell, but it was still hell. Regardless, I think you're letting this person get to you too much. Ignore him or her. Don't read their posts.

I also support and respect the individual who is posting. They make this site a much more interesting place and show a more rounded picture of what it's like to have CF and who has CF. There is too much censoring of free speech in this country right now and I'd hate to see it move to this site.

Regarding getting information from "real qualified medically trained individuals," well, I wish they gave me half of the information I find on this site. And I go to a CF center. Plus, and I truly believe this, many times those of us with CF know more than the doctors do about our illness. I depend on medical posts to get information.

I can't imagine what life is like for you, as I have a daughter, too. (I'm the one with CF.) I wish both you and your daughter much heath and happiness. I think the support you're looking for is here on this site. Don't get caught up in posts that don't help you make your daughter well or provide what you need as a mother facing challenges most mothers don't have.

RD

 

[rockingdog]

We can get your information from REAL QUALIFIED MEDICALLY TRAINED INDIVIDUALS, what we are looking for here is commonality of cf life experiences. This disease has become very isolating due to the cross-contamination issues, and with the recent HIPA protocal parents have a difficult time sharing info while their kids are hospitalized.



Dear Haleysmom,

I respect your ability/right to post your thoughts on this site. I think your post may have been better suited for a PM or blog, but it makes for interesting discussion. I always used to hate it when people said I had a "mild" case. It didn't feel mild to me. To me it was just a different stage of hell, but it was still hell. Regardless, I think you're letting this person get to you too much. Ignore him or her. Don't read their posts.

I also support and respect the individual who is posting. They make this site a much more interesting place and show a more rounded picture of what it's like to have CF and who has CF. There is too much censoring of free speech in this country right now and I'd hate to see it move to this site.

Regarding getting information from "real qualified medically trained individuals," well, I wish they gave me half of the information I find on this site. And I go to a CF center. Plus, and I truly believe this, many times those of us with CF know more than the doctors do about our illness. I depend on medical posts to get information.

I can't imagine what life is like for you, as I have a daughter, too. (I'm the one with CF.) I wish both you and your daughter much heath and happiness. I think the support you're looking for is here on this site. Don't get caught up in posts that don't help you make your daughter well or provide what you need as a mother facing challenges most mothers don't have.

RD

 

[rockingdog]

We can get your information from REAL QUALIFIED MEDICALLY TRAINED INDIVIDUALS, what we are looking for here is commonality of cf life experiences. This disease has become very isolating due to the cross-contamination issues, and with the recent HIPA protocal parents have a difficult time sharing info while their kids are hospitalized.



Dear Haleysmom,

I respect your ability/right to post your thoughts on this site. I think your post may have been better suited for a PM or blog, but it makes for interesting discussion. I always used to hate it when people said I had a "mild" case. It didn't feel mild to me. To me it was just a different stage of hell, but it was still hell. Regardless, I think you're letting this person get to you too much. Ignore him or her. Don't read their posts.

I also support and respect the individual who is posting. They make this site a much more interesting place and show a more rounded picture of what it's like to have CF and who has CF. There is too much censoring of free speech in this country right now and I'd hate to see it move to this site.

Regarding getting information from "real qualified medically trained individuals," well, I wish they gave me half of the information I find on this site. And I go to a CF center. Plus, and I truly believe this, many times those of us with CF know more than the doctors do about our illness. I depend on medical posts to get information.

I can't imagine what life is like for you, as I have a daughter, too. (I'm the one with CF.) I wish both you and your daughter much heath and happiness. I think the support you're looking for is here on this site. Don't get caught up in posts that don't help you make your daughter well or provide what you need as a mother facing challenges most mothers don't have.

RD

 

[rockingdog]

We can get your information from REAL QUALIFIED MEDICALLY TRAINED INDIVIDUALS, what we are looking for here is commonality of cf life experiences. This disease has become very isolating due to the cross-contamination issues, and with the recent HIPA protocal parents have a difficult time sharing info while their kids are hospitalized.



