Sit with me

[JennifersHope]

Lisa,

The way you describe Max to me cracks me up so much... He is sounds like such a sweetheart and the fact that you adore him is so evident..

I love the cactus picture....

What joy he must bring to your life

 

[JennifersHope]

Lisa,

The way you describe Max to me cracks me up so much... He is sounds like such a sweetheart and the fact that you adore him is so evident..

I love the cactus picture....

What joy he must bring to your life

 

[JennifersHope]

Lisa,

The way you describe Max to me cracks me up so much... He is sounds like such a sweetheart and the fact that you adore him is so evident..

I love the cactus picture....

What joy he must bring to your life

 

[lightNlife]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ktsmom</b></i>

I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for those. But I don't do this very often because it just doesn't seem fair. </end quote></div>


It's hard to accommodate all the needs and treatments that go with CF. I hope that you are able to successfully incorporate all of it and find a routine that works best for your entire family. Like you said, you're all in this together.

Just a quick note, the "blow by" method of administering a neb treatment is ineffective. It doesn't get the medication into the lungs where it needs to be. It's an outdated technique that most respiratory therapists these days discourage.

Sounds like you're doing a good job so far of making a good run of it. Keep it up and remind yourself that you're giving it your all, and that's something to be proud of. You're establishing good habits and patterns with this treatment. Stay strong.

 

[lightNlife]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ktsmom</b></i>

I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for those. But I don't do this very often because it just doesn't seem fair. </end quote></div>


It's hard to accommodate all the needs and treatments that go with CF. I hope that you are able to successfully incorporate all of it and find a routine that works best for your entire family. Like you said, you're all in this together.

Just a quick note, the "blow by" method of administering a neb treatment is ineffective. It doesn't get the medication into the lungs where it needs to be. It's an outdated technique that most respiratory therapists these days discourage.

Sounds like you're doing a good job so far of making a good run of it. Keep it up and remind yourself that you're giving it your all, and that's something to be proud of. You're establishing good habits and patterns with this treatment. Stay strong.

 

[lightNlife]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ktsmom</b></i>

I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for those. But I don't do this very often because it just doesn't seem fair. </end quote></div>


It's hard to accommodate all the needs and treatments that go with CF. I hope that you are able to successfully incorporate all of it and find a routine that works best for your entire family. Like you said, you're all in this together.

Just a quick note, the "blow by" method of administering a neb treatment is ineffective. It doesn't get the medication into the lungs where it needs to be. It's an outdated technique that most respiratory therapists these days discourage.

Sounds like you're doing a good job so far of making a good run of it. Keep it up and remind yourself that you're giving it your all, and that's something to be proud of. You're establishing good habits and patterns with this treatment. Stay strong.

 

[MOME2RT]

Yes! I have heard this many a time! It is hard to sit with him on some days because I have had sooooo much going on in the house. Lately we have been remodeling the bathroom. Usually I DO sit & play PS2 with him or read to him. Lately we have been on a candyland & chutes & ladders kick! He also has enjoyed playing on the PC while doing treatments. Its good to know we are not the only ones, thanks to this forum, I have been taught ALOT about being a mommy to a CFer<img src="i/expressions/face-icon-small-smile.gif" border="0"> THANK YOU!

 

[MOME2RT]

Yes! I have heard this many a time! It is hard to sit with him on some days because I have had sooooo much going on in the house. Lately we have been remodeling the bathroom. Usually I DO sit & play PS2 with him or read to him. Lately we have been on a candyland & chutes & ladders kick! He also has enjoyed playing on the PC while doing treatments. Its good to know we are not the only ones, thanks to this forum, I have been taught ALOT about being a mommy to a CFer<img src="i/expressions/face-icon-small-smile.gif" border="0"> THANK YOU!

 

[MOME2RT]

Yes! I have heard this many a time! It is hard to sit with him on some days because I have had sooooo much going on in the house. Lately we have been remodeling the bathroom. Usually I DO sit & play PS2 with him or read to him. Lately we have been on a candyland & chutes & ladders kick! He also has enjoyed playing on the PC while doing treatments. Its good to know we are not the only ones, thanks to this forum, I have been taught ALOT about being a mommy to a CFer<img src="i/expressions/face-icon-small-smile.gif" border="0"> THANK YOU!

 

[ktsmom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ktsmom</b></i>



I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for those. But I don't do this very often because it just doesn't seem fair. </end quote></div>





It's hard to accommodate all the needs and treatments that go with CF. I hope that you are able to successfully incorporate all of it and find a routine that works best for your entire family. Like you said, you're all in this together.



