Sad, confused... still not sure

TobysMom · May 21, 2008

Thank you EVERYONE for your responses. I really appreciate it and I appreciate the warm welcome. I know that we will love our son just as much, and maybe even MORE with this possibility and the fact that he is now 13 days old and we still want him home more than anything.

He is in a wonderful hospital that is an accredited CF hospital and the hospital he was born in is also an accredited CF hospital, so I just hope they can determine if this IS what he has and get him treated accordingly so he can come home and we can snuggle him without leads for machines to him, or an IV feeding him... but whatever they have to do to get him "better" for the time being.

I will definitely be bringing my questions here, as it seems that everyone knows what they're talking about and has been through this themselves.

I am glad though that if he does have CF that we will know early on and be able to start treatments early too.

Thanks again for all your input!

TobysMom · May 21, 2008

Thank you EVERYONE for your responses. I really appreciate it and I appreciate the warm welcome. I know that we will love our son just as much, and maybe even MORE with this possibility and the fact that he is now 13 days old and we still want him home more than anything.

He is in a wonderful hospital that is an accredited CF hospital and the hospital he was born in is also an accredited CF hospital, so I just hope they can determine if this IS what he has and get him treated accordingly so he can come home and we can snuggle him without leads for machines to him, or an IV feeding him... but whatever they have to do to get him "better" for the time being.

I will definitely be bringing my questions here, as it seems that everyone knows what they're talking about and has been through this themselves.

I am glad though that if he does have CF that we will know early on and be able to start treatments early too.

Thanks again for all your input!

TobysMom · May 21, 2008

Thank you EVERYONE for your responses. I really appreciate it and I appreciate the warm welcome. I know that we will love our son just as much, and maybe even MORE with this possibility and the fact that he is now 13 days old and we still want him home more than anything.

He is in a wonderful hospital that is an accredited CF hospital and the hospital he was born in is also an accredited CF hospital, so I just hope they can determine if this IS what he has and get him treated accordingly so he can come home and we can snuggle him without leads for machines to him, or an IV feeding him... but whatever they have to do to get him "better" for the time being.

I will definitely be bringing my questions here, as it seems that everyone knows what they're talking about and has been through this themselves.

I am glad though that if he does have CF that we will know early on and be able to start treatments early too.

Thanks again for all your input!

TobysMom · May 21, 2008

Thank you EVERYONE for your responses. I really appreciate it and I appreciate the warm welcome. I know that we will love our son just as much, and maybe even MORE with this possibility and the fact that he is now 13 days old and we still want him home more than anything.

He is in a wonderful hospital that is an accredited CF hospital and the hospital he was born in is also an accredited CF hospital, so I just hope they can determine if this IS what he has and get him treated accordingly so he can come home and we can snuggle him without leads for machines to him, or an IV feeding him... but whatever they have to do to get him "better" for the time being.

I will definitely be bringing my questions here, as it seems that everyone knows what they're talking about and has been through this themselves.

I am glad though that if he does have CF that we will know early on and be able to start treatments early too.

Thanks again for all your input!

TobysMom · May 21, 2008

Thank you EVERYONE for your responses. I really appreciate it and I appreciate the warm welcome. I know that we will love our son just as much, and maybe even MORE with this possibility and the fact that he is now 13 days old and we still want him home more than anything.
 
 He is in a wonderful hospital that is an accredited CF hospital and the hospital he was born in is also an accredited CF hospital, so I just hope they can determine if this IS what he has and get him treated accordingly so he can come home and we can snuggle him without leads for machines to him, or an IV feeding him... but whatever they have to do to get him "better" for the time being.
 
 I will definitely be bringing my questions here, as it seems that everyone knows what they're talking about and has been through this themselves.
 
 I am glad though that if he does have CF that we will know early on and be able to start treatments early too.
 
 Thanks again for all your input!

Rebjane · May 21, 2008

Tobysmom,

Just wanted to welcome to this site. It sounds like your baby is in good hands, not only at the hospital but also in the good hands of a mom like you. Please ask any questions. My daughter is now 5 and finishing her second year of nursery school(starting kindergarten in the fall). She was prenatally diagnosed with CF and had a bowel obstruction at birth from a meconium ileus. She is a joy in our family and keeps us smiling<img src="i/expressions/face-icon-small-smile.gif" border="0">

Rebjane · May 21, 2008

Tobysmom,

Just wanted to welcome to this site. It sounds like your baby is in good hands, not only at the hospital but also in the good hands of a mom like you. Please ask any questions. My daughter is now 5 and finishing her second year of nursery school(starting kindergarten in the fall). She was prenatally diagnosed with CF and had a bowel obstruction at birth from a meconium ileus. She is a joy in our family and keeps us smiling<img src="i/expressions/face-icon-small-smile.gif" border="0">