Dear Haleysmom,

I respect your ability/right to post your thoughts on this site. I think your post may have been better suited for a PM or blog, but it makes for interesting discussion. I always used to hate it when people said I had a "mild" case. It didn't feel mild to me. To me it was just a different stage of hell, but it was still hell. Regardless, I think you're letting this person get to you too much. Ignore him or her. Don't read their posts.

I also support and respect the individual who is posting. They make this site a much more interesting place and show a more rounded picture of what it's like to have CF and who has CF. There is too much censoring of free speech in this country right now and I'd hate to see it move to this site.

Regarding getting information from "real qualified medically trained individuals," well, I wish they gave me half of the information I find on this site. And I go to a CF center. Plus, and I truly believe this, many times those of us with CF know more than the doctors do about our illness. I depend on medical posts to get information.

I can't imagine what life is like for you, as I have a daughter, too. (I'm the one with CF.) I wish both you and your daughter much heath and happiness. I think the support you're looking for is here on this site. Don't get caught up in posts that don't help you make your daughter well or provide what you need as a mother facing challenges most mothers don't have.

RD

 

[rockingdog]

We can get your information from REAL QUALIFIED MEDICALLY TRAINED INDIVIDUALS, what we are looking for here is commonality of cf life experiences. This disease has become very isolating due to the cross-contamination issues, and with the recent HIPA protocal parents have a difficult time sharing info while their kids are hospitalized.



Dear Haleysmom,

I respect your ability/right to post your thoughts on this site. I think your post may have been better suited for a PM or blog, but it makes for interesting discussion. I always used to hate it when people said I had a "mild" case. It didn't feel mild to me. To me it was just a different stage of hell, but it was still hell. Regardless, I think you're letting this person get to you too much. Ignore him or her. Don't read their posts.

I also support and respect the individual who is posting. They make this site a much more interesting place and show a more rounded picture of what it's like to have CF and who has CF. There is too much censoring of free speech in this country right now and I'd hate to see it move to this site.

Regarding getting information from "real qualified medically trained individuals," well, I wish they gave me half of the information I find on this site. And I go to a CF center. Plus, and I truly believe this, many times those of us with CF know more than the doctors do about our illness. I depend on medical posts to get information.

I can't imagine what life is like for you, as I have a daughter, too. (I'm the one with CF.) I wish both you and your daughter much heath and happiness. I think the support you're looking for is here on this site. Don't get caught up in posts that don't help you make your daughter well or provide what you need as a mother facing challenges most mothers don't have.

RD

 

[rockingdog]

We can get your information from REAL QUALIFIED MEDICALLY TRAINED INDIVIDUALS, what we are looking for here is commonality of cf life experiences. This disease has become very isolating due to the cross-contamination issues, and with the recent HIPA protocal parents have a difficult time sharing info while their kids are hospitalized.



Dear Haleysmom,

I respect your ability/right to post your thoughts on this site. I think your post may have been better suited for a PM or blog, but it makes for interesting discussion. I always used to hate it when people said I had a "mild" case. It didn't feel mild to me. To me it was just a different stage of hell, but it was still hell. Regardless, I think you're letting this person get to you too much. Ignore him or her. Don't read their posts.

I also support and respect the individual who is posting. They make this site a much more interesting place and show a more rounded picture of what it's like to have CF and who has CF. There is too much censoring of free speech in this country right now and I'd hate to see it move to this site.

Regarding getting information from "real qualified medically trained individuals," well, I wish they gave me half of the information I find on this site. And I go to a CF center. Plus, and I truly believe this, many times those of us with CF know more than the doctors do about our illness. I depend on medical posts to get information.

I can't imagine what life is like for you, as I have a daughter, too. (I'm the one with CF.) I wish both you and your daughter much heath and happiness. I think the support you're looking for is here on this site. Don't get caught up in posts that don't help you make your daughter well or provide what you need as a mother facing challenges most mothers don't have.

RD

 

[coltsfan715]

I am not totally aware of what has occured to bring about this post - but I will say I also think it would be better served in a private message or a blog. In fact as I read this I thought - oh that stinks this person accidentally posted a private message to someone.

As for the response you get from people on this site. There are many times that I am taken aback by things people say on this site. It doesn't matter who it is - as I am sure there are things I say that people sometimes read and say wow - I can't believe she said that. There are many things that we need to remind ourselves of when dealing with an online community and with people in REAL life.

