Severe pacreatic insufficiency

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shallowwaters

New member
have have ddf508, i am borderline cfrd. it really only acts up when i am sick. i am pi. i wasnt diagnosed till i was five so my first five years of life were pretty miserable as far as the bathroom goes lol. i recently was only taking two MT18s for a meal and just recently increased to 3 MT18s for a meal and sometimes 4 depending on what i am eating. so i guess it just depends on the person. but i have been told i was borderline cfrd for the past 5 yrs or more. so who knows if it will ever be completely cfrd. if and when it happens oh well i am learning its common and not that big of a deal compared to some of the other things cf can bring on .
 
S

shallowwaters

New member
have have ddf508, i am borderline cfrd. it really only acts up when i am sick. i am pi. i wasnt diagnosed till i was five so my first five years of life were pretty miserable as far as the bathroom goes lol. i recently was only taking two MT18s for a meal and just recently increased to 3 MT18s for a meal and sometimes 4 depending on what i am eating. so i guess it just depends on the person. but i have been told i was borderline cfrd for the past 5 yrs or more. so who knows if it will ever be completely cfrd. if and when it happens oh well i am learning its common and not that big of a deal compared to some of the other things cf can bring on .
 
S

shallowwaters

New member
have have ddf508, i am borderline cfrd. it really only acts up when i am sick. i am pi. i wasnt diagnosed till i was five so my first five years of life were pretty miserable as far as the bathroom goes lol. i recently was only taking two MT18s for a meal and just recently increased to 3 MT18s for a meal and sometimes 4 depending on what i am eating. so i guess it just depends on the person. but i have been told i was borderline cfrd for the past 5 yrs or more. so who knows if it will ever be completely cfrd. if and when it happens oh well i am learning its common and not that big of a deal compared to some of the other things cf can bring on .
 
S

shallowwaters

New member
have have ddf508, i am borderline cfrd. it really only acts up when i am sick. i am pi. i wasnt diagnosed till i was five so my first five years of life were pretty miserable as far as the bathroom goes lol. i recently was only taking two MT18s for a meal and just recently increased to 3 MT18s for a meal and sometimes 4 depending on what i am eating. so i guess it just depends on the person. but i have been told i was borderline cfrd for the past 5 yrs or more. so who knows if it will ever be completely cfrd. if and when it happens oh well i am learning its common and not that big of a deal compared to some of the other things cf can bring on .
 
S

shallowwaters

New member
have have ddf508, i am borderline cfrd. it really only acts up when i am sick. i am pi. i wasnt diagnosed till i was five so my first five years of life were pretty miserable as far as the bathroom goes lol. i recently was only taking two MT18s for a meal and just recently increased to 3 MT18s for a meal and sometimes 4 depending on what i am eating. so i guess it just depends on the person. but i have been told i was borderline cfrd for the past 5 yrs or more. so who knows if it will ever be completely cfrd. if and when it happens oh well i am learning its common and not that big of a deal compared to some of the other things cf can bring on .
 
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PedsNP2007

New member
Re CFRD:

You shouldn't have a straight carb meal, but balance it with fats and proteins as that helps with overall glucose control (along with insulin, if needed).

You should NEVER limit carbs. If that is all your child will eat at a meal, you make adjustments to cover that carb intake. CF people with diabetes have a high caloric need and are never restricted to limit carbs nor calories. You just have to watch your sugars with a high carb intake -- if it's high, then your physician will make a decision to initiate carb counting with an insulin amount to give. If you are already on insulin, the physician will just have the pt increase the insulin based on carb intake.

In a CF world where good weight is shown to be a good effect on lung function, one would encourage as much as one wants to eat, just adjusting insulin (or initiating insulin) based on the intake.

Hope that helps.

Jenn
30 year old cf with recent dx of cfrd
 
P

PedsNP2007

New member
Re CFRD:

You shouldn't have a straight carb meal, but balance it with fats and proteins as that helps with overall glucose control (along with insulin, if needed).

You should NEVER limit carbs. If that is all your child will eat at a meal, you make adjustments to cover that carb intake. CF people with diabetes have a high caloric need and are never restricted to limit carbs nor calories. You just have to watch your sugars with a high carb intake -- if it's high, then your physician will make a decision to initiate carb counting with an insulin amount to give. If you are already on insulin, the physician will just have the pt increase the insulin based on carb intake.

