Sad, confused... still not sure

[TobysMom]

My baby was born at a hospital and they automatically do a CF test in Florida. His 2nd day after being born, he was flown to a child's hospital 2 hours away because he had a meconium plug that needed to be surgically removed.

The hospital he was born in contacted me today to let me know that the CF test shows possibly CF and may require add'l testing for confirmation. When I told the doctor that called me that he was sent to the other hospital for the meconium plug, he basically confirmed that the baby very likely has CF.

I don't know very much about it thus far, nor do I know or understand the mutations and what have you.

He is our only child and now we thought about today, would other children that we may have, have CF also?

We still don't know for sure if he has it, but it seems very likely based on the testing and the meconium plug. My baby's father, nor my family have ever had any diagnosis in our families back beyond the 1800's (based on genaology studies)... and now I am just afraid of the life that our son is going to live. I am hoping that he will be healthy enough to live a "normal" life.

I just have this huge knot in my stomach right now because my baby was born 13 days ago and has not even seen his home yet due to being in the hospital since he was born. I am so sad and I guess just hope to find others that know more about CF and can share and help my family through this.

Thank you.

 

[TobysMom]

My baby was born at a hospital and they automatically do a CF test in Florida. His 2nd day after being born, he was flown to a child's hospital 2 hours away because he had a meconium plug that needed to be surgically removed.

The hospital he was born in contacted me today to let me know that the CF test shows possibly CF and may require add'l testing for confirmation. When I told the doctor that called me that he was sent to the other hospital for the meconium plug, he basically confirmed that the baby very likely has CF.

I don't know very much about it thus far, nor do I know or understand the mutations and what have you.

He is our only child and now we thought about today, would other children that we may have, have CF also?

We still don't know for sure if he has it, but it seems very likely based on the testing and the meconium plug. My baby's father, nor my family have ever had any diagnosis in our families back beyond the 1800's (based on genaology studies)... and now I am just afraid of the life that our son is going to live. I am hoping that he will be healthy enough to live a "normal" life.

I just have this huge knot in my stomach right now because my baby was born 13 days ago and has not even seen his home yet due to being in the hospital since he was born. I am so sad and I guess just hope to find others that know more about CF and can share and help my family through this.

Thank you.

 

[TobysMom]

My baby was born at a hospital and they automatically do a CF test in Florida. His 2nd day after being born, he was flown to a child's hospital 2 hours away because he had a meconium plug that needed to be surgically removed.

The hospital he was born in contacted me today to let me know that the CF test shows possibly CF and may require add'l testing for confirmation. When I told the doctor that called me that he was sent to the other hospital for the meconium plug, he basically confirmed that the baby very likely has CF.

I don't know very much about it thus far, nor do I know or understand the mutations and what have you.

He is our only child and now we thought about today, would other children that we may have, have CF also?

We still don't know for sure if he has it, but it seems very likely based on the testing and the meconium plug. My baby's father, nor my family have ever had any diagnosis in our families back beyond the 1800's (based on genaology studies)... and now I am just afraid of the life that our son is going to live. I am hoping that he will be healthy enough to live a "normal" life.

I just have this huge knot in my stomach right now because my baby was born 13 days ago and has not even seen his home yet due to being in the hospital since he was born. I am so sad and I guess just hope to find others that know more about CF and can share and help my family through this.

Thank you.

 

[TobysMom]

My baby was born at a hospital and they automatically do a CF test in Florida. His 2nd day after being born, he was flown to a child's hospital 2 hours away because he had a meconium plug that needed to be surgically removed.

The hospital he was born in contacted me today to let me know that the CF test shows possibly CF and may require add'l testing for confirmation. When I told the doctor that called me that he was sent to the other hospital for the meconium plug, he basically confirmed that the baby very likely has CF.

I don't know very much about it thus far, nor do I know or understand the mutations and what have you.

He is our only child and now we thought about today, would other children that we may have, have CF also?

We still don't know for sure if he has it, but it seems very likely based on the testing and the meconium plug. My baby's father, nor my family have ever had any diagnosis in our families back beyond the 1800's (based on genaology studies)... and now I am just afraid of the life that our son is going to live. I am hoping that he will be healthy enough to live a "normal" life.

I just have this huge knot in my stomach right now because my baby was born 13 days ago and has not even seen his home yet due to being in the hospital since he was born. I am so sad and I guess just hope to find others that know more about CF and can share and help my family through this.

Thank you.