1) Online you often can NOT differentiate between emotions. You are reading plain text - it looks the same whether written in anger or joy or sorrow. It all looks the same for the most part.

2) Just as in real life, sometimes things that people say sound better in their head that out loud or written down. Something may seem like a good idea to mention at the time then you write it out and post it or say it and you start to realize maybe I shouldn't have said anything.

3) Being that so much in life is NOT what you SAY BUT HOW YOU SAY IT and - we must refer to point 1 on this - there is no REAL way to differentiate between emotions online it is easy to be offended by something. When I am offended by something I try to step back and see if there is something I am missing. Is there some other way that the person could have meant what they said? If I just can not see another way then I get irritated and sometimes respond and sometimes I blow it off - it just depends on the day.

Basically my point is this - there are alot of things that can contribute to misunderstandings - be it personality conflicts, justified arguments or just outright misunderstandings. I just don't think that "Calling someone out" in this way is fruitful. Just because someone is not the perfect personality for you to get along with does not mean that they are not worth knowing, first off. Secondly, just because they are in good health does not mean they have not struggled. There is probably a reason they are in good health - like going above and beyond and educating themselves inhow to maintain their health and care for themselves.

Also to add - and I am not trying to start anything with you. I am just trying to show you a different aspect of things. You say that close minded people can only see the world through their limited experiences and in saying that indicate that this person is close minded because they have high lung function. Many of your comments also paint you as being closeminded as well. The comments about the person being a robotic information delivery system or someone pretending to have CF simply because they have high lung function and are in good health, have a plethera of knowledge and seem to make comments unsuitable for you. I do not know your experience with your daughter and I do not pretend too, but something in your experiences lead you to believe that for someone to understand or be sympathetic to what you are going through they must be in the same situation or have experienced the same trials and tribulations as you or with this disease.

Again I am not trying to start anything with you just trying to point out something that JUMPED out at me as I read the post.

One thing that I have found extremely useful to remind myself of is this - I can't remember where I heard it but I will try to paraphrase it as best I can.

Often times the things/characteristics/traits we find displeasing in others we, ourselves, possess.

When I have a problem with someone I try to think what it is that bothers me about them and then I look at myself. I will be honest 9 times out of 10 I possess the same undesirable quality. What do I do - I use that to educate myself and try to better myself by changing it or correcting it.

I hope you are able to find peace over the situation. There are really great people on this site and there is no need to let a little irritation stand between you and the rest of the community here. If it bothers you that much just ignore them and thank the lord you don't have to deal with them in your day to day life <img src="i/expressions/face-icon-small-smile.gif" border="0">.


Take Care,
Lindsey

 

[coltsfan715]

I am not totally aware of what has occured to bring about this post - but I will say I also think it would be better served in a private message or a blog. In fact as I read this I thought - oh that stinks this person accidentally posted a private message to someone.

As for the response you get from people on this site. There are many times that I am taken aback by things people say on this site. It doesn't matter who it is - as I am sure there are things I say that people sometimes read and say wow - I can't believe she said that. There are many things that we need to remind ourselves of when dealing with an online community and with people in REAL life.

1) Online you often can NOT differentiate between emotions. You are reading plain text - it looks the same whether written in anger or joy or sorrow. It all looks the same for the most part.

2) Just as in real life, sometimes things that people say sound better in their head that out loud or written down. Something may seem like a good idea to mention at the time then you write it out and post it or say it and you start to realize maybe I shouldn't have said anything.

3) Being that so much in life is NOT what you SAY BUT HOW YOU SAY IT and - we must refer to point 1 on this - there is no REAL way to differentiate between emotions online it is easy to be offended by something. When I am offended by something I try to step back and see if there is something I am missing. Is there some other way that the person could have meant what they said? If I just can not see another way then I get irritated and sometimes respond and sometimes I blow it off - it just depends on the day.

