Something Important to Say

JennifersHope

New member
I really feel strongly to say this because if you guys are like me, you have no idea how our website was created, or the amazing heart and dedication that goes into. If you are like me, you probably never thought about it to much, and just took for granted the fact that it was here, and didn't bother with the why's or the hows.

Jeanne is the founder of our website, she designed this website because she had a business partner who had CF. She got the website up and running and spent much of her own money to do so.

In recent days, because Jeanne and her staff are so dedicated to US... she went out on her own to get sponors for the website so that she can get the software that we needed to upgrade this forum.. WHY???? FOR US.

The business partner that she had that had CF has passed away. ( I don't know when) but she and her staff have continued to monitor this website, and search for help for us.

She even went to the CF conference to try to get more sponors and more information available FOR US....

If you guys are like me, then you appreciate the fact that someone, who doesn't have CF, nor does anyone in her family, would be so willing and so commited to us. I am humbled by the dedication of her family, that Jeannes daughter would run a marathon in honor of US.. not for her own children, not for anything but to help raise awareness for US...

Jeanne and I have never met yet, she was going to come see me once when I was in the hospital but she ended up getting a cold... I spoke to Melissa tonight and she is the one that told me this information. Jeanne and her staff are amazing. I am grateful to them for being so commited and so loyal and I thought you guys would be as well..

Jeanne, Thank you from the bottom of my heart for caring about us and for trying to help advance the awareness and information about CF


Jennifer
 

JennifersHope

New member
I really feel strongly to say this because if you guys are like me, you have no idea how our website was created, or the amazing heart and dedication that goes into. If you are like me, you probably never thought about it to much, and just took for granted the fact that it was here, and didn't bother with the why's or the hows.

Jeanne is the founder of our website, she designed this website because she had a business partner who had CF. She got the website up and running and spent much of her own money to do so.

In recent days, because Jeanne and her staff are so dedicated to US... she went out on her own to get sponors for the website so that she can get the software that we needed to upgrade this forum.. WHY???? FOR US.

The business partner that she had that had CF has passed away. ( I don't know when) but she and her staff have continued to monitor this website, and search for help for us.

She even went to the CF conference to try to get more sponors and more information available FOR US....

If you guys are like me, then you appreciate the fact that someone, who doesn't have CF, nor does anyone in her family, would be so willing and so commited to us. I am humbled by the dedication of her family, that Jeannes daughter would run a marathon in honor of US.. not for her own children, not for anything but to help raise awareness for US...

Jeanne and I have never met yet, she was going to come see me once when I was in the hospital but she ended up getting a cold... I spoke to Melissa tonight and she is the one that told me this information. Jeanne and her staff are amazing. I am grateful to them for being so commited and so loyal and I thought you guys would be as well..

Jeanne, Thank you from the bottom of my heart for caring about us and for trying to help advance the awareness and information about CF


Jennifer
 

JennifersHope

New member
I really feel strongly to say this because if you guys are like me, you have no idea how our website was created, or the amazing heart and dedication that goes into. If you are like me, you probably never thought about it to much, and just took for granted the fact that it was here, and didn't bother with the why's or the hows.

Jeanne is the founder of our website, she designed this website because she had a business partner who had CF. She got the website up and running and spent much of her own money to do so.

In recent days, because Jeanne and her staff are so dedicated to US... she went out on her own to get sponors for the website so that she can get the software that we needed to upgrade this forum.. WHY???? FOR US.

The business partner that she had that had CF has passed away. ( I don't know when) but she and her staff have continued to monitor this website, and search for help for us.

She even went to the CF conference to try to get more sponors and more information available FOR US....

If you guys are like me, then you appreciate the fact that someone, who doesn't have CF, nor does anyone in her family, would be so willing and so commited to us. I am humbled by the dedication of her family, that Jeannes daughter would run a marathon in honor of US.. not for her own children, not for anything but to help raise awareness for US...

Jeanne and I have never met yet, she was going to come see me once when I was in the hospital but she ended up getting a cold... I spoke to Melissa tonight and she is the one that told me this information. Jeanne and her staff are amazing. I am grateful to them for being so commited and so loyal and I thought you guys would be as well..

Jeanne, Thank you from the bottom of my heart for caring about us and for trying to help advance the awareness and information about CF


Jennifer
 
2

2perfectboys

Guest
YES THANK YOU SO MUCH. I have not been on this site long, but in the short time I have learned a lot. I feel a connection as before the only ones I could talk to was busy doctors. THANKS AGAIN. you have earned your wings.
 
2

2perfectboys

Guest
YES THANK YOU SO MUCH. I have not been on this site long, but in the short time I have learned a lot. I feel a connection as before the only ones I could talk to was busy doctors. THANKS AGAIN. you have earned your wings.
 
2

2perfectboys

Guest
YES THANK YOU SO MUCH. I have not been on this site long, but in the short time I have learned a lot. I feel a connection as before the only ones I could talk to was busy doctors. THANKS AGAIN. you have earned your wings.
 

NoExcuses

New member
wow, thank u for posting this!

i had no idea!

thank you jeanne!!!!!!!!!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

NoExcuses

New member
wow, thank u for posting this!

i had no idea!

thank you jeanne!!!!!!!!!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

NoExcuses

New member
wow, thank u for posting this!

i had no idea!

thank you jeanne!!!!!!!!!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

amber682

New member
Thank you!!! Since I stumbled upon this site less than 6 months ago I have learned so much, and am able to talk with people who truly understand what I'm going through. I have laughed til my stomach hurt, cried til my head hurt, anxiously worried about people I've never met, and praised the Lord for helping people I barely know. Now that I've found you guys, I don't know what I'd do without you all. So thank you again for making this all possible!
 

amber682

New member
Thank you!!! Since I stumbled upon this site less than 6 months ago I have learned so much, and am able to talk with people who truly understand what I'm going through. I have laughed til my stomach hurt, cried til my head hurt, anxiously worried about people I've never met, and praised the Lord for helping people I barely know. Now that I've found you guys, I don't know what I'd do without you all. So thank you again for making this all possible!
 
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