Rebjane · May 21, 2008

Tobysmom,

Just wanted to welcome to this site. It sounds like your baby is in good hands, not only at the hospital but also in the good hands of a mom like you. Please ask any questions. My daughter is now 5 and finishing her second year of nursery school(starting kindergarten in the fall). She was prenatally diagnosed with CF and had a bowel obstruction at birth from a meconium ileus. She is a joy in our family and keeps us smiling<img src="i/expressions/face-icon-small-smile.gif" border="0">

Rebjane · May 21, 2008

Tobysmom,

Just wanted to welcome to this site. It sounds like your baby is in good hands, not only at the hospital but also in the good hands of a mom like you. Please ask any questions. My daughter is now 5 and finishing her second year of nursery school(starting kindergarten in the fall). She was prenatally diagnosed with CF and had a bowel obstruction at birth from a meconium ileus. She is a joy in our family and keeps us smiling<img src="i/expressions/face-icon-small-smile.gif" border="0">

Rebjane · May 21, 2008

Tobysmom,

Just wanted to welcome to this site. It sounds like your baby is in good hands, not only at the hospital but also in the good hands of a mom like you. Please ask any questions. My daughter is now 5 and finishing her second year of nursery school(starting kindergarten in the fall). She was prenatally diagnosed with CF and had a bowel obstruction at birth from a meconium ileus. She is a joy in our family and keeps us smiling<img src="i/expressions/face-icon-small-smile.gif" border="0">

TobysMom · May 21, 2008

mommafirst:

it was a plug, not the illeus. His belly is distended so they are monitoring him and waiting for it to go down to "normal" size before they can feed him. They didnt say anything about the mucus, but there was a good amount in his belly after the surgery he had to remove the plug. He is pooping kinda like a champ now, but they are saying it is still meconium, but I think that it is just the greasy poop they talk about with CF... and it was STINKY!!!

I am glad that there is a lot of support out there. It does make me feel 100x better.

TobysMom · May 21, 2008

mommafirst:

it was a plug, not the illeus. His belly is distended so they are monitoring him and waiting for it to go down to "normal" size before they can feed him. They didnt say anything about the mucus, but there was a good amount in his belly after the surgery he had to remove the plug. He is pooping kinda like a champ now, but they are saying it is still meconium, but I think that it is just the greasy poop they talk about with CF... and it was STINKY!!!

I am glad that there is a lot of support out there. It does make me feel 100x better.

TobysMom · May 21, 2008

mommafirst:

it was a plug, not the illeus. His belly is distended so they are monitoring him and waiting for it to go down to "normal" size before they can feed him. They didnt say anything about the mucus, but there was a good amount in his belly after the surgery he had to remove the plug. He is pooping kinda like a champ now, but they are saying it is still meconium, but I think that it is just the greasy poop they talk about with CF... and it was STINKY!!!

I am glad that there is a lot of support out there. It does make me feel 100x better.

TobysMom · May 21, 2008

mommafirst:

it was a plug, not the illeus. His belly is distended so they are monitoring him and waiting for it to go down to "normal" size before they can feed him. They didnt say anything about the mucus, but there was a good amount in his belly after the surgery he had to remove the plug. He is pooping kinda like a champ now, but they are saying it is still meconium, but I think that it is just the greasy poop they talk about with CF... and it was STINKY!!!

I am glad that there is a lot of support out there. It does make me feel 100x better.

TobysMom · May 21, 2008

mommafirst:
 
 it was a plug, not the illeus. His belly is distended so they are monitoring him and waiting for it to go down to "normal" size before they can feed him. They didnt say anything about the mucus, but there was a good amount in his belly after the surgery he had to remove the plug. He is pooping kinda like a champ now, but they are saying it is still meconium, but I think that it is just the greasy poop they talk about with CF... and it was STINKY!!!
 
 I am glad that there is a lot of support out there. It does make me feel 100x better.

Alyssa · May 21, 2008

Welcome to the site.

To answer your question about other children being born to you and your husband... yes, if it turns out that this child does indeed have CF, he will have 2 CF genes. One from you and one from your husband. You are both carriers of one CF gene (and you also have one non-CF gene). You will each pass on one of your two genes to the child -- it can be the CF or non-CF gene. Each time you conceive you have a 25% chance of both genes being received by the child (or they could receive one or both of the non-CF genes - or several combinations of CF and non CF genes from both of you - hence the other 75% chance can be no CF genes or a carrier of one CF gene and one non-CF gene)

Actually...I'm probably not doing a very good job of explaining this.... here is a link to a page that shows this in a "chart of the possibilities of contracting a recessive defect, from two carrier parents."

It's probably easier to understand if you look there.