Basically my point is this - there are alot of things that can contribute to misunderstandings - be it personality conflicts, justified arguments or just outright misunderstandings. I just don't think that "Calling someone out" in this way is fruitful. Just because someone is not the perfect personality for you to get along with does not mean that they are not worth knowing, first off. Secondly, just because they are in good health does not mean they have not struggled. There is probably a reason they are in good health - like going above and beyond and educating themselves inhow to maintain their health and care for themselves.

Also to add - and I am not trying to start anything with you. I am just trying to show you a different aspect of things. You say that close minded people can only see the world through their limited experiences and in saying that indicate that this person is close minded because they have high lung function. Many of your comments also paint you as being closeminded as well. The comments about the person being a robotic information delivery system or someone pretending to have CF simply because they have high lung function and are in good health, have a plethera of knowledge and seem to make comments unsuitable for you. I do not know your experience with your daughter and I do not pretend too, but something in your experiences lead you to believe that for someone to understand or be sympathetic to what you are going through they must be in the same situation or have experienced the same trials and tribulations as you or with this disease.

Again I am not trying to start anything with you just trying to point out something that JUMPED out at me as I read the post.

One thing that I have found extremely useful to remind myself of is this - I can't remember where I heard it but I will try to paraphrase it as best I can.

Often times the things/characteristics/traits we find displeasing in others we, ourselves, possess.

When I have a problem with someone I try to think what it is that bothers me about them and then I look at myself. I will be honest 9 times out of 10 I possess the same undesirable quality. What do I do - I use that to educate myself and try to better myself by changing it or correcting it.

I hope you are able to find peace over the situation. There are really great people on this site and there is no need to let a little irritation stand between you and the rest of the community here. If it bothers you that much just ignore them and thank the lord you don't have to deal with them in your day to day life <img src="i/expressions/face-icon-small-smile.gif" border="0">.


Take Care,
Lindsey

 

[coltsfan715]

I am not totally aware of what has occured to bring about this post - but I will say I also think it would be better served in a private message or a blog. In fact as I read this I thought - oh that stinks this person accidentally posted a private message to someone.

As for the response you get from people on this site. There are many times that I am taken aback by things people say on this site. It doesn't matter who it is - as I am sure there are things I say that people sometimes read and say wow - I can't believe she said that. There are many things that we need to remind ourselves of when dealing with an online community and with people in REAL life.

1) Online you often can NOT differentiate between emotions. You are reading plain text - it looks the same whether written in anger or joy or sorrow. It all looks the same for the most part.

2) Just as in real life, sometimes things that people say sound better in their head that out loud or written down. Something may seem like a good idea to mention at the time then you write it out and post it or say it and you start to realize maybe I shouldn't have said anything.

3) Being that so much in life is NOT what you SAY BUT HOW YOU SAY IT and - we must refer to point 1 on this - there is no REAL way to differentiate between emotions online it is easy to be offended by something. When I am offended by something I try to step back and see if there is something I am missing. Is there some other way that the person could have meant what they said? If I just can not see another way then I get irritated and sometimes respond and sometimes I blow it off - it just depends on the day.

Basically my point is this - there are alot of things that can contribute to misunderstandings - be it personality conflicts, justified arguments or just outright misunderstandings. I just don't think that "Calling someone out" in this way is fruitful. Just because someone is not the perfect personality for you to get along with does not mean that they are not worth knowing, first off. Secondly, just because they are in good health does not mean they have not struggled. There is probably a reason they are in good health - like going above and beyond and educating themselves inhow to maintain their health and care for themselves.

Also to add - and I am not trying to start anything with you. I am just trying to show you a different aspect of things. You say that close minded people can only see the world through their limited experiences and in saying that indicate that this person is close minded because they have high lung function. Many of your comments also paint you as being closeminded as well. The comments about the person being a robotic information delivery system or someone pretending to have CF simply because they have high lung function and are in good health, have a plethera of knowledge and seem to make comments unsuitable for you. I do not know your experience with your daughter and I do not pretend too, but something in your experiences lead you to believe that for someone to understand or be sympathetic to what you are going through they must be in the same situation or have experienced the same trials and tribulations as you or with this disease.

Again I am not trying to start anything with you just trying to point out something that JUMPED out at me as I read the post.

