sweaty baby

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>newmom</b></i>

Thanks for everyones input. This is all new to me, what is aspirating? He is on zantac for reflux, which I was told was unrelated to CF, but everything I've been reading suggests it is a CF thing. I have clinic next week and am wondering what I should be asking?</end quote></div>

you can go to dictionary.com to look up aspiration but it's basically breathing in liquid or solids (as opposed to air).

so in this case it would be gastric juice going into the lungs.

in terms of your clinic visit, i would:


1. smack your doctor for telling you that reflux isn't a CF issue.

2. consider another CF clinic if in fact your current CF clinic isn't aware that reflux is a CF issue. that would scare me to death if i were you and I'd wonder what else theyew re missing

3. as for a gastro referral. the gastro will know what to do in terms of testing, medications, etc. pulmo's aren't as expert as gastro's in this area - so don't let your pulmo tell you he/she knows what's best.



take care

 

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>newmom</b></i>

Thanks for everyones input. This is all new to me, what is aspirating? He is on zantac for reflux, which I was told was unrelated to CF, but everything I've been reading suggests it is a CF thing. I have clinic next week and am wondering what I should be asking?</end quote></div>

you can go to dictionary.com to look up aspiration but it's basically breathing in liquid or solids (as opposed to air).

so in this case it would be gastric juice going into the lungs.

in terms of your clinic visit, i would:


1. smack your doctor for telling you that reflux isn't a CF issue.

2. consider another CF clinic if in fact your current CF clinic isn't aware that reflux is a CF issue. that would scare me to death if i were you and I'd wonder what else theyew re missing

3. as for a gastro referral. the gastro will know what to do in terms of testing, medications, etc. pulmo's aren't as expert as gastro's in this area - so don't let your pulmo tell you he/she knows what's best.



take care

 

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>newmom</b></i>

Thanks for everyones input. This is all new to me, what is aspirating? He is on zantac for reflux, which I was told was unrelated to CF, but everything I've been reading suggests it is a CF thing. I have clinic next week and am wondering what I should be asking?</end quote></div>

you can go to dictionary.com to look up aspiration but it's basically breathing in liquid or solids (as opposed to air).

so in this case it would be gastric juice going into the lungs.

in terms of your clinic visit, i would:


1. smack your doctor for telling you that reflux isn't a CF issue.

2. consider another CF clinic if in fact your current CF clinic isn't aware that reflux is a CF issue. that would scare me to death if i were you and I'd wonder what else theyew re missing

3. as for a gastro referral. the gastro will know what to do in terms of testing, medications, etc. pulmo's aren't as expert as gastro's in this area - so don't let your pulmo tell you he/she knows what's best.



take care

 

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>newmom</b></i>

Thanks for everyones input. This is all new to me, what is aspirating? He is on zantac for reflux, which I was told was unrelated to CF, but everything I've been reading suggests it is a CF thing. I have clinic next week and am wondering what I should be asking?</end quote>

you can go to dictionary.com to look up aspiration but it's basically breathing in liquid or solids (as opposed to air).

so in this case it would be gastric juice going into the lungs.

in terms of your clinic visit, i would:


1. smack your doctor for telling you that reflux isn't a CF issue.

2. consider another CF clinic if in fact your current CF clinic isn't aware that reflux is a CF issue. that would scare me to death if i were you and I'd wonder what else theyew re missing

3. as for a gastro referral. the gastro will know what to do in terms of testing, medications, etc. pulmo's aren't as expert as gastro's in this area - so don't let your pulmo tell you he/she knows what's best.



take care

 

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>newmom</b></i>
<br />
<br />Thanks for everyones input. This is all new to me, what is aspirating? He is on zantac for reflux, which I was told was unrelated to CF, but everything I've been reading suggests it is a CF thing. I have clinic next week and am wondering what I should be asking?</end quote>
<br />
<br />you can go to dictionary.com to look up aspiration but it's basically breathing in liquid or solids (as opposed to air).
<br />
<br />so in this case it would be gastric juice going into the lungs.
<br />
<br />in terms of your clinic visit, i would:
<br />
<br />
<br />1. smack your doctor for telling you that reflux isn't a CF issue.
<br />
<br />2. consider another CF clinic if in fact your current CF clinic isn't aware that reflux is a CF issue. that would scare me to death if i were you and I'd wonder what else theyew re missing
<br />
<br />3. as for a gastro referral. the gastro will know what to do in terms of testing, medications, etc. pulmo's aren't as expert as gastro's in this area - so don't let your pulmo tell you he/she knows what's best.
<br />
<br />
<br />
<br />take care

 

[MaksNana]

This is for "saveferris2009"....
I just have to say ,you crack me up....Sorry, I couldn't help but laugh at "smacking the doctor",,,I wish I could borrow you to go for a few of Makailyn's appt. I've noticed I can count on you to get right to the problem,,, and give great resource's...
I wish you were in Texas, to whip some of these ,,,doc's that have thier head up thier butts,,, and treat your little one like a piece of branded cattle !!!!I'm not saying all are this way ,,, but there are damn sure to many of them here!!!<img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[MaksNana]

