Scared to have another baby

[lightNlife]

Speaking as a CFer with a non-CF sibling, I want to say that I respect either decision--to have another or not. No matter what you decide, your family will be just as it's supposed to be. I know that might sound like a platitude, but no one else can make these decisions for you.

My prayers are with you as you weight the decision. I hope you make a decision that brings you a sense of peace and contentment.

 

[lightNlife]

Speaking as a CFer with a non-CF sibling, I want to say that I respect either decision--to have another or not. No matter what you decide, your family will be just as it's supposed to be. I know that might sound like a platitude, but no one else can make these decisions for you.

My prayers are with you as you weight the decision. I hope you make a decision that brings you a sense of peace and contentment.

 

[lightNlife]

Speaking as a CFer with a non-CF sibling, I want to say that I respect either decision--to have another or not. No matter what you decide, your family will be just as it's supposed to be. I know that might sound like a platitude, but no one else can make these decisions for you.

My prayers are with you as you weight the decision. I hope you make a decision that brings you a sense of peace and contentment.

 

[lightNlife]

Speaking as a CFer with a non-CF sibling, I want to say that I respect either decision--to have another or not. No matter what you decide, your family will be just as it's supposed to be. I know that might sound like a platitude, but no one else can make these decisions for you.

My prayers are with you as you weight the decision. I hope you make a decision that brings you a sense of peace and contentment.

 

[lightNlife]

Speaking as a CFer with a non-CF sibling, I want to say that I respect either decision--to have another or not. No matter what you decide, your family will be just as it's supposed to be. I know that might sound like a platitude, but no one else can make these decisions for you.
<br />
<br />My prayers are with you as you weight the decision. I hope you make a decision that brings you a sense of peace and contentment.

 

[PedsNP2007]

Hi,
I'm speaking from the viewpoint of a CF child with 2 siblings with CF.

After my brother with CF died about 3 years ago, my mom voiced her feelings of guilt for having not just one, but THREE kids with CF. She felt bad that she saddled us with this disease knowing what the end will be for us. (Yes, I know that we may die from something non-CF, but the odds are higher with the CF case).

I told her that even though I have CF and face unsurmountable challenges in the future, I would never give up what I have gotten to experience in my life so far. My brother, for the most part, lived all of his life to the fullest and never regretted how his life turned out. He never wanted to pursue lung transplantation; he only did it once he fell in love with his wife. Unfortunately, the transplant did not work, but the life he led was amazing as he wasn't supposed to live past 1 year old -- he made it to 30!

I work in the pediatric ICU and see so many illnesses. I am so "happy" to have CF compared to what I see on a daily basis... My parents, though always worried about our CF, have a great relationship with us... we are neurologically normal... We can hold conversations, hold full time jobs, have relationships... Right now, my parents don't have to take care of us... I know one day they may need to help us more if we do worse.

Anyways, the point of my long dissertation... take the risk... there are worse things out there to worry about... You are going to be blessed with an amazing child despite the physical challenges the child may face...

I never regret the childhood that I shared with my brother and the ongoing experiences I am sharing with my sister... She's expecting (via surrogate) in december -- a baby BOY.. healthy grandchild for my parents... they never thought that was possible!


Good luck, Jenn
30 y/o female with CF, new onset CFRD

 

[PedsNP2007]

Hi,
I'm speaking from the viewpoint of a CF child with 2 siblings with CF.

After my brother with CF died about 3 years ago, my mom voiced her feelings of guilt for having not just one, but THREE kids with CF. She felt bad that she saddled us with this disease knowing what the end will be for us. (Yes, I know that we may die from something non-CF, but the odds are higher with the CF case).

I told her that even though I have CF and face unsurmountable challenges in the future, I would never give up what I have gotten to experience in my life so far. My brother, for the most part, lived all of his life to the fullest and never regretted how his life turned out. He never wanted to pursue lung transplantation; he only did it once he fell in love with his wife. Unfortunately, the transplant did not work, but the life he led was amazing as he wasn't supposed to live past 1 year old -- he made it to 30!