One thing that I have found extremely useful to remind myself of is this - I can't remember where I heard it but I will try to paraphrase it as best I can.

Often times the things/characteristics/traits we find displeasing in others we, ourselves, possess.

When I have a problem with someone I try to think what it is that bothers me about them and then I look at myself. I will be honest 9 times out of 10 I possess the same undesirable quality. What do I do - I use that to educate myself and try to better myself by changing it or correcting it.

I hope you are able to find peace over the situation. There are really great people on this site and there is no need to let a little irritation stand between you and the rest of the community here. If it bothers you that much just ignore them and thank the lord you don't have to deal with them in your day to day life <img src="i/expressions/face-icon-small-smile.gif" border="0">.


Take Care,
Lindsey

 

[coltsfan715]

I am not totally aware of what has occured to bring about this post - but I will say I also think it would be better served in a private message or a blog. In fact as I read this I thought - oh that stinks this person accidentally posted a private message to someone.

As for the response you get from people on this site. There are many times that I am taken aback by things people say on this site. It doesn't matter who it is - as I am sure there are things I say that people sometimes read and say wow - I can't believe she said that. There are many things that we need to remind ourselves of when dealing with an online community and with people in REAL life.

1) Online you often can NOT differentiate between emotions. You are reading plain text - it looks the same whether written in anger or joy or sorrow. It all looks the same for the most part.

2) Just as in real life, sometimes things that people say sound better in their head that out loud or written down. Something may seem like a good idea to mention at the time then you write it out and post it or say it and you start to realize maybe I shouldn't have said anything.

3) Being that so much in life is NOT what you SAY BUT HOW YOU SAY IT and - we must refer to point 1 on this - there is no REAL way to differentiate between emotions online it is easy to be offended by something. When I am offended by something I try to step back and see if there is something I am missing. Is there some other way that the person could have meant what they said? If I just can not see another way then I get irritated and sometimes respond and sometimes I blow it off - it just depends on the day.

Basically my point is this - there are alot of things that can contribute to misunderstandings - be it personality conflicts, justified arguments or just outright misunderstandings. I just don't think that "Calling someone out" in this way is fruitful. Just because someone is not the perfect personality for you to get along with does not mean that they are not worth knowing, first off. Secondly, just because they are in good health does not mean they have not struggled. There is probably a reason they are in good health - like going above and beyond and educating themselves inhow to maintain their health and care for themselves.

Also to add - and I am not trying to start anything with you. I am just trying to show you a different aspect of things. You say that close minded people can only see the world through their limited experiences and in saying that indicate that this person is close minded because they have high lung function. Many of your comments also paint you as being closeminded as well. The comments about the person being a robotic information delivery system or someone pretending to have CF simply because they have high lung function and are in good health, have a plethera of knowledge and seem to make comments unsuitable for you. I do not know your experience with your daughter and I do not pretend too, but something in your experiences lead you to believe that for someone to understand or be sympathetic to what you are going through they must be in the same situation or have experienced the same trials and tribulations as you or with this disease.

Again I am not trying to start anything with you just trying to point out something that JUMPED out at me as I read the post.

One thing that I have found extremely useful to remind myself of is this - I can't remember where I heard it but I will try to paraphrase it as best I can.

Often times the things/characteristics/traits we find displeasing in others we, ourselves, possess.

When I have a problem with someone I try to think what it is that bothers me about them and then I look at myself. I will be honest 9 times out of 10 I possess the same undesirable quality. What do I do - I use that to educate myself and try to better myself by changing it or correcting it.

I hope you are able to find peace over the situation. There are really great people on this site and there is no need to let a little irritation stand between you and the rest of the community here. If it bothers you that much just ignore them and thank the lord you don't have to deal with them in your day to day life <img src="i/expressions/face-icon-small-smile.gif" border="0">.


Take Care,
Lindsey

 

[coltsfan715]

I am not totally aware of what has occured to bring about this post - but I will say I also think it would be better served in a private message or a blog. In fact as I read this I thought - oh that stinks this person accidentally posted a private message to someone.