In a CF world where good weight is shown to be a good effect on lung function, one would encourage as much as one wants to eat, just adjusting insulin (or initiating insulin) based on the intake.

Hope that helps.

Jenn
30 year old cf with recent dx of cfrd
 
P

PedsNP2007

New member
Re CFRD:

You shouldn't have a straight carb meal, but balance it with fats and proteins as that helps with overall glucose control (along with insulin, if needed).

You should NEVER limit carbs. If that is all your child will eat at a meal, you make adjustments to cover that carb intake. CF people with diabetes have a high caloric need and are never restricted to limit carbs nor calories. You just have to watch your sugars with a high carb intake -- if it's high, then your physician will make a decision to initiate carb counting with an insulin amount to give. If you are already on insulin, the physician will just have the pt increase the insulin based on carb intake.

In a CF world where good weight is shown to be a good effect on lung function, one would encourage as much as one wants to eat, just adjusting insulin (or initiating insulin) based on the intake.

Hope that helps.

Jenn
30 year old cf with recent dx of cfrd
 
P

PedsNP2007

New member
Re CFRD:

You shouldn't have a straight carb meal, but balance it with fats and proteins as that helps with overall glucose control (along with insulin, if needed).

You should NEVER limit carbs. If that is all your child will eat at a meal, you make adjustments to cover that carb intake. CF people with diabetes have a high caloric need and are never restricted to limit carbs nor calories. You just have to watch your sugars with a high carb intake -- if it's high, then your physician will make a decision to initiate carb counting with an insulin amount to give. If you are already on insulin, the physician will just have the pt increase the insulin based on carb intake.

In a CF world where good weight is shown to be a good effect on lung function, one would encourage as much as one wants to eat, just adjusting insulin (or initiating insulin) based on the intake.

Hope that helps.

Jenn
30 year old cf with recent dx of cfrd
 
P

PedsNP2007

New member
Re CFRD:
<br />
<br />You shouldn't have a straight carb meal, but balance it with fats and proteins as that helps with overall glucose control (along with insulin, if needed).
<br />
<br />You should NEVER limit carbs. If that is all your child will eat at a meal, you make adjustments to cover that carb intake. CF people with diabetes have a high caloric need and are never restricted to limit carbs nor calories. You just have to watch your sugars with a high carb intake -- if it's high, then your physician will make a decision to initiate carb counting with an insulin amount to give. If you are already on insulin, the physician will just have the pt increase the insulin based on carb intake.
<br />
<br />In a CF world where good weight is shown to be a good effect on lung function, one would encourage as much as one wants to eat, just adjusting insulin (or initiating insulin) based on the intake.
<br />
<br />Hope that helps.
<br />
<br />Jenn
<br />30 year old cf with recent dx of cfrd
 
V

valigirl21

Guest
My son is pancreatic insufficient, and our doctor told us it makes it more LIKELY that he will be diabetic, but its not an absolute. It's like if you have a family history of cancer you're more likely than the average person to develope cancer, but its not a certainty. Keep hope that your child may not reguardless of her PI.
 
V

valigirl21

Guest
My son is pancreatic insufficient, and our doctor told us it makes it more LIKELY that he will be diabetic, but its not an absolute. It's like if you have a family history of cancer you're more likely than the average person to develope cancer, but its not a certainty. Keep hope that your child may not reguardless of her PI.
 
V

valigirl21

Guest
My son is pancreatic insufficient, and our doctor told us it makes it more LIKELY that he will be diabetic, but its not an absolute. It's like if you have a family history of cancer you're more likely than the average person to develope cancer, but its not a certainty. Keep hope that your child may not reguardless of her PI.
 
V

valigirl21

Guest
My son is pancreatic insufficient, and our doctor told us it makes it more LIKELY that he will be diabetic, but its not an absolute. It's like if you have a family history of cancer you're more likely than the average person to develope cancer, but its not a certainty. Keep hope that your child may not reguardless of her PI.
 
V

valigirl21

Guest
My son is pancreatic insufficient, and our doctor told us it makes it more LIKELY that he will be diabetic, but its not an absolute. It's like if you have a family history of cancer you're more likely than the average person to develope cancer, but its not a certainty. Keep hope that your child may not reguardless of her PI.
 
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