Just a quick note, the "blow by" method of administering a neb treatment is ineffective. It doesn't get the medication into the lungs where it needs to be. It's an outdated technique that most respiratory therapists these days discourage.



Sounds like you're doing a good job so far of making a good run of it. Keep it up and remind yourself that you're giving it your all, and that's something to be proud of. You're establishing good habits and patterns with this treatment. Stay strong.</end quote></div>

Thanks for your input - she still uses the Bubbles the Fish mask with her neb, and we use our old Boppy pillow from when I nursed them, and with that I can actually prop the neb where the mask fits to her face. So it is as if I'm sitting there holding it up to her face. NOT that I've PRACTICED that technique or anything!!! <img src="i/expressions/face-icon-small-wink.gif" border="0"> I appreciate your words of encouragement!

 

[ktsmom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ktsmom</b></i>



I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for those. But I don't do this very often because it just doesn't seem fair. </end quote></div>





It's hard to accommodate all the needs and treatments that go with CF. I hope that you are able to successfully incorporate all of it and find a routine that works best for your entire family. Like you said, you're all in this together.



Just a quick note, the "blow by" method of administering a neb treatment is ineffective. It doesn't get the medication into the lungs where it needs to be. It's an outdated technique that most respiratory therapists these days discourage.



Sounds like you're doing a good job so far of making a good run of it. Keep it up and remind yourself that you're giving it your all, and that's something to be proud of. You're establishing good habits and patterns with this treatment. Stay strong.</end quote></div>

Thanks for your input - she still uses the Bubbles the Fish mask with her neb, and we use our old Boppy pillow from when I nursed them, and with that I can actually prop the neb where the mask fits to her face. So it is as if I'm sitting there holding it up to her face. NOT that I've PRACTICED that technique or anything!!! <img src="i/expressions/face-icon-small-wink.gif" border="0"> I appreciate your words of encouragement!

 

[ktsmom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ktsmom</b></i>



I have been known to prop the nebulizer against a pillow when she does her morning breathing treatments, because she is asleep for those. But I don't do this very often because it just doesn't seem fair. </end quote></div>





It's hard to accommodate all the needs and treatments that go with CF. I hope that you are able to successfully incorporate all of it and find a routine that works best for your entire family. Like you said, you're all in this together.



Just a quick note, the "blow by" method of administering a neb treatment is ineffective. It doesn't get the medication into the lungs where it needs to be. It's an outdated technique that most respiratory therapists these days discourage.



Sounds like you're doing a good job so far of making a good run of it. Keep it up and remind yourself that you're giving it your all, and that's something to be proud of. You're establishing good habits and patterns with this treatment. Stay strong.</end quote></div>

Thanks for your input - she still uses the Bubbles the Fish mask with her neb, and we use our old Boppy pillow from when I nursed them, and with that I can actually prop the neb where the mask fits to her face. So it is as if I'm sitting there holding it up to her face. NOT that I've PRACTICED that technique or anything!!! <img src="i/expressions/face-icon-small-wink.gif" border="0"> I appreciate your words of encouragement!

 

[Ratatosk]

I do the same thing with the tobi when DH is out of town. I'll get DS settled in after his CPT, then I'll prop up the mask, or sometimes he holds it in his sleep. Then I quickly shower, check on him. Get dressed check on him, get his clothes check on him --- probably spend twice as much time running back and forth making sure he's fine, that his mask is still on... Only do this a few times a year -- otherwise my husband and son doze while doing tobi.

 

[Ratatosk]

I do the same thing with the tobi when DH is out of town. I'll get DS settled in after his CPT, then I'll prop up the mask, or sometimes he holds it in his sleep. Then I quickly shower, check on him. Get dressed check on him, get his clothes check on him --- probably spend twice as much time running back and forth making sure he's fine, that his mask is still on... Only do this a few times a year -- otherwise my husband and son doze while doing tobi.

 

[Ratatosk]

I do the same thing with the tobi when DH is out of town. I'll get DS settled in after his CPT, then I'll prop up the mask, or sometimes he holds it in his sleep. Then I quickly shower, check on him. Get dressed check on him, get his clothes check on him --- probably spend twice as much time running back and forth making sure he's fine, that his mask is still on... Only do this a few times a year -- otherwise my husband and son doze while doing tobi.