As for the response you get from people on this site. There are many times that I am taken aback by things people say on this site. It doesn't matter who it is - as I am sure there are things I say that people sometimes read and say wow - I can't believe she said that. There are many things that we need to remind ourselves of when dealing with an online community and with people in REAL life.

1) Online you often can NOT differentiate between emotions. You are reading plain text - it looks the same whether written in anger or joy or sorrow. It all looks the same for the most part.

2) Just as in real life, sometimes things that people say sound better in their head that out loud or written down. Something may seem like a good idea to mention at the time then you write it out and post it or say it and you start to realize maybe I shouldn't have said anything.

3) Being that so much in life is NOT what you SAY BUT HOW YOU SAY IT and - we must refer to point 1 on this - there is no REAL way to differentiate between emotions online it is easy to be offended by something. When I am offended by something I try to step back and see if there is something I am missing. Is there some other way that the person could have meant what they said? If I just can not see another way then I get irritated and sometimes respond and sometimes I blow it off - it just depends on the day.

Basically my point is this - there are alot of things that can contribute to misunderstandings - be it personality conflicts, justified arguments or just outright misunderstandings. I just don't think that "Calling someone out" in this way is fruitful. Just because someone is not the perfect personality for you to get along with does not mean that they are not worth knowing, first off. Secondly, just because they are in good health does not mean they have not struggled. There is probably a reason they are in good health - like going above and beyond and educating themselves inhow to maintain their health and care for themselves.

Also to add - and I am not trying to start anything with you. I am just trying to show you a different aspect of things. You say that close minded people can only see the world through their limited experiences and in saying that indicate that this person is close minded because they have high lung function. Many of your comments also paint you as being closeminded as well. The comments about the person being a robotic information delivery system or someone pretending to have CF simply because they have high lung function and are in good health, have a plethera of knowledge and seem to make comments unsuitable for you. I do not know your experience with your daughter and I do not pretend too, but something in your experiences lead you to believe that for someone to understand or be sympathetic to what you are going through they must be in the same situation or have experienced the same trials and tribulations as you or with this disease.

Again I am not trying to start anything with you just trying to point out something that JUMPED out at me as I read the post.

One thing that I have found extremely useful to remind myself of is this - I can't remember where I heard it but I will try to paraphrase it as best I can.

Often times the things/characteristics/traits we find displeasing in others we, ourselves, possess.

When I have a problem with someone I try to think what it is that bothers me about them and then I look at myself. I will be honest 9 times out of 10 I possess the same undesirable quality. What do I do - I use that to educate myself and try to better myself by changing it or correcting it.

I hope you are able to find peace over the situation. There are really great people on this site and there is no need to let a little irritation stand between you and the rest of the community here. If it bothers you that much just ignore them and thank the lord you don't have to deal with them in your day to day life <img src="i/expressions/face-icon-small-smile.gif" border="0">.


Take Care,
Lindsey

 

[coltsfan715]

I am not totally aware of what has occured to bring about this post - but I will say I also think it would be better served in a private message or a blog. In fact as I read this I thought - oh that stinks this person accidentally posted a private message to someone.

As for the response you get from people on this site. There are many times that I am taken aback by things people say on this site. It doesn't matter who it is - as I am sure there are things I say that people sometimes read and say wow - I can't believe she said that. There are many things that we need to remind ourselves of when dealing with an online community and with people in REAL life.

1) Online you often can NOT differentiate between emotions. You are reading plain text - it looks the same whether written in anger or joy or sorrow. It all looks the same for the most part.

2) Just as in real life, sometimes things that people say sound better in their head that out loud or written down. Something may seem like a good idea to mention at the time then you write it out and post it or say it and you start to realize maybe I shouldn't have said anything.

3) Being that so much in life is NOT what you SAY BUT HOW YOU SAY IT and - we must refer to point 1 on this - there is no REAL way to differentiate between emotions online it is easy to be offended by something. When I am offended by something I try to step back and see if there is something I am missing. Is there some other way that the person could have meant what they said? If I just can not see another way then I get irritated and sometimes respond and sometimes I blow it off - it just depends on the day.