This is for "saveferris2009"....
I just have to say ,you crack me up....Sorry, I couldn't help but laugh at "smacking the doctor",,,I wish I could borrow you to go for a few of Makailyn's appt. I've noticed I can count on you to get right to the problem,,, and give great resource's...
I wish you were in Texas, to whip some of these ,,,doc's that have thier head up thier butts,,, and treat your little one like a piece of branded cattle !!!!I'm not saying all are this way ,,, but there are damn sure to many of them here!!!<img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[MaksNana]

This is for "saveferris2009"....
I just have to say ,you crack me up....Sorry, I couldn't help but laugh at "smacking the doctor",,,I wish I could borrow you to go for a few of Makailyn's appt. I've noticed I can count on you to get right to the problem,,, and give great resource's...
I wish you were in Texas, to whip some of these ,,,doc's that have thier head up thier butts,,, and treat your little one like a piece of branded cattle !!!!I'm not saying all are this way ,,, but there are damn sure to many of them here!!!<img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[MaksNana]

This is for "saveferris2009"....
I just have to say ,you crack me up....Sorry, I couldn't help but laugh at "smacking the doctor",,,I wish I could borrow you to go for a few of Makailyn's appt. I've noticed I can count on you to get right to the problem,,, and give great resource's...
I wish you were in Texas, to whip some of these ,,,doc's that have thier head up thier butts,,, and treat your little one like a piece of branded cattle !!!!I'm not saying all are this way ,,, but there are damn sure to many of them here!!!<img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[MaksNana]

This is for "saveferris2009"....
<br />I just have to say ,you crack me up....Sorry, I couldn't help but laugh at "smacking the doctor",,,I wish I could borrow you to go for a few of Makailyn's appt. I've noticed I can count on you to get right to the problem,,, and give great resource's...
<br />I wish you were in Texas, to whip some of these ,,,doc's that have thier head up thier butts,,, and treat your little one like a piece of branded cattle !!!!I'm not saying all are this way ,,, but there are damn sure to many of them here!!!<img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[saveferris2009]

<img src="i/expressions/face-icon-small-smile.gif" border="0">

don't worry, i'm there with you in spirit <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[saveferris2009]

<img src="i/expressions/face-icon-small-smile.gif" border="0">

don't worry, i'm there with you in spirit <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[saveferris2009]

<img src="i/expressions/face-icon-small-smile.gif" border="0">

don't worry, i'm there with you in spirit <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[saveferris2009]

<img src="i/expressions/face-icon-small-smile.gif" border="0">

don't worry, i'm there with you in spirit <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[saveferris2009]

<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />don't worry, i'm there with you in spirit <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[sdelorenzo]

My daughter was aspirating during the night and we had no idea. She was getting a g-tube so we did GERD testing just to be sure. Turns out she had the worst case of reflux her GI dr had seen. She had no symptoms other than she did cough at night some. She got a Nissan Fundoplication two years ago. Her CAT scan last summer shows lots of damage unfortunately of her lungs. We are assuming it is from aspiration since she hasn't had many lung issues. She has only cultured staph. Maybe that has caused it?? We just don't know. By the way, she doesn't sweat much and never has. My son on the other hand has always sweat a lot even at night.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf

 

[sdelorenzo]

My daughter was aspirating during the night and we had no idea. She was getting a g-tube so we did GERD testing just to be sure. Turns out she had the worst case of reflux her GI dr had seen. She had no symptoms other than she did cough at night some. She got a Nissan Fundoplication two years ago. Her CAT scan last summer shows lots of damage unfortunately of her lungs. We are assuming it is from aspiration since she hasn't had many lung issues. She has only cultured staph. Maybe that has caused it?? We just don't know. By the way, she doesn't sweat much and never has. My son on the other hand has always sweat a lot even at night.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf

 

[sdelorenzo]

My daughter was aspirating during the night and we had no idea. She was getting a g-tube so we did GERD testing just to be sure. Turns out she had the worst case of reflux her GI dr had seen. She had no symptoms other than she did cough at night some. She got a Nissan Fundoplication two years ago. Her CAT scan last summer shows lots of damage unfortunately of her lungs. We are assuming it is from aspiration since she hasn't had many lung issues. She has only cultured staph. Maybe that has caused it?? We just don't know. By the way, she doesn't sweat much and never has. My son on the other hand has always sweat a lot even at night.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf

 

[sdelorenzo]

My daughter was aspirating during the night and we had no idea. She was getting a g-tube so we did GERD testing just to be sure. Turns out she had the worst case of reflux her GI dr had seen. She had no symptoms other than she did cough at night some. She got a Nissan Fundoplication two years ago. Her CAT scan last summer shows lots of damage unfortunately of her lungs. We are assuming it is from aspiration since she hasn't had many lung issues. She has only cultured staph. Maybe that has caused it?? We just don't know. By the way, she doesn't sweat much and never has. My son on the other hand has always sweat a lot even at night.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf

 

[sdelorenzo]

My daughter was aspirating during the night and we had no idea. She was getting a g-tube so we did GERD testing just to be sure. Turns out she had the worst case of reflux her GI dr had seen. She had no symptoms other than she did cough at night some. She got a Nissan Fundoplication two years ago. Her CAT scan last summer shows lots of damage unfortunately of her lungs. We are assuming it is from aspiration since she hasn't had many lung issues. She has only cultured staph. Maybe that has caused it?? We just don't know. By the way, she doesn't sweat much and never has. My son on the other hand has always sweat a lot even at night.
<br />Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf
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