S
sdelorenzo
Guest
I was just reading a number of posts from parents saying staph is more preferable to pseudomonas. I have heard that through the years. My daughter is 7 and has "only" cultured staph since birth. My son is 5 and has cultured pseudomonas for 4 years on and off and staph for 2 years.
We have taken our kids to a few clinics to get second opinions, Denver and Minnesota. This summer the Denver clinic did cat scans on my kids for the first time. My son's scan was excellent. My daughter's surprisingly was not good. It showed lots of issues - gas trappings, bronchiectasis. Basically, irreversible damage according to the Denver clinic that could have been prevented with regular treatment of bactrim. We were told 4 yrs ago at the MN clinic that she should be treated for staph to prevent damage, but my daughter regular cf dr disagreed. He said the same thing - staph keeps away pseudomonas.
I also spoke to another cf dr at a clinic in Syracuse, NY this summer. He said that they regularly treat their cf patients who culture staph with a high dose of bactrim. They feel that staph is becoming more aggressive. It appears to be the case for my family. My son has been on Tobi for pseudomonas and damage has not taken place. My daughter is only treated for her staph when she is coughing and has an infection (a few times a year). So 3/4 clinics I have dealt with disagree that staph is good. Just wanted to pass this along. Wish I had listened to MN years ago and we might have prevented some of my daughter's lung damage.
Sharon
We have taken our kids to a few clinics to get second opinions, Denver and Minnesota. This summer the Denver clinic did cat scans on my kids for the first time. My son's scan was excellent. My daughter's surprisingly was not good. It showed lots of issues - gas trappings, bronchiectasis. Basically, irreversible damage according to the Denver clinic that could have been prevented with regular treatment of bactrim. We were told 4 yrs ago at the MN clinic that she should be treated for staph to prevent damage, but my daughter regular cf dr disagreed. He said the same thing - staph keeps away pseudomonas.
I also spoke to another cf dr at a clinic in Syracuse, NY this summer. He said that they regularly treat their cf patients who culture staph with a high dose of bactrim. They feel that staph is becoming more aggressive. It appears to be the case for my family. My son has been on Tobi for pseudomonas and damage has not taken place. My daughter is only treated for her staph when she is coughing and has an infection (a few times a year). So 3/4 clinics I have dealt with disagree that staph is good. Just wanted to pass this along. Wish I had listened to MN years ago and we might have prevented some of my daughter's lung damage.
Sharon