Basically my point is this - there are alot of things that can contribute to misunderstandings - be it personality conflicts, justified arguments or just outright misunderstandings. I just don't think that "Calling someone out" in this way is fruitful. Just because someone is not the perfect personality for you to get along with does not mean that they are not worth knowing, first off. Secondly, just because they are in good health does not mean they have not struggled. There is probably a reason they are in good health - like going above and beyond and educating themselves inhow to maintain their health and care for themselves.

Also to add - and I am not trying to start anything with you. I am just trying to show you a different aspect of things. You say that close minded people can only see the world through their limited experiences and in saying that indicate that this person is close minded because they have high lung function. Many of your comments also paint you as being closeminded as well. The comments about the person being a robotic information delivery system or someone pretending to have CF simply because they have high lung function and are in good health, have a plethera of knowledge and seem to make comments unsuitable for you. I do not know your experience with your daughter and I do not pretend too, but something in your experiences lead you to believe that for someone to understand or be sympathetic to what you are going through they must be in the same situation or have experienced the same trials and tribulations as you or with this disease.

Again I am not trying to start anything with you just trying to point out something that JUMPED out at me as I read the post.

One thing that I have found extremely useful to remind myself of is this - I can't remember where I heard it but I will try to paraphrase it as best I can.

Often times the things/characteristics/traits we find displeasing in others we, ourselves, possess.

When I have a problem with someone I try to think what it is that bothers me about them and then I look at myself. I will be honest 9 times out of 10 I possess the same undesirable quality. What do I do - I use that to educate myself and try to better myself by changing it or correcting it.

I hope you are able to find peace over the situation. There are really great people on this site and there is no need to let a little irritation stand between you and the rest of the community here. If it bothers you that much just ignore them and thank the lord you don't have to deal with them in your day to day life <img src="i/expressions/face-icon-small-smile.gif" border="0">.


Take Care,
Lindsey

 

[thefrogprincess]

Personally I think it is sad that the first time you posted you got a response that made you feel like this. I think its pretty gutsy to come out and say so. I have had to block certain people on this site because more often than not their replies don't help the situation. But on the whole I find a lot of support and understanding here and I hope you will too.

 

[thefrogprincess]

Personally I think it is sad that the first time you posted you got a response that made you feel like this. I think its pretty gutsy to come out and say so. I have had to block certain people on this site because more often than not their replies don't help the situation. But on the whole I find a lot of support and understanding here and I hope you will too.

 

[thefrogprincess]

Personally I think it is sad that the first time you posted you got a response that made you feel like this. I think its pretty gutsy to come out and say so. I have had to block certain people on this site because more often than not their replies don't help the situation. But on the whole I find a lot of support and understanding here and I hope you will too.

 

[thefrogprincess]

Personally I think it is sad that the first time you posted you got a response that made you feel like this. I think its pretty gutsy to come out and say so. I have had to block certain people on this site because more often than not their replies don't help the situation. But on the whole I find a lot of support and understanding here and I hope you will too.

 

[thefrogprincess]

Personally I think it is sad that the first time you posted you got a response that made you feel like this. I think its pretty gutsy to come out and say so. I have had to block certain people on this site because more often than not their replies don't help the situation. But on the whole I find a lot of support and understanding here and I hope you will too.

 

[thefrogprincess]

Personally I think it is sad that the first time you posted you got a response that made you feel like this. I think its pretty gutsy to come out and say so. I have had to block certain people on this site because more often than not their replies don't help the situation. But on the whole I find a lot of support and understanding here and I hope you will too.

 

[Seana30]

Why do you guys keep tell her this should be in a blog or PM???????

The person she is talking about, AND WE ALL KNOW WHO SHE IS TALKING ABOUT,writes rude mean things in the posts.

Why should haleysmom have to "keep it private" when this other person does not?

Why are you all not telling this other person the same thing?!?!?!?!?!?!?!

Seana

 

[Seana30]

Why do you guys keep tell her this should be in a blog or PM???????

The person she is talking about, AND WE ALL KNOW WHO SHE IS TALKING ABOUT,writes rude mean things in the posts.

Why should haleysmom have to "keep it private" when this other person does not?

Why are you all not telling this other person the same thing?!?!?!?!?!?!?!

Seana