I hate to echo the responses of some of the others , but I also believe this would have been better served as a private pm or blog. You obviously wanted everyone to know what you felt about this person, <b>and you wanted to start something...</b>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>shamrock</b></i>
Lay off the original poster; she is doing what we all do: AIRING OUR VIEWS.
When I first came here 3 years ago, it was a much different place then it is now. I'm all for change, and we used to have BIG arguments back then too, but there are a few people here now who are just rude. Intelligent people but rude. And people accept it because ''He/she is always like that'' or 'they'll never change'.
Heck, I used to think Emily65roses was a bit short a lot of the time (as in no cares, just said it) but I was wrong. Maybe she doesn't sugar coat things, never hides what she's thinking, but I respect her because you don't get the feeling she's putting you down.</end quote></div>
I have to differ with the point of Shamrock---<b>this adult thread should not be used to complain, criticise, defame. or degrade another person.</b> That is not the purpose of the term "free speech". Now, like Emily, we can express our opinion about the opinion of others---<b>personal attacks should not be encouraged on these threads.</b> And when someone is rude, all of us tell them so.
What you say in a pm, or on your blog is yours--I don't care what you say there. Like Mel said, if you have been a long-time blogger, then you know the utter futility of your post, AND you are seeking attention--or at least it comes off as that. Why else would you bring this up--OUT OF THE BLUE--without a reference to what caused this.
Do you think she is promoting herself when she blogs about certain medical features? If so--DON'T READ THEM! If they won't help your daughter, then that's your affair. You owe it to your daughter to read and process ALL info about CF, whether you like the author or not. Read it, process it, research it, throw it away--whatever. Go ahead, trust the doctors, but read THE BELL CURVE first. Do you even realize the number of people who have learned (from this person) that they were doing the vest wrong??
<i><b>"Then I realized that you must be a very frustrated person who thinks very highly of themself and can only be self -gratified by pretending to be a 'qualified' cf resource. You really have missed the point of a site such as this.
We can get your information from REAL QUALIFIED MEDICALLY TRAINED INDIVIDUALS, what we are looking for here is commonality of cf life experiences. This disease has become very isolating due to the cross-contamination issues, and with the recent HIPA protocal parents have a difficult time sharing info while their kids are hospitalized.
I can remember when my daughter was diagnosed at 5mos I had the opportunity to meet with a mom whose child was next door. Listening to her first hand experiences with cf were enlightening, in some ways more than the technical stuff from the medical personnel.
I hope that if/when you start having some real cf-related problems that you will find yourself in a caring supportive environment, not in a medical lecture hall."
</b></i>
1. <i> "... pretending to be a 'qualified' cf resource. You really have missed the point of a site such as this." </i>No, it is YOU who have missed the point. She has never pretended anything, and IS QUALIFIED--everyone who has an experience with cf and presents it here is qualified. Who are you to tell us what this site is for? It sounds like you have a particular expectation in coming to this site<i>--"...what we are looking for here is commonality of cf life experiences."</i>
2. ..."I hope that if/when you start having some real cf-related problems that you will find yourself in a caring supportive environment, not in a medical lecture hall." Who the heck are YOU to know what kind of experiences she has had with cf!!!!! Talk about being judgemental! If you think that this place is"Carebearland"--then you are in for a big let-down!
3. ..."<i>I also thought , maybe this individual is some smart-a__ college student pretending to have cf, just to be able to play doctor online." </i> This is so preposterous as to not even warrant a reply!!
I have had differences with this person, we all have, but to single them out, for a random post, in which you allude to something that happened to you (and to others) IN THE PAST--is beyond appropiate.
I think your signature explains alot..."mother/17yr daughter,mrsa+, fighting depression, isolation facing tranplant issues". I hope you will continue to come here for support and ope-minded discussion...