I work in the pediatric ICU and see so many illnesses. I am so "happy" to have CF compared to what I see on a daily basis... My parents, though always worried about our CF, have a great relationship with us... we are neurologically normal... We can hold conversations, hold full time jobs, have relationships... Right now, my parents don't have to take care of us... I know one day they may need to help us more if we do worse.

Anyways, the point of my long dissertation... take the risk... there are worse things out there to worry about... You are going to be blessed with an amazing child despite the physical challenges the child may face...

I never regret the childhood that I shared with my brother and the ongoing experiences I am sharing with my sister... She's expecting (via surrogate) in december -- a baby BOY.. healthy grandchild for my parents... they never thought that was possible!


Good luck, Jenn
30 y/o female with CF, new onset CFRD

 

[PedsNP2007]

Hi,
I'm speaking from the viewpoint of a CF child with 2 siblings with CF.

After my brother with CF died about 3 years ago, my mom voiced her feelings of guilt for having not just one, but THREE kids with CF. She felt bad that she saddled us with this disease knowing what the end will be for us. (Yes, I know that we may die from something non-CF, but the odds are higher with the CF case).

I told her that even though I have CF and face unsurmountable challenges in the future, I would never give up what I have gotten to experience in my life so far. My brother, for the most part, lived all of his life to the fullest and never regretted how his life turned out. He never wanted to pursue lung transplantation; he only did it once he fell in love with his wife. Unfortunately, the transplant did not work, but the life he led was amazing as he wasn't supposed to live past 1 year old -- he made it to 30!

I work in the pediatric ICU and see so many illnesses. I am so "happy" to have CF compared to what I see on a daily basis... My parents, though always worried about our CF, have a great relationship with us... we are neurologically normal... We can hold conversations, hold full time jobs, have relationships... Right now, my parents don't have to take care of us... I know one day they may need to help us more if we do worse.

Anyways, the point of my long dissertation... take the risk... there are worse things out there to worry about... You are going to be blessed with an amazing child despite the physical challenges the child may face...

I never regret the childhood that I shared with my brother and the ongoing experiences I am sharing with my sister... She's expecting (via surrogate) in december -- a baby BOY.. healthy grandchild for my parents... they never thought that was possible!


Good luck, Jenn
30 y/o female with CF, new onset CFRD

 

[PedsNP2007]

Hi,
I'm speaking from the viewpoint of a CF child with 2 siblings with CF.

After my brother with CF died about 3 years ago, my mom voiced her feelings of guilt for having not just one, but THREE kids with CF. She felt bad that she saddled us with this disease knowing what the end will be for us. (Yes, I know that we may die from something non-CF, but the odds are higher with the CF case).

I told her that even though I have CF and face unsurmountable challenges in the future, I would never give up what I have gotten to experience in my life so far. My brother, for the most part, lived all of his life to the fullest and never regretted how his life turned out. He never wanted to pursue lung transplantation; he only did it once he fell in love with his wife. Unfortunately, the transplant did not work, but the life he led was amazing as he wasn't supposed to live past 1 year old -- he made it to 30!

I work in the pediatric ICU and see so many illnesses. I am so "happy" to have CF compared to what I see on a daily basis... My parents, though always worried about our CF, have a great relationship with us... we are neurologically normal... We can hold conversations, hold full time jobs, have relationships... Right now, my parents don't have to take care of us... I know one day they may need to help us more if we do worse.

Anyways, the point of my long dissertation... take the risk... there are worse things out there to worry about... You are going to be blessed with an amazing child despite the physical challenges the child may face...

I never regret the childhood that I shared with my brother and the ongoing experiences I am sharing with my sister... She's expecting (via surrogate) in december -- a baby BOY.. healthy grandchild for my parents... they never thought that was possible!


