<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hbollotte</b></i>
i'm confused. she says her fev1 is 95% but she is in the hospital? my fev1 is normally in the 70% or higher and i've never been hospitalized. </end quote></div>
Haley, for another point of view: For various reasons I bounced around doctors for a while when I was first diagnosed, but have settled on a very aggressive doctor based in Tulsa, OK. Jazzy'sMom is right, once you have permanent damage to your lungs it cannot be restored, so many doctors follow the Danish model and are proactive in the fight against infection. Some doctors only treat you with IVs when you are really sick. My doctor treats me with IVs for 3 weeks every 3 months rain or shine. The theory is that the infections never get strong enough to do any permanent damage. MY FEV1 was 81 when I was diagnosed but it had dropped to 65 by the time I started seeing Dr. Carey. It has gone up steadily, and after not even 3 years my last FEV1 was 79%, and I expect it to be even higher when I get tested on Friday.
My doc lets me do home IVs which works great because I still work full-time. In fact, right now I am putting my wife through school. I know some people feel the need to be in the hospital and get away from stress, etc. and that's fine. It's good that they know that about themselves and are willing to do what it takes to stay healthy. For me the hospital is stressful and after about 2 days I'm bouncing off the walls to get out. Most everyone at work understands about my IVs and those that don't are really shy and don't ask questions. <img src="i/expressions/face-icon-small-smile.gif" border="0">