The article is at <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikibooks.org/wiki/Human_Physiology/Genetics_and_inheritance
">http://en.wikibooks.org/wiki/H...and_inheritance
</a>

The chart is at <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikibooks.org/wiki/Image:Autorecessive.svg">http://en.wikibooks.org/wiki/Image:Autorecessive.svg</a>

Alyssa · May 21, 2008

Welcome to the site.

To answer your question about other children being born to you and your husband... yes, if it turns out that this child does indeed have CF, he will have 2 CF genes. One from you and one from your husband. You are both carriers of one CF gene (and you also have one non-CF gene). You will each pass on one of your two genes to the child -- it can be the CF or non-CF gene. Each time you conceive you have a 25% chance of both genes being received by the child (or they could receive one or both of the non-CF genes - or several combinations of CF and non CF genes from both of you - hence the other 75% chance can be no CF genes or a carrier of one CF gene and one non-CF gene)

Actually...I'm probably not doing a very good job of explaining this.... here is a link to a page that shows this in a "chart of the possibilities of contracting a recessive defect, from two carrier parents."

It's probably easier to understand if you look there.

The article is at <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikibooks.org/wiki/Human_Physiology/Genetics_and_inheritance
">http://en.wikibooks.org/wiki/H...and_inheritance
</a>

The chart is at <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikibooks.org/wiki/Image:Autorecessive.svg">http://en.wikibooks.org/wiki/Image:Autorecessive.svg</a>

Alyssa · May 21, 2008

Welcome to the site.

To answer your question about other children being born to you and your husband... yes, if it turns out that this child does indeed have CF, he will have 2 CF genes. One from you and one from your husband. You are both carriers of one CF gene (and you also have one non-CF gene). You will each pass on one of your two genes to the child -- it can be the CF or non-CF gene. Each time you conceive you have a 25% chance of both genes being received by the child (or they could receive one or both of the non-CF genes - or several combinations of CF and non CF genes from both of you - hence the other 75% chance can be no CF genes or a carrier of one CF gene and one non-CF gene)

Actually...I'm probably not doing a very good job of explaining this.... here is a link to a page that shows this in a "chart of the possibilities of contracting a recessive defect, from two carrier parents."

It's probably easier to understand if you look there.

The article is at <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikibooks.org/wiki/Human_Physiology/Genetics_and_inheritance
">http://en.wikibooks.org/wiki/H...and_inheritance
</a>

The chart is at <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikibooks.org/wiki/Image:Autorecessive.svg">http://en.wikibooks.org/wiki/Image:Autorecessive.svg</a>

Alyssa · May 21, 2008

Welcome to the site.

To answer your question about other children being born to you and your husband... yes, if it turns out that this child does indeed have CF, he will have 2 CF genes. One from you and one from your husband. You are both carriers of one CF gene (and you also have one non-CF gene). You will each pass on one of your two genes to the child -- it can be the CF or non-CF gene. Each time you conceive you have a 25% chance of both genes being received by the child (or they could receive one or both of the non-CF genes - or several combinations of CF and non CF genes from both of you - hence the other 75% chance can be no CF genes or a carrier of one CF gene and one non-CF gene)

Actually...I'm probably not doing a very good job of explaining this.... here is a link to a page that shows this in a "chart of the possibilities of contracting a recessive defect, from two carrier parents."

It's probably easier to understand if you look there.

The article is at <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikibooks.org/wiki/Human_Physiology/Genetics_and_inheritance
">http://en.wikibooks.org/wiki/H...and_inheritance
</a>

The chart is at <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikibooks.org/wiki/Image:Autorecessive.svg">http://en.wikibooks.org/wiki/Image:Autorecessive.svg</a>

Alyssa · May 21, 2008

Welcome to the site.
 
 To answer your question about other children being born to you and your husband... yes, if it turns out that this child does indeed have CF, he will have 2 CF genes. One from you and one from your husband. You are both carriers of one CF gene (and you also have one non-CF gene). You will each pass on one of your two genes to the child -- it can be the CF or non-CF gene. Each time you conceive you have a 25% chance of both genes being received by the child (or they could receive one or both of the non-CF genes - or several combinations of CF and non CF genes from both of you - hence the other 75% chance can be no CF genes or a carrier of one CF gene and one non-CF gene)
 
 Actually...I'm probably not doing a very good job of explaining this.... here is a link to a page that shows this in a "chart of the possibilities of contracting a recessive defect, from two carrier parents."
 
 It's probably easier to understand if you look there.
 
 The article is at <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikibooks.org/wiki/Human_Physiology/Genetics_and_inheritance
 ">http://en.wikibooks.org/wiki/H...and_inheritance
 </a>
 
 The chart is at <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikibooks.org/wiki/Image:Autorecessive.svg">http://en.wikibooks.org/wiki/Image:Autorecessive.svg</a>

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