Good luck, Jenn
30 y/o female with CF, new onset CFRD

 

[PedsNP2007]

Hi,
<br />I'm speaking from the viewpoint of a CF child with 2 siblings with CF.
<br />
<br />After my brother with CF died about 3 years ago, my mom voiced her feelings of guilt for having not just one, but THREE kids with CF. She felt bad that she saddled us with this disease knowing what the end will be for us. (Yes, I know that we may die from something non-CF, but the odds are higher with the CF case).
<br />
<br />I told her that even though I have CF and face unsurmountable challenges in the future, I would never give up what I have gotten to experience in my life so far. My brother, for the most part, lived all of his life to the fullest and never regretted how his life turned out. He never wanted to pursue lung transplantation; he only did it once he fell in love with his wife. Unfortunately, the transplant did not work, but the life he led was amazing as he wasn't supposed to live past 1 year old -- he made it to 30!
<br />
<br />I work in the pediatric ICU and see so many illnesses. I am so "happy" to have CF compared to what I see on a daily basis... My parents, though always worried about our CF, have a great relationship with us... we are neurologically normal... We can hold conversations, hold full time jobs, have relationships... Right now, my parents don't have to take care of us... I know one day they may need to help us more if we do worse.
<br />
<br />Anyways, the point of my long dissertation... take the risk... there are worse things out there to worry about... You are going to be blessed with an amazing child despite the physical challenges the child may face...
<br />
<br />I never regret the childhood that I shared with my brother and the ongoing experiences I am sharing with my sister... She's expecting (via surrogate) in december -- a baby BOY.. healthy grandchild for my parents... they never thought that was possible!
<br />
<br />
<br />Good luck, Jenn
<br />30 y/o female with CF, new onset CFRD

 

[Chilemom]

jenn
thank you very much. Now i am pregnant, expecting my second child, the first one has cf, and even thou i am so happy, and i think i won the first battle to this disseas (my dream of a big family) i am in the deep a bit worry.

Have a second child is a really personal decision, in my case God took my decision (even thou i wanted so much). I try not to think much in the future and live my day to day.
The only think i can tell you is that time help us a lot to clear our mind. Give time to time.

 

[Chilemom]

jenn
thank you very much. Now i am pregnant, expecting my second child, the first one has cf, and even thou i am so happy, and i think i won the first battle to this disseas (my dream of a big family) i am in the deep a bit worry.

Have a second child is a really personal decision, in my case God took my decision (even thou i wanted so much). I try not to think much in the future and live my day to day.
The only think i can tell you is that time help us a lot to clear our mind. Give time to time.

 

[Chilemom]

jenn
thank you very much. Now i am pregnant, expecting my second child, the first one has cf, and even thou i am so happy, and i think i won the first battle to this disseas (my dream of a big family) i am in the deep a bit worry.

Have a second child is a really personal decision, in my case God took my decision (even thou i wanted so much). I try not to think much in the future and live my day to day.
The only think i can tell you is that time help us a lot to clear our mind. Give time to time.

 

[Chilemom]

jenn
thank you very much. Now i am pregnant, expecting my second child, the first one has cf, and even thou i am so happy, and i think i won the first battle to this disseas (my dream of a big family) i am in the deep a bit worry.

Have a second child is a really personal decision, in my case God took my decision (even thou i wanted so much). I try not to think much in the future and live my day to day.
The only think i can tell you is that time help us a lot to clear our mind. Give time to time.

 

[Chilemom]

jenn
<br />thank you very much. Now i am pregnant, expecting my second child, the first one has cf, and even thou i am so happy, and i think i won the first battle to this disseas (my dream of a big family) i am in the deep a bit worry.
<br />
<br />Have a second child is a really personal decision, in my case God took my decision (even thou i wanted so much). I try not to think much in the future and live my day to day.
<br />The only think i can tell you is that time help us a lot to clear our mind. Give time to time.
<br />
<br />
<br />

 

[Ratatosk]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>shazie81</b></i>

My husband and I have a 5 month old boy with CF. I knew I always wanted more then one baby but now knowing that my husband and myself have the CF gene I am afraid to have another with the chance of them having CF. Any help on what to do or think.</end quote></div>

With the odds -- 1 in 4 chance, one thing you and your husband need to think about is will you be able to care for two children wcf? If not then there are other options. I do know there are people who've gotten the PGD covered by there insurance. Mainly an appeal process citing that it's more costly to raise a child wcf than costs associated with the preimplantation diagnosis and IVG.