 

[TobysMom]

My baby was born at a hospital and they automatically do a CF test in Florida. His 2nd day after being born, he was flown to a child's hospital 2 hours away because he had a meconium plug that needed to be surgically removed.
<br />
<br />The hospital he was born in contacted me today to let me know that the CF test shows possibly CF and may require add'l testing for confirmation. When I told the doctor that called me that he was sent to the other hospital for the meconium plug, he basically confirmed that the baby very likely has CF.
<br />
<br />I don't know very much about it thus far, nor do I know or understand the mutations and what have you.
<br />
<br />He is our only child and now we thought about today, would other children that we may have, have CF also?
<br />
<br />We still don't know for sure if he has it, but it seems very likely based on the testing and the meconium plug. My baby's father, nor my family have ever had any diagnosis in our families back beyond the 1800's (based on genaology studies)... and now I am just afraid of the life that our son is going to live. I am hoping that he will be healthy enough to live a "normal" life.
<br />
<br />I just have this huge knot in my stomach right now because my baby was born 13 days ago and has not even seen his home yet due to being in the hospital since he was born. I am so sad and I guess just hope to find others that know more about CF and can share and help my family through this.
<br />
<br />Thank you.
<br />
<br />

 

[SARAHSARAH253]

Hi there,


My name is Sarah....I was exactly where your at last August...Our first child was born with a meconium plug.....Weeks later we were hit the news of CF...My husband and I also had no history of CF in our families...My story is in the Dignosis Forum listed under "Our Story"...I want you to know it is scarey, but your going to hear from so many great and strong mothers/fathers on this website..I hope you find some peace from knowing your not alone..Because when our world changed I thought we were the only couple in the whole world going threw this..Your not alone...

Sarah

Mommy to Johnny 9/months with CF

 

[SARAHSARAH253]

Hi there,


My name is Sarah....I was exactly where your at last August...Our first child was born with a meconium plug.....Weeks later we were hit the news of CF...My husband and I also had no history of CF in our families...My story is in the Dignosis Forum listed under "Our Story"...I want you to know it is scarey, but your going to hear from so many great and strong mothers/fathers on this website..I hope you find some peace from knowing your not alone..Because when our world changed I thought we were the only couple in the whole world going threw this..Your not alone...

Sarah

Mommy to Johnny 9/months with CF

 

[SARAHSARAH253]

Hi there,


My name is Sarah....I was exactly where your at last August...Our first child was born with a meconium plug.....Weeks later we were hit the news of CF...My husband and I also had no history of CF in our families...My story is in the Dignosis Forum listed under "Our Story"...I want you to know it is scarey, but your going to hear from so many great and strong mothers/fathers on this website..I hope you find some peace from knowing your not alone..Because when our world changed I thought we were the only couple in the whole world going threw this..Your not alone...

Sarah

Mommy to Johnny 9/months with CF

 

[SARAHSARAH253]

Hi there,


My name is Sarah....I was exactly where your at last August...Our first child was born with a meconium plug.....Weeks later we were hit the news of CF...My husband and I also had no history of CF in our families...My story is in the Dignosis Forum listed under "Our Story"...I want you to know it is scarey, but your going to hear from so many great and strong mothers/fathers on this website..I hope you find some peace from knowing your not alone..Because when our world changed I thought we were the only couple in the whole world going threw this..Your not alone...

Sarah

Mommy to Johnny 9/months with CF

 

[SARAHSARAH253]

Hi there,
<br />
<br />
<br />My name is Sarah....I was exactly where your at last August...Our first child was born with a meconium plug.....Weeks later we were hit the news of CF...My husband and I also had no history of CF in our families...My story is in the Dignosis Forum listed under "Our Story"...I want you to know it is scarey, but your going to hear from so many great and strong mothers/fathers on this website..I hope you find some peace from knowing your not alone..Because when our world changed I thought we were the only couple in the whole world going threw this..Your not alone...
<br />
<br />Sarah
<br />
<br />Mommy to Johnny 9/months with CF

 

[julie]

Welcome to the site. I am so sorry that you have recieved this news, but you have definitely come to the right place for support and answers. You are not alone, there are many different people on this site, mothers of CFers, brothers of CFers, sisters, spouses, friends... we are all here to help eachother.

As far as your concerns about a "normal" life, I am the wife of a 27 year old man with CF. He is a college graduate and the father of 3. He does have issues relating to the CF, and does about 3 hours of medical treatments a day, but both he and I think we lead a "normal" life.

Hang in there mom, and congratulations on your new baby!

 

[julie]

Welcome to the site. I am so sorry that you have recieved this news, but you have definitely come to the right place for support and answers. You are not alone, there are many different people on this site, mothers of CFers, brothers of CFers, sisters, spouses, friends... we are all here to help eachother.

As far as your concerns about a "normal" life, I am the wife of a 27 year old man with CF. He is a college graduate and the father of 3. He does have issues relating to the CF, and does about 3 hours of medical treatments a day, but both he and I think we lead a "normal" life.

Hang in there mom, and congratulations on your new baby!

 

[julie]

Welcome to the site. I am so sorry that you have recieved this news, but you have definitely come to the right place for support and answers. You are not alone, there are many different people on this site, mothers of CFers, brothers of CFers, sisters, spouses, friends... we are all here to help eachother.

As far as your concerns about a "normal" life, I am the wife of a 27 year old man with CF. He is a college graduate and the father of 3. He does have issues relating to the CF, and does about 3 hours of medical treatments a day, but both he and I think we lead a "normal" life.

Hang in there mom, and congratulations on your new baby!