It's not an easy decision. We waited until we were older to start a family and intended to have 2 kids. And the CF diagnosis was a BIG surprise. We decided after much soul searching that we'd rather focus our time, energy & money on the child we had rather than throwing money at trying to have another child w/out cf. Maybe if we were younger...

 

[Ratatosk]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>shazie81</b></i>

My husband and I have a 5 month old boy with CF. I knew I always wanted more then one baby but now knowing that my husband and myself have the CF gene I am afraid to have another with the chance of them having CF. Any help on what to do or think.</end quote></div>

With the odds -- 1 in 4 chance, one thing you and your husband need to think about is will you be able to care for two children wcf? If not then there are other options. I do know there are people who've gotten the PGD covered by there insurance. Mainly an appeal process citing that it's more costly to raise a child wcf than costs associated with the preimplantation diagnosis and IVG.

It's not an easy decision. We waited until we were older to start a family and intended to have 2 kids. And the CF diagnosis was a BIG surprise. We decided after much soul searching that we'd rather focus our time, energy & money on the child we had rather than throwing money at trying to have another child w/out cf. Maybe if we were younger...

 

[Ratatosk]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>shazie81</b></i>

My husband and I have a 5 month old boy with CF. I knew I always wanted more then one baby but now knowing that my husband and myself have the CF gene I am afraid to have another with the chance of them having CF. Any help on what to do or think.</end quote></div>

With the odds -- 1 in 4 chance, one thing you and your husband need to think about is will you be able to care for two children wcf? If not then there are other options. I do know there are people who've gotten the PGD covered by there insurance. Mainly an appeal process citing that it's more costly to raise a child wcf than costs associated with the preimplantation diagnosis and IVG.

It's not an easy decision. We waited until we were older to start a family and intended to have 2 kids. And the CF diagnosis was a BIG surprise. We decided after much soul searching that we'd rather focus our time, energy & money on the child we had rather than throwing money at trying to have another child w/out cf. Maybe if we were younger...

 

[Ratatosk]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>shazie81</b></i>

My husband and I have a 5 month old boy with CF. I knew I always wanted more then one baby but now knowing that my husband and myself have the CF gene I am afraid to have another with the chance of them having CF. Any help on what to do or think.</end quote>

With the odds -- 1 in 4 chance, one thing you and your husband need to think about is will you be able to care for two children wcf? If not then there are other options. I do know there are people who've gotten the PGD covered by there insurance. Mainly an appeal process citing that it's more costly to raise a child wcf than costs associated with the preimplantation diagnosis and IVG.

It's not an easy decision. We waited until we were older to start a family and intended to have 2 kids. And the CF diagnosis was a BIG surprise. We decided after much soul searching that we'd rather focus our time, energy & money on the child we had rather than throwing money at trying to have another child w/out cf. Maybe if we were younger...

 

[Ratatosk]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>shazie81</b></i>
<br />
<br />My husband and I have a 5 month old boy with CF. I knew I always wanted more then one baby but now knowing that my husband and myself have the CF gene I am afraid to have another with the chance of them having CF. Any help on what to do or think.</end quote>
<br />
<br />With the odds -- 1 in 4 chance, one thing you and your husband need to think about is will you be able to care for two children wcf? If not then there are other options. I do know there are people who've gotten the PGD covered by there insurance. Mainly an appeal process citing that it's more costly to raise a child wcf than costs associated with the preimplantation diagnosis and IVG.
<br />
<br />It's not an easy decision. We waited until we were older to start a family and intended to have 2 kids. And the CF diagnosis was a BIG surprise. We decided after much soul searching that we'd rather focus our time, energy & money on the child we had rather than throwing money at trying to have another child w/out cf. Maybe if we were younger...