 

[julie]

Welcome to the site. I am so sorry that you have recieved this news, but you have definitely come to the right place for support and answers. You are not alone, there are many different people on this site, mothers of CFers, brothers of CFers, sisters, spouses, friends... we are all here to help eachother.

As far as your concerns about a "normal" life, I am the wife of a 27 year old man with CF. He is a college graduate and the father of 3. He does have issues relating to the CF, and does about 3 hours of medical treatments a day, but both he and I think we lead a "normal" life.

Hang in there mom, and congratulations on your new baby!

 

[julie]

Welcome to the site. I am so sorry that you have recieved this news, but you have definitely come to the right place for support and answers. You are not alone, there are many different people on this site, mothers of CFers, brothers of CFers, sisters, spouses, friends... we are all here to help eachother.
<br />
<br />As far as your concerns about a "normal" life, I am the wife of a 27 year old man with CF. He is a college graduate and the father of 3. He does have issues relating to the CF, and does about 3 hours of medical treatments a day, but both he and I think we lead a "normal" life.
<br />
<br />Hang in there mom, and congratulations on your new baby!
<br />
<br />

 

[Cherylwithone]

Welcome to this really great site! It is scary but with the right information you can get the medical help you will need for your baby. Don't be afraid to ask questions which you will have many. Make sure you find a creited CF center for treatment. Your child will have a normal life.
Believe it or not you will make sure of that. My daughter is now 15...she likes to talk on the phone, likes boys, goes shopping etc..she does all the things that 15 years old do. She just happens to have CF. The moms and dads on this site can give you so much support...You will feel like they are right there with you. Your wondering if your future children will have CF. Read the signatures to the blogs and forums. Some just have one child with CF yet have many more gets that don't. Some have more then one. It just all depends. Talk to these moms they will help you.

HUGS <img src="i/expressions/face-icon-small-smile.gif" border="0">

Cheryl mom to Malora 15 w/CF

 

[Cherylwithone]

Welcome to this really great site! It is scary but with the right information you can get the medical help you will need for your baby. Don't be afraid to ask questions which you will have many. Make sure you find a creited CF center for treatment. Your child will have a normal life.
Believe it or not you will make sure of that. My daughter is now 15...she likes to talk on the phone, likes boys, goes shopping etc..she does all the things that 15 years old do. She just happens to have CF. The moms and dads on this site can give you so much support...You will feel like they are right there with you. Your wondering if your future children will have CF. Read the signatures to the blogs and forums. Some just have one child with CF yet have many more gets that don't. Some have more then one. It just all depends. Talk to these moms they will help you.

HUGS <img src="i/expressions/face-icon-small-smile.gif" border="0">

Cheryl mom to Malora 15 w/CF

 

[Cherylwithone]

Welcome to this really great site! It is scary but with the right information you can get the medical help you will need for your baby. Don't be afraid to ask questions which you will have many. Make sure you find a creited CF center for treatment. Your child will have a normal life.
Believe it or not you will make sure of that. My daughter is now 15...she likes to talk on the phone, likes boys, goes shopping etc..she does all the things that 15 years old do. She just happens to have CF. The moms and dads on this site can give you so much support...You will feel like they are right there with you. Your wondering if your future children will have CF. Read the signatures to the blogs and forums. Some just have one child with CF yet have many more gets that don't. Some have more then one. It just all depends. Talk to these moms they will help you.

HUGS <img src="i/expressions/face-icon-small-smile.gif" border="0">

Cheryl mom to Malora 15 w/CF

 

[Cherylwithone]

Welcome to this really great site! It is scary but with the right information you can get the medical help you will need for your baby. Don't be afraid to ask questions which you will have many. Make sure you find a creited CF center for treatment. Your child will have a normal life.
Believe it or not you will make sure of that. My daughter is now 15...she likes to talk on the phone, likes boys, goes shopping etc..she does all the things that 15 years old do. She just happens to have CF. The moms and dads on this site can give you so much support...You will feel like they are right there with you. Your wondering if your future children will have CF. Read the signatures to the blogs and forums. Some just have one child with CF yet have many more gets that don't. Some have more then one. It just all depends. Talk to these moms they will help you.

HUGS <img src="i/expressions/face-icon-small-smile.gif" border="0">

Cheryl mom to Malora 15 w/CF

 

[Cherylwithone]

Welcome to this really great site! It is scary but with the right information you can get the medical help you will need for your baby. Don't be afraid to ask questions which you will have many. Make sure you find a creited CF center for treatment. Your child will have a normal life.
<br />Believe it or not you will make sure of that. My daughter is now 15...she likes to talk on the phone, likes boys, goes shopping etc..she does all the things that 15 years old do. She just happens to have CF. The moms and dads on this site can give you so much support...You will feel like they are right there with you. Your wondering if your future children will have CF. Read the signatures to the blogs and forums. Some just have one child with CF yet have many more gets that don't. Some have more then one. It just all depends. Talk to these moms they will help you.
<br />
<br />HUGS <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Cheryl mom to Malora